stigma

污名
  • 文章类型: English Abstract
    Mental health problems represent a growing global concern. This has intensified since the coronavirus pandemic and is also partly due to greater awareness of the extent of mental health problems and the lack of attention they have received over time. In many high-income countries, increases in service provision have been accompanied by efforts to increase the mental health literacy of the general population. One example of this in Australia, is the mental health first aid training program which is informed by the mental health first aid guidelines created to promote mental health literacy among the general population, reduce stigma, and enable lay people to provide timely support, and facilitate access to health services for a person developing a mental health problem or in a mental health crisis.
    Between March 2020 and May 2023, a consortium of researchers from Australia, Argentina and Chile carried out the cultural adaptation of five guidelines (drinking problems, depression, suicide risk, trauma, and psychosis) using the Delphi consensus methodology. Health professionals with expertise in each of the topics and people with lived experience (their own or as informal caregivers) from Argentina and Chile were grouped into separate panels. Over two survey rounds, they evaluated the items from the Australian guidelines and gave their opinion on the importance of their inclusion in the local guidelines. Additionally, they suggested items not included in the Australian guidelines.
    This report presents the details of the methodology used and the most significant results of each of the five adapted guidelines, particularly, those of relevance to the Argentinian and Chilean context. The general acceptance of the role of the first aider stands out as an important outcome. However, in comparison to Australia, the first aider’s role was reduced and the health professional role was expanded. Self-help recommendations were typically not endorsed by local experts, suggesting skepticism toward these strategies. Other specific recommendations for each of the guidelines are described and analyzed in this report.
    A study of the implementation of training courses based on these guidelines is required to make the necessary adaptations and determine their local usefulness.
    Los problemas de salud mental en la comunidad representan una preocupación global creciente, intensificada desde la pandemia por coronavirus y gracias a una mayor conciencia respecto de su extensión y del bajo nivel de atención que recibieron a lo largo del tiempo. En Australia se crearon las primeras guías de primeros auxilios en salud mental para promover un mayor conocimiento de temas de salud mental en la población general, brindar apoyo oportuno, facilitar el acceso a los servicios de salud por esta problemática, y disminuir el estigma asociado al padecimiento mental.
    Un consorcio de investigadores de Australia, Argentina y Chile, entre marzo de 2020 y mayo de 2023, realizó la adaptación cultural de cinco guías (consumo problemático de alcohol, depresión, riesgo de suicidio, trauma, y psicosis) siguiendo la metodología de consenso Delphi. Profesionales expertos en cada uno de los temas y personas con experiencia vivida  (propia o como cuidadores informales) conformaron sendos paneles con miembros de Argentina y de Chile. En dos rondas de consulta evaluaron los ítems provenientes de las guías de Australia y opinaron sobre su pertinencia para formar parte de las guías locales. Adicionalmente, sugirieron ítems que no estaban contemplados en las guías australianas.
    El presente reporte presenta el detalle de la metodología empleada y los resultados más significativos de cada una de las cinco guías adaptadas y, particularmente, su aplicabilidad para Argentina y Chile. Sobresale la aceptación general del rol del asistente de primeros auxilios en salud mental, aunque también con limitaciones en el rol y funciones en favor del privilegio de profesionales de la salud. Las recomendaciones de auto-ayuda fueron mayoritariamente no aceptadas por los expertos locales, sugiriendo desconfianza respecto de estas estrategias. Otras recomendaciones específicas para cada una de las guías se describen y analizan en este reporte.
    Se requiere un estudio de la implementación de la capacitación en base a estas guías para realizar ulteriores adaptaciones y determinar su utilidad local.
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  • 文章类型: Systematic Review
    目的:本研究的目的是对为乳腺癌患者设计的污名评估工具的测量特性和方法学质量进行系统回顾。目的是为临床医务人员提供选择高质量评估工具的基础。
    方法:在各种数据库中进行了全面的计算机搜索,包括SinoMed,中国国家知识基础设施(CNKI),万方数据库,中国科技期刊数据库(VIP),Embase,PubMed,WebofScience,科克伦图书馆,还有Scopus,从数据库开始到2023年3月20日进行搜索。文献筛选和数据提取由两名研究者独立进行,坚持预定义的纳入和排除标准。使用基于共识的健康测量仪器选择标准(COSMIN)系统评估指南对评估工具进行评估。
    结果:在最终分析中,共包括9种评估工具.然而,这些工具都没有解决测量误差,跨文化有效性,标准有效性,和响应性。遵循COSMIN准则,BCSS和CSPDS被分配到A级推荐,而其余的工具收到了B类建议。
    结论:BCSS和CSPDS量表在测量特征方面表现出全面的评估,表现出良好的方法学质量,测量属性质量,和支持证据。因此,建议使用这些量表来评估乳腺癌的污名。然而,其余评估工具需要进一步验证。
    OBJECTIVE: The objective of this study was to conduct a systematic review of the measurement properties and methodological quality of stigma assessment tools designed for breast cancer patients. The aim was to provide clinical medical staff with a foundation for selecting high-quality assessment tools.
    METHODS: A comprehensive computer search was carried out across various databases, including SinoMed, China National Knowledge Infrastructure (CNKI), Wanfang Database, China Science and Technology Journal Database(VIP), Embase, PubMed, Web of Science, The Cochrane Library, and Scopus, which were searched from the inception of the databases until March 20, 2023. Literature screening and data extraction were performed independently by two researchers, adhering to predefined inclusion and exclusion criteria. The assessment tools were evaluated using the Consensus-based Standards for the selection of health Measurement Instruments (COSMIN) systematic evaluation guidelines.
    RESULTS: In the final analysis, a total of 9 assessment tools were included. However, none of these tools addressed measurement error, cross-cultural validity, criterion validity, and responsiveness. Following the COSMIN guidelines, BCSS and CSPDS were assigned to Class A recommendations, while the remaining tools received Class B recommendations.
    CONCLUSIONS: The BCSS and CSPDS scales demonstrated comprehensive assessment in terms of their measurement characteristics, exhibiting good methodological quality, measurement attribute quality, and supporting evidence. Therefore, it is recommended to utilize these scales for evaluating breast cancer stigma. However, further validation is required for the remaining assessment tools.
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  • 文章类型: Letter
    暂无摘要。
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  • 文章类型: Journal Article
    肥胖被认为是一种复杂的疾病,慢性疾病。然而,占主导地位的治疗叙事仍然是目标体重可以通过少吃来实现,更多地使用意志力,将改变的责任放在肥胖者(PwO)身上。这项研究评估了修改这一叙述的影响,将肥胖视为一种可治疗的疾病,关于内化的体重偏差和感知的患者-提供者关系。PwO被招募到一项在线研究中,其中展示了两个视频;第一个显示传统医生支持少吃,移动更多的方法,第二张照片显示医生将肥胖描述为一种可治疗的医学疾病。在每个视频之后,参与者被要求想象他们正在接受医生的治疗,并完成了体重偏差内部化量表(WBIS)和患者-医疗保健提供者沟通量表(PHCPCS)。共有61个PwO(52%的响应率)完成了该协议。与传统的叙事视频相比,修订后的叙述性视频导致WBIS评分显著降低,PHCPCS评分显著提高,是参与者的首选.在这个小规模研究的背景下,证据支持修订后的叙述将肥胖作为一个复杂的,非个人失误导致的慢性但可治疗的疾病对患者-提供者关系有积极影响,并且与内在化体重偏倚的减少相关.这些证据支持需要帮助PwO将肥胖从个人失败转变为值得护理的合法医疗状况。
    Obesity is becoming recognized as a complex, chronic medical condition. However, the dominant treatment narrative remains that goal weight can be achieved by eating less, moving more using willpower, placing responsibility for change on the person with obesity (PwO). This study evaluated the impact of revising this narrative, to viewing obesity as a treatable medical condition, on internalized weight bias and perceived patient-provider relationship. PwO were recruited into an online study in which two videos were presented; the first showing a traditional doctor endorsing the eat less, move more approach, and the second showing a doctor describing obesity as a treatable medical condition. After each video participants were asked to imagine that they were being treated by that doctor and completed the Weight Bias Internalization Scale (WBIS) and the Patient-Health Care Provider Communication Scale (PHCPCS). A total of 61 PwO (52% response rate) completed the protocol. Compared to the traditional narrative video, the revised narrative video resulted in significant reductions in WBIS scores and significant increases in the PHCPCS scores and was preferred by participants. Within the context of this small-scale study evidence supports that the revised narrative promoting obesity as a complex, chronic but treatable medical condition that is not the result of personal failure has a positive impact on the perceived patient-provider relationship and is associated with reductions in internalized weight bias. This evidence supports the need to help PwO reframe obesity from a personal failure to a legitimate medical condition worthy of care.
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  • 文章类型: Journal Article
    术语非酒精性脂肪性肝病(NAFLD)和非酒精性脂肪性肝炎(NASH)的主要局限性是依赖排他性混淆术语和使用潜在的污名化语言。这项研究旨在确定内容专家和患者倡导者是否赞成更改术语和/或定义。
    方法:由三个大型泛国家肝脏协会领导的改良Delphi过程。共识被先验地定义为绝大多数(67%)投票。命名过程外部的独立专家委员会对首字母缩写词及其诊断标准提出了最终建议。
    结果:共有来自56个国家的236名小组成员参加了四次在线调查和两次混合会议。四轮调查的回应率为87%,83%,83%和78%,分别。74%的受访者认为当前的命名法存在足够的缺陷,无法考虑更改名称。61%和66%的受访者认为“非酒精”和“脂肪”这两个术语是污名化的,分别。选择脂肪变性肝病(SLD)作为总体术语,以涵盖脂肪变性的各种病因。脂肪性肝炎一词被认为是一个重要的病理生理概念,应保留。选择替代NAFLD的名称是代谢功能障碍相关的脂肪变性肝病(MASLD)。已经达成共识,改变定义,包括五个心脏代谢危险因素中的至少一个。那些没有代谢参数且没有已知原因的人被认为具有隐源性SLD。一个新的类别,在纯粹的面具之外,选择称为MetALD来描述那些每周消耗更多酒精的MASLD患者(女性和男性分别为140至350克/周和210至420克/周)。
    结论:新的术语和诊断标准得到广泛支持,非污名化,可以提高意识和患者识别。
    The principal limitations of the terms NAFLD and NASH are the reliance on exclusionary confounder terms and the use of potentially stigmatising language. This study set out to determine if content experts and patient advocates were in favour of a change in nomenclature and/or definition. A modified Delphi process was led by three large pan-national liver associations. The consensus was defined a priori as a supermajority (67%) vote. An independent committee of experts external to the nomenclature process made the final recommendation on the acronym and its diagnostic criteria. A total of 236 panellists from 56 countries participated in 4 online surveys and 2 hybrid meetings. Response rates across the 4 survey rounds were 87%, 83%, 83%, and 78%, respectively. Seventy-four percent of respondents felt that the current nomenclature was sufficiently flawed to consider a name change. The terms \"nonalcoholic\" and \"fatty\" were felt to be stigmatising by 61% and 66% of respondents, respectively. Steatotic liver disease was chosen as an overarching term to encompass the various aetiologies of steatosis. The term steatohepatitis was felt to be an important pathophysiological concept that should be retained. The name chosen to replace NAFLD was metabolic dysfunction-associated steatotic liver disease (MASLD). There was consensus to change the definition to include the presence of at least 1 of 5 cardiometabolic risk factors. Those with no metabolic parameters and no known cause were deemed to have cryptogenic steatotic liver disease. A new category, outside pure metabolic dysfunction-associated steatotic liver disease, termed metabolic and alcohol related/associated liver disease (MetALD), was selected to describe those with metabolic dysfunction-associated steatotic liver disease, who consume greater amounts of alcohol per week (140-350 g/wk and 210-420 g/wk for females and males, respectively). The new nomenclature and diagnostic criteria are widely supported and non-stigmatising, and can improve awareness and patient identification.
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  • 文章类型: Journal Article
    关于非酒精性脂肪性肝病(NAFLD)术语向代谢相关脂肪性肝病(MAFLD)的变化,存在持续的争论。来自印度全国肝脏研究协会(INASL)和南亚肝脏研究协会(SAASL)的专家参与诊断,管理,并防止NAFLD在2022年3月开会审议是否从NAFLD更名为MAFLD是适当的,由一组专家提出,他们在2020年发表了一份“共识”声明。MAFLD更名的支持者认为NAFLD不反映当前的知识,和术语MAFLD被认为是一个更合适的总体术语。然而,这个建议改名为MAFLD的“共识”小组并不代表胃肠病学家和肝病学家的观点和意见,以及对全球患者的看法,鉴于任何疾病实体命名法的改变必然会对患者护理的各个方面产生多维影响。这一声明是与会者共同努力的结果,他们就拟议名称变更的具体问题提出了建议。然后将建议分发给所有核心小组成员,并根据系统的文献检索进行更新。最后,所有成员都按照标准准则使用名义投票技术对他们进行了投票。证据质量是根据建议等级改编的,评估,开发和评估系统。
    There is an ongoing debate on the change of terminology of non-alcoholic fatty liver disease (NAFLD) to metabolic associated fatty liver disease (MAFLD). Experts from the Indian National Association for Study of the Liver (INASL) and the South Asian Association for Study of the Liver (SAASL) involved in diagnosing, managing, and preventing NAFLD met in March 2022 to deliberate if the name change from NAFLD to MAFLD is appropriate, as proposed by a group of experts who published a \"consensus\" statement in 2020. Proponents of name change to MAFLD opined that NAFLD does not reflect current knowledge, and the term MAFLD was suggested as a more appropriate overarching term. However, this \"consensus\" group which proposed the name change to MAFLD did not represent the views and opinions of gastroenterologists and hepatologists, as well as perceptions of patients across the globe, given the fact that change of nomenclature for any disease entity is bound to have multidimensional impact on all aspects of patient care. This statement is the culmination of the participants\' combined efforts who presented recommendations on specific issues concerning the proposed name change. The recommendations were then circulated to all the core group members and updated based on a systematic literature search. Finally, all the members voted on them using the nominal voting technique as per the standard guidelines. The quality of evidence was adapted from the Grades of Recommendation, Assessment, Development and Evaluation system.
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  • 文章类型: Practice Guideline
    目标:专注于感知的交叉点,诊断,污名,以及肥胖管理中的体重偏倚,并就改善肥胖者护理的可操作步骤达成共识。
    方法:美国临床内分泌学协会(AACE)召开了跨学科医疗保健专业人员的共识会议,讨论使用基于肥胖的慢性病(ABCD)命名法诊断肥胖与分期之间的相互作用。体重柱头,和内化权重偏倚(IWB),并制定可操作的指导,以帮助临床医生在这种情况下减轻IWB和污名。
    结果:提出了以下肯定和紧急的概念:(1)肥胖是ABCD,这些术语可以以不同的方式进行交流;(2)肥胖的分类类别应使用特定种族的BMI范围和腰围(WC)在体重指数(BMI)的范围内改善命名法;(3)根据ABCD并发症的存在和严重程度对肥胖的临床严重程度进行分期,可能会减少以体重为中心对体重和IWB的贡献;(4)体重污名和内在化偏见既是生活质量的驱动因素容易患心理障碍,并损害治疗干预措施的有效性;(5)应在所有患者中评估污名化和IWB的存在和情况,并将其纳入ABCD严重程度的分期;(6)最佳护理将需要提高对解决IWB和污名化问题的医疗保健专业人员的认识并开发教育和干预工具。
    结论:共识小组提出了一种整合偏见和污名化的方法,心理健康,和健康的社会决定因素在一个分期系统的ABCD严重程度,以帮助患者管理。为了在肥胖患者的慢性护理模式中有效解决污名和IWB问题,有必要的卫生保健系统,准备提供基于证据,以人为中心的治疗;了解肥胖是一种慢性疾病并有权寻求护理和参与行为治疗的患者;以及促进无偏见同情护理政策和基础设施的社会,获得基于证据的干预措施,和疾病预防。
    OBJECTIVE: To focus on the intersection of perception, diagnosis, stigma, and weight bias in the management of obesity and obtain consensus on actionable steps to improve care provided for persons with obesity.
    METHODS: The American Association of Clinical Endocrinology (AACE) convened a consensus conference of interdisciplinary health care professionals to discuss the interplay between the diagnosis of obesity using adiposity-based chronic disease (ABCD) nomenclature and staging, weight stigma, and internalized weight bias (IWB) with development of actionable guidance to aid clinicians in mitigating IWB and stigma in that context.
    RESULTS: The following affirmed and emergent concepts were proposed: (1) obesity is ABCD, and these terms can be used in differing ways to communicate; (2) classification categories of obesity should have improved nomenclature across the spectrum of body mass index (BMI) using ethnic-specific BMI ranges and waist circumference (WC); (3) staging the clinical severity of obesity based on the presence and severity of ABCD complications may reduce weight-centric contribution to weight stigma and IWB; (4) weight stigma and internalized bias are both drivers and complications of ABCD and can impair quality of life, predispose to psychological disorders, and compromise the effectiveness of therapeutic interventions; (5) the presence and of stigmatization and IWB should be assessed in all patients and be incorporated into the staging of ABCD severity; and (6) optimal care will necessitate increased awareness and the development of educational and interventional tools for health care professionals that address IWB and stigma.
    CONCLUSIONS: The consensus panel has proposed an approach for integrating bias and stigmatization, psychological health, and social determinants of health in a staging system for ABCD severity as an aid to patient management. To effectively address stigma and IWB within a chronic care model for patients with obesity, there is a need for health care systems that are prepared to provide evidence-based, person-centered treatments; patients who understand that obesity is a chronic disease and are empowered to seek care and participate in behavioral therapy; and societies that promote policies and infrastructure for bias-free compassionate care, access to evidence-based interventions, and disease prevention.
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  • 文章类型: Journal Article
    背景:这项研究的目的是在2019年3月Mindframe指南发布之前,生成一个关于酒精和其他药物(AOD)问题的印刷媒体报告的基线数据库。具体来说,(i)描述与专注于澳大利亚新闻媒体中AOD使用的媒体条目相关的内容;(ii)确定媒体条目如何与与最近开发的Mindframe指南相关的几个领域进行比较,以公开报道AOD;(iii)确定与不同分数相关的内容因素。
    方法:使用澳大利亚和新西兰Newsstream数据库搜索2016年7月至2017年6月期间的媒体条目中与AOD相关的关键术语。开发了两种编码方案,以根据Mindframe指南对50%的媒体条目的分层样本进行评分。使用线性回归模型确定内容和总比较分数之间的关联。
    结果:与当前研究相关的2007年文章的详细编码表明,大多数(67%)集中在三种物质中的一种:酒精,大麻或甲基苯丙胺。大多数条目要么是执法(22%),要么是与刑事司法有关的(19%)。与Mindframe指南相比,专注于甲基苯丙胺的条目得分明显低于酒精条目,同样,侧重于犯罪/司法相关主题的条目得分明显低于侧重于积极成果的条目。
    结论:打印媒体条目数量不成比例,特别是那些与甲基苯丙胺相关的使用,专注于犯罪或司法相关主题,可能进一步助长耻辱,并强调使用AOD的法律后果。
    The aim of this study was to generate a baseline database of print media reporting on alcohol and other drug (AOD) issues prior to the release of the Mindframe guidelines in March 2019. Specifically, to: (i) describe the content associated with media entries that focus on AOD use in Australian news media; (ii) determine how the media entries compare to several domains associated with recently developed Mindframe guidelines for publicly reporting on AOD; and (iii) identify content factors associated with different scores.
    Media entries between July 2016 and June 2017 were searched for key AOD-related terms using the Australian and New Zealand Newsstream database. Two coding schemes were developed to rate a stratified sample of 50% of the media entries against the Mindframe guidelines. Associations between content and total comparison scores were determined using linear regression models.
    Detailed coding of the 2007 articles identified as relevant for the current study indicated that a majority (67%) were focused on one of three substances: alcohol, cannabis or methamphetamine. Most of the entries were either law enforcement (22%) or criminal justice related (19%). Entries that focused on methamphetamine scored significantly lower than entries on alcohol when compared to the Mindframe guidelines, similarly entries focused on crime/justice-related topics scored significantly lower than entries focused on positive outcomes.
    A disproportionate number of print media entries, particularly those related methamphetamine use, focused on crime or justice-related topics, potentially further contributing to stigma, and emphasising the legal consequences of AOD use.
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  • 文章类型: Practice Guideline
    新冠肺炎疫情需要密切检查与劳动力相关的压力源,几十年来,这些压力源导致了广泛的倦怠,负面健康结果,包括心理健康结果,以及受过良好教育的专业人员的流失,这些专业人员是护理行业的未来。在美国和全球,证据表明已知会降低幸福感的因素,包括不平等,少数群体地位问题,持续的歧视,和苛刻的工作环境。美国护理学会(AAN),致力于组织卓越,护理领导和循证政策,制定反映其使命及其护理附属公司和公司成员使命的声明,美国护士协会。在护理中,尽管其成员为进步做出了努力,专业的实现通常受到护士实践和工作场所因素的系统的限制,他们几乎无法控制。关键组织采取行动,在工作场所安全的系统层面发起变革,为了增加职业流动性,并推动增加获得医疗保健资源的政策可以改善护士的福祉。本文提出了AAN专家小组关于建立卓越的医疗保健系统的建议,精神病学心理健康和物质使用,以及美国护理学会全球健康专家小组,以在政府和专业/医疗保健组织领域利用相关政策。通过关键,创新的政策变化。这些将通过协会之间的合作来实现,组织,非营利组织,以及公众和媒体。
    The COVID-19 pandemic has required close examination of workforce-related stressors that over decades have contributed to widespread burnout, negative health outcomes, including mental health outcomes, and the loss of the well-educated professionals who are the future of the nursing profession. In the United States and globally, evidence points to factors known to diminish well-being, including inequities, issues of minority status, persistent discrimination, and demanding work environments. The American Academy of Nursing (AAN), dedicated to organizational excellence, nursing leadership and evidence-based policy, develops statements reflecting its mission and those of its nursing affiliates and corporate member, The American Nurses Association. Within nursing, despite the efforts of its members toward advancement, professional fulfillment is often constrained by the systems in which nurses practice and workplace factors over which they have little control. Action by key organizations to initiate changes at systems levels in workplace safety, to increase professional mobility, and propel policies that increase access to health care resources could improve nurse well-being. This paper proposes recommendations from the AAN Expert Panels on Building Health Care System Excellence, Psychiatric Mental Health and Substance Use, and Global Health Expert Panels for the American Academy of Nursing to leverage related policy in the arenas of government and professional/healthcare organizations. Transforming health care work environments and advancing nurse well-being and equity can be accomplished through key, innovative policy changes. These will be achieved through collaboration among associations, organizations, nonprofit groups, and with the public and the media.
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  • 文章类型: Journal Article
    肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)的新NICE指南,于2021年10月发布,对治疗建议做出了重大改变。它承认这种慢性疾病的复杂性,这总是影响生活质量,可能会严重残疾,认识到患有ME/CFS的人在没有任何特定诊断测试的情况下经常经历的偏见和耻辱。该指南概述了准确诊断的步骤,认识到劳累后不适是核心症状;重要的是,ME/CFS现在可以在3个月后诊断,以改善长期健康结果。它建议需要个人,由多学科团队量身定制的管理,确保个人的福祉至关重要。该指南明确指出,任何基于固定增量增加身体活动或锻炼的计划,例如,分级运动疗法(GET),不应将其作为ME/CFS的治疗方法,并强调认知行为治疗(CBT)仅应作为支持性干预措施.由于NICE委员会审查要求严格的方法,并纳入了有经验的人作为委员会成员的证词,本指南将影响英国及其他地区未来ME/CFS的诊断和管理.
    The new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), published in October 2021, makes significant changes in treatment recommendations. It acknowledges the complexity of this chronic medical condition, which always impacts quality of life and can be profoundly disabling, recognising the prejudice and stigma that people with ME/CFS often experience in the absence of any specific diagnostic test. The guideline outlines steps for accurate diagnosis, recognising post-exertional malaise as a core symptom; importantly, ME/CFS can now be diagnosed after just 3 months in a bid to improve long-term health outcomes. It recommends the need for individual, tailored management by a multi-disciplinary team, ensuring that the wellbeing of the individual is paramount. The guideline makes clear that any programme based on fixed incremental increases in physical activity or exercise, for example, graded exercise therapy (GET), should not be offered as a treatment for ME/CFS and emphasises that cognitive behavioural therapy (CBT) should only be offered as a supportive intervention. Because of the rigorous methodology required by NICE Committee review and the inclusion of the testimony of people with lived experience as committee members, this guideline will influence the future diagnosis and management of ME/CFS in the UK and beyond.
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