PDF(Pubmed)
Abstract：
The new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), published in October 2021, makes significant changes in treatment recommendations. It acknowledges the complexity of this chronic medical condition, which always impacts quality of life and can be profoundly disabling, recognising the prejudice and stigma that people with ME/CFS often experience in the absence of any specific diagnostic test. The guideline outlines steps for accurate diagnosis, recognising post-exertional malaise as a core symptom; importantly, ME/CFS can now be diagnosed after just 3 months in a bid to improve long-term health outcomes. It recommends the need for individual, tailored management by a multi-disciplinary team, ensuring that the wellbeing of the individual is paramount. The guideline makes clear that any programme based on fixed incremental increases in physical activity or exercise, for example, graded exercise therapy (GET), should not be offered as a treatment for ME/CFS and emphasises that cognitive behavioural therapy (CBT) should only be offered as a supportive intervention. Because of the rigorous methodology required by NICE Committee review and the inclusion of the testimony of people with lived experience as committee members, this guideline will influence the future diagnosis and management of ME/CFS in the UK and beyond.
摘要：
肌痛性脑脊髓炎/慢性疲劳综合征（ME/CFS）的新NICE指南，于2021年10月发布，对治疗建议做出了重大改变。它承认这种慢性疾病的复杂性，这总是影响生活质量，可能会严重残疾，认识到患有ME/CFS的人在没有任何特定诊断测试的情况下经常经历的偏见和耻辱。该指南概述了准确诊断的步骤，认识到劳累后不适是核心症状；重要的是，ME/CFS现在可以在3个月后诊断，以改善长期健康结果。它建议需要个人，由多学科团队量身定制的管理，确保个人的福祉至关重要。该指南明确指出，任何基于固定增量增加身体活动或锻炼的计划，例如,分级运动疗法（GET），不应将其作为ME/CFS的治疗方法,并强调认知行为治疗(CBT)仅应作为支持性干预措施.由于NICE委员会审查要求严格的方法，并纳入了有经验的人作为委员会成员的证词，本指南将影响英国及其他地区未来ME/CFS的诊断和管理.
