炎症性肠病(IBDs)是对患者生活质量有负面影响的慢性疾病。在物理上,情感,社会层面。它的症状可能会有所不同,包括腹泻,出血,腹痛,发烧,和减肥,取决于疾病的类型、位置和严重程度。尽管治疗方法不断发展,他们并不总是能控制症状,所以23%到45%的特发性慢性溃疡性结肠炎患者,高达75%的克罗恩病患者,最终,需要做手术.
拉丁美洲发病率的增加促进了医学和科学界对规范和统一正确诊断和管理该疾病的标准的重新兴趣,这是当前各种事件讨论的一部分;然而,这种兴趣尚未反映在各国政府应对这一疾病的政策和举措中。我们决定召开一次共识会议,以阐明我们地区IBD护理的实际情况。
■用于建立共识文件的方法来自文献综述,证据,和关于IBD的政策,随后与该领域的10名专家进行验证和反馈。
来自拉丁美洲不同国家的九位专家在两天的网络会议上重聚,并就共识文件中的主题进行了投票。需要100%批准的完整协议,因此,讨论主题以达成共识,否则将被删除。
■拉丁美洲仍然缺乏关于IBD的信息,因此,IBD仍然是一种“看不见的”疾病,很少被决策者认可。
■本文件描述了拉丁美洲地区IBD的现状,强调及时获得诊断和治疗的主要障碍和挑战,为了表明需要促进政策的制定和实施,以提高IBD患者的护理质量。
UNASSIGNED: Inflammatory bowel diseases (IBDs) are chronic conditions that negatively interferes with the quality of life of the patients, on a physical, emotional, and social level. Its symptoms can vary including diarrhea, bleeding, abdominal pain, fever, and weight loss, depending on the type and location and severity of the disease. Despite evolving treatment, they do not always achieve control of the symptoms, so between 23% and 45% of people with idiopathic chronic ulcerative colitis, and up to 75% of those with Crohn\'s disease, eventually, will need surgery.
UNASSIGNED: The increase in its incidence in Latin America has promoted a renewed interest on the part of the medical and scientific community in standardizing and unifying criteria for the proper diagnosis and management of the disease, which is part of the current discussions of various events; however, this interest has not yet been reflected in policies and initiatives by governments to address the disease. We decided to develop a
consensus meeting in order to elucidate the actual situation of IBD care in our region.
UNASSIGNED: The methodology employed to build the
consensus document derived from a review of literature, evidence, and policies on IBD, followed by a process of validation and feedback with a group of 10 experts in the field.
UNASSIGNED: Nine experts from different countries in Latin America were reunited in web meetings on 2 days and voted on topics derived from the
consensus document. A full agreement with 100% approval was needed, so topics were discussed to reach the
consensus otherwise were removed.
UNASSIGNED: There is still a lack of information about IBD in Latin America, therefore IBD continues to be an \'invisible\' disease and is little recognized by decision-makers.
UNASSIGNED: This document describes the current situation of IBDs in the Latin American region, highlighting the main barriers and challenges in timely access to diagnosis and treatment, in order to demonstrate the need to promote the development and implementation of policies, in order to improve the quality of care of patients with IBD.