目的:本文提供了2018年脊柱裂协会向成人护理指南过渡的更新。
方法:召集了一个主题专家工作组,其中包括初始指南工作组的作者。工作组审查并更新了主,次要,和三级成果目标,临床问题,和基于文献综述的指南建议。
结果:从文献检索中发现了另外22篇文章。更新的参考文献包括描述向成人护理结果过渡的观察性研究,过渡护理模式倡议,和经过验证的自我管理评估工具。
结论:结构化过渡计划增加了建立成人护理的可能性,减少对患有脊柱裂的年轻人的急性护理使用,并有可能改善生活质量和优化慢性病管理。然而,仍然需要使用这些推荐的指南更广泛地针对该人群实施结构过渡实践。
This article provides an update to the 2018 Spina Bifida Association\'s Transition to Adult Care
Guidelines.
A workgroup of topic experts was convened including authors from the initial
guideline workgroup. The workgroup reviewed and updated the primary, secondary, and tertiary outcome goals, clinical questions, and
guideline recommendations based on a literature review.
Twenty-two additional articles were identified from the literature search. Updated references included observational studies describing transition to adult care outcomes, transition care model initiatives, and a validated self-management assessment tool.
Structured transition initiatives increase the likelihood of establishing with adult care, decrease acute care use for young adults with spina bifida, and have the potential to improve quality of life and optimize chronic condition management. However, there is still a need to implement structure transition practices more broadly for this population using these recommended
guidelines.