PDF(Pubmed)
Abstract：
BACKGROUND: Spina bifida is a congenital neural tube defect that affects the spine and spinal cord, as well as the brain in many cases, with life-long health-related consequences. In most cases, the term spina bifida refers to open myelomeningocele but includes a spectrum of dysraphic conditions. Early recognition and comprehensive care improve long-term health, well-being, and quality of life and decrease the use of emergency services and hospitalizations over the lifespan. Current evidence-based care guidelines are comprehensive, but they are not easily interpreted in busy primary care settings. The development of a periodicity schedule serves to simplify the current spina bifida guidelines into a document that is easy to use by all practitioners and families.
摘要：
背景：脊柱裂是一种先天性神经管缺损，影响脊柱和脊髓，以及在许多情况下的大脑，与终身健康相关的后果。在大多数情况下,术语脊柱裂是指开放的脊髓膜膨出，但包括一系列发育不良的病症。早期识别和全面护理可改善长期健康，幸福,和生活质量，并在整个生命周期内减少急诊服务和住院的使用。目前的循证护理指南是全面的，但在繁忙的初级保健环境中，它们不容易解释。周期性时间表的制定有助于将当前的脊柱裂指南简化为易于所有从业者和家庭使用的文件。
