HIV stigma

艾滋病毒耻辱
  • 文章类型: Journal Article
    背景:2021年,中国法院,根据新颁布的民法典,由于配偶在婚前未能披露其艾滋病毒感染情况,首先吊销了结婚证。这个具有里程碑意义的案件引发了关于艾滋病毒感染者(PLHIV)是否有法律义务告知其配偶和性伴侣的新辩论。医学的进步已经部分隔离了性接触中的艾滋病毒传播,将披露义务的法律依据扩展到疾病预防之外。本研究调查了中国PLHIV在履行这一职责方面可能面临的一些不可预见的挑战,以及他们根据政府促进健康的目标做出的决定的结果。
    方法:本研究旨在详细研究中国PLHIV中有关伴侣告知的法律规定和实践。2019年至2020年采用了混合方法研究方法,结合问卷调查,深入采访,参与式观察。通过在中国PLHIV在线平台上发布的问卷,共获得433份有效回复。在对问卷数据进行收集和随机编码之后,选择了40名艾滋病毒感染者进行深入访谈。随后,在金华市关爱家(爱心家园)进行了为期六个月的实地调查,以进一步探讨这一问题。
    结果:相当比例的PLHIV对其配偶的披露率很高(近80%)。在性伴侣的背景下,56%的PLHIV表示他们的性伴侣知道他们的HIV感染。无论是已婚PLHIV向配偶披露,还是未婚/离婚PLHIV向性伴侣披露,然而,绝大多数人对披露可能导致的对他们关系的潜在破坏表示担忧。在婚外关系中的已婚PLHIV中观察到唯一的例外,在这种情况下,他们的关注程度略有下降。未披露的原因主要包括检测不到病毒载量和采取保护措施。
    结论:这项研究表明,普遍存在的“艾滋病毒耻辱”阻碍了艾滋病毒感染者自愿履行《艾滋病毒/艾滋病预防和控制条例》第38条赋予的披露义务,新《民法典》不明确的法律规定在这方面发挥了重要作用。解决这一问题不仅需要提高社会对PLHIV的容忍度,减少社会排斥的情况,而且还需要将披露义务的法律基础从疾病预防转移到有关各方法律关系中的权利和义务。当涉及到披露的接受者时,例如,区分配偶和性伴侣至关重要。至于PLHIV未能履行披露职责,除了涉及间接通知的干预外,增加进一步的法律责任可能是不可取的。故意传播行为,另一方面,仍然应该受到严厉的惩罚。
    背景:不适用。
    BACKGROUND: In 2021, a Chinese court, based on the newly enacted Civil Code, first revoked a marriage license due to the spouse\'s failure to disclose their HIV infection before the marriage. This landmark case ignited a fresh debate on whether people living with HIV (PLHIV) have a legal duty to inform their spouses and sexual partners. Advances in medicine have partially isolated HIV transmission from sexual contact, extending the legal basis for the obligation to disclose beyond disease prevention. This study investigates some possibly unforeseen challenges for PLHIV in China to fulfill this duty, and the outcomes of their decisions in light of the government\'s goal to promote health.
    METHODS: This study aims to provide a detailed examination of the legal provisions and practices concerning partner notification among PLHIV in China. A mixed-methods research approach was employed between 2019 and 2020, combining questionnaire surveys, in-depth interviews, and participatory observations. A total of 433 valid responses were obtained through a questionnaire posted on a Chinese online platform for PLHIV. Following the collection and random coding of the questionnaire data, 40 individuals living with HIV were selected for in-depth interviews. Subsequently, a six-month field investigation was conducted in Guan ai jia yuan (Caring Home) in Jinhua City to further explore this issue.
    RESULTS: A considerable proportion of PLHIV exhibit a high rate of disclosure to their spouses (nearly 80%). In the context of sexual partners, 56% of PLHIV stated that their sexual partners were aware of their HIV infection. Whether married PLHIV disclosing to their spouses or unmarried/divorced PLHIV disclosing to sexual partners, however, a substantial majority expressed apprehension about the potential disruption to their relationships that the disclosure might cause. The sole exception was observed among married PLHIV in extramarital relationships who demonstrated a slightly diminished level of concern in this context. Reasons for non-disclosure predominantly included undetectable viral load and the adoption of protective measures.
    CONCLUSIONS: This study reveals that a prevailing \"HIV stigma\" hinders PLHIV from voluntarily fulfilling the disclosure duties bestowed by Article 38 of the Regulations on the Prevention and Control of HIV/AIDS, and the unclear legal provisions of the new Civil Code play a significant role in this regard. Addressing this issue necessitates not only increasing societal tolerance toward PLHIV and reducing instances of social exclusion but also shifting the legal basis of disclosure duties from disease prevention to rights and obligations within the legal relationships of the parties involved. When it comes to the recipients of disclosure, for instance, it is crucial to differentiate between spouses and sexual partners. As for PLHIV failing to fulfill their disclosure duties, apart from interventions involving indirect notifications, the addition of further legal responsibilities may not be advisable. Intentional transmission actions, on the other hand, should still be subject to severe penalties.
    BACKGROUND: Not applicable.
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  • 文章类型: Journal Article
    背景:50岁及以上的HIV感染者(PWH)数量正在增加。老年PWH(年龄≥50岁)的护理问题日益受到关注。了解老年人的护理偏好可以更好地为他们提供护理服务。这项研究的目的是调查护理偏好(家庭护理,自我照顾,机构护理,以社区为基础的护理,和互助护理)在老年PWH中,并确定影响其护理偏好的因素。
    方法:从2021年5月至11月,对年龄较大的PWH(年龄≥50岁)进行了一项关于护理偏好的横断面调查。我们使用便利抽样登记了319名参与者。我们设计了一份问卷来评估老年PWH的护理偏好。采用卡方检验和Fisher精确检验对护理偏好进行单因素分析。多元logistic回归用于确定影响护理偏好的因素。
    结果:大多数年龄较大的PWH(72.7%)首选家庭护理,很少(15.7%)喜欢自我护理。年龄较大的PWH更倾向于社区护理(5.3%),机构护理(5.0%)和互助护理(1.3%)。多变量分析表明,有房子的老年PWH,配偶和更多子女更倾向于选择家庭护理(p<.05)。年长的PWH独自生活,有更高的月收入和更高的艾滋病毒污名倾向于选择自我护理(p<0.05)。
    结论:家庭护理是老年PWH的首选模式,自我护理排名第二。更喜欢机构护理的人数,社区护理和互助护理很少。国家和政府应采取措施合理分配老年人的护理资源,以更好地满足老年人的护理需求。要加强社会保障,减少内化的艾滋病毒耻辱,改善社会支持,探索多元化的护理模式,以提高老年PWH患者的生活质量。
    The number of people living with HIV (PWH) aged 50 and above is increasing. The question of care among older PWH (aged ≥ 50 years) is an increasing concern. Understanding the care preference of older people can better provide care services for them. The purpose of this study was to investigate the care preference (home-based care, self-care, institutional care, community-based care, and mutual-aid care) among older PWH and identify the factors affecting their care preference.
    A cross-sectional survey was conducted among older PWH (aged ≥ 50 years) about care preference from May to November 2021. We enrolled 319 participants using convenience sampling. We designed a questionnaire to assess the care preference of older PWH. The Chi-square test and Fisher\'s exact test were used to conduct univariate analysis of care preference. Multinomial logistic regression was used to identify factors influencing care preference.
    Most older PWH (72.7%) preferred home-based care, and few (15.7%) preferred self-care. Fewer older PWH preferred community-based care (5.3%), institutional care (5.0%) and mutual-aid care (1.3%). Multivariate analysis showed that older PWH with a house, spouse and more children were more inclined to choose home-based care (p < .05). Older PWH living alone, having higher monthly income and higher HIV stigma preferred to choose self-care (p < .05).
    Home-based care was the most preferred model of older PWH, and self-care ranked second. The number of those who preferred institutional care, community-based care and mutual-aid care were few. Nation and government should take measures to allocate care resources for older adults reasonably to better meet the care needs of older PWH. It is important to strengthen social security, reduce internalized HIV stigma, improve social support, and explore diversified care models for improving the quality of life of older PWH.
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  • 文章类型: Journal Article
    COVID-19大流行对全球艾滋病毒感染者(PLWH)产生了独特的影响。对COVID-19的恐惧对PLWH心理健康的负面影响被标记为“双重压力”。“在PLWH中发现了对COVID-19的恐惧与HIV(内化)污名之间的关联。探索对COVID-19的恐惧与身体健康结果之间关系的研究很少,尤其是在PLWH中。在这项研究中,我们探讨了对COVID-19的恐惧与PLWH的身体健康之间的关系以及HIV污名的介导作用,社会支持,和物质使用。2021年11月至2022年5月在上海进行了PLWH(n=201)的横断面在线调查,中国。社会人口统计数据,害怕COVID-19,身体健康,与艾滋病毒相关的感知污名,社会支持,通过结构方程模型(SEM)收集和分析物质使用情况。在SEM分析中,对COVID-19的恐惧对身体健康有显著和间接的影响(β=-0.085),这主要是由艾滋病毒的污名介导的。在SEM分析中,最终的模型有一个很好的配合。对COVID-19的恐惧对艾滋病毒的污名有显著影响(β=0.223),其中大多数是直接影响(β=0.262),而通过物质使用的间接影响较小(β=-0.039)。此外,HIV污名对身体健康有显著影响(β=-0.382),其中大部分是直接的(β=-0.340),以及通过社会支持的小的间接影响(β=-0.042)。这是首批探索对感染COVID-19的恐惧如何影响PLWH的应对行为的研究之一(例如,使用物质并获得社会支持)用于对抗艾滋病毒的污名化以及在中国实现更好的身体健康。
    The COVID-19 pandemic has uniquely impacted people living with HIV (PLWH) worldwide. The negative impacts on PLWH\'s mental health from fear of COVID-19 are labeled as \"a double stress.\" The association between fear of COVID-19 and HIV (internalized) stigma has been found among PLWH. Studies that explore the relationships between fear of COVID-19 and physical health outcomes are few, especially among PLWH. In this study, we explored the relationship between fear of COVID-19 and physical health among PLWH and the mediated effects of HIV stigma, social support, and substance use. A cross-sectional online survey of PLWH (n = 201) from November 2021 to May 2022 was carried out in Shanghai, China. The data on socio-demographics, fear of COVID-19, physical health, HIV-related perceived stigma, social support, and substance use were gathered and analyzed by structure equation modeling (SEM). In SEM analysis, fear of COVID-19 showed a significant and indirect effect on physical health (β=-0.085) which was primarily mediated by HIV stigma. In SEM analysis, the final model had a good fit. Fear of COVID-19 showed a significant effect on HIV stigma (β = 0.223) with the majority being direct effects (β = 0.262) and a small indirect effect via substance use (β=-0.039). Furthermore, HIV stigma showed a significant effect on physical health (β=-0.382), the majority of which was direct (β=-0.340), and a small indirect effect via social support (β=-0.042). This is one of the first studies to explore how fear of contracting COVID-19 can affect PLWH\'s coping behaviors (e.g., using substances and obtaining social support) used to combat HIV stigma as well as to achieve better physical health in China.
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  • 文章类型: Journal Article
    背景:照顾艾滋病毒/艾滋病患者(PLWHA)需要临床经验和优质的护理服务技巧。本研究旨在探讨护理专业学生在照顾PLWHA方面的看法和经验。
    方法:这项定性描述性研究通过半结构化电话访谈,采访了来自中国7个省14家三级医院的18名护理PLWHA的实习护士。
    结果:叙述中出现了两个主题:学生护士对PLWHA的看法和态度以及学生护士对PLWHA的实践经验。揭示了五个主题集群,即“护理前的消极态度,\"\"护理中的一系列心理斗争,“\”在给予照顾后,有利的态度增加了,“\”关于为PLWHA提供护理的共识,“和”关于减少污染的注意事项。“
    结论:研究结果揭示了学生护士在整个临床经验中对PLWHA的看法的发展和变化。学生护士对PLWHA的看法和态度经历了三个不同的阶段,护理后观察到积极变化。参与者对艾滋病患者的看法和实践经验使患者能够接受公平和高质量的护理,并为护理教育者更好地准备HIV护士提供有价值的见解。
    BACKGROUND: Caring for people living with HIV/AIDS (PLWHA) requires clinical experience and quality care delivery skills. This study aimed to explore the perceptions and experiences of nursing students in caring for PLWHAs.
    METHODS: This qualitative descriptive study interviewed 18 student nurses who had cared for PLWHAs from 14 tertiary hospitals across 7 provinces in China through semi-structured telephone interviews.
    RESULTS: Two themes emerged from the narratives: student nurses\' perceptions and attitudes toward PLWHAs and student nurses\' practical experiences with PLWHAs. Five theme clusters were revealed, namely \"negative attitudes held before the care-giving,\" \"a series of psychological struggles in care-giving,\" \"favorable attitudes increased after the care-giving,\" \"consensus on care delivery for PLWHAs,\" and \"considerations regarding contamination reduction.\"
    CONCLUSIONS: Findings shed light on the development and changes in student nurses\' perspectives on PLWHAs throughout their clinical experiences. Student nurses\' perceptions and attitudes toward PLWHAs progressed through three distinct stages, and positive changes were observed after care-giving. Participants\' perceptions and practical experiences with patients with AIDS enable patients to receive fair and high-quality care and provide valuable insights for nursing educators better prepare HIV nurses.
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  • 文章类型: Journal Article
    Despite substantial global efforts to reduce HIV-related stigma, stigma and discrimination remain widespread and are among the most poorly understood aspects of the epidemic. However, there has been little research on whether HIV stigma in a country is associated with HIV prevalence. This article offers a socioecological perspective for understanding HIV stigma in a context of HIV prevalence. Using two international data sets (the UNAIDS 2009 HIV Epidemiological Report and the World Values Survey), we investigated whether and how HIV prevalence is associated with individual- and country-level HIV stigma. Results showed that in countries with higher HIV prevalence, people reported less HIV stigma (Studies 1 & 2). HIV knowledge mediated the relationship between HIV prevalence and stigma (Study 2). People in countries with higher HIV prevalence reported more knowledge about HIV transmission, which reduced their stigmatizing attitudes. These findings suggest that stigma-reduction programs should incorporate a socioecological perspective and consider the roles of prevalence rate of and knowledge of the disease.
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  • 文章类型: Journal Article
    HIV-related stigma negatively influences quality of life among people living with HIV. Little is known about psychological protective factors that mitigate negative impacts. This study aims to examine the role of self-efficacy in reducing effects of stigma on quality of life. A total of 2987 people living with HIV (age: M = 42.46 years, SD = 12.83; time since diagnosis: M = 3.23 years, SD = 2.39) provided data on internalized stigma, HIV symptom management self-efficacy, and health-related quality of life, as well as covariates. Using structural equation modeling, we found that self-efficacy mediated the relationship of stigma and quality of life. Future interventions to promote quality of life in people living with HIV need to focus on increasing HIV symptom management self-efficacy.
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  • 文章类型: Journal Article
    背景:马拉维是一个低收入国家,结核病(TB)负担很高。结核病诊断延迟和不及时开始治疗仍然是马拉维的主要问题,这可能会增加社区中结核病传播的风险。这项研究调查了马拉维北部地区结核病医疗保健提供者对结核病诊断延迟的相关因素。
    方法:共进行了9次焦点小组讨论,共57名参与者。参与者是医疗干部,包括地区结核病官员,临床人员,结核病护士,实验室技术人员和健康监测助理(HSA)。使用NVivo(11.0)软件进行数据分析。
    结果:与诊断延迟相关的因素分为三个主题:客户因素,机构因素和医疗保健提供者相关因素。客户对艾滋病毒检测的耻辱和恐惧,医疗机构内的资源短缺和医护人员对潜在患者的不良态度是结核病诊断延迟的最大影响因素。
    结论:结核病控制策略应旨在减少艾滋病毒的污名,改善资源供应,提高结核病医护人员的士气,以实现及时的结核病诊断。
    BACKGROUND: Malawi is a low-income country with high Tuberculosis (TB) burden. TB diagnosis delay and untimely initiation of treatment is still a major problem in Malawi which could increase the risk of tuberculosis transmission in the communities. This study investigated factors related to the diagnostic delay of tuberculosis from TB healthcare providers in the northern region of Malawi.
    METHODS: Nine focus group discussions were conducted with 57 participants in total. The participants were healthcare cadres including district TB officers, clinical officers, TB nurses, laboratory technicians and Health Surveillance Assistants (HSAs). NVivo (11.0) software was used for data analysis.
    RESULTS: The factors related to diagnostic delay were categorized into three themes: client factors, institutional factors and healthcare provider related factors. Client\'s stigma and fear for HIV test, resource shortage within healthcare institutions and the healthcare workers\' poor attitude against potential patients were among the most influential factors behind the TB diagnostic delay.
    CONCLUSIONS: The TB control strategies should aim to reduce HIV stigma, improve resource supply and improve TB healthcare workers\' morale in order to achieve timely TB diagnosis.
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  • 文章类型: Journal Article
    Children affected by HIV/AIDS have unique psychosocial needs that often go unaddressed in traditional treatment approaches. They are more likely than unaffected peers to encounter stigma, including overt discriminatory behaviors, as well as stereotyped attitudes. In addition, HIV-affected children are at risk for experiencing negative affect, including sadness and depression. Previous studies have identified a link between HIV stigma and the subsequent emotional status of children affected by HIV/AIDS. However, limited data are available regarding protective psychological factors that can mitigate the effects of HIV stigma and thus promote resiliency for this vulnerable population. Utilizing data from 790 children aged 6-17 years affected by parental HIV in rural central China this study aims to examine the association between HIV stigma, including both enacted and perceived stigma, and emotional status among HIV-affected children, as well as to evaluate the mediating effects of emotional regulation on the relationship between HIV stigma and emotional status. In addition, the moderating role of age is tested. Multiple regression was conducted to test the mediation model. We found that the experience of HIV stigma had a direct positive effect on negative emotions among children affected by HIV. Emotional regulation offers a level of protection, as it mediated the impact of HIV stigma on negative emotions. Moreover, age was found to moderate the relationship between perceived stigma and negative emotions. A significant interaction between perceived stigma and age suggested that negative emotions increase with age among those who perceived a higher level of stigmatization. Results suggest that children affected by HIV may benefit from interventions designed to enhance their capacity to regulate emotions and that health professionals should be aware of the link between stigma and negative emotion in childhood and adolescence and use the knowledge to inform their treatments with this population.
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