■LittleHaven是农村地区,Gympie的社区专科姑息治疗服务,澳大利亚。它的目标是提供最高质量的护理,为那些经历或预期严重疾病和损失的人提供支持和教育。家庭和社区与临床服务一起工作,社区参与影响着对垂死人的同情关怀和支持,他们的家庭和社区。公共卫生姑息治疗通过基于社区的姑息治疗服务促进社区参与,并以公民生活之间的平等伙伴关系为基础,社区成员,病人和照顾者,和服务提供商。这采取了多种形式,包括我们所谓的“公民组织”。
■本文报告了对LittleHaven的护理模式的评估,并探讨了该组织作为社区“公民”的地位。
■使用利用混合方法设计的共同设计的评估方法。
■多个数据源获得了护理模式的广泛视角,包括来自当前患者的主要定性数据,目前的照顾者,工作人员,志愿者和组织利益相关者(访谈和焦点小组);以及来自丧亲照顾者的二级定量调查数据。生成主题分析和描述性统计数据。
■这种护理模式展示了公共服务要素,包括早期获得整体服务,以患者/家庭为中心,专门的姑息治疗,对用户来说成本很少或没有成本,强大的社区参与。这些要素为将支持描述为“超越”的患者和护理人员提供了高质量的护理,在家中实现良好的生活质量和护理。工作人员和志愿者认为模型的内在灵活性对其结果至关重要;服务与社区之间的接口同样被强调为关键的服务要素。组织利益相关者认为该模型是当地行动主义和对社区负责的产物。
■所有参与者团体都同意服务模式能够提供优质护理。作为公民组织的社区姑息治疗服务的建设是一个新概念。
“公民组织”:澳大利亚基于社区的姑息治疗服务模式LittleHaven是一个农村地区,Gympie的社区专科姑息治疗服务,澳大利亚。它旨在提供最高质量的护理,为那些经历或预期严重疾病和损失的人提供支持和教育。家庭和社区与临床服务一起工作,社区参与影响着对垂死人的同情关怀和支持,他们的家庭和社区。公共卫生姑息治疗在民间组织之间的平等伙伴关系中,通过基于社区的姑息治疗服务促进社区参与,社区成员,病人和照顾者,和服务提供商。我们通过与当前患者交谈,对LittleHaven的护理模式进行了评估,当前和过去的照顾者,工作人员,志愿者和利益相关者了解他们在LittleHaven的经历。我们发现LittleHaven的模型包含了姑息治疗服务的基本要素,以患者/家庭为中心,专门的姑息治疗,对用户来说成本很小或没有成本。他们有很强的社区参与,在社区活动方面有很强的背景。我们发现LittleHaven的“在社区中”超越了服务提供甚至是情感。我们观察到组织与它所支持的社区之间的共生关系,我们称之为“公民组织”。公民组织的显着特征是它与所在社区的不可分割性。
UNASSIGNED: Little Haven is a rural, community-based specialist palliative care service in Gympie, Australia. Its goals are to provide highest quality of care, support and education for those experiencing or anticipating serious illness and loss. Families and communities work alongside clinical services, with community engagement influencing compassionate care and support of dying people, their families and communities. Public Health Palliative Care promotes community engagement by community-based palliative care services and is grounded in equal partnerships between civic life, community members, patients and carers, and service providers. This takes many forms, including what we have termed the \'citizen organization\'.
UNASSIGNED: This paper reports on an evaluation of Little Haven\'s model of care and explores the organization\'s place as a \'citizen\' of the community it services.
UNASSIGNED: A co-designed evaluation approach utilizing mixed-method design is used.
UNASSIGNED: Multiple data sources obtained a broad perspective of the model of care including primary qualitative data from current patients, current carers, staff, volunteers and organizational stakeholders (interviews and focus groups); and secondary quantitative survey data from bereaved carers. Thematic analysis and descriptive statistics were generated.
UNASSIGNED: This model of care demonstrates common service elements including early access to holistic, patient/family-centred, specialized palliative care at little or no cost to users, with strong community engagement. These elements enable high-quality care for patients and carers who describe the support as \'over and above\', enabling good quality of life and care at home. Staff and volunteers perceive the built-in flexibility of the model as critical to its outcomes; the interface between the service and the community is similarly stressed as a key service element. Organizational stakeholders observed the model as a product of local activism and accountability to the community.
UNASSIGNED: All participant groups agree the service model enables the delivery of excellent care. The construction of a community palliative care service as a citizen organization emerged as a new concept.
‘Citizen organization’: an Australian community-based palliative care service model Little Haven is a rural, community-based specialist palliative care service in Gympie, Australia. It aims to provide highest quality of care, support and education for those experiencing or anticipating serious illness and loss. Families and communities work alongside clinical services, with community engagement influencing compassionate care and support of dying people, their families and communities. Public Health Palliative Care promotes community engagement by community-based palliative care services in equal partnerships between civic organizations, community members, patients and carers, and service providers. We undertook an evaluation of Little Haven’s model of care by speaking with current patients, current and past carers, staff, volunteers and stakeholders about their experiences of Little Haven. We found that Little Haven’s model contains the essential elements of a palliative care service and provides early access to holistic, patient/family-centred, specialized palliative care at little or no cost to users. They have strong community engagement with a strong background in community activism. We identified that Little Haven’s ‘being in the community’ goes beyond service provision or even sentiment. We observed a symbiotic relationship between the organization and the community it supports in what we have termed the ‘citizen organization’. The distinctive characteristic of the citizen organization is its inseparability from the community in which it dwells.