data collection

数据收集
  • 文章类型: Journal Article
    本范围审查旨在描述使用基于艺术的数据收集方法对移民和种族化的老年人进行的研究范围。次要目标是确定在该人群中使用这些方法的挑战和优势。本评论使用Arksey和O'Malley的五阶段范围审查框架,最终包括16个参考文献。增强社会联系,提高调查结果的透明度和质量,和自我授权是使用基于艺术的数据收集方法的关键优势。确定的挑战包括资源限制,文化和语言障碍,以及有意义的参与的障碍。只有少数研究对移民和种族化的老年人使用了基于艺术的方法。基于艺术的方法需要对该人群进行独特的方法调整,但有可能增加对研究活动的参与,研究结果的真实性和老年人的赋权。
    This scoping review aims to describe the range of research studies using arts-based data collection methods with immigrant and racialized older adults. A secondary aim is to identify challenges and strengths of using these approaches with this population. This review uses Arksey and O\'Malley\'s five-stage scoping review framework with a final number of 16 references included for the study. Enhanced social connectedness, increased transparency and quality of findings, and self-empowerment were key strengths of using arts-based approaches for data collection. Challenges identified included resource limitations, cultural and language barriers, and barriers to meaningful engagement. Only a small number of studies have utilized arts-based methods with immigrant and racialized older adults. Arts-based approaches require unique methodological adaptations with this population but have the potential to increase engagement in research activities, authenticity of research findings and empowerment of older adults.
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  • 文章类型: Journal Article
    艰难梭菌感染(CDI)是世界范围内发病率和死亡率的重要原因。来自公共卫生监测系统的数据对于估计国家一级的CDI负担很重要。CDI监测可以是基于人群的或基于医院的。基于人群的监测结果是CDI发病率的总体估计(每年每100,000人口中的病例),和基于医院的监测结果估计基于医院的CDI发病率(每10,000例患者-天)或CDI入院率(每1,000例入院).我们试图更好地了解全球公开可用的监测数据中报告的CDI发病率的时间趋势,并描述不同的监测方法。我们在欧洲确定了13个国家,北美,和大洋洲,在在线报告和/或仪表板中公开提供基于人群和/或基于医院的CDI监测数据。欧洲的其他国家,特别是,还进行基于医院的CDI监测。国家之间不一致的CDI病例定义和监测方法限制了多国家比较的可解释性。尽管如此,公开可用的CDI监测数据使我们能够比较采用基于人群和/或基于医院的监测系统的国家之间的CDI发病率,并描述国家内CDI发病率随时间的变化趋势.CDI发病率最高的是在美国。虽然最近所有国家的CDI发病率都有所下降,CDI负担仍然很高,并且在社区和医疗机构中仍然需要CDI预防策略。
    Clostridioides difficile infection (CDI) is an important cause of morbidity and mortality worldwide. Data from public health surveillance systems are important for estimating country-level CDI burden. CDI surveillance can be population-based or hospital-based. Population-based surveillance results in overall estimates of CDI incidence (cases per 100,000 population-per-year), and hospital-based surveillance results in estimates of hospital-based CDI incidence (cases per 10,000 patient-days) or CDI admission rates (cases per 1,000 admissions). We sought to better understand temporal trends in CDI incidence reported in publicly available surveillance data worldwide and describe varying surveillance methods. We identified 13 countries in Europe, North America, and Oceania with publicly available population-based and/or hospital-based CDI surveillance data in online reports and/or dashboards. Additional countries in Europe, in particular, also conduct hospital-based CDI surveillance. Inconsistent CDI case definitions and surveillance approaches between countries limit the interpretability of multi-country comparisons. Nonetheless, publicly available CDI surveillance data enabled us to compare CDI incidence among countries with population-based and/or hospital-based surveillance systems and to describe trends in CDI incidence within countries over time. The highest CDI incidence is in the United States. While there have been recent declines in CDI incidence in all countries, the CDI burden remains high, and the need persists for CDI prevention strategies in communities and healthcare settings.
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  • 文章类型: Journal Article
    背景:虽然对青少年心理健康的研究已经对环境和心理社会风险因素有了相当大的了解,缺乏等效的生物学证据,也不能代表经济,青少年人口的社会和种族多样性。重要的是要了解进行这项研究的可能的障碍和促进者。这将使我们能够提高对青春期生物学与环境和心理社会风险因素相互作用的理解。本次范围界定审查的目的是确定和理解需求,青少年心理健康研究中与生物学数据收集有关的障碍和促进因素。
    方法:审稿人将对PubMed进行系统搜索,Medline,Scopus,科克伦,ERIC,EMBASE,ProQuest,EBSCO全球卫生电子数据库,相关出版物和参考清单,以确定在任何时候以英语发表的研究。这项范围审查将确定已发表的研究探索心理健康/精神病理学结果,通过生物学措施,在11至18岁的参与者中,并检查报告的用于数据收集的方法。数据将以表格形式进行总结,并结合叙事综合,并将使用Levac等人的方法,由乔安娜·布里格斯研究所范围审查方法的后续建议补充。
    背景:此范围审查不需要道德批准。范围审查将在患者和公众参与的情况下进行,特别包括参与我们研究的年轻人(\'共同制定指导原则框架,以吸引具有代表性和多样化的年轻人参加门塔尔hEalth\'-www。庆祝项目。co.英国)青年专家工作组。传播将包括在同行评审的期刊上发表,学术演讲和项目网站上。
    BACKGROUND: While research into adolescent mental health has developed a considerable understanding of environmental and psychosocial risk factors, equivalent biological evidence is lacking and is not representative of economic, social and ethnic diversity in the adolescent population. It is important to understand the possible barriers and facilitators to conduct this research. This will then allow us to improve our understanding of how biology interacts with environmental and psychosocial risk factors during adolescence. The objective of this scoping review is to identify and understand the needs, barriers and facilitators related to the collection of biological data in adolescent mental health research.
    METHODS: Reviewers will conduct a systematic search of PubMed, Medline, Scopus, Cochrane, ERIC, EMBASE, ProQuest, EBSCO Global Health electronic databases, relevant publications and reference lists to identify studies published in the English language at any time. This scoping review will identify published studies exploring mental health/psychopathology outcomes, with biological measures, in participants between the ages of 11 and 18 and examine the reported methodology used for data collection. Data will be summarised in tabular form with narrative synthesis and will use the methodology of Levac et al, supplemented by subsequent recommendations from the Joanna Briggs Institute Scoping Review Methodology.
    BACKGROUND: Ethical approval is not required for this scoping review. The scoping review will be conducted with input from patient and public involvement, specifically including young people involved in our study (\'Co-producing a framework of guiding principles for Engaging representative and diverse cohorts of young peopLE in Biological ReseArch in menTal hEalth\'-www.celebrateproject.co.uk) Youth Expert Working Group. Dissemination will include publication in peer-reviewed journals, academic presentations and on the project website.
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  • 文章类型: Journal Article
    智能手机在为腰背痛(LBP)患者提供医疗保健方面的使用有所增加,但是文献缺乏对智能手机应用程序使用的分析。此范围审查旨在确定用于管理LBP的智能手机应用程序的当前领域。我们还旨在评估此类使用的有效性或科学有效性的现状,并确定其潜在发展的观点。
    我们搜索了PubMed,PEDro和Embase在5月3日之前以英文发表的文章,2021年调查了智能手机在LBP医疗保健中的使用及其用途。接受所有类型的研究设计。不包括有关远程医疗或远程康复但不使用智能手机的研究。由两名研究人员独立进行相同的搜索策略,第三名研究人员验证了所包括研究的综合。
    我们纳入了43篇文章:随机对照试验(RCT)(n=12),研究方案(n=6),信度/效度研究(n=6),系统评价(n=7),队列研究(n=4),定性研究(n=6),和案例序列(n=1)。智能手机应用程序的目的是用于1)评估,2)远程康复,3)自我管理,4)数据收集。自我管理是研究最多的用途,对于慢性LBP患者和脊柱手术后的患者,显示出中等至高质量的RCT有希望的结果。在评估和数据收集使用方面存在有希望的结果,而在测量使用方面存在矛盾的结果。
    这项范围审查揭示了对LBP患者使用智能手机应用程序的科学文献的显著兴趣。确定的目的指向当前的科学状况和进一步研究的观点,包括RCT和针对特定用法的系统评论。
    UNASSIGNED: Smartphone use has grown in providing healthcare for patients with low back pain (LBP), but the literature lacks an analysis of the use of smartphone apps. This scoping review aimed to identify current areas of smartphone apps use for managing LBP. We also aimed to evaluate the current status of the effectiveness or scientific validity of such use and determine perspectives for their potential development.
    UNASSIGNED: We searched PubMed, PEDro and Embase for articles published in English up to May 3 rd, 2021 that investigated smartphone use for LBP healthcare and their purpose. All types of study design were accepted. Studies concerning telemedicine or telerehabilitation but without use of a smartphone were not included. The same search strategy was performed by two researchers independently and a third researcher validated the synthesis of the included studies.
    UNASSIGNED: We included 43 articles: randomised controlled trials (RCTs) (n=12), study protocols (n=6), reliability/validity studies (n=6), systematic reviews (n=7), cohort studies (n=4), qualitative studies (n=6), and case series (n=1). The purposes of the smartphone app were for 1) evaluation, 2) telerehabilitation, 3) self-management, and 4) data collection. Self-management was the most-studied use, showing promising results derived from moderate- to good-quality RCTs for patients with chronic LBP and patients after spinal surgery. Promising results exist regarding evaluation and data collection use and contradictory results regarding measurement use.
    UNASSIGNED: This scoping review revealed a notable interest in the scientific literatures regarding the use of smartphone apps for LBP patients. The identified purposes point to current scientific status and perspectives for further studies including RCTs and systematic reviews targeting specific usage.
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  • 文章类型: Journal Article
    目标:真实世界证据(RWE)越来越多地用于医疗监管决策,然而,人们仍然担心其可重复性和有效性。这项研究解决了与真实世界数据源(RWDS)多样性相关的可重复性挑战,这些数据源被重新用于药物流行病学研究中的二次使用。我们的目标是识别,描述和表征实践,收集和报告RWDS多样性的建议和工具,并探索如何利用多样性可以提高证据的质量。
    方法:在初步阶段,文献检索和选择工具的关键词是使用一组被共同作者认为是关键的文档设计的。接下来,到2021年12月进行了系统的搜索。生成的文件根据标题和摘要进行筛选,然后使用选择工具基于全文。对选定的文件进行了审查,以提取与收集和报告RWDS多样性有关的主题的信息。对主题的内容分析确定了明确的和潜在的主题。
    结果:在选定的91个文档中,确定了12个主题:用于描述RWDS的9个维度(组织访问数据源,数据发起人,提示,纳入人口,内容,数据字典,时间跨度,医疗体系和文化,和数据质量),总结这些维度的工具,挑战,和多样性带来的机会。在各方面确定了36个主题。数据多样性带来的机会包括多重归集和标准化。
    结论:在大量出版物中确定的维度为报告数据源多样性的正式指导奠定了基础,以促进解释并增强RWE的可复制性和有效性。
    OBJECTIVE: Real-world evidence (RWE) is increasingly used for medical regulatory decisions, yet concerns persist regarding its reproducibility and hence validity. This study addresses reproducibility challenges associated with diversity across real-world data sources (RWDS) repurposed for secondary use in pharmacoepidemiologic studies. Our aims were to identify, describe and characterize practices, recommendations and tools for collecting and reporting diversity across RWDSs, and explore how leveraging diversity could improve the quality of evidence.
    METHODS: In a preliminary phase, keywords for a literature search and selection tool were designed using a set of documents considered to be key by the coauthors. Next, a systematic search was conducted up to December 2021. The resulting documents were screened based on titles and abstracts, then based on full texts using the selection tool. Selected documents were reviewed to extract information on topics related to collecting and reporting RWDS diversity. A content analysis of the topics identified explicit and latent themes.
    RESULTS: Across the 91 selected documents, 12 topics were identified: 9 dimensions used to describe RWDS (organization accessing the data source, data originator, prompt, inclusion of population, content, data dictionary, time span, healthcare system and culture, and data quality), tools to summarize such dimensions, challenges, and opportunities arising from diversity. Thirty-six themes were identified within the dimensions. Opportunities arising from data diversity included multiple imputation and standardization.
    CONCLUSIONS: The dimensions identified across a large number of publications lay the foundation for formal guidance on reporting diversity of data sources to facilitate interpretation and enhance replicability and validity of RWE.
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    文章类型: Journal Article
    系统综述的概述提供了有关如何以及何时使用这种方法来解决研究问题的指导。高质量的系统评价是必不可少的,以协助卫生保健从业人员保持最新的大量和快速增长的科学证据。系统评价是对明确定义的研究问题或主题的所有可用证据的透明和可重复的综合。进行系统审查的关键阶段包括澄清协议中的目标和方法,找到所有相关的研究,数据收集,质量评估,综合证据,并解释调查结果。这份简短的报告提供了系统审查研究方法的各个阶段和步骤的示例。
    This overview of the systematic review provides guidance regarding how and when to use this approach to a research question. High quality systematic reviews are essential to assist health care practitioners keep current with the large and rapidly growing body of scientific evidence. The systematic review is a transparent and reproducible synthesis of all the available evidence on a clearly defined research question or topic. Key stages in conducting a systematic review include clarification of aims and methods in a protocol, finding all of the relevant research, data collection, quality assessments, synthesizing evidence, and interpreting the findings. This short report provides examples for the various stages and steps of the systematic review research approach.
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  • 文章类型: Journal Article
    背景:传统的研究方法通常涉及漫长的过程,但是,作为一种创新的数据收集方法,快闪族的出现提供了在短时间内收集大量数据的潜力。快闪暴民从通过互联网或移动设备组织的大型团体的概念中汲取灵感,以在公共场合执行预先安排的动作。在医疗保健研究中,快闪分子作为研究组织方法,在有限的时间内大规模调查临床相关问题。
    目的:本研究旨在为范围审查提供一个研究方案,该方案全面绘制了有关在医疗保健研究中使用闪存作为数据收集方法的现有文献。
    方法:审查将遵循既定指南,并包括确定研究问题等步骤,确定相关研究,选择研究,绘制数据,整理和总结结果。审查将利用数据库,手动筛选其他来源,以及研究选择和数据图表的证据。研究结果将使用描述性统计和定性数据的描述性综合进行总结。审查协议已在开放科学框架中注册。
    结果:这次范围审查的结果将提供对不同快闪族设计的见解,动机,和数据收集过程,为医疗保健研究中高质量的快闪暴民数据收集的发展做出了贡献。
    BACKGROUND: Traditional research methods often involve a lengthy process, but the emergence of flash mobs as an innovative data collection method offers the potential to gather substantial data within a short time frame. Flash mobs draw inspiration from the concept of large groups organizing through the internet or mobile devices to perform a prearranged action in public. In healthcare research, flash mobs serve as research organizing method to investigate clinically relevant questions on a large scale within a limited period.
    OBJECTIVE: This study aims to present a study protocol for a scoping review that comprehensively maps the existing literature on the use of flash mobs as a data collection method in healthcare research.
    METHODS: The review will follow established guidelines and include steps such as identifying the research question, identifying relevant studies, selecting studies, charting the data, and collating and summarizing the results. The review will utilize databases, manual screening of additional sources, and covidence for study selection and data charting. The findings will be summarized using descriptive statistics and a descriptive synthesis of qualitative data. The review protocol has been registered with the Open Science Framework.
    RESULTS: The results of this scoping review will provide insights into different flash mob designs, motivations, and the data collection process, contributing to the development of high-quality flash mob data collections in healthcare research.
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  • 文章类型: Systematic Review
    目的:临床试验对医学进步具有重要意义。本研究进行了系统评价,以确定EHR在支持和增强临床试验中的应用。
    方法:于2023年3月12日对PubMed进行了系统搜索,以确定有关在临床试验中使用EHR的相关研究。如果研究(1)是全文期刊文章,(2)用英语写的,(3)审查了EHR数据在支持临床试验过程中的应用(例如,招募、筛选,数据收集)。两名评审员使用标准化表格提取以下数据:研究设计,启用EHR的流程,相关结果,和限制。
    结果:在全文回顾之后,19项研究符合预定的资格标准并被纳入。总的来说,纳入的研究一致表明,EHR数据整合提高了临床试验的可行性和招募效率,筛选,数据收集,和试验设计。
    结论:根据本研究的结果,使用电子健康记录进行临床试验是非常有帮助的。因此,研究人员最好在他们的研究中使用EHR,以便于获得更准确和全面的数据。EHR收集所有个人数据,包括人口统计,临床,诊断,和治疗数据。此外,所有数据在EHR中无缝可用。在未来的研究中,最好考虑在临床试验中使用EHR的成本效益.
    OBJECTIVE: Clinical trials are of high importance for medical progress. This study conducted a systematic review to identify the applications of EHRs in supporting and enhancing clinical trials.
    METHODS: A systematic search of PubMed was conducted on 12/3/2023 to identify relevant studies on the use of EHRs in clinical trials. Studies were included if they (1) were full-text journal articles, (2) were written in English, (3) examined applications of EHR data to support clinical trial processes (e.g. recruitment, screening, data collection). A standardized form was used by two reviewers to extract data on: study design, EHR-enabled process(es), related outcomes, and limitations.
    RESULTS: Following full-text review, 19 studies met the predefined eligibility criteria and were included. Overall, included studies consistently demonstrated that EHR data integration improves clinical trial feasibility and efficiency in recruitment, screening, data collection, and trial design.
    CONCLUSIONS: According to the results of the present study, the use of Electronic Health Records in conducting clinical trials is very helpful. Therefore, it is better for researchers to use EHR in their studies for easy access to more accurate and comprehensive data. EHRs collects all individual data, including demographic, clinical, diagnostic, and therapeutic data. Moreover, all data is available seamlessly in EHR. In future studies, it is better to consider the cost-effectiveness of using EHR in clinical trials.
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  • 文章类型: Journal Article
    观察性研究可以告知我们如何通过收集来理解和解决持续存在的健康不平等,健康公平因素的报告和分析。然而,观察性研究中与公平相关的方面的分析和报告在多大程度上是未知的。因此,我们旨在系统评估公平相关观察性研究在研究设计和分析中如何报告公平考虑因素.
    我们在MEDLINE搜索了2020年1月至2022年3月与健康公平相关的观察性研究,共发表了16828篇文章。我们随机选择了320项研究,确保平衡关注经历不平等的人口,国家收入设置,和2019年冠状病毒病(COVID-19)主题。我们提取了有关研究设计和分析方法的信息。
    大部分研究是在北美进行的(n=95,30%),其次是欧洲和中亚(n=55,17%)。一半的研究(n=171,53%)涉及一般健康和福祉,49(15%)专注于心理健康状况。三分之二的研究(n=220,69%)是横断面的。八个(3%)与经历不平等的人群接触,而22人(29%)采用了招募方法来接触这些人群。Further,67项研究(21%)检查了主要与种族或族裔有关的相互作用效应(48%)。三分之二的研究(72%)调整了与不平等相关的特征,18项研究(6%)使用流程图来描述在整个研究过程中经历不平等的人群是如何进展的。
    尽管超过80%的以公平为重点的观察研究提供了关注健康公平的理由,与健康公平相关的研究设计特征的报告范围为0-95%,超过一半的项目报告不到四分之一的研究。这项方法学研究是一项基线评估,旨在为观察性研究制定以公平为重点的报告指南,作为众所周知的流行病学观察性研究加强报告(STROBE)指南的扩展。
    UNASSIGNED: Observational studies can inform how we understand and address persisting health inequities through the collection, reporting and analysis of health equity factors. However, the extent to which the analysis and reporting of equity-relevant aspects in observational research are generally unknown. Thus, we aimed to systematically evaluate how equity-relevant observational studies reported equity considerations in the study design and analyses.
    UNASSIGNED: We searched MEDLINE for health equity-relevant observational studies from January 2020 to March 2022, resulting in 16 828 articles. We randomly selected 320 studies, ensuring a balance in focus on populations experiencing inequities, country income settings, and coronavirus disease 2019 (COVID-19) topic. We extracted information on study design and analysis methods.
    UNASSIGNED: The bulk of the studies were conducted in North America (n = 95, 30%), followed by Europe and Central Asia (n = 55, 17%). Half of the studies (n = 171, 53%) addressed general health and well-being, while 49 (15%) focused on mental health conditions. Two-thirds of the studies (n = 220, 69%) were cross-sectional. Eight (3%) engaged with populations experiencing inequities, while 22 (29%) adapted recruitment methods to reach these populations. Further, 67 studies (21%) examined interaction effects primarily related to race or ethnicity (48%). Two-thirds of the studies (72%) adjusted for characteristics associated with inequities, and 18 studies (6%) used flow diagrams to depict how populations experiencing inequities progressed throughout the studies.
    UNASSIGNED: Despite over 80% of the equity-focused observational studies providing a rationale for a focus on health equity, reporting of study design features relevant to health equity ranged from 0-95%, with over half of the items reported by less than one-quarter of studies. This methodological study is a baseline assessment to inform the development of an equity-focussed reporting guideline for observational studies as an extension of the well-known Strengthening Reporting of Observational Studies in Epidemiology (STROBE) guideline.
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  • 文章类型: Journal Article
    背景:加强跨专业教育(IPE)促进了专门从事肌肉骨骼(MSK)护理的医疗保健专业人员之间的协作努力。这种方法为解决发展中国家紧迫的MSK疾病负担提供了宝贵的机会,患病率高,资源有限。虽然在医疗保健学生和专业人士中存在关于IPE的各种元素的大量文献,南非MSK学科的实践共享环境目前尚未通过IPE在高等教育水平上开发,建立对南非正规课程IPE干预的需求,明确关注MSK医疗保健专业的本科生。
    方法:预期的范围审查协议由Arksey和O\'Malley制定的框架指导,其中系统审查的首选报告项目和范围审查的元分析扩展将指导报告过程。英语来源(定性和定量方法学研究,会议文件和会议记录,系统评价,灰色文学,未发表的材料,论文和论文)来自电子数据库PubMed,Scopus,包括没有日期限制的ERIC和ProQuest。一个研究员,独立审稿人和研究馆员将从摘要和全文中搜索和提取数据,以进行范围审查,任何产生的分歧将通过讨论解决。将仔细检查相关文献的参考清单。相关文献将记录在参考软件上并进行重复删除。数据收集将在2023年5月至10月之间进行。调查结果将使用表格进行叙述报告。
    背景:本范围审查不需要伦理批准,因为所有使用的文献已经存在于公共领域,没有人类参与者的参与。这项计划审查的结果将提交给同行评审的期刊,并将在高等教育会议上发表。该范围审查协议已在开放科学框架上注册,注册osf.io/c27n4。
    BACKGROUND: Enhancing interprofessional education (IPE) fosters collaborative efforts among healthcare professionals specializing in musculoskeletal (MSK) care. This approach presents a valuable opportunity to address the pressing MSK disease burden in developing countries, with high prevalence rates and limited resources. While an abundance of literature on the various elements of IPE among healthcare students and professionals exists, shared contexts of practice of South African MSK disciplines are not currently developed through IPE at higher education level, establishing a need for South African formalised curricular IPE interventions with an explicit focus on undergraduate students of MSK healthcare professions.
    METHODS: The intended scoping review protocol is guided by the framework set out by Arksey and O\'Malley, where the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews will guide the process of reporting. English sources (qualitative and quantitative methodological studies, conference papers and proceedings, systematic reviews, grey literature, unpublished materials, theses and dissertations) from the electronic databases PubMed, Scopus, ERIC and ProQuest with no date restriction will be included. A researcher, an independent reviewer and research librarian will search and extract data from abstracts and full texts for this scoping review, where any arising disagreements will be resolved by discussion. Reference lists of relevant literature will be scrutinised. Relevant literature will be recorded on a referencing software and deduplicated. The data collection will take place between May and October 2023. The findings will be reported narratively with the use of tables.
    BACKGROUND: This scoping review does not require ethical approval as all literature used already exists in the public domain with no involvement of human participants. The findings from this planned review will be submitted to peer-reviewed journals and will be presented at higher education conferences. This scoping review protocol was registered on Open Science Framework with the registration osf.io/c27n4.
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