PDF(Pubmed)
Abstract：
UNASSIGNED: Nearly half of more than 1.7 million older Americans who receive hospice care each year have a primary or comorbid diagnosis of dementia. Pain is often undertreated in this patient population owing to myriad factors, including unmet informational needs among family caregivers.
UNASSIGNED: We sought to inform the adaptation of a pain education intervention for hospice family caregivers to the context of dementia by eliciting feedback on the educational content covered in adapted intervention materials.
UNASSIGNED: We conducted a multimethod, formative research study to inform the adaptation of an existing, evidence-based intervention.
UNASSIGNED: The study included a purposively recruited sample (n = 33) of hospice professionals (n = 18) and family caregivers (n = 15) from across the United States.
UNASSIGNED: Participants quantitatively rated the importance of each of the eight pain concerns presented in the adapted intervention materials (1 = not important to 3 = very important) and provided qualitative feedback via Zoom interview on the acceptability, clinical accuracy, and potential benefits of the adapted content. We analyzed quantitative data via descriptive statistics and qualitative data via content analysis.
UNASSIGNED: Participants rated the adapted educational content as highly important (rangemean = 2.56-3.00), particularly regarding concerns about caregivers\' pain assessment, communicating with the hospice team about pain, and addressing misinformation regarding pain medication outcomes. Participants also provided suggestions to strengthen specific educational messages to improve comprehension and uptake.
UNASSIGNED: Findings support the continued development and testing of the adapted intervention.
UNASSIGNED: We sought to inform the adaptation of a pain education intervention for hospice family caregivers to the context of dementia by eliciting feedback on the educational content covered in adapted intervention materials.
UNASSIGNED: We conducted a multimethod, formative research study to inform the adaptation of an existing, evidence-based intervention.
UNASSIGNED: The study included a purposively recruited sample (n = 33) of hospice professionals (n = 18) and family caregivers (n = 15) from across the United States.
UNASSIGNED: Participants quantitatively rated the importance of each of the eight pain concerns presented in the adapted intervention materials (1 = not important to 3 = very important) and provided qualitative feedback via Zoom interview on the acceptability, clinical accuracy, and potential benefits of the adapted content. We analyzed quantitative data via descriptive statistics and qualitative data via content analysis.
UNASSIGNED: Participants rated the adapted educational content as highly important (rangemean = 2.56-3.00), particularly regarding concerns about caregivers\' pain assessment, communicating with the hospice team about pain, and addressing misinformation regarding pain medication outcomes. Participants also provided suggestions to strengthen specific educational messages to improve comprehension and uptake.
UNASSIGNED: Findings support the continued development and testing of the adapted intervention.
摘要：
■每年接受临终关怀护理的170多万美国老年人中，近一半患有痴呆症。由于多种因素，该患者群体的疼痛往往得不到充分治疗。包括家庭照顾者未满足的信息需求。
■我们试图通过对适应干预材料中涵盖的教育内容进行反馈，为临终关怀家庭护理人员提供适应痴呆症的疼痛教育干预。
■我们进行了多种方法，形成性研究研究，以告知现有的适应，循证干预。
该研究包括来自美国各地的临终关怀专业人员（n=18）和家庭护理人员（n=15）的有意招募样本（n=33）。
■参与者对改编的干预材料中提出的八个疼痛问题的重要性进行了定量评估（1=不重要，3=非常重要），并通过Zoom访谈对可接受性提供了定性反馈，临床准确性，以及改编内容的潜在好处。我们通过描述性统计分析定量数据，通过内容分析定性数据。
■参与者将改编后的教育内容评为非常重要（rangemean=2.56-3.00），特别是关于护理人员疼痛评估的担忧，和临终关怀团队沟通疼痛，并解决有关疼痛药物治疗结果的错误信息。与会者还提出了加强具体教育信息以提高理解和吸收的建议。
■研究结果支持适应性干预措施的持续开发和测试。
■我们试图通过对适应干预材料中涵盖的教育内容进行反馈，为临终关怀家庭护理人员提供适应痴呆症的疼痛教育干预。
■我们进行了多种方法，形成性研究研究，以告知现有的适应，循证干预。
该研究包括来自美国各地的临终关怀专业人员（n=18）和家庭护理人员（n=15）的有意招募样本（n=33）。
■参与者对改编的干预材料中提出的八个疼痛问题的重要性进行了定量评估（1=不重要，3=非常重要），并通过Zoom访谈对可接受性提供了定性反馈，临床准确性，以及改编内容的潜在好处。我们通过描述性统计分析定量数据，通过内容分析定性数据。
■参与者将改编后的教育内容评为非常重要（rangemean=2.56-3.00），特别是关于护理人员疼痛评估的担忧，和临终关怀团队沟通疼痛，并解决有关疼痛药物治疗结果的错误信息。与会者还提出了加强具体教育信息以提高理解和吸收的建议。
■研究结果支持适应性干预措施的持续开发和测试。
