phenomenological

现象学
  • 文章类型: Journal Article
    背景:远程医疗具有消除地理和时间障碍的潜力。远程医疗是否以及如何增加服务不足人群的医疗保健机会仍然是一个悬而未决的问题。为了解决这个问题,我们整合了促进的远程医疗相遇,以管理丙型肝炎病毒(HCV),阿片类药物使用障碍(OUD)人群中非常普遍的疾病,阿片类药物治疗计划(OTP)。在纽约州,OTP是美沙酮配药中心,以患者为中心,OUD的循证治疗。我们调查了在这些设置中促进远程医疗与OTP工作流程的整合和影响。
    目的:本研究旨在了解OTP工作人员将便利的远程医疗HCV治疗整合到OTP中的经验,包括最佳实践和经验教训。
    方法:我们对45名OTP工作人员进行了半结构化访谈(13名临床,12行政、6位医生,和14名支持人员)在实施便利的HCV管理远程医疗后至少一年。我们使用诠释学现象学分析来了解OTP员工的经验。
    结果:我们确定了4个总体主题,说明了将便利的远程医疗HCV护理成功整合到OTP中。首先,整合需要对挑战的理解,目标,和OTP的值。随着OTP工作人员了解到新的,高效的HCV疗法,他们认为HCV治愈对患者来说是“胜利”,并对消除高度流行的传染病的潜力感到兴奋。第二,将便利的远程医疗纳入OTP可促进社会支持,并加强患者与OTP工作人员之间的关系.OTP工作人员赞赏在远程医疗接触期间“关注”患者以评估肢体语言的能力,OUD管理的必要组成部分。第三,参与者将高水平的跨专业合作描述为一个护理团队,其中包括为改善患者护理的共同目标而工作的学科之间的界限模糊.研究案例管理人员被整合到OTP工作流程中,并建立了沟通渠道以改善患者预后。第四,管理人员赞同促进远程医疗的持续和未来扩展,以解决合并症。
    结论:OTP工作人员非常热衷于为服务不足的人群提供便利的远程医疗服务。他们描述了与相关综合框架相当的高水平协作和整合。当位于OTP内时,便利的远程医疗是远程医疗的高价值应用,为高质量医疗保健所必需的服务不足的人群提供支持。这些经验支持在可比环境中维持和扩展促进远程医疗,并评估其解决其他合并症的能力。
    背景:ClinicalTrials.govNCT02933970;https://clinicaltrials.gov/study/NCT02933970。
    BACKGROUND: Telemedicine has the potential to remove geographic and temporal obstacles to health care access. Whether and how telemedicine can increase health care access for underserved populations remains an open question. To address this issue, we integrated facilitated telemedicine encounters for the management of hepatitis C virus (HCV), a highly prevalent condition among people with opioid use disorder (OUD), into opioid treatment programs (OTPs). In New York State, OTPs are methadone-dispensing centers that provide patient-centered, evidence-based treatment for OUD. We investigated the integration and impact of facilitated telemedicine into OTP workflows in these settings.
    OBJECTIVE: This study aims to understand OTP staff experiences with integrating facilitated telemedicine for HCV treatment into OTPs, including best practices and lessons learned.
    METHODS: We conducted semistructured interviews with 45 OTP staff members (13 clinical, 12 administrative, 6 physicians, and 14 support staff members) at least one year after the implementation of facilitated telemedicine for HCV management. We used hermeneutic phenomenological analysis to understand OTP staff experiences.
    RESULTS: We identified 4 overarching themes illustrating the successful integration of facilitated telemedicine for HCV care into OTPs. First, integration requires an understanding of the challenges, goals, and values of the OTP. As OTP staff learned about new, highly effective HCV therapies, they valued an HCV cure as a \"win\" for their patients and were excited about the potential to eliminate a highly prevalent infectious disease. Second, the integration of facilitated telemedicine into OTPs fosters social support and reinforces relationships between patients and OTP staff. OTP staff appreciated the ability to have \"eyes on\" patients during telemedicine encounters to assess body language, a necessary component of OUD management. Third, participants described high levels of interprofessional collaboration as a care team that included the blurring of lines between disciplines working toward a common goal of improving patient care. Study case managers were integrated into OTP workflows and established communication channels to improve patient outcomes. Fourth, administrators endorsed the sustained and future expansion of facilitated telemedicine to address comorbidities.
    CONCLUSIONS: OTP staff were highly enthusiastic about facilitated telemedicine for an underserved population. They described high levels of collaboration and integration comparable to relevant integrative frameworks. When situated within OTPs, facilitated telemedicine is a high-value application of telemedicine that provides support for underserved populations necessary for high-quality health care. These experiences support sustaining and scaling facilitated telemedicine in comparable settings and evaluating its ability to address other comorbidities.
    BACKGROUND: ClinicalTrials.gov NCT02933970; https://clinicaltrials.gov/study/NCT02933970.
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  • 文章类型: Journal Article
    背景:在中低收入国家被诊断患有血液系统恶性肿瘤的患者会承受巨大的生理和心理压力。尽管如此,只有16%的病人在终末阶段得到适当的照顾。因此,了解这一群体的独特经历至关重要。
    目的:通过探索成人晚期血液系统恶性肿瘤患者的观点,更好地了解他们的需求和经历。
    方法:采用定性解释设计,使用现象学方法收集和分析数据。该研究涉及对10名年龄在49至65岁之间的参与者进行深入访谈,利用半结构化方法。
    结果:两个主要的主题从参与者的经历中出现:“疼痛,苦难,和痛苦“和”精神应对。“第一个主题包括身体和情感上的痛苦,痛苦,和痛苦,而第二个主题则集中在参与者的精神应对机制上。这些应对机制包括在宗教活动中寻求安慰,依靠家人和朋友的精神支持,并在他们的信仰和信仰中找到慰藉。
    结论:处于疾病终末期的血液系统恶性肿瘤患者会出现严重的疼痛,相当大的身体和心理痛苦,和精神上的痛苦。虽然他们需要支持来应对他们的日常斗争,他们的经历经常被忽视,导致失望和失去尊严。患者主要依靠他们的灵性来应付他们的情况。医疗保健提供者必须承认这些患者的需求,并提供更全面和有效的护理。
    BACKGROUND: Patients diagnosed with hematological malignancies residing in low-middle-income countries undergo significant physical and psychological stressors. Despite this, only 16% of them receive proper care during the terminal stages. It is therefore crucial to gain insight into the unique experiences of this population.
    OBJECTIVE: To have a better understanding of the needs and experiences of adult patients with advanced hematological malignancy by exploring their perspectives.
    METHODS: A qualitative interpretive design was employed to collect and analyze data using a phenomenological approach. The study involved in-depth interviews with ten participants aged between 49 and 65 years, utilizing a semi-structured approach.
    RESULTS: Two primary themes emerged from the participants\' experiences of reaching the terminal stage of illness: \"Pain, Suffering, and Distress\" and \"Spiritual Coping.\" The first theme encompassed physical and emotional pain, suffering, and distress, while the second theme was centered on the participants\' spiritual coping mechanisms. These coping mechanisms included seeking comfort in religious practices, relying on spiritual support from family and friends, and finding solace in their beliefs and faith.
    CONCLUSIONS: Patients with hematological malignancies in the terminal stages of their disease experience severe pain, considerable physical and psychosocial suffering, and spiritual distress. While they require support to cope with their daily struggles, their experiences often go unnoticed, leading to disappointment and loss of dignity. Patients mainly rely on their spirituality to cope with their situations. Healthcare providers must acknowledge these patients\' needs and provide more holistic and effective care.
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  • 文章类型: Journal Article
    人乳头瘤病毒(HPV)对宫颈患者具有重大的健康风险。在变性人和非二元人中,然而,HPV的检测和治疗可能会带来困难,有时甚至会受到创伤。这项目前的研究是2020年在密歇根州进行的一项更大的混合方法研究的一部分,它探索了跨男性和非二元人群在家中自我擦拭HPV检测试剂盒和HPV传播/筛查知识的经验。现象学方法通过对十个子宫颈的跨男性和非二元个体进行虚拟定性访谈来使用,年龄23-59访谈由研究小组成员独立编码,并使用桌面主题化方法。从数据中产生了四个主题:1)多级障碍;2)“完成它,所以我知道我是安全的\“;3)对比护理偏好;和4)社区呼吁改变。讨论的重点是这些发现对改善变性人和非二元社区的性保健的影响,以及进一步研究的方向。
    The human papillomavirus (HPV) carries a significant health risk for people with a cervix. Among transgender and nonbinary people, however, testing and treatment for HPV can pose difficulties, and even be traumatic at times. This current study is part of a larger mixed methods study conducted in Michigan in 2020, and it explores the experiences of transmasculine and nonbinary people with at-home self-swabbing HPV test kits and knowledge of HPV transmission/screenings. Phenomenological methods were used by conducting virtual qualitative interviews with ten transmasculine and nonbinary individuals with cervixes, ages 23-59. Interviews were independently coded by members of the research team and a tabletop theming method was used. Four themes were generated from the data: 1) Multilevel barriers; 2) \"Get it done, so I know that I am safe\"; 3) Contrasting preferences for care; and 4) Community calls for change. The discussion focuses on the implications of these findings for improving sexual health care for the transgender and nonbinary community, along with directions for further research.
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  • 文章类型: Journal Article
    背景:虽然在COVID-19出现之前就存在虚拟护理服务,但大流行促进了整个加拿大医疗保健系统从当面向虚拟护理服务提供的快速过渡。虚拟护理包括通过视频访问同步或异步提供医疗保健服务,电话访问,或安全消息。患者顾问是具有患者和护理经验的人,他们在医疗保健系统内协作以分享见解和经验,以改善医疗保健。
    目的:本研究旨在了解患者顾问对虚拟护理的看法以及对医疗质量的潜在影响。
    方法:我们采用了现象学方法,因此,我们使用半结构化访谈协议采访了加拿大各地的20名患者顾问。该协议是由内容专家和医学教育研究人员开发的。采访是录音的,逐字转录,并按主题进行分析。一旦达到主题饱和,就停止数据收集。这项研究是在女王大学进行的,金斯顿,安大略省。我们招募了来自加拿大5个省的20名参与者(17名女性参与者和3名男性参与者)。
    结果:确定了六个主题:(1)有效医疗保健的特征,(2)虚拟护理的经验,(3)模态偏好,(4)他人的参与;(5)与虚拟护理遭遇相关的风险,(6)弱势群体。参与者报告说,高质量的医疗保健包括建立关系和全面治疗患者。总的来说,参与者描述了大流行期间虚拟护理的积极经历,包括更高的效率,增加可达性,虚拟护理压力较小,以患者为中心。参与者将虚拟护理与亲自护理进行比较,调度,不同模式的互动内容相似。然而,参与者还认为某些模式更适合特定的临床接触(例如,续开处方和随访预约)。与家庭成员和医学受训者的参与有关的观点是积极的。潜在风险包括沟通不畅,隐私问题,和不准确的患者评估。所有参与者都同意,利益相关者应积极主动地应用策略来支持弱势患者。参与者还建议对患者和提供者进行教育,以改善虚拟护理的提供。
    结论:参与者报告的虚拟护理体验相对积极。未来的工作可以集中在为提供者和患者提供培训和资源。虽然最初的经历是积极的,需要持续的利益相关者参与和评估,以改善患者和护理人员的虚拟护理体验.
    While virtual care services existed prior to the emergence of COVID-19, the pandemic catalyzed a rapid transition from in-person to virtual care service delivery across the Canadian health care system. Virtual care includes synchronous or asynchronous delivery of health care services through video visits, telephone visits, or secure messaging. Patient advisors are people with patient and caregiving experiences who collaborate within the health care system to share insights and experiences in order to improve health care.
    This study aimed to understand patient advisors\' perceptions related to virtual care and potential impacts on health care quality.
    We adopted a phenomenological approach, whereby we interviewed 20 participants who were patient advisors across Canada using a semistructured interview protocol. The protocol was developed by content experts and medical education researchers. The interviews were audio-recorded, transcribed verbatim, and analyzed thematically. Data collection stopped once thematic saturation was reached. The study was conducted at Queen\'s University, Kingston, Ontario. We recruited 20 participants from 5 Canadian provinces (17 female participants and 3 male participants).
    Six themes were identified: (1) characteristics of effective health care, (2) experiences with virtual care, (3) modality preferences, (4) involvement of others, (5) risks associated with virtual care encounters, and (6) vulnerable populations. Participants reported that high-quality health care included building relationships and treating patients holistically. In general, participants described positive experiences with virtual care during the pandemic, including greater efficiency, increased accessibility, and that virtual care was less stressful and more patient centered. Participants comparing virtual care with in-person care reported that time, scheduling, and content of interactions were similar across modalities. However, participants also shared the perception that certain modalities were more appropriate for specific clinical encounters (eg, prescription renewals and follow-up appointments). Perspectives related to the involvement of family members and medical trainees were positive. Potential risks included miscommunication, privacy concerns, and inaccurate patient assessments. All participants agreed that stakeholders should be proactive in applying strategies to support vulnerable patients. Participants also recommended education for patients and providers to improve virtual care delivery.
    Participant-reported experiences of virtual care encounters were relatively positive. Future work could focus on delivering training and resources for providers and patients. While initial experiences are positive, there is a need for ongoing stakeholder engagement and evaluation to improve patient and caregiver experiences with virtual care.
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  • 文章类型: Journal Article
    随着智能结构在我们的日常生活中变得越来越普遍,对高效建模机电耦合装置的需求也在迅速推进。智能结构通常由压电材料制成,例如锆钛酸铅(PZT),在大电场下表现出强烈的非线性行为,称为滞后效应。已经有许多建模技术能够捕获这种效果;一些技术适用于获得对材料微观结构的物理见解,而其他技术更适合实际的结构分析。在本文中,我们的目标是实现后者。我们提出了非线性铁电执行器的简化现象学宏观模型。该假设基于不可逆应变和不可逆电场之间的直接关系,以及因此产生的不可逆极化。然后在有限元框架中实现所提出的模型,其中导出了局部回波映射和正切模等主要特征。将模型的结果与实验数据进行了比较和验证。因此,本文提出的开发可以成为非线性铁电执行器建模的有用工具。
    As smart structures are becoming increasingly ubiquitous in our daily life, the need for efficient modeling electromechanical coupling devices is also rapidly advancing. Smart structures are often made of piezoelectric materials such as lead zirconate titanate (PZT), which exhibits strong nonlinear behavior known as hysteresis effect under a large applied electric field. There have been numerous modeling techniques that are able to capture such an effect; some techniques are suitable for obtaining physical insights into the micro-structure of the material, while other techniques are better-suited to practical structural analyses. In this paper, we aim to achieve the latter. We propose a simplified phenomenological macroscopic model of a nonlinear ferroelectric actuator. The assumption is based on the direct relation between the irreversible strain and irreversible electric field, and the consequently irreversible polarization. The proposed model is then implemented in a finite element framework, in which the main features such as local return mapping and the tangent moduli are derived. The outcomes of the model are compared and validated with experimental data. Therefore, the development presented in this paper can be a useful tool for the modeling of nonlinear ferroelectric actuators.
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  • 文章类型: Journal Article
    人们可能会认为咨询专业具有共同的价值观,可以促进个人的福祉和心理健康,家庭,和世界各地的社区。共同价值观,如培训计划中所述,道德规范,和其他领域,反映了在世界各地的咨询专业人员中提供专业咨询服务的方法和方向。研究人员使用现象学方法设计了这项定性研究,以探索如何在各种文化中体验和实施咨询价值。该研究的16名参与者包括来自不同国家的咨询专业人员,以增加来自世界八个地区的代表性。研究人员认识到在实施咨询服务的参与者中通常确定的有价值的方法,包括婚姻和家庭咨询,儿童和学校咨询,信仰整合,土著习俗,和以人为中心的安全空间。虽然详细描述了这些有价值的方法中的每一种,数据的最终应用提供了在全球范围内改善咨询进展的拟议步骤,包括跨文化咨询培训的策略,资源适应性,以及行业的双边发展。
    People may assume that the counseling profession functions with a shared set of values that promote well-being and mental health to individuals, families, and communities across the globe. Common values, such as described in training programs, ethical codes, and other areas, reflect the approach and direction for providing professional counseling services among counseling professionals throughout the world. The researchers designed this qualitative study using a phenomenological approach to explore how counseling values are experienced and implemented across various cultures. The 16 participants of the study include counseling professionals from different countries to increase representation from eight regions of the world. The researchers recognize valued approaches commonly identified among the participants implementing counseling services, including marital and family counseling, child and school counseling, faith integration, indigenous practices, and person-centered safe spaces. While each of these valued approaches is described in detail, final applications of the data offer proposed steps to improve the advancement of counseling on a global scale, including strategies for transcultural counseling training, resource adaptability, and bilateral development in the profession.
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    文章类型: Journal Article
    Psychiatric hospitals and centers have more complex conditions than other hospitals in responding to emergencies, given the differences in the design of their buildings and in non-structural elements. This is a qualitative study aimed at reviewing and investigating the experiences and challenges faced by psychiatric hospital staff in response to different fire incidents. A phenomenological approach was employed to conduct the study, believing that human experiences and beliefs are substances in phenomena and can be understood and examined. The contents of interviews and focus group discussion (FGD) sessions were extracted and classified into five categories, 14 themes, and 49 sub-categories. Many psychiatric hospitals in Iran are not ready to respond properly to incidents like fires. The study revealed that in order to ensure appropriate management of incidents and disasters in the hospitals, it is necessary to focus on five areas called the 5s framework, which includes structures, staff, supplies (facilities, equipment etc.), sick persons and systems. This framework is proposed to enhance preparedness, reduce vulnerability, and provoke an effective response to incidents in psychiatric hospitals.
    La réponse à une urgence est plus compliquée qu’ailleurs dans les hôpitaux psychiatriques, en raison de contraintes architecturales comme fonctionnelles. Cette étude a pour but d’explorer les expériences et les difficultés rencontrées par le personnel des hôpitaux psychiatriques face à un incendie dans leur institution. L’approche phénoménologique permet d’évaluer le rôle des croyances et de l’expérience dans ce type de situation. Les résultats d’interviews et de groupes de discussion ont pu être classées en 5 catégories, 14 thèmes et 49 sous-catégories. De nombreux hôpitaux psychiatriques iraniens ne sont pas à même de répondre correctement à un incendie. Pour y parvenir, il faudrait organiser la réponse autour de 5 thèmes : architecture, personnel, patients, équipement et systèmes de réponse. Ceci afin d’améliorer la préparation, diminuer la vulnérabilité et in fine obtenir une réponse efficace en cas d’incendie.
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  • 文章类型: Journal Article
    目的:乳腺癌是妇女及其配偶的多维危机,影响其生活的各个方面。应对这种疾病需要调查和解决所有受其影响的人所面临的挑战。本研究是根据乳腺癌妇女配偶的生活经历来阐明这些挑战的。方法:本定性研究在伊朗进行了解释性现象学分析。目的抽样被用来选择20名患有乳腺癌的妇女的配偶。通过非结构化面对面访谈收集的数据使用vanManen的方法进行分析。为了确保研究的严谨性,在定性过程中对林肯和古巴的标准进行了评估。结果:乳腺癌妇女配偶应对挑战的生活经历包括情感困惑四个主题,肩负起护理的重担,心理生理上的痛苦所造成的疾病和生活没有凝聚力。结论:伊朗社区乳腺癌妇女的配偶面临着一些挑战和问题。支持组织和医务人员提供的社会经济支持似乎有助于缓解这些挑战并改善该群体的应对能力。
    Objective: Breast cancer is a multidimensional crisis for women and their spouses that affects every aspect of their life. Coping with this disease requires investigating and resolving the challenges faced by all those affected by it. The present study was conducted to clarify these challenges on the basis of lived experiences of the spouses of women with breast cancer. Method : The present qualitative research performed an interpretive phenomenological analysis in Iran.Purposive sampling was employed to select twenty spouses of women with breast cancer. The data collected through unstructured face-to-face interviews were analyzed using van Manen\'s method. To ensure the rigor of the study, Lincoln and Guba\'s criteria were evaluated in the qualitative process. Results: Lived experiences of the spouses of the women with breast cancer in coping with challenges included the four themes of emotional confusion, shouldering the burden of care, psychophysical suffering caused by the disease and life without cohesion. Conclusion: Spouses of the women with breast cancer in the Iranian community faced several challenges and issues. The socioeconomic support provided by supporting organizations and medical personnel appear to help moderate these challenges and improve coping in this group.
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  • 文章类型: Journal Article
    神经反馈是一种神经刺激性生物反馈行为疗法,可调节脑电波水平以实现最佳认知功能。它已显示出治疗注意力缺陷多动障碍(ADHD)的有希望的结果。
    探索和描述神经反馈治疗师(NT)使用神经反馈治疗儿童和成人多动症的经验,以及他们在治疗这种情况中的作用和价值的经验。
    采访是在豪登省的私人咨询室进行的,南非。
    在这项使用描述性现象学方法的定性研究中,我们采访了6名具有ADHD治疗经验的注册NT.参与者被问到:“告诉我你在实践中对ADHD患者的神经反馈体验。\'回答是录音的,转录并进行了专题分析。
    参与者经历了神经反馈作为ADHD和其他共存疾病的有效治疗方法,如焦虑和失眠。参与者认为神经反馈过程促进了有益的治疗关系,并与其他治疗方法很好地结合。实践中面临的挑战包括某些潜在的合并症,家庭环境,患者依从性和NTs的专业知识水平较差,影响治疗结果。
    神经反馈治疗师对神经反馈对减轻ADHD症状严重程度和改善生活质量的价值表示总体上积极的看法,特别是当用作多模式方法的一部分时。参与者确定了对ADHD使用神经反馈的进一步教育和认识的需求。
    这项研究有助于我们理解南非环境中神经反馈在治疗ADHD中的作用。
    UNASSIGNED: Neurofeedback is a neurostimulatory biofeedback behavioural therapy that regulates brain wave levels for optimal cognitive functioning. It has shown promising results for the treatment of attention-deficit hyperactivity disorder (ADHD).
    UNASSIGNED: To explore and describe the experiences of neurofeedback therapists (NTs) using neurofeedback to treat children and adults with ADHD and their experience of its role and value in treating this condition.
    UNASSIGNED: Interviews were conducted in participants\' private consultation rooms in Gauteng, South Africa.
    UNASSIGNED: In this qualitative study using a descriptive phenomenological approach, six registered NTs with experience of treating ADHD were interviewed. Participants were asked: \'Tell me about your experiences of neurofeedback with ADHD patients in your practice.\' Responses were audio-recorded, transcribed and underwent thematic analysis.
    UNASSIGNED: Participants experienced neurofeedback as an effective treatment for ADHD and other coexisting conditions, such as anxiety and insomnia. Participants felt that the neurofeedback process facilitates a beneficial therapeutic relationship and integrates well with other treatment methods. Challenges faced in practice included certain underlying comorbidities, home environment, poor patient compliance and NTs\' level of expertise, which impact treatment outcomes.
    UNASSIGNED: Neurofeedback therapists expressed an overall positive perception of the value of neurofeedback to reduce ADHD symptom severity and improve quality of life, particularly when used as part of a multimodal approach. Participants identified a need for further education and awareness regarding the use of neurofeedback for ADHD.
    UNASSIGNED: This study has contributed to our understanding of the role of neurofeedback in treating ADHD in the South African setting.
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  • 文章类型: Journal Article
    父母有一个患有ADHD的孩子的生活经历可能会影响他们对孩子的ADHD治疗选择的决策。这项研究的目的是探索父母在家庭中与多动症儿童一起生活的经历,以及他们的经历如何影响他们对治疗偏好和优先事项的看法。
    采用了现象学的定性设计。对参加多站点随机对照试验的ADHD儿童的父母进行了半结构化访谈。访谈被逐字转录,每个位点的转录本都被双重编码。初始代码直接来自文本。定性数据采用归纳法进行分析。
    23位家长接受了采访:8位来自艾伯塔省,加拿大;来自波特兰的八名,俄勒冈,美国;还有七个来自哥伦布,俄亥俄州,美国。在父母中,69%已婚。86%的人完成了大学教育,52%的家庭收入超过80,000美元。在孩子中,平均年龄为9.6岁(SD=1.8岁),78%是男孩,48%从未因ADHD接受过药物治疗。分析中出现了两个主要主题。主题1是“多动症对家庭内外家庭的影响”,具有以下子主题:“重新配置家庭生活”,\“在学校住宿的试错”和\“应对社会压力以适应\”。主题2是“为家庭提供适当和可获得的治疗”,具有以下子主题:“找到与专业人员和治疗方法的“正确契合””和“影响不平等获得治疗的因素”。
    父母描述了共同的经历,并确定了类似的障碍,无论不同地点的人口统计学差异,多动症治疗的偏好和优先事项。家庭希望以家庭为中心,多动症治疗的多模式方法。需要进一步的研究来确定医疗保健的具体结构变化,服务和政策将更好地支持这种方法。
    Parents\' lived experiences of having a child with ADHD may shape their decision making regarding ADHD treatment options for their child. The aim of this study was to explore parents\' experiences of living with a child with ADHD in the family and how their experiences influence their perspectives on treatment preferences and priorities.
    A phenomenological qualitative design was used. Semistructured interviews were conducted with parents of children with ADHD who were enrolled in a multisite randomized controlled trial. Interviews were transcribed verbatim, and transcripts at each site were double coded. Initial codes were derived directly from the text. Qualitative data were analysed with an inductive approach.
    Twenty-three parents were interviewed: eight from Alberta, Canada; eight from Portland, Oregon, USA; and seven from Columbus, Ohio, USA. Among the parents, 69% were married, 86% completed college education and 52% reported household income over $80,000. Among the children, the mean age was 9.6 years (SD = 1.8 years), 78% were boys and 48% were never medicated for their ADHD. Two major themes emerged from the analysis. Theme 1 was \'impact of ADHD on families within and outside the home\' with the following subthemes: \'reconfiguring the home life\', \'trial-and-error of accommodations at school\' and \'responding to social pressures to fit in\'. Theme 2 was \'enabling appropriate and accessible treatments for families\' with the following subthemes: \'finding the \"right fit\" with professionals and treatments\' and \'factors influencing inequitable access to treatments\'.
    Parents described shared experiences and identified similar barriers, preferences and priorities for ADHD treatments regardless of demographic differences by site. Families desired access to family-centred, multimodal approaches to ADHD treatment. Further research is needed to identify the specific structural changes to healthcare, services and policies that will better support this approach.
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