目的:与长期患病的兄弟姐妹一起生活的健康兄弟姐妹的生活通常由家庭决定,疾病类型,疾病的长度,孩子的年龄,看护者的要求,以及为家庭提供的支持,生病的兄弟姐妹,和健康的兄弟姐妹。虽然健康兄弟姐妹的经历是通过父母代理在文献中记录的,关于健康兄弟姐妹自我报告与长期患有疾病的兄弟姐妹生活的经历的文献仍然很少。
目的:本综述旨在综合与长期患病的兄弟姐妹生活在一起的儿童的健康兄弟姐妹的自我报告经历的综述。
方法:用英语发表同行评审的评论,探索24岁以下健康兄弟姐妹的自我报告经历,他们的兄弟姐妹被诊断出患有长期疾病。
方法:使用开发的搜索策略,七个电子数据库(CINAHLPlus,Scopus,PubMed,PsycINFO,Cochrane系统评价数据库,临床关键,和谷歌学者)从2018年到2023年12月进行搜索。11条评论符合纳入标准,并进行了叙事综合。
结果:四个主题(适应变化,想要帮忙,生活的起伏,生活的变化),并从综合中产生了八个子主题。
结论:这是对健康兄弟姐妹自我报告与长期患有疾病的兄弟姐妹生活在一起的经历进行的第一次综述。长期状况对长期状况儿童的健康兄弟姐妹的影响表明,医疗保健提供者和组织需要提供更好的情感,心理,和信息支持健康的兄弟姐妹和他们的家庭。
结论:此次审查的结果将告知医疗保健提供者,组织,研究人员,以及政策制定者对健康兄弟姐妹未来临床实践和研究的发展。
OBJECTIVE: The lives of healthy siblings living with a sibling with a long- term condition are often shaped by the family, type of illness, length of illness, age of the child, caregiver demands, and support provided to the family, ill sibling, and healthy sibling. While the experiences of healthy siblings are documented in the literature by parent proxy, literature on healthy siblings self-reported experiences of living with a sibling who has a long-term condition remains scarce.
OBJECTIVE: This umbrella
review aims to synthesize reviews on the self-reported experiences of healthy
siblings of children living with a sibling who has a long-term condition.
METHODS: Published peer-reviewed reviews in English language exploring the self-reported experiences of healthy siblings under 24 years old, whose
siblings are diagnosed with a long-term condition.
METHODS: Using a developed search strategy, seven electronic databases (CINAHLPlus, Scopus, PubMed, PsycINFO, Cochrane Database of Systematic Reviews, Clinical Key, and Google Scholar) were searched from 2018 till December 2023. Eleven reviews met the inclusion criteria and were subjected to narrative synthesis.
RESULTS: Four themes (adjusting to changes, wanting to help, living the ups and downs, living the changes), and eight subthemes were generated from the syntheses.
CONCLUSIONS: This is the first umbrella
review undertaken on healthy
siblings self-reported experiences of living with a sibling who has a long-term condition. The impact of a long-term condition on healthy siblings of children with a long-term condition suggests a need for healthcare providers and organisations to provide better emotional, psychological, and informational support to healthy siblings and their families.
CONCLUSIONS: Findings from this
review will inform healthcare providers, organisations, researchers, and policymakers on the development of future clinical practices and research for healthy siblings.