背景:赫尔辛基大学医院为多发性硬化症(MS)患者开发了一种数字护理途径(DCP),以提高护理质量。DCP是为特别是新诊断的患者设计的,以支持对慢性疾病的适应。
目的:本研究调查了MSDCP用户行为及其对患者教育介导的医疗保健使用变化的影响,患者感知的MS对心理和身体功能健康的影响,患者满意度。
方法:我们收集了从2020年3月服务发布到2022年底(观察期)的数据。用户数量,用户登录,收集了他们的时间和发送的消息。在病例对照环境中研究了DCP与医疗保健使用的关联,在该环境中,患者可以自由选择是否要使用该服务(DCP组n=63)(对照组n=112)。与医生进行物理和远程预约的次数,护士,除急诊就诊和住院天数外,还考虑了其他服务。随访时间为1年(研究期)。此外,招募了一个由36名患者组成的亚组,以在3、6和12个月时填写有关净启动子评分(NPS)的调查,和他们的身体和心理功能健康(多发性硬化症影响量表)在0、3、6和12个月。
结果:在观察期间,共有225名患者可以选择使用该服务,其中79.1%(178/225)登录了这项服务。平均而言,DCP的用户发送了6.8条消息并登录了7.4次,72.29%(1182/1635)的登录发生在启动服务后的1年内。在病例对照队列中,在物理医生的预约方面,两组之间没有发现统计学上的显著差异,远程医生联系,体检护士预约,远程护士联系人,急诊部门的访问,或住院天数。然而,MSDCP与其他服务的就诊增加2.05(SD0.48)相关,诊断后一年内。在前瞻性DCP队列中,在0和12个月标记之间的身体功能健康没有观察到临床上的显着变化,但是心理功能健康在3到6个月之间得到了改善。患者满意度从3个月时的NPS指数21(有利)提高到12个月时的NPS指数63(优异)。
结论:MSDCP已被大多数MS人员用作常规操作的补充服务,我们对服务非常满意。在使用MSDCP期间,心理健康得到了增强。我们的结果表明,DCP在管理MS等慢性疾病方面具有很大的前景。未来的研究应该探索DCP在不同医疗保健环境和患者亚组中的潜力。
BACKGROUND: Helsinki University Hospital has developed a digital care pathway (DCP) for people with multiple sclerosis (MS) to improve the care quality. DCP was designed for especially newly diagnosed patients to support adaptation to a chronic disease.
OBJECTIVE: This study investigated the MS DCP user behavior and its impact on patient education-mediated changes in health care use, patient-perceived impact of MS on psychological and physical functional health, and patient satisfaction.
METHODS: We collected data from the service launch in March 2020 until the end of 2022 (observation period). The number of users, user logins, and their timing and messages sent were collected. The association of the DCP on health care use was studied in a case-control setting in which patients were allowed to freely select whether they wanted to use the service (DCP group n=63) or not (control group n=112). The number of physical and remote appointments either to a doctor, nurse, or other services were considered in addition to emergency department visits and inpatient days. The follow-up time was 1 year (study period). Furthermore, a subgroup of 36 patients was recruited to fill out surveys on net promoter score (NPS) at 3, 6, and 12 months, and their physical and psychological functional health (Multiple Sclerosis Impact Scale) at 0, 3, 6, and 12 months.
RESULTS: During the observation period, a total of 225 patients had the option to use the service, out of whom 79.1% (178/225) logged into the service. On average, a user of the DCP sent 6.8 messages and logged on 7.4 times, with 72.29% (1182/1635) of logins taking place within 1 year of initiating the service. In case-control cohorts, no statistically significant differences between the groups were found for physical doctors\' appointments, remote doctors\' contacts, physical nurse appointments, remote nurse contacts, emergency department visits, or inpatient days. However, the MS DCP was associated with a 2.05 (SD 0.48) visit increase in other services, within 1 year from diagnosis. In the prospective DCP-cohort, no clinically significant change was observed in the physical functional health between the 0 and 12-month marks, but psychological functional health was improved between 3 and 6 months. Patient satisfaction improved from the NPS index of 21 (favorable) at the 3-month mark to the NPS index of 63 (excellent) at the 12-month mark.
CONCLUSIONS: The MS DCP has been used by a majority of the people with MS as a complementary service to regular operations, and we find high satisfaction with the service. Psychological health was enhanced during the use of MS DCP. Our results indicate that DCPs hold great promise for managing chronic conditions such as MS. Future studies should explore the potential of DCPs in different health care settings and patient subgroups.