stigma

污名
  • 文章类型: Journal Article
    墨尔本的COVID-19“硬封锁”,澳大利亚在2020年将公共住房作为目标,因此将与公共住房相关的风险视为后工业城市中最污名化的场所。本文借鉴了对墨尔本公共住房租户的采访,了解他们对COVID-19封锁的经验,以分析居民账户中的污名。将Wacquant等人(2014)的“领土污名化”概念与关于污名化生物政治的社会学工作配对,我们考虑污名化的动态,追踪它如何发挥作用,以划定社区边界,并为大流行遏制措施辩护。居民们驾驭着多层的耻辱,包括对公共住房的陈规定型观念,邻近居民的规范性判断,和更广泛的公共住房系统充满了结构性问题。这些社区的成员既是污名化的目标,又试图与那些被视为污名化媒介的人保持距离。我们的参与者报告了动员社会距离策略,这些策略体现在基于外表的感知风险的规范评估中,假定吸毒和过去的行为。我们探讨了这些领土污名化法令的含义,并追溯了将公共住房建设为贫困城市地区的排斥逻辑,被视为威胁社区健康的“其他人”的家庭。
    The COVID-19 \'hard lockdowns\' in Melbourne, Australia in 2020 targeted public housing estates thus trading on perceptions of risk associated with public housing as some of the most stigmatised sites in post-industrial cities. This article draws on interviews with Melbourne public housing tenants on their experience of COVID-19 lockdowns to analyse the place of stigma in residents\' accounts. Pairing Wacquant et al\'s (2014) concept of \'territorial stigma\' with sociological work on the biopolitics of stigma we consider the dynamics of stigma, tracing how it functions to delimit community boundaries and justify pandemic containment measures. Residents navigate multiple layers of stigma, including stereotypes of public housing, normative judgements of neighbouring residents, and a broader public housing system riven with structural issues. Members of these communities are both the targets of stigma and seek to distance themselves from those seen as vectors of stigma. Our participants report mobilising social distancing strategies couched in normative assessments of perceived risk based on physical appearance, presumed drug use and past conduct. We explore the implications of these enactments of territorial stigma and trace the logics of abjection that construct public housing as deprived urban zones, home to abject \'Others\' perceived as threatening the health of the community.
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  • 文章类型: Journal Article
    简介:关于痴呆症患者的污名化语言可能会导致潜在的有害和不人道的后果。在精神卫生病房中使用的有关痴呆症患者的语言可能会侧重于医学观点,并建议与患者的监护关系,而不是以人为中心的个人帐户。这种语言可能对提供以人为本的护理产生毁灭性影响。这项研究调查了威尔士三个痴呆症专科病房的医疗保健案例笔记中记载的痴呆症患者与临床实践之间的关系,英国。向病房工作人员提供了语言指导,以评估是否可以减少污名化的语言,以及这是否影响了以人为本的护理。方法:对痴呆症护理图进行了调整,以分析病例记录条目,以在三个数据收集点提高和降低痴呆症患者的账目。将这些与三个病房的常规DCM护理观察结果进行比较。医疗保健案例记录了117名痴呆症患者,分析了超过10个月的4,522个条目。将三个病房内38名痴呆症患者的DCM观察结果与病例记录结果进行了比较。在每个数据收集点之后,与护理人员共享以人为本的语言指导。结果:在提供以人为本的语言指导之后,观察到在所有三个病房中,个人增强语言的使用都有所增加。非以人为中心的案例记录条目主要侧重于标签语言,与其他DCM领域相比,有关无效和对象化的语言也经常发生。以人为中心的语言通常涉及承认。尽管调查结果不一致,但在某些领域,案例说明条目与实践之间的关系很明显。讨论和启示:研究结果强调了在医疗保健中解决污名化语言的重要性,并建议需要进一步的研究来支持痴呆症护理中的反污名化议程。
    Introduction: Stigmatising language concerning people living with dementia can cause potentially harmful and dehumanising consequences. Language used about people living with dementia in mental health wards may focus on medical perspectives and suggest custodial relationships with patients rather than person-centred accounts of individuals. This language could have a devastating impact on the provision of person-centred care. This study investigated the relationship between accounts of people living with dementia written in healthcare case notes and clinical practice at three dementia specialist wards in Wales, UK. Language guidance was provided to ward staff to assess whether stigmatising language could be reduced and whether this influenced the provision of person-centred care.Methodology: Dementia Care Mapping was adapted to analyse case note entries for enhancing and detracting accounts of people living with dementia at three data collection points. These were compared to the results of routine DCM observations of care across the three wards. The healthcare case notes of 117 people living with dementia, encompassing 4, 522 entries over ten months were analysed. DCM observations of 38 people living with dementia within the three wards were compared against the case note results. Person-centred language guidance was shared with care staff following each data collection point.Results: Following the provision of person-centered language guidance, the use of personally enhancing language was observed to increase across all three wards. Non-person-centred case note entries predominantly focussed on Labelling language, whilst language concerning Invalidation and Objectification also occurred frequently compared to other DCM domains. Person centred language typically concerned Acknowledgement. A relationship between case note entries and practice was evident in some domains although findings were inconsistent.Discussion and Implications: The findings highlight the importance of addressing stigmatising language in healthcare and suggest that further studies to support the anti-stigma agenda in dementia care are required.
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  • 文章类型: Journal Article
    持续的暴露前预防(PrEP)使用可降低HIV感染的风险。然而,在最需要的人中,吸收滞后。性身份污名可能是高风险社区中PrEP意识和使用的重要障碍。这项研究的主要目的是确定性认同是否与PrEP的意识和使用有关。这项多站点HIV预防试验网络(HPTN)研究(HPTN078)的重点是在筛查时HIV阴性的男男性行为者(MSM)(n=335)。大多数参与者是非白人(62.1%),年龄小于35岁(57.9%),单身(79.1%),知道PrEP,但从未服用过PrEP(52.5%)。参与者填写了包括性史和身份在内的问卷;女同性恋,同性恋,双性恋,变性人,酷儿(LGBTQ)社区参与;PrEP意识和使用;以及包括家人和朋友污名在内的几种性身份污名化措施,一般的社会耻辱,和预期的医疗保健耻辱。单变量和多项逻辑回归模型有助于确定与PrEP意识和使用相关的因素。与黑人和白人参与者相比,PrEP意识存在明显差异;50%的黑人参与者报告不了解PrEP,而白人参与者为11.8%。在这个样本中,同性恋性别认同(与双性恋身份相比)与PrEP意识(AOR6.66)和使用(AOR16.9)增加相关。此外,29%的性取向和PrEP使用之间的关联是通过内化的柱头介导的。鉴于MSM的PrEP摄取较低,解决性认同污名的干预措施可能会激发更大的PrEP摄取。
    Persistent pre-exposure prophylaxis (PrEP) use reduces the risk of HIV infection, yet uptake lags among those with the greatest need. Sexual identity stigma may be a significant barrier to PrEP awareness and use among high-risk communities. The primary aim of this study was to determine whether sexual identity was related to PrEP awareness and use. This multi-site HIV Prevention Trials Network (HPTN) study (HPTN 078) focuses on men who have sex with men (MSM) (n=335) who were HIV-negative at screening. The majority of participants were non-white (62.1%), younger than 35 (57.9%), single (79.1%), and aware of PrEP, yet had never taken PrEP (52.5%). Participants completed questionnaires including sexual history and identity; lesbian, gay, bisexual, transgender, queer (LGBTQ) community engagement; PrEP awareness and use; and several measures of sexual identity stigma including family and friend stigma, general societal stigma, and anticipated healthcare stigma. Univariate and multinomial logistic regression models helped to determine factors associated with PrEP awareness and use. There were stark disparities in PrEP awareness comparing Black and White participants; 50% of Black participants reported being PrEP unaware vs 11.8% of White participants. In this sample, gay sexual identity (compared to bisexual identity) was associated with increased PrEP awareness (AOR 6.66) and use (AOR 16.9). Additionally, 29% of the association between sexual orientation and PrEP use was mediated through internalized stigma. Given low PrEP uptake among MSM, interventions that address sexual identity stigma may motivate greater PrEP uptake.
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  • 文章类型: Journal Article
    媒体中对精神分裂症的负面描述可以提示病情的污名化。然而,因为关于语言污名化精神分裂症的研究集中在纸质媒体上,其结果对当代媒体的推广性有限。此外,关于指导媒体专业人员准确描述精神分裂症的干预措施的研究一直很少。本研究有两个目的:(1)评估印刷,Web,瑞典的广播/电视新闻媒体描绘了精神分裂症,(2)评估针对媒体专业人士对精神分裂症信息的反应以及污名化语言的后果。
    使用Retriever\的数据库中的数据,考虑到媒体类型和主题,术语“精神分裂症”和“精神分裂症”在过去的20年中进行了研究,而对这些术语的污名化报道的分析使用了过去10年的媒体。还评估了媒体专业人士在反污名化信息运动SigmaWatch中的反应和行动。
    在2002年至2022年之间,“精神分裂症”在数据集中被提及34141次,“精神分裂症”被提及10058次。然而,无统计学显著趋势.所有媒体主题和大多数类型的媒体都包含污名化的报道。在收到StigmaWatch信息电子邮件的230名媒体专业人士中,77(33%)回答。大多数回答都是支持性的,14%的专业人员报告采取了纠正措施(例如,修改对精神分裂症的错误描述)。
    没有媒体话题没有语言污名化精神分裂症。反污名宣传运动似乎很有效,对于大多数回应的媒体专业人士来说,他们是支持的,相当比例的人报告采取了纠正措施。
    UNASSIGNED: Negative portrayals of schizophrenia in media can prompt the condition\'s stigmatization. However, because research on language stigmatizing schizophrenia has focused on paper-based media, its results have limited generalizability to contemporary media. Also, research on interventions to guide media professionals in accurately depicting schizophrenia has been scarce. The present study had two aims: (1) to assess how print, web, and radio/TV news media in Sweden portray schizophrenia and (2) to evaluate a campaign targeting media professionals\' responses to information about schizophrenia and the consequences of stigmatizing language.
    UNASSIGNED: Using data from Retriever\'s database, considering media types and topics, the terms \"schizophrenia\" and \"schizophrenic\" were examined in the past 20 years, whereas analyses of stigmatizing reporting of these terms used media from the past 10 years. Media professionals\' responses and actions in the anti-stigma information campaign StigmaWatch were also evaluated.
    UNASSIGNED: Between 2002 and 2022, \"schizophrenia\" was mentioned 34 141 times in the dataset and \"schizophrenic\" 10 058 times. However, no trends were statistically significant. All media topics and most types of media contained stigmatizing reporting. Of the 230 media professionals who received informative emails from StigmaWatch, 77 (33%) responded. Most responses were supportive, and 14% of the professionals reported taking corrective measures (eg, revising erroneous descriptions of schizophrenia) following the email.
    UNASSIGNED: No media topic was free of language stigmatizing schizophrenia. The anti-stigma information campaign seemed to have been effective, for most media professionals who responded were supportive, and a sizable proportion reported taking corrective measures.
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  • 文章类型: Journal Article
    污名是女性不育的最普遍和令人不安的后果之一,然而,目前尚不清楚生育耻辱是否受到非理性的父母认知(IPC)的影响。当前的研究旨在评估IPC,不孕症的耻辱,一群中国女性之间的相互关系被提到长沙的一个不孕不育中心,湖南,中国。
    一项横断面研究是在长沙市376名寻求不孕症治疗的妇女中进行的,中国。采用Pearson相关检验探讨IPC与不孕症病耻感的关系,采用多元线性回归分析探讨不孕病耻感的独立影响因素。
    参与者的IPC平均得分为42.41±13.03,ISS平均得分为62.89±24.50。IPC与不孕症病耻感高度相关,效应大小较大(r=0.55,p<0.001)。多元线性回归分析显示,患者病耻感与IPC呈正相关(β=1.06,p<0.001),而与受教育程度(β=-5.4,p=0.036)和不孕症披露(β=-8.39,p=0.001)呈负相关(R2=36%)。此外,确定了不孕症病耻感的四个维度的各种影响因素。
    这项研究首次发现了中国不孕妇女中不合理的父母认知与不孕症污名之间的正相关。我们的发现为将来在不育妇女中制定有效的反污名干预计划提供了有用的指导。
    UNASSIGNED: Stigma is among the most prevalent and disturbing consequences of being infertile among women, yet it remains unknown whether fertility stigma is affected by irrational parenthood cognitions (IPC). The current study aimed to assess IPC, infertility stigma, and their interrelationship among a group of Chinese women referred to an infertility center in Changsha, Hunan, China.
    UNASSIGNED: A cross-sectional study was conducted among 376 women seeking treatment for infertility in Changsha City, China. Pearson correlation test was used to explore the association between IPC and infertility stigma, while multivariate linear regression was used to explore the independent influencing factors of infertility stigma.
    UNASSIGNED: Participants had a mean score of 42.41 ± 13.03 for IPC and 62.89 ± 24.50 for ISS. IPC was highly correlated with infertility stigma with a large effect size (r = 0.55, p < 0.001). Multivariate linear regression showed that patients\' infertility stigma was positively associated with IPC (β = 1.06, p < 0.001) while negatively associated with education (β = -5.4, p = 0.036) and disclosure of infertility (β = -8.39, p = 0.001) (R 2  = 36 %). In addition, various influencing factors were identified for the four dimensions of infertility stigma.
    UNASSIGNED: This study is the first to identify a positive association between irrational parenthood cognitions and infertility stigma among infertile women in China. Our findings provide useful guidance for the future development of effective anti-stigma intervention programs among infertile women.
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  • 文章类型: Journal Article
    许多现有的对精神疾病患者的偏见态度的衡量方法都有概念性的,理论,和心理测量问题。最近创建的对精神疾病患者的偏见(PPMI)量表解决了许多这些限制,但是对不同精神障碍患者的偏见可能是独特的,需要进一步探索。这项研究旨在通过使PPMI适应精神分裂症和抑郁症来促进这种探索。并调查结构,独特性,以及对这些精神障碍患者的法律偏见网络。
    我们修改了原始的28项PPMI量表,以创建对精神分裂症患者的偏见(PPS)和对抑郁症患者的偏见(PPD)量表。有406名参与者来自普通人群,谁完成了这些量表和相关措施。
    原始的4因素结构(恐惧/回避,不可预测性,威权主义,和恶意)得到了每个量表的支持。参与者对精神分裂症患者表达了最高程度的偏见,其次是对精神病患者的偏见,最后是对抑郁症患者的偏见。分析支持拟议的法律偏见网络,这涉及社会支配取向的理论前身,右翼威权主义,同理心,人格特质,厌恶的敏感性,事先联系。
    这项研究为PPMI的有效性和心理测量特性提供了证据,PPS,和PPD量表,扩大我们对不同精神障碍患者的偏见的理解。这项研究还表明,当我们使用针对特定疾病而不是一般精神疾病的措施时,我们会更深入地了解偏见。
    UNASSIGNED: Many existing measures of prejudiced attitudes toward people with mental illness have conceptual, theoretical, and psychometric problems. The recently created Prejudice toward People with Mental Illness (PPMI) scale has addressed many of these limitations, but prejudice toward people with different mental disorders may be unique and require further exploration. This study aimed to facilitate this exploration by adapting the PPMI to focus on schizophrenia and depression, and investigate the structure, distinctiveness, and the nomological network of prejudice toward people with these mental disorders.
    UNASSIGNED: We adapted the original 28-item PPMI scale to create the Prejudice toward People with Schizophrenia (PPS) and Prejudice toward People with Depression (PPD) scales. There were 406 participants from the general population, who completed these scales and related measures.
    UNASSIGNED: The original 4-factor structure (fear/avoidance, unpredictability, authoritarianism, and malevolence) was supported for each scale. Participants expressed the highest levels of prejudice toward people with schizophrenia, followed by prejudice toward people with mental illness, and lastly by prejudice toward people with depression. Analyses supported the proposed nomological network of prejudice, which involves theoretical antecedents of social dominance orientation, right-wing authoritarianism, empathy, personality traits, disgust sensitivity, and prior contact.
    UNASSIGNED: This research provides evidence for the validity and psychometric properties of the PPMI, PPS, and PPD scales, expanding our understanding of antecedents to prejudice toward people with different mental disorders. This research also shows that we gain more insight into prejudice when we use measures targeting specific disorders rather than mental illness in general.
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  • 文章类型: Journal Article
    神经多样性范式将自闭症定位为在社会环境中致残的神经差异,摆脱了传统的疾病医学观点。最近的一些出版物建议使用替代神经肯定语言(ANL)代替传统医学语言(TML),目的是增加自闭症患者的接受度并减少偏见。检查最近自闭症文献中的语言使用情况,包括期刊和研究特点,可以提供洞察这些建议和当前残疾话语的影响。
    自2021年以来,使用自闭症研究的系统评价和荟萃分析(PRISMA)指南的首选报告项目进行了系统评价(n=2322篇文章;394期刊)。文章是根据主题编码的,参与者,使用自我报告。期刊是按主题编码的,地理区域,语言指南。使用QDAMiner软件提取术语使用。
    许多文章主要使用TML,而较小的子集主要使用ANL。ANL使用与出版日期呈正相关。更多的ANL与自闭症特征主题的文章相关联,多样性,股本,和包容性(DEI),或寿命,包括自闭症成年人或自闭症自我报告。在澳大利亚或欧洲的期刊或具有识别第一语言(IFL)指南的期刊中也发现了更多的ANL。较少的ANL(更多的TML)与生物学/病因或治疗的文章相关,包括自闭症或非自闭症父母,自闭症青年,兄弟姐妹,或其他临床小组,并发表在医学期刊上。
    在自闭症研究中,TML继续在很大程度上主导语言选择,随着最近文献中对ANL的新兴转变。期刊和文章语言推荐可能会促进ANL的增加。在自闭症社区优先讨论的主题的文章中,神经确认语言也更有可能出现,包括自闭症成年人,也可能是由文化差异驱动的。研究人员和从业者应该考虑他们的语言使用可能影响自闭症患者的个人和社会观点。
    为什么这个话题很重要?语言的使用会影响人们对群体的看法。历史上,自闭症被认为是医学模式的一部分,通常关注自闭症症状和缺陷。最近的神经多样性范式将自闭症视为可以接受和支持的差异。这种接受的一部分是使用将自闭症描述为某人身份的一部分的词语,并强调个性化的优势或需求。本文的目的是什么?最近的几篇论文建议在自闭症研究中使用替代神经肯定语言(ANL)代替传统医学语言(TML)。本文总结了自闭症语言的使用,并研究了期刊和文章的某些部分如何影响措辞。作者做了什么?我们使用了系统评价和荟萃分析(PRISMA)的首选报告项目指南来收集2021年发表的自闭症研究。我们从594种期刊中找到了2322篇文章。我们首先总结了文章中ANL相对于TML的多少。然后,我们根据文章的主题和参与者的类型比较了这种语言的使用,以及期刊\'字段,地理区域,以及它们是否包括语言使用指南。评论的结果是什么?我们发现文章主要使用TML,但最近的文章有更多的ANL。有更多ANL的文章是最近发表的研究,关于特征或寿命经历(例如,育儿,工作,老化),包括自闭症成年人作为参与者,来自针对残疾人或自闭症患者的语言指南期刊,或来自澳大利亚或欧洲的期刊。有更多TML的文章是关于自闭症的治疗或生物学解释的文章,包括兄弟姐妹作为参与者,或发表在医学期刊上。这意味着文章和期刊的某些方面与研究人员如何撰写自闭症有关。作者推荐什么?临床医生和研究人员应该询问自闭症患者他们对语言的偏好。提到自闭症时的共同语言可能会根据正在研究的主题和参与者而有所不同。需要更多的研究来了解不同的术语如何影响对自闭症患者的偏见和社会观点。我们还应该考虑自闭症观点的文化差异,这影响了研究人员的术语使用。希望加速使用ANL的期刊应考虑采用明确的语言使用指南。这些发现将如何帮助自闭症患者现在或未来?这篇文章总结了研究人员如何谈论自闭症,这可能会影响别人对自闭症患者的看法。越来越多地使用ANL可能会逐渐影响自闭症的概念化和对自闭症患者的偏见。
    UNASSIGNED: The neurodiversity paradigm positions autism as a neurological difference that is disabling in the societal context, shifting away from the traditional medical view of a disorder. Several recent publications recommend use of alternative neuro-affirming language (ANL) instead of traditional medical language (TML) with the aim to increase acceptance of autistic people and reduce prejudice. Examining language use within recent autism literature, including by journal and study characteristics, may offer insight into the influence of these recommendations and current disability discourse.
    UNASSIGNED: A systematic review was conducted using Preferred Reporting Items for Systematic reviews and Meta-Analyses (PRISMA) guidelines in autism research from 2021 (n = 2322 articles; 394 journals). Articles were coded according to topic, participants, and use of self-report. Journals were coded by topic, geographic region, and language guidelines. Terminology use was extracted using QDA Miner software.
    UNASSIGNED: Many articles primarily used TML with a smaller subset primarily using ANL. There was a positive correlation between ANL use and publication date. More ANL was associated with articles on topics of autistic traits, diversity, equity, and inclusion (DEI), or lifespan and that included autistic adults or autistic self-report. More ANL was also found in journals from Australasia or Europe or those that had identify-first language (IFL) guidelines. Less ANL (more TML) was associated with articles on biology/causes or treatment and that included autistic or non-autistic parents, autistic youth, siblings, or other clinical groups, and were published in medical journals.
    UNASSIGNED: TML continues to largely dominate language choices in autism research, with an emerging shift toward ANL in recent literature. Increased ANL may be facilitated by journal and article language recommendations. Neuro-affirming language was also more likely in articles on topics prioritized by the autistic community, that included autistic adults, and may also be driven by cultural differences. Researchers and practitioners should consider the potential for their language use to impact individual and societal views of autistic people.
    Why is this topic important? Language use impacts how groups of people are viewed. Historically, autism was talked about as part of the medical model, which usually focuses on autism symptoms and deficits. The recent neurodiversity paradigm views autism as a difference that could be accepted and supported. Part of this acceptance is using words that describe autism as part of someone\'s identity and emphasizing individualized strengths or needs. What is the purpose of this article? Several recent papers recommend using alternative neuro-affirming language (ANL) instead of traditional medical language (TML) in autism research. This article summarizes autism language use and examines how certain parts of journals and articles may impact phrasing. What did the authors do? We used guidelines for the Preferred Reporting Items for Systematic reviews and Meta-Analyses (PRISMA) to gather autism research studies published in 2021. We found 2322 articles from 594 journals. We first summarized how much ANL was in the articles relative to TML. Then, we compared this language use based on the articles\' topic and types of participants, and also the journals\' field, geographic region, and whether they included guidelines for language use. What were the results of the review? We found that articles primarily used TML, but more recent articles had more ANL. Articles that had more ANL were studies published more recently, were about traits or lifespan experiences (e.g., parenting, work, aging), included autistic adults as participants, from journals with language guidelines specific to disabled or autistic people, or from journals from Australasia or Europe. Articles that had more TML were those about treatments for or biological explanations of autism, included siblings as participants, or were published in medical journals. This means that certain aspects of articles and journals are related to how researchers write about autism. What do the authors recommend? Clinicians and researchers should ask autistic people their preferences surrounding language. Common language when referring to autism may differ based on the topic and participants that are being studied. More research is needed to understand how different terms impact prejudice toward and societal views of autistic people. We should also consider cultural differences in autism views, which influence researchers\' terminology use. Journals that wish to accelerate use of ANL should consider adopting explicit guidelines for language use. How will these findings help autistic people now or in the future? This article summarizes how researchers talk about autism, which likely impacts how autistic people are viewed by others. Increasing use of ANL may gradually impact conceptualizations of autism and prejudice regarding autistic people.
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  • 文章类型: Journal Article
    背景:使用非法药物的人累积了医疗和社会心理脆弱性,为全面的健康方法辩护。护理人员和患者都可能对获得护理形成障碍,导致护理不足。本研究旨在确定此类患者在一般实践中的需求和期望。
    方法:定性研究是在2020年对布鲁塞尔的23名非法药物使用障碍患者进行半结构化访谈。进行了多中心招募,以获得社会人口统计学特征和护理轨迹的异质组合。使用RQDA软件包软件进行主题分析。
    结果:与会者强调了几个漏洞。这些包括显著的自我污名化和内疚的存在,有时会达到自我非人化的程度,即使经过多年的照顾,和过量掩盖自杀企图和早期记忆障碍。多种物质的使用,几乎所有参与者都吸烟,和误用苯二氮卓类药物也被注意到。大多数与会者表示需要一个开放的心态,非污名化和共情的GP与一个整体的方法,可以指导他们的整个生命过程。全科医生在成瘾领域的能力对参与者来说似乎是次要的。知识和与心理健康网络的良好合作是资产。
    结论:参与者表示需要具有良好人际交往能力的全科医生,包括非污名化的态度。全科医生的护理协调员角色被强调为一个关键要素,因为这是一种注重全球健康(包括健康的社会决定因素)的整体方法,而不仅仅是物质使用障碍。
    BACKGROUND: People who use illicit drugs cumulate medical and psychosocial vulnerabilities, justifying a rounded health approach. Both caregivers and patients can form barriers to accessing care, leading to inadequate care. This study aimed to identify the needs and expectations of such patients in general practice.
    METHODS: Qualitative research was conducted using semi-structured interviews with 23 people with illicit substance use disorder in Brussels in 2020. Multicentric recruitment was conducted to obtain a heterogeneous mix of sociodemographic profiles and care trajectories. Thematic analysis was performed using RQDA package software.
    RESULTS: Participants highlighted several vulnerabilities. These include the presence of significant self-stigmatization and guilt, sometimes to the extent of self-dehumanization, even after years of care, and overdoses masking suicide attempts and early memory disorders. Multiple substance use, smoking in almost all participants, and misuse of benzodiazepines were also noted. The majority of participants expressed the need for an open-minded, non-stigmatizing and empathic GP with a holistic approach that could guide them throughout their life course. The competencies of the GPs in the field of addiction seemed secondary to the participants. Knowledge and good collaboration with the mental health network were assets.
    CONCLUSIONS: Participants expressed the need for GPs with good interpersonal skills, including a non-stigmatizing attitude. The care coordinator role of the GP was highlighted as a key element, as it was a holistic approach focusing on global health (including the social determinants of health) and not only on substance use disorders.
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  • 文章类型: Journal Article
    背景:感知到的体重歧视与更糟糕的健康结果相关。应对策略可能是这种关联的一种机制。本研究检查了感知的体重歧视与用于应对一般压力(非特定体重)的策略之间的关联,以及这些策略是否与健康指标相关。
    方法:参与者(N=1882)完成了一项全面应对策略的横断面调查,并报告了他们对体重歧视和身体指标的感知经验。心理,和社会健康。
    结果:感知体重歧视与更多地使用脱离应对策略相关(β=.19,p<.01),与积极和支持应对策略无关。不参与的应对介导了体重歧视和更糟糕的身体之间的联系,心理,和社会健康(调解比例从14%到47%不等)。该途径与体重指数(BMI)无关。肥胖体重类别(BMI≥30kg/m2)的个体不太可能使用积极(β=-.11,p<.01)和支持(β=-.09,p<.01)应对策略,这并不能始终如一地调解与健康的联系。
    结论:体重歧视的感知经验与管理压力经验的脱离应对策略有关,这些策略是一种机制,可能会导致与体重不公平待遇相关的更差的健康。
    BACKGROUND: Perceived weight discrimination is associated consistently with worse health outcomes. Coping strategies may be one mechanism of this association. The present research examined the association between perceived weight discrimination and strategies used to cope with general stress (not weight-specific) and whether these strategies accounted for part of the association with markers of health.
    METHODS: Participants (N = 1882) completed a cross-sectional survey with a comprehensive measure of coping strategies and reported on their perceived experience of weight discrimination and markers of physical, mental, and social health.
    RESULTS: Perceived weight discrimination was associated with greater use of disengaged coping strategies (β = .19, p < .01) and was unrelated to active and support coping strategies. Disengaged coping mediated the association between weight discrimination and worse physical, mental, and social health (proportion of mediation ranged from 14 to 47%). This pathway was independent of body mass index (BMI). Individuals in the obesity weight category (BMI ≥ 30 kg/m2) were less likely to use active (β =  - .11, p < .01) and support (β =  - .09, p < .01) coping strategies, which did not consistently mediate the association with health.
    CONCLUSIONS: Perceived experiences of weight discrimination are associated with disengaged coping strategies to manage stressful experiences, and these strategies are one mechanism that may contribute to the worse health associated with unfair treatment due to weight.
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  • 文章类型: Journal Article
    反对医疗咨询(AMA)的出院对医疗保健系统构成重大挑战,紧张的患者与临床医生的关系,同时有助于可避免的发病率和死亡率。此外,尽管这些出院最终导致患者离开医院,它们的效果在很久之后回荡,由存储在患者医疗记录中的临床医生记录传播。这些笔记记录了患者和提供者之间异常紧张的互动,描述了围绕临床关系崩溃的情况。此外,它们只代表复杂的一面,有争议的社会互动,在描述AMA放电时,临床医生的笔记本相当字面上有最后一句话。由于这些原因,记录AMA放电的笔记提供了对临床医生概念化的方式的洞察,表征,并在当代医疗保健系统中传播功率差异。这里,我们对185份记录美国大型城市医疗中心AMA出院的笔记进行了定性主题分析,通过三个权力分析的社会学模型来解释笔记动力学:(I)马克斯·韦伯颁布的权力分配模型,(ii)以塔尔科特·帕森斯和汉娜·阿伦特为特征的集体主义权力模型,和(iii)米歇尔·福柯提出的权力的结构解释。我们认为,在记录AMA出院时,临床医生似乎几乎完全以分布的方式设想他们与患者的关系,这反过来又导致了一种对抗性动态,即患者和临床医生最终都会被剥夺权力。我们还认为,通过促进临床医生对权力的集体主义和结构维度的认识,我们可以帮助将患者-临床医生关系的破裂转化为合作的机会.
    Against Medical Advice (AMA) discharges pose significant challenges to the healthcare system, straining patient-clinician relationships while contributing to avoidable morbidity and mortality. Furthermore, though these discharges culminate in patients\' departure from hospitals, their effects reverberate long after, propagated by clinician notes stored in patients\' medical records. These notes capture exceptionally fraught interactions between patients and providers, describing the circumstances surrounding breakdowns in clinical relationships. Additionally, they represent just one side of complex, contentious social interactions, for in describing AMA discharges, clinician notewriters quite literally have the last word. For these reasons, notes documenting AMA discharges provide insight into the ways in which clinicians conceptualize, characterize, and propagate power differentials in the contemporary healthcare system. Here, we present a qualitative thematic analysis of 185 notes documenting AMA discharges from a large urban US medical center, interpreting note dynamics through three sociological models of power analysis: (i) the distributive model of power promulgated by Max Weber, (ii) the collectivist power model characterized by Talcott Parsons and Hannah Arendt, and (iii) structural interpretations of power developed by Michel Foucault. We argue that in documenting AMA discharges, clinicians appear to conceive of their relationship with patients in almost exclusively distributive terms, which in turn contributes to an adversarial dynamic whereby both patients and clinicians ultimately suffer disempowerment. We furthermore argue that by facilitating clinicians\' recognition of power\'s collectivist and structural dimensions, we may help transform breakdowns in patient-clinician relationships into opportunities for collaboration.
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