PDF(Pubmed)
Abstract：
BACKGROUND: Patients diagnosed with hematological malignancies residing in low-middle-income countries undergo significant physical and psychological stressors. Despite this, only 16% of them receive proper care during the terminal stages. It is therefore crucial to gain insight into the unique experiences of this population.
OBJECTIVE: To have a better understanding of the needs and experiences of adult patients with advanced hematological malignancy by exploring their perspectives.
METHODS: A qualitative interpretive design was employed to collect and analyze data using a phenomenological approach. The study involved in-depth interviews with ten participants aged between 49 and 65 years, utilizing a semi-structured approach.
RESULTS: Two primary themes emerged from the participants\' experiences of reaching the terminal stage of illness: \"Pain, Suffering, and Distress\" and \"Spiritual Coping.\" The first theme encompassed physical and emotional pain, suffering, and distress, while the second theme was centered on the participants\' spiritual coping mechanisms. These coping mechanisms included seeking comfort in religious practices, relying on spiritual support from family and friends, and finding solace in their beliefs and faith.
CONCLUSIONS: Patients with hematological malignancies in the terminal stages of their disease experience severe pain, considerable physical and psychosocial suffering, and spiritual distress. While they require support to cope with their daily struggles, their experiences often go unnoticed, leading to disappointment and loss of dignity. Patients mainly rely on their spirituality to cope with their situations. Healthcare providers must acknowledge these patients\' needs and provide more holistic and effective care.
OBJECTIVE: To have a better understanding of the needs and experiences of adult patients with advanced hematological malignancy by exploring their perspectives.
METHODS: A qualitative interpretive design was employed to collect and analyze data using a phenomenological approach. The study involved in-depth interviews with ten participants aged between 49 and 65 years, utilizing a semi-structured approach.
RESULTS: Two primary themes emerged from the participants\' experiences of reaching the terminal stage of illness: \"Pain, Suffering, and Distress\" and \"Spiritual Coping.\" The first theme encompassed physical and emotional pain, suffering, and distress, while the second theme was centered on the participants\' spiritual coping mechanisms. These coping mechanisms included seeking comfort in religious practices, relying on spiritual support from family and friends, and finding solace in their beliefs and faith.
CONCLUSIONS: Patients with hematological malignancies in the terminal stages of their disease experience severe pain, considerable physical and psychosocial suffering, and spiritual distress. While they require support to cope with their daily struggles, their experiences often go unnoticed, leading to disappointment and loss of dignity. Patients mainly rely on their spirituality to cope with their situations. Healthcare providers must acknowledge these patients\' needs and provide more holistic and effective care.
摘要：
背景：在中低收入国家被诊断患有血液系统恶性肿瘤的患者会承受巨大的生理和心理压力。尽管如此,只有16%的病人在终末阶段得到适当的照顾。因此，了解这一群体的独特经历至关重要。
目的：通过探索成人晚期血液系统恶性肿瘤患者的观点，更好地了解他们的需求和经历。
方法：采用定性解释设计，使用现象学方法收集和分析数据。该研究涉及对10名年龄在49至65岁之间的参与者进行深入访谈，利用半结构化方法。
结果：两个主要的主题从参与者的经历中出现：“疼痛，苦难,和痛苦“和”精神应对。“第一个主题包括身体和情感上的痛苦，痛苦,和痛苦，而第二个主题则集中在参与者的精神应对机制上。这些应对机制包括在宗教活动中寻求安慰，依靠家人和朋友的精神支持，并在他们的信仰和信仰中找到慰藉。
结论：处于疾病终末期的血液系统恶性肿瘤患者会出现严重的疼痛，相当大的身体和心理痛苦，和精神上的痛苦。虽然他们需要支持来应对他们的日常斗争，他们的经历经常被忽视，导致失望和失去尊严。患者主要依靠他们的灵性来应付他们的情况。医疗保健提供者必须承认这些患者的需求，并提供更全面和有效的护理。
目的：通过探索成人晚期血液系统恶性肿瘤患者的观点，更好地了解他们的需求和经历。
方法：采用定性解释设计，使用现象学方法收集和分析数据。该研究涉及对10名年龄在49至65岁之间的参与者进行深入访谈，利用半结构化方法。
结果：两个主要的主题从参与者的经历中出现：“疼痛，苦难,和痛苦“和”精神应对。“第一个主题包括身体和情感上的痛苦，痛苦,和痛苦，而第二个主题则集中在参与者的精神应对机制上。这些应对机制包括在宗教活动中寻求安慰，依靠家人和朋友的精神支持，并在他们的信仰和信仰中找到慰藉。
结论：处于疾病终末期的血液系统恶性肿瘤患者会出现严重的疼痛，相当大的身体和心理痛苦，和精神上的痛苦。虽然他们需要支持来应对他们的日常斗争，他们的经历经常被忽视，导致失望和失去尊严。患者主要依靠他们的灵性来应付他们的情况。医疗保健提供者必须承认这些患者的需求，并提供更全面和有效的护理。
