hospice

临终关怀
  • 文章类型: Journal Article
    背景:姑息治疗涉及提供全面的物理治疗,心理,和社会护理,以改善临床症状和生活质量,以及确保患者生命终结时的尊严。护士是临终关怀团队的重要成员,护理本科生是未来的临终关怀提供者。本科护生提供临终关怀的能力意愿,因此,直接影响服务质量。
    目的:了解护生临终关怀能力与死亡应对能力的关系,为促进护生临终关怀教育的开展提供理论依据。
    方法:以方便样本的204名来自中国某高校的护生完成一般情况调查表,临终关怀能力评估问卷,以及“应对死亡量表”的简化版本。
    结果:参与者的总体平均临终关怀能力评分为46(35-52),有效护理技能的平均得分为3.0(2.3-3.3),2.6(2.0-3.0)用于文化和道德价值观,和3.0(2.2-3.4)用于跨专业团队合作。死亡应对能力平均得分为92(72-107)。多因素logistic回归和Spearman相关分析显示死亡应对能力与临终关怀能力呈正相关(P<0.05)。
    结论:护生的整体临终关怀能力是低到中等。因此,护士教育者应使用专用教育单元模型有效修改临终关怀教育课程。
    BACKGROUND: Palliative care involves providing comprehensive physical, psychological, and social care to improve clinical symptoms and quality of life, as well as to ensure patients\' dignity at the end of life. Nurses are important members of hospice care teams, and undergraduate nursing students are the hospice care providers of the future. The ability of undergraduate nursing students to provide hospice care will, thus, directly affect service quality.
    OBJECTIVE: To understand the relationship between hospice competence and the death-coping abilities of nursing students and provide a theoretical basis for promoting the development of hospice education for nursing students.
    METHODS: A convenience sample of 204 nursing students from a university in China completed the general conditions questionnaire, Hospice Competency Assessment Questionnaire, and a simplified version of the Coping with Death Scale.
    RESULTS: The participants\' overall average hospice competency score was 46 (35-52), with an average score of 3.0 (2.3-3.3) for effective caregiving skills, 2.6 (2.0-3.0) for cultural and ethical values, and 3.0 (2.2-3.4) for interprofessional teamwork. The average death-coping competency score was 92 (72-107). Multivariate logistic regression and Spearman\'s correlation analysis showed a positive correlation between death-coping and hospice competencies (P < 0.05).
    CONCLUSIONS: Nursing students\' overall hospice competency is low to moderate. Consequently, nurse educators should effectively modify the hospice education curriculum using the Dedicated Education Unit model.
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  • 文章类型: Journal Article
    目的:了解家庭护理人员将晚期癌症患者的家庭成员置于住院临终关怀中的决策过程,特别是在社会文化背景下,看护者对其重病家庭成员的护理拥有主导发言权。
    方法:采用现象学方法进行了一项定性研究,以了解晚期癌症患者的照顾者在决策过程中的生活经历。对上海17名护理人员进行了半结构化定性访谈,中国。采用专题分析法对数据进行分析。
    结果:护理人员经历了一个缠绕和社会文化介导的四阶段过程。这些阶段是(I)替代方案的触发因素:失去治愈的希望,(ii)曲折的拉锯过程,(iii)最后一根稻草:身体上的限制和目睹无法忍受的痛苦,和(iv)后果:接受与挥之不去的希望。照顾者对死亡的态度和他们患有晚期癌症的家庭成员表达的护理愿望会影响后果。
    结论:中国社会文化价值观和关于照顾和死亡的信念为观察到的过程提供了深刻的解释。
    结论:在文化能力方面培训医疗保健专业人员,开发一个有效的临终关怀转诊系统,提供社会上可接受的死亡教育是促进更好决策经验的关键干预措施。
    OBJECTIVE: To understand family caregivers\' decision-making process to place their family members with terminal cancer in inpatient hospice care, especially in the social-cultural contexts whereby the caregivers have a dominant say about the care of their seriously ill family members.
    METHODS: A qualitative study with a phenomenological approach was undertaken to understand the lived experience of caregivers of persons with terminal cancer in the decision-making process. Semi-structured qualitative interviews were conducted with a purposive sample of 17 caregivers in Shanghai, China. Thematic analysis was used to analyze the data.
    RESULTS: The caregivers underwent a winding and socioculturally mediated four-stage process. The stages are (i) trigger for alternatives: lost hope for a cure, (ii) meandering the see-saw process, (iii) the last straws: physical limitations and witnessing unbearable suffering, and (iv) the aftermath: acceptance versus lingering hope. Caregivers\' attitudes towards death and their family members with advanced cancer expressed care wishes influence the state of the aftermath.
    CONCLUSIONS: Chinese sociocultural values and beliefs about caregiving and death provide insightful explanations for the observed process.
    CONCLUSIONS: Training healthcare professionals in cultural competence, developing an effective hospice referral system, and delivering socioculturally acceptable death education are critical interventions to facilitate better decision-making experiences.
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  • 文章类型: Journal Article
    背景:癌症患者及其家人在疾病轨迹上的症状负担往往会增加。仍然缺乏关于症状变化与死亡和死亡质量之间关联的证据。在这种情况下,这项研究调查了症状变化如何影响死亡和死亡的质量。
    方法:这项国际前瞻性队列研究(东亚合作跨文化研究,以阐明死亡过程(EASED),2017-2019)包括日本的22、11和4个姑息治疗单位,韩国,和台湾。符合条件的参与者是成年人(日本和韩国,≥18岁;台湾,≥20年)患有局部晚期或转移性癌症。入院时和死亡前3天内由医生评估身体和心理症状。使用良好死亡量表(GDS)评估死亡质量,在台湾发展。使用单变量和多变量回归分析来确定症状严重程度变化与GDS评分之间的相关性。
    结果:在998例患者中(男性542例[54.3%],女性456例[45.7%];平均年龄[SD]=70.1[±12.5]岁),与稳定型呼吸困难相比,持续性呼吸困难与较低的GDS评分相关(β=-0.427,95%CI=-0.783~-0.071).加重(-1.381,-1.932至-0.831)和持续性(-1.680,-2.701至-0.659)谵妄也与较低的GDS评分显着相关。
    结论:更好的死亡和死亡质量与改善症状控制有关。尤其是呼吸困难和谵妄。整合死亡和死亡质量的结果测量对于以目标一致的方式管理整个疾病轨迹的症状非常重要。
    BACKGROUND: Symptom burdens tend to increase for patients with cancer and their families over the disease trajectory. There is still a lack of evidence on the associations between symptom changes and the quality of dying and death. In this context, this research investigated how symptom changes influence the quality of dying and death.
    METHODS: This international prospective cohort study (the East Asian Collaborative Cross-Cultural Study to Elucidate the Dying Process (EASED), 2017-2019) included 22, 11, and 4 palliative care units across Japan, South Korea, and Taiwan. Eligible participants were adults (Japan and Korea, ≥18 years; Taiwan, ≥20 years) with locally advanced or metastatic cancer. Physical and psychological symptoms were assessed by physicians upon admission and within 3 days before death. Death quality was assessed using the Good Death Scale (GDS), developed in Taiwan. Univariate and multivariate regression analyses were used to identify correlations between symptom severity changes and GDS scores.
    RESULTS: Among 998 patients (542 [54.3%] men and 456 [45.7%] women; mean [SD] age = 70.1 [± 12.5] years), persistent dyspnea was associated with lower GDS scores when compared to stable dyspnea (β = -0.427, 95% CI = -0.783 to -0.071). Worsened (-1.381, -1.932 to -0.831) and persistent (-1.680, -2.701 to -0.659) delirium were also significantly associated with lower GDS scores.
    CONCLUSIONS: Better quality of dying and death was associated with improved symptom control, especially for dyspnea and delirium. Integrating an outcome measurement for the quality of dying and death is important in the management of symptoms across the disease trajectory in a goal-concordant manner.
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  • 文章类型: Journal Article
    本研究旨在通过定性研究,从医疗保健专业人员的角度探索临终关怀中心内的亲生物设计属性,并调查临终关怀专业人员对发现的绿色特征的态度的影响通过定量研究预测他们的工作场所依恋。
    在临终关怀机构,研究表明,应用亲生设计原则可显着减少压力并改善情绪健康。然而,尽管它很重要,对亲生设计的态度,以及它对幸福的重大影响,满意度和对工作场所的临终关怀医疗保健专业人员的依恋尚未被研究。
    定性研究在临终关怀专业人员中进行了半结构化的深入访谈,以揭示对其活动产生影响的亲生物设计特征,而定量研究采用验证性因子分析和结构方程模型对数据进行分析。
    定性研究产生了五个亲生物设计特征,比如有自然光的开放空间,自然装饰元素,大自然通过窗户提供的景观,木制家具,和颜色在临终关怀中心内营造出温暖的氛围。定量方法表明,在COVID-19大流行的背景下,对未发现的亲生物设计特征的态度显着改善了医疗保健提供者的情绪健康状况。这个维度,反过来,有助于他们对绿色特征/自然装饰和对工作场所的依恋感到满意。这项研究的结果为从业人员和研究人员提供了有价值的策略,以在临终关怀环境的工作环境中纳入亲生物设计特征。
    UNASSIGNED: The present study aimed to explore the biophilic design attributes within a hospice care center from the healthcare professionals\' perspective by utilizing a qualitative research and investigated the effect of hospice professionals\' attitudes toward the uncovered green features on the prediction of their workplace attachment through a quantitative research.
    UNASSIGNED: In hospice establishments, studies showed that applying biophilic design principles significantly reduces stress and improves emotional well-being. Yet, despite its importance, attitude toward biophilic design, and its significant influence on well-being, satisfaction and attachment to the workplace of hospice healthcare professionals have not yet been researched.
    UNASSIGNED: The qualitative research used semi-structured in-depth interviews among hospice professionals to reveal biophilic design features that exert an influence on their activity, while the quantitative research employed a confirmatory factor analysis and the structural equation modeling to analyze the data.
    UNASSIGNED: The qualitative research generated five biophilic design features, such as open spaces with natural light, natural decorative elements, landscape provided by nature through windows, wooden furniture, and colors that create a warm atmosphere within the hospice care center. The quantitative approach indicated that attitude toward the uncovered biophilic design features in the context of the COVID-19 pandemic significantly improved the healthcare providers\' emotional well-being. This dimension, in turn, contributed to their satisfaction with green features/natural decor and attachment to the workplace. Results of this study provide practitioners and researchers valuable strategies to incorporate biophilic design features in the working environments of hospice settings.
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  • 文章类型: Systematic Review
    目标:绘制和综合有关临终孤独感的文献,并确定孤独感研究中的关键知识差距。
    背景:健康状况下降,减少社会参与,失去社会角色,对死亡的恐惧可能会导致生命终结时的孤独。然而,关于生命终结时孤独的系统信息很少。
    方法:本范围审查遵循Arksey和O\'Malley提出的方法。从2001年1月至2022年7月,共检索了9个电子数据库。包括关于生命终结时孤独的研究。两位综述作者独立筛选并选择了相关研究,并进行了数据图表。PAGER框架被用来整理,总结并报告结果。包括PRISMA-ScR清单。
    结果:本综述共纳入23项研究(12项定性,10定量,和一种混合方法设计)。国际上没有关于成年后孤独患病率的可靠数据。经常使用3或20项UCLA孤独感量表来衡量孤独感。成年后倾向于孤独的因素包括被动和主动退出社交网络,无法分享情感和被理解,对灵性的支持不足。确定了四种缓解孤独的策略,然而在临床试验中没有得到证实。促进灵性的干预,社交互动和联系似乎可以有效缓解孤独。
    结论:这是对生命终结时的孤独感的第一次范围审查,从定性中综合证据,定量,和混合方法研究。对生命终结时成年人的孤独感研究不足,迫切需要解决生命终结时的存在孤独感。
    结论:所有护士都应主动评估生活受限患者的孤独感或感知的社会隔离感,不管社交网络。协作努力(例如,医疗-社会合作)以促进自我价值,需要与重要的他人和社交网络的社会参与和联系。
    没有患者或公众参与。
    OBJECTIVE: To map and synthesise the literature on loneliness at end-of-life and identify key knowledge gaps in loneliness research.
    BACKGROUND: Declined health conditions, reduced social engagement, loss of social roles, and fear of death may lead to loneliness at end-of-life. However, systematic information about loneliness at end-of-life is scant.
    METHODS: This scoping review followed the methodology proposed by Arksey and O\'Malley. Nine electronic databases were searched from January 2001 to July 2022. Studies about loneliness at end-of-life were included. Two review authors independently screened and selected relevant studies and performed the data charting. The PAGER framework was employed to collate, summarise and report the results. The PRISMA-ScR checklist was included.
    RESULTS: A total of 23 studies were included in this review (12 qualitative, 10 quantitative, and one mixed-methods design). There was not reliable data about the prevalence of loneliness among adults at end-of-life internationally. Three or 20-item UCLA loneliness scale was frequently used to measure loneliness. Factors predisposed adults at end-of-life to loneliness included passive and active withdrawal from social networks, inability to share emotions and to be understood, and inadequate support on spirituality. Four strategies were identified to alleviate loneliness, yet none have been substantiated in clinical trials. Interventions facilitating spirituality, social interactions and connectedness seem effective in alleviating loneliness.
    CONCLUSIONS: This is the first scoping review on loneliness at end-of-life, synthesising evidence from qualitative, quantitative, and mixed-methods studies. Loneliness among adults at end-of-life is under-investigated and there is a prominent need to address existential loneliness at end-of-life.
    CONCLUSIONS: All nurses should proactively assess loneliness or perceived social isolation for clients with life-limiting conditions, regardless of social networks. Collaborative efforts (e.g., medical-social collaborations) to promote self-worthiness, social engagement and connectedness with significant others and social networks are needed.
    UNASSIGNED: No patient or public involvement.
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  • 文章类型: Journal Article
    这项研究调查了对货币捐赠的依赖是否会改变非营利公司的行为。具体来说,在临终关怀行业,较短的患者住院时间(LOS)会加快整体患者的更替速度,允许临终关怀服务更多的病人,并扩大其捐赠网络。我们用捐赠收入比来衡量临终关怀对捐赠的依赖,这表明了捐赠对收入结构的重要性。通过利用捐赠的转移者,我们采用捐赠者的数量作为控制潜在内生性问题的工具。我们的结果表明,捐赠收入比增加一个百分点,患者的LOS降低了8%。更依赖捐赠的收容所服务于被诊断患有预期寿命较短的疾病的患者,以实现所有患者住院的较低平均LOS。总的来说,我们发现货币捐赠改变了非营利组织的行为。
    This study investigates whether reliance on monetary donations alters nonprofit firms\' behaviors. Specifically, in the hospice industry, a shorter patients\' length of stay (LOS) speeds up overall patient turnover, allowing a hospice to serve more patients and expand its donation network. We measure hospices\' donation reliance using the donation-revenue ratio, which indicates the importance of donations for revenue structure. By exploiting the supply shifter of donation, we adopt the number of donors as an instrument to control for the potential endogeneity issue. Our result suggests that a one-percentage-point increase in the donation-revenue ratio decreases patient LOS by 8%. Hospices that are more reliant on donations serve patients diagnosed with diseases that have shorter life expectancies to achieve a lower average LOS of all patients\' stay. Overall, we find that monetary donations alter the behavior of nonprofit organizations.
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  • 文章类型: Review
    目的:探索关于姑息护士面临职业倦怠的经验和需求的现有文献。
    背景:在全球范围内,随着衰老的加剧,需要姑息治疗的人数大幅增加,这对姑息护士的职业压力产生了巨大的影响。现有文献侧重于从患者的角度检查姑息治疗,但是姑息护士也面临着职业倦怠对身心健康的威胁。
    结果:截至2021年10月,已在以下数据库中进行了系统的文献检索:PubMed,EMBASE,CINAHL,WebofScience,还有Scopus.还搜索了Cochrane图书馆和JoannaBriggs研究所图书馆,以确认是否有有关该主题的任何可用的系统评论。手动搜索包含论文的参考列表。
    结果:本综述纳入了17项研究。姑息护理护士经验中的五个关键问题:(1)心理伤害,(2)身体症状,(3)负面情绪,(4)沟通障碍造成的倦怠,(5)缺乏经验。姑息护理护士需求中的两个关键问题:(1)社会支持,(2)培训和教育。
    结论:长期面对死亡的压力和控制患者的症状对姑息护士的身心健康有非常重要的影响。护理人员需要满意,提供支持和帮助缓解姑息护士的压力至关重要。
    OBJECTIVE: Explore the existing literature on the experience and needs of palliative nurses facing job burnout.
    BACKGROUND: On a global scale, with the increase of aging, the number of people in need of palliative care has increased significantly, which has a huge impact on the professional pressure of palliative nurses. Existing literature focuses on examining palliative care from the perspective of patients, but palliative nurses also face the threats to physical and mental health caused by job burnout.
    RESULTS: A systematic literature search has been carried out in the following databases as of October 2021:PubMed, EMBASE, CINAHL, Web of Science, and Scopus. The Cochrane Library and Joanna Briggs Institute Library were also searched to confirm if there are any available systematic reviews on the subject. Manually searched the reference list of included papers.
    RESULTS: Seventeen studies were included in this review. Five key issues in the palliative care nurse\'s experience: (1) psychological harm, (2) physical symptoms, (3) negative emotions, (4) Burnout caused by communication barriers, and (5) Lack of experience. Two key issues in the needs of palliative care nurses: (1) social support, and (2) training and education.
    CONCLUSIONS: The pressure of facing death for a long time and controlling the symptoms of patients has a very important impact on the mental and physical health of palliative nurses. Nursing staff have needed to be satisfied, and it is essential to provide support and help relieve the pressure on palliative nurses.
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  • 文章类型: Journal Article
    未经证实:台湾终末期肾病(ESRD)的患病率和接受透析的患者数量很高。自2009年9月起,国民健康保险开始为台湾肾衰竭患者提供临终关怀。因此,有必要了解终末期肾病透析患者临终关怀和非临终关怀的使用情况.我们的目标是了解ESRD患者接受临终关怀和非临终关怀护理的趋势,以及他们生命的最后一个月(2009-2013)的医疗护理工作。
    UNASSIGNED:该队列研究是使用台湾健康保险研究数据库中2009-2013年为台湾数百万人随机选择的100万个样本进行的。提出了描述性统计数据来总结数据的特征。要比较队列之间的差异,使用卡方检验和学生t检验。对非正态分布数据进行了Mann-WhitneyU检验。Mantel-Haenszel测试是趋势测试。
    未经证实:我们招募了770名接受血液透析的ESRD患者;其中,154名患者接受了临终关怀。接受临终关怀的患者在撤除机械呼吸机后的生存时间明显更长(20vs.0天)和停止透析后(2vs.0天)与未接受临终关怀的人相比。接受临终关怀护理的患者疼痛控制更多(61.04%vs.17.37%,P<0.0001)和其他症状控制(55.84%vs.43.18%使用利尿剂,P<0.05;64.29%和48.21%使用泻药,P=0.0004)的药物比没有的药物。然而,临终关怀组的整体医疗费用明显较低(90美元和280美元,P<0.0001)。
    UNASSIGNED:我们的结果表明,增加临终关怀可能会延长患者的无生命生存时间。此外,尽管更频繁地使用症状控制剂,临终关怀显著降低了整体医疗支出。
    UNASSIGNED: The prevalence of end-stage renal disease (ESRD) and the number of patients undergoing dialysis in Taiwan are high. Since September 2009, the National Health Insurance has started to provide hospice care to patients with renal failure in Taiwan. Therefore, it is necessary to understand the use of hospice and nonhospice care in patients with ESRD on dialysis. We aim to understand trends in patients with ESRD receiving hospice and nonhospice care as well as medical care efforts during the last month of their lives (2009-2013).
    UNASSIGNED: The cohort study was conducted using 1 million randomly selected samples from the Taiwan Health Insurance Research Database for millions of people in Taiwan in 2009-2013. Descriptive statistics were presented to summarize the characteristics of data. To compare differences between cohorts, Chi-square tests and Student\'s t-tests were used. Mann-Whitney U-tests were performed for nonnormally distributed data. Mantel-Haenszel test was test for trend.
    UNASSIGNED: We recruited 770 ESRD patients who underwent hemodialysis; among them, 154 patients received hospice care. Patients who received hospice care had a significantly longer survival time after removal of mechanical ventilator (20 vs. 0 days) and after discontinuation of dialysis (2 vs. 0 days) compared with those who did not receive hospice care. Patients who received hospice care had more pain control (61.04% vs. 17.37%, P < 0.0001) and other symptomatic control (55.84% vs. 43.18% with diuretics, P < 0.05; 64.29% and 48.21% with laxatives, P = 0.0004) medications than those who did not. Nevertheless, the overall medical cost in the hospice group was significantly lower (90 USD and 280 USD, P < 0.0001).
    UNASSIGNED: Our results suggest that the addition of hospice care may permit patients a longer life-support-free survival time. In addition, despite a more frequent symptomatic controlling agent use, hospice care significantly reduced the overall medical expenditure.
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  • 文章类型: Journal Article
    背景:在患有癌症的绝症患者中,人工水化(AH)是一个具有挑战性的问题,因为它会影响患者的症状控制,生活质量,和染色质量(QOD)。迄今为止,目前尚不清楚有多少AH供应适合即将死亡的患者。本研究旨在探讨AH量与QOD之间的关系。
    方法:这项研究是在日本进行的东亚合作跨文化研究(EASED)的一部分,韩国,和台湾从2017年1月到2018年9月。患者人口统计学,症状,记录姑息治疗单位(PCU)入院时和死亡前的管理情况.以250-mL的间隔将AH量分为不同的组,以比较它们的差异。良好死亡量表(GDS)用于测量QOD,使用GDS=12作为截止点将患者分为QOD较高或较低的组。我们使用逻辑回归分析来评估AH量与QOD之间的关联。
    结果:总计,1530名患者被纳入分析。国家,宗教,精神上的幸福,疲劳,谵妄,呼吸困难,啊,死亡前使用抗生素与QOD显著相关。在进行回归分析后,给予250至499mLAH的患者QOD明显更好(比值比,2.251;95%置信区间,1.072-4.730;P=.032)比没有AH的
    结论:AH使用会影响接受PCU的癌症绝症患者的QOD。与患者及其家属沟通适当使用AH对QOD有积极影响。
    背景:我们的前瞻性跨文化多中心研究旨在调查绝症癌症患者的人工水合(AH)量与死亡质量之间的关系。调查结果显示,这个国家,宗教,精神上的幸福,疲劳,谵妄,呼吸困难,啊,死亡前使用抗生素与死亡质量(QOD)显著相关。经过多变量逻辑回归,AH剂量为250至499mL的患者QOD明显更好(比值比,2.251;95%置信区间,1.072-4.730;P=.032)比没有AH的建议与患者及其家人就AH进行沟通,因为这可能有助于他们为生命终结阶段做好准备并获得良好的死亡。
    BACKGROUND: Artificial hydration (AH) is a challenging issue in terminally ill patients with cancer, because it influences patients\' symptoms control, quality of life, and quality of dying (QOD). To date, it is not clear how much AH supply is proper for imminently dying patients. This study aimed to investigate the association between the amount of AH and QOD.
    METHODS: This study is part of the East Asian Collaborative Cross-Cultural Study to Elucidate the Dying Process (EASED) conducted in Japan, Korea, and Taiwan from January 2017 to September 2018. Patients\' demographics, symptoms, and managements on admission to palliative care units (PCUs) and before death were recorded. The AH amount was classified into different groups by 250-mL intervals to compare their difference. The Good Death Scale (GDS) was used to measure QOD, with patients classified into higher or lower QOD groups using GDS = 12 as the cutoff point. We used logistic regression analysis to assess the association between AH amount and QOD.
    RESULTS: In total, 1530 patients were included in the analysis. Country, religion, spiritual well-being, fatigue, delirium, dyspnea, AH, and antibiotics use before death were significantly associated with QOD. After conducting regression analysis, patients administered with 250 to 499 mL AH had significantly better QOD (odds ratio, 2.251; 95% confidence interval, 1.072-4.730; P = .032) than those without AH.
    CONCLUSIONS: AH use impacts the QOD of terminally ill patients with cancer admitted to PCUs. Communication with patients and their families on appropriate AH use has a positive effect on QOD.
    BACKGROUND: Our prospective cross-cultural multicenter study aims to investigate the relationship between artificial hydration (AH) amount and quality of dying among terminally ill patients with cancer. The findings reveal that country, religion, spiritual well-being, fatigue, delirium, dyspnea, AH, and antibiotics use before death were significantly associated with quality of death (QOD). After multivariable logistic regression, patients administered with AH amount 250 to 499 mL had significantly better QOD (odds ratio, 2.251; 95% confidence interval, 1.072-4.730; P = .032) than those without AH. Communication with patients and their families regarding AH is recommended as it may help them be better prepared for the end-of-life stage and achieve a good death.
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  • 文章类型: Journal Article
    Background: Mainland China is facing increasing demand for palliative care and has launched related policies after 2010. Research and publications are important for sustainable development of palliative care, and should be encouraged by policy. Objectives: This study aimed to describe the development of palliative care-related publications in Mainland China in various aspects. Design: We searched Web of Science, Scopus, PubMed, Cumulative Index of Nursing and Allied Health Literature, Ovid MEDLINE, and China National Knowledge Infrastructure for publications from Mainland China for 2010-2020, with the topic words \"hospice,\" \"palliative care,\" \"end-of-life care,\" or \"terminal care.\" The publishing year, region, impacts, journals, publication types, and topics were analyzed. Results: A total of 3682 publications were identified, 754 of them (20.5%) published in Chinese core journals or international journals. The annual publication number and impact factor rose rapidly after 2016 and dropped again in 2020. There is no specialized palliative care journal in Mainland China. The publication numbers differed significantly between East and Western China and were closely linked to the economy (R2 = 0.8120, P < .0001). The megacities Beijing and Shanghai comprised 2.6% of the total population of Mainland China but produced 22.6% of the publications. Palliative care in cancer patients was the most common topic (37.7% of the publications). Practical keywords such as \"pain management\" and \"living will\" gained popularity recently. Conclusions: Palliative care-related research and publication in Mainland China are growing in recent years. However, the early stage growth is unstable, with a conspicuous regional disparity. Policies should be designed, in an equitable manner, to encourage original research and publication of palliative care.
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