Research priorities

研究重点
  • 文章类型: Journal Article
    背景:姑息治疗的提供应该由高质量的研究证据驱动。然而,进行研究存在障碍。大多数研究注意力集中在潜在的患者障碍;影响研究参与的人员和组织问题没有得到充分的探索。这项研究的目的是了解专业和组织的促进者以及进行姑息治疗研究的障碍。
    方法:混合方法研究,使用公开的横断面在线调查,其次是使用名义分组技术的工作组。参与者是对姑息治疗研究感兴趣的专业人士,作为通才/专科姑息治疗提供者,或英格兰西北部地区的姑息治疗研究人员。招募是通过当地的卫生组织进行的,个人网络,以及2022年的社交媒体。使用描述性统计和内容分析对数据进行检查。
    结果:参与者(调查n=293,工作组n=20)主要来自临床机构(71%),其中45%的护士和45%的姑息治疗工作超过10年。75%的人在研究中不活跃,但73%的人表示希望增加研究参与。主要障碍包括缺乏组织研究文化和能力(包括优先级和可用时间);研究知识(包括技能/专业知识和资金机会);研究基础设施(包括跨多个组织和治理挑战的合作机会);以及患者和公众对研究的看法(包括漏洞和负担)。主要促进者包括专门的研究人员,和活跃的研究小组,合作,和网络机会。
    结论:从事姑息治疗的专业人士热衷于研究,但缺乏时间,技能,并支持建立研究能力和合作。需要组织文化的转变,以增强姑息治疗研究能力和临床和研究环境中的合作机会。
    BACKGROUND: Palliative care provision should be driven by high quality research evidence. However, there are barriers to conducting research. Most research attention focuses on potential patient barriers; staff and organisational issues that affect research involvement are underexplored. The aim of this research is to understand professional and organisational facilitators and barriers to conducting palliative care research.
    METHODS: A mixed methods study, using an open cross-sectional online survey, followed by working groups using nominal group techniques. Participants were professionals interested in palliative care research, working as generalist/specialist palliative care providers, or palliative care research staff across areas of North West England. Recruitment was via local health organisations, personal networks, and social media in 2022. Data were examined using descriptive statistics and content analysis.
    RESULTS: Participants (survey n = 293, working groups n = 20) were mainly from clinical settings (71%) with 45% nurses and 45% working more than 10 years in palliative care. 75% were not active in research but 73% indicated a desire to increase research involvement. Key barriers included lack of organisational research culture and capacity (including prioritisation and available time); research knowledge (including skills/expertise and funding opportunities); research infrastructure (including collaborative opportunities across multiple organisations and governance challenges); and patient and public perceptions of research (including vulnerabilities and burdens). Key facilitators included dedicated research staff, and active research groups, collaborations, and networking opportunities.
    CONCLUSIONS: Professionals working in palliative care are keen to be research active, but lack time, skills, and support to build research capabilities and collaborations. A shift in organisational culture is needed to enhance palliative care research capacity and collaborative opportunities across clinical and research settings.
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  • 文章类型: Journal Article
    背景:研究证据已证明改善了医疗保健实践和患者预后。然而,将证据系统地转化为实践远非最佳。原因很复杂,但通常是因为研究与卫生服务优先事项不完全一致。这项研究的目的是探索高级卫生服务主管在两个问题上的经验和观点:(1)本地研究活动与其卫生服务的需求和优先事项之间的一致性,和(2)研究是或可以作为常规医疗保健实践的一部分的程度。
    方法:在这项定性研究中,对来自四个大型卫生服务组织的高级卫生领导人进行了半结构化访谈,这些组织是悉尼卫生合作伙伴(SHP)的成员,澳大利亚国家认可的研究翻译中心之一致力于加快研究成果转化为循证医疗保健。采访是在2022年11月至2023年1月之间进行的,无论是录音和逐字记录,还是记录在采访者的现场笔记中。两位研究人员对访谈数据进行了主题分析,使用框架方法识别常见主题。
    结果:采访了17位卫生主管,包括首席执行官,医疗服务主管,护理,联合健康,研究,以及其他担任行政领导角色的人。对问题(1)的回应包括重新平衡好奇心和优先级驱动的研究主题;为卫生组织内的研究活动提供更多支持;并帮助卫生专业人员和研究人员讨论可研究的优先事项。对问题(2)的回应包括确定被认为对将研究嵌入医疗保健至关重要的要素;以及打破研究与医疗保健之间孤岛的必要性,以及在卫生组织内。
    结论:卫生服务领导者重视研究,但想要更多符合他们需求和优先事项的研究。与研究人员讨论这些优先事项可能需要一些便利。使研究成为医疗保健的更完整的一部分将需要强大而广泛的行政领导,资源和基础设施,并投资于卫生临床医生的能力和能力建设,经理和执行人员。
    BACKGROUND: Research evidence has demonstrably improved health care practices and patient outcomes. However, systemic translation of evidence into practice is far from optimal. The reasons are complex, but often because research is not well aligned with health service priorities. The aim of this study was to explore the experiences and perspectives of senior health service executives on two issues: (1) the alignment between local research activity and the needs and priorities of their health services, and (2) the extent to which research is or can be integrated as part of usual health care practice.
    METHODS: In this qualitative study, semi-structured interviews were conducted with senior health leaders from four large health service organisations that are members of Sydney Health Partners (SHP), one of Australia\'s nationally accredited research translation centres committed to accelerating the translation of research findings into evidence-based health care. The interviews were conducted between November 2022 and January 2023, and were either audio-recorded and transcribed verbatim or recorded in the interviewer field notes. A thematic analysis of the interview data was conducted by two researchers, using the framework method to identify common themes.
    RESULTS: Seventeen health executives were interviewed, including chief executives, directors of medical services, nursing, allied health, research, and others in executive leadership roles. Responses to issue (1) included themes on re-balancing curiosity- and priority-driven research; providing more support for research activity within health organisations; and helping health professionals and researchers discuss researchable priorities. Responses to issue (2) included identification of elements considered essential for embedding research in health care; and the need to break down silos between research and health care, as well as within health organisations.
    CONCLUSIONS: Health service leaders value research but want more research that aligns with their needs and priorities. Discussions with researchers about those priorities may need some facilitation. Making research a more integrated part of health care will require strong and broad executive leadership, resources and infrastructure, and investing in capacity- and capability-building across health clinicians, managers and executive staff.
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  • 文章类型: Journal Article
    在了解跨性别健康需求方面取得了进展,但是研究重点通常是由政策或医疗保健专业人员设定的,没有反式输入,这可能无法反映公众的需求。我们的研究试图从研究人员和跨性别社区中确定法国的跨性别健康研究重点。
    专家利益相关者(健康和社会科学专业人员,跨性别个体,及其家人)回答了关于跨健康研究优先事项的三轮Delphi调查。第一轮涉及一份不限成员名额的问卷,定性分析。在第二轮中,参与者使用李克特量表对第一轮的研究命题进行排名。该研究的第二阶段涉及与专家和跨性别人士进行的两个小时的研讨会。
    53名参与者(32%的跨性别者/亲属,60%的卫生专业人员)对开放式问题做出了217份答复,导致44个研究重点。两轮投票后,共有五项提案达成了强有力的共识,并被视为主要研究重点:评估跨性别儿童和青少年使用青春期阻滞剂的效果(95%),支持跨性别儿童和青少年的效果评估(92%),研究跨性别青年及其父母可用的支持系统(86%),青春期前后跨性别认同的持续存在(患病率,持续的人的特征)(86%),和对青少年及其家庭的支持的需求评估调查(83%)。其他13项建议被认为是中等优先事项。
    我们法国研究的主要共识是关于跨青年护理和支持需求的研究。我们的研究结果可以指导进一步的跨健康研究,以满足公众的需求和愿望。
    Progress has been made in understanding trans health needs, but research priorities are often set by policy or healthcare professionals without trans input, which may not reflect public needs. Our study sought to identify trans health research priorities in France from both researchers and the trans community.
    Expert stakeholders (health and social sciences professionals, trans individuals, and their families) answered a three-round Delphi survey on trans health research priorities. The first round involved an open-ended questionnaire, analyzed qualitatively. In the second round, participants ranked research propositions from round one using a Likert scale. The study\'s second phase involved a two-hour workshop with experts and trans individuals.
    53 participants (32% trans individuals/relatives, 60% health professionals) contributed 217 responses to open-ended questions, leading to 44 research priorities. After the two voting rounds, a total of five proposals reached a strong consensus cut-off and were considered as the main research priorities: evaluation of the effect of puberty blocker use in trans children and adolescents (95%), evaluation of the effect of supporting trans children and adolescents (92%), study of the support systems available for trans youth and their parents (86%), persistence of trans identity around puberty (prevalence, persistent persons characteristics) (86%), and needs assessment survey of the support for adolescents and their families (83%). Thirteen other proposals were considered moderate priorities.
    The main consensus in our French study concerned research on trans-youth care and support needs. Our results may guide further trans-health research that meets the public\'s needs and desires.
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  • 文章类型: Journal Article
    有意义的研究为感染预防和控制(IPC)实践创造了证据。
    建立感染预防协会(IPS)成员的研究重点,以支持未来的研究项目。
    混合方法收敛并行设计,结合了IPS成员的横截面调查(2022-2023),以及IPS咨询委员会的焦点小组调查结果,(2022年10月)。使用描述性统计分析定量数据。定性数据逐字转录,进入NVivo12,并使用专题分析方法进行分析。
    132个IPS成员回应了调查,其中120名(90.9%)护士。三个最普遍的优先事项是:质量改进和患者安全(n=84,16.1%);IPC培训和教育(n=77,14.8%);和IPC循证指南(n=76,14.6%)。对焦点小组成绩单的分析确定了六个紧急主题“以患者为中心的护理”,“培训和教育”,\'IPC角色和身份\',\'IPC领导\',\'IPC是每个人的责任\'',和“研究活动”。结果的三角测量表明,定量和定性结果与质量改善和患者安全(QIPS)以及培训和教育之间的一致性被确定为优先研究领域。
    这项研究强调了在QIPS中开发支持系统和纳入研究重点的必要性,以及培训和教育。这项研究的结果与推荐的核心能力和有效的感染预防和控制计划的组成部分相一致。使它们与QIPS计划相关。该研究的结果将作为指导IPS研究与发展委员会向IPS成员提供实际支持的宝贵资源。
    UNASSIGNED: Meaningful research creates evidence for Infection Prevention and Control (IPC) practice.
    UNASSIGNED: To establish Infection Prevention Society (IPS) members\' research priorities to support future research projects.
    UNASSIGNED: A mixed methods convergent parallel design incorporating a cross-sectional survey of IPS members (2022-2023), and focus group findings from the IPS Consultative Committee, (October 2022). Quantitative data were analysed using descriptive statistics. Qualitative data were transcribed verbatim, entered into NVivo 12, and analysed using a thematic analysis approach.
    UNASSIGNED: 132 IPS members responded to the survey, including 120 (90.9%) nurses. The three most prevalent priorities were: Quality Improvement and Patient Safety (n = 84, 16.1%); IPC Training and Education (n = 77, 14.8%); and IPC Evidence-based Guidelines (n = 76, 14.6%). Analysis of the focus group transcripts identified six emergent themes \'Patient Centred Care\', \'Training and Education\', \'IPC Role and Identity\', \'IPC Leadership\', \'IPC is Everyone\'s Responsibility\', and \'Research Activity\'. Triangulation of findings demonstrated concordance between quantitative and qualitative findings with Quality Improvement and Patient Safety (QIPS) and Training and Education identified as priority research areas.
    UNASSIGNED: This study highlights the necessity of developing support systems and incorporating research priorities in QIPS, as well as Training and Education. The findings of this study align with the recommended core competencies and components for effective infection prevention and control programs, making them relevant to QIPS initiatives. The outcomes of the study will serve as a valuable resource to guide the IPS Research and Development Committee in delivering practical support to IPS members.
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  • 文章类型: Journal Article
    呼吸治疗师(RT)有望保持最新技术,治疗,研究,以及提供高质量患者护理的最佳实践。他们必须具备解释的技能,评估,并有助于循证实践。然而,RTs通常依赖于其他专业的研究,这些专业可能无法完全满足他们的特定需求,导致他们的实践指导不足。此外,没有从RTs的角度探索知识差距和研究需求,以提高他们的实践和患者的结果.指导这项研究的研究问题是:(i)感知到的以实践为导向的知识差距是什么?(ii)根据呼吸治疗专家的说法,整个呼吸治疗行业的必要研究重点是什么?
    使用半结构化焦点小组与来自加拿大七个实践领域的40位专家RT进行了定性描述研究。使用定性内容分析对数据进行分析。
    我们确定了四个主要主题,这些主题与这些专家认为呼吸治疗行业的实践导向差距和必要的研究重点有关:1)RTs的系统级影响,2)优化呼吸治疗方法,3)呼吸治疗专业的奖学金和4)呼吸治疗教育。
    这些发现建立了对当前差距和需要进一步调查的RT的具体需求的基本理解。与会者强烈强调了考虑呼吸治疗专业的广度和深度的研究重点的重要性,强调了呼吸疗法的复杂性及其在实践中的应用。
    从这项研究中获得的独特见解突出了知识差距和研究需求。这些发现为进一步探索铺平了道路,话语,和研究旨在了解RT的具体贡献和要求。
    UNASSIGNED: Respiratory therapists (RTs) are expected to stay updated on technology, treatments, research, and best practices to provide high-quality patient care. They must possess the skills to interpret, evaluate, and contribute to evidence-based practices. However, RTs often rely on research from other professions that may not fully address their specific needs, leading to insufficient guidance for their practice. Additionally, there has been no exploration of knowledge gaps and research needs from RTs\' perspectives to enhance their practice and patient outcomes. The research questions guiding this study were: (i) what are the perceived practice-oriented knowledge gaps? and (ii) what are the necessary research priorities across the respiratory therapy profession according to experts in respiratory therapy?
    UNASSIGNED: A qualitative description study was conducted using semi-structured focus groups with 40 expert RTs from seven areas of practice across Canada. Data was analyzed using qualitative content analysis.
    UNASSIGNED: We identified four major themes relating to what these experts perceive as the practice-oriented gaps and necessary research priorities across the respiratory therapy profession: 1) system-level impact of RTs, 2) optimizing respiratory therapy practices, 3) scholarship on the respiratory therapy profession and 4) respiratory therapy education.
    UNASSIGNED: The findings establish a fundamental understanding of the current gaps and the specific needs of RTs that require further investigation. Participants strongly emphasized the significance of research priorities that consider the breadth and depth of the respiratory therapy profession, which underscores the complex nature of respiratory therapy and its application in practice.
    UNASSIGNED: The unique insights garnered from this study highlight the knowledge gaps and research needs specific to RTs. These findings pave the way for further exploration, discourse, and research aimed at understanding the specific contributions and requirements of RTs.
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  • 文章类型: Journal Article
    低收入和中等收入国家(LMICs)受到需要紧急护理的条件的不成比例的影响,但在这些环境中进行的上下文适当研究有限,涉及患者群体和他们旨在受益的医疗保健系统。在过去的五年里,南非西开普省的研究人员发表了大约20%的来自非洲的紧急护理出版物,然而,没有达成一致的研究重点清单存在。确定研究重点,通过公认的共识方法,可以确保低收入国家的努力和资源更适当地针对需求。
    使用改进的德尔菲研究,我们邀请了来自西开普省不同专业紧急护理干部的一系列公共和私人代表,以确定世卫组织紧急护理系统框架四个领域的当前证据差距和共识研究重点:现场护理,院前护理,基于设施的护理,以及紧急护理系统本身。然后,我们有目的地选择了11位持有关键学术和管理职位的专家组成一个小组,并执行一个名义上的小组技术过程,以讨论这些确定的研究重点,并建立优先研究问题的最终列表。
    受邀的66名急诊护理专业人员中有40名(61%)参与了德尔菲阶段的研究,所有专业干部都有代表。重复数据删除后,第一轮确定了154个研究主题。在第二轮中,至少80%的参与者将94%(61%)的主题视为研究重点。在名义组技术讨论之后,超过50%的小组成员将26个问题确定为共识研究优先事项,并将其列为十大优先事项。
    我们成功地整理了专家意见,并确定了南非西开普省现有的急救护理知识差距。确定未来工作的关键主题包括关于当前寻求健康行为的问题,调度,设施间转移,和员工倦怠。
    UNASSIGNED: Low- and middle-income countries (LMICs) are disproportionally affected by conditions requiring emergency care but there are limited contextually appropriate studies performed within these settings involving the patient population and healthcare systems they aim to benefit. Over the past five years, researchers in the Western Cape of South Africa have produced approximately 20 % of all emergency care publications from Africa, yet no agreed list of research priorities exists. Establishing research priorities, via recognised consensus methods, can ensure that efforts and resources in LMICs are more appropriately targeted to the need.
    UNASSIGNED: Using a modified Delphi study, we invited a range of public and private representatives from different professional emergency care cadres within the Western Cape to identify current evidence gaps and consensus research priorities across the four areas of the WHO Emergency Care Systems framework: scene care, prehospital care, facility-based care, and the emergency care system itself. We then purposively selected eleven experts holding key academic and management positions to form a panel and perform a nominal group technique process to discuss these identified research priorities and establish a final list of priority research questions.
    UNASSIGNED: Forty of the sixty-six (61 %) emergency care professionals invited contributed to the Delphi phase of the study, with representation from all professional cadres. After deduplication, 154 research topics were identified in the first round. In the second round, 94 (61 %) topics were considered research priorities by at least 80 % of participants. Following the nominal group technique discussion, 26 questions were established as consensus research priorities having been ranked as a top ten priority by over 50 % of panellists.
    UNASSIGNED: We were able to successfully collate expert opinion and identify existing emergency care knowledge gaps within the Western Cape province of South Africa. Key topics identified for future work included questions on current health-seeking behaviour, dispatch, interfacility transfer, and staff burnout.
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  • 文章类型: Journal Article
    全球范围内,每年有超过1200万18岁以下的女孩被迫结婚。阿拉伯地区结束童婚的进展正在放缓,风险被逆转,由于受冲突影响的人口增加和广泛的经济危机。本文的目的是考虑整个地区的研究重点,为阿拉伯地区有效和加速的童婚预防和应对方案提供信息。在2019年7月至2021年12月期间,支持阿拉伯地区童婚预防和应对计划的73名专家参与了关于研究差距和研究环境的在线Delphi咨询过程的三个阶段。提出了研究差距的建议,reviewed,并由参与者进行评级,以确认共享的学习议程。与会者在7个主要领域确定了50个不同的研究差距,在50项声明中,有23项获得了高度的共识支持。就越来越需要制作和使用证据来支持方案制定达成了明确的共识,并进一步研究童婚的具体驱动因素和后果。关于研究如何为法律和法律体系内的预防和应对工作提供信息的共识最少。这些结果为阿拉伯地区的童婚研究议程奠定了基础,该议程考虑到区域独特性,并建立在童婚研究的全球势头之上。通过区域行动论坛建立了这样做的机制,以及整个地区的其他网络。
    Globally, more than 12 million girls under the age of 18 are forced to marry every year. Progress on ending child marriage in the Arab region is slowing, and risks being reversed, due to an increase in conflict-affected populations and widespread economic crisis. The aim of this paper is to consider the research priorities across the region to inform effective and accelerated child marriage prevention and response programming within the Arab region. Seventy-three specialists supporting child marriage prevention and response programming in the Arab region engaged with up to three phases of an online Delphi consultation process on research gaps and the research environment between July 2019 and December 2021. Proposals of research gaps were elicited, reviewed, and rated by participants to confirm a shared learning agenda. Participants identified 50 different research gaps across 7 main areas, reaching a high level of consensus support for 23 of 50 statements. Clear consensus was reached in relation to an increased need to produce and use evidence to support programme development, and further research on specific drivers and consequences of child marriage. The least consensus was found in relation to how research can inform prevention and response efforts within the law and legal system. The results provide the foundation of a child marriage research agenda for the Arab region which takes into account regional distinctiveness and builds on the global momentum for child marriage research. Mechanisms are in place to do this through the Regional Action Forum, and other networks across the region.
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  • 文章类型: Clinical Trial
    围手术期医学的临床研究需要患者和护理人员的观点,以提高其相关性和质量,有利于研究人员和社区。确定这些优先事项将使研究人员,资助者,和理事机构有效利用稀缺的资金和资源。我们的目标是确定澳大利亚围手术期医学研究中的十大研究重点。
    混合方法,将进行探索性顺序设计。该研究将包括五个阶段。最初,一项已发表的开放式调查收集了来自人群的回应(研究人员,医护人员,和消费者)关于围手术期医学研究与人群相关的不确定性/问题。我们收集了544个问题,并根据围手术期医学标准化终点-围手术期和麻醉护理(StEP-COMPAC)终点的核心结果测量进行了定量分析和分组。使用多准则决策软件,将举办结合人群的研讨会,以确定澳大利亚人群围手术期医学研究的十大优先事项.
    进行研究的伦理批准来自AlfredHealth(澳大利亚)人类研究伦理委员会(ID:171/19)。调查结果将在同行评审出版物中传播,会议,以及围手术期研究网络的传播。十大优先事项将通知研究资助者,赠款提交,指导方针,和人口。
    UNASSIGNED: Clinical research in perioperative medicine requires the perspectives of patients and caregivers to increase its relevance and quality, benefiting both researchers and the community. Identifying these priorities will enable researchers, funders, and governing bodies to efficiently use scarce funding and resources. We aim to identify the top 10 research priorities in perioperative medical research in Australia.
    UNASSIGNED: A mixed-methods, exploratory-sequential design will be conducted. The study will include five phases. Initially, a published open-ended survey gathered responses from the population (researchers, healthcare workers, and consumers) regarding uncertainties/questions relevant to the population about perioperative medical research. We collected 544 questions and quantitatively analysed and grouped them according to the Standardised Endpoints in Perioperative Medicine-Core Outcomes Measures in Perioperative and Anaesthetic Care (StEP-COMPAC) endpoints. Using multicriteria decision-making software, workshops combining the population will be conducted to determine the top 10 priorities for perioperative medicine research for the Australian population.
    UNASSIGNED: Ethical approval to conduct the study was obtained from the Alfred Health (Australia) Human Research Ethics Committee (ID: 171/19). The findings will be disseminated in peer review publications, conferences, and dissemination across perioperative research networks. The top 10 priorities will be available to inform research funders, grant submissions, guidelines, and the population.
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  • 文章类型: Journal Article
    背景:远程医疗已成为治疗交付的替代模式,并已成为医疗服务交付的重要组成部分。然而,在肌肉骨骼疼痛的远程健康中,术语的使用不一致,缺乏研究重点。这个国际的目的,在经过修改的三轮e-Delphi调查中组建的多学科专家小组旨在就研究重点和肌肉骨骼疼痛远程健康实践的标准术语达成共识。
    方法:在这项国际修改的e-Delphi调查中,我们邀请了一个由研究人员组成的专家小组,临床医生,消费者代表,行业合作伙伴,医疗保健经理,和政策制定者参加三轮电子德尔福。通过Expertscape网站确定了专家小组,PubMed数据库,社交媒体,和滚雪球的方法。在第一轮中,向小组成员介绍了潜在的研究重点和术语。小组成员以5分的李克特量表和11分的数字量表对每项研究优先事项的协议进行评级,以及“肌肉骨骼疼痛中的远程健康”领域的5点Likert量表上的每个术语。至少80%的小组成员被要求同意被视为共识。我们对数据进行了描述性分析,并使用Wilcoxon配对符号秩检验评估了结果的稳定性。
    结果:我们于2022年2月至8月进行了一项国际e-Delphi调查。在694名被邀请的人中,160名小组成员参加了第一轮比赛,第二轮133人(保留率为83%),和134在第三轮(84%的保留)。大多数小组成员是研究人员76(47%),临床医生57(36%),男女消费者代表9人(6%),特别是来自巴西的31人(19%),印度22(14%),和澳大利亚19(12%)在第一轮。小组确定了十四个远程保健研究重点,涵盖了使用信息和通信技术制定战略等主题,远程医疗实施服务,远程医疗干预措施的有效性和成本效益,远程保健干预措施的公平性,从20个研究重点的初始列表中,对肌肉骨骼疼痛状况进行定性研究和电子健康素养。从最初的37个术语列表中,“数字健康”和“远程健康”作为标准术语达成了共识。
    结论:国际,多学科专家共识建议,未来的研究应考虑远程保健肌肉骨骼疼痛的14项研究重点。此外,术语数字健康和远程健康是肌肉骨骼远程健康研究中使用的最合适的术语。
    开放科学框架(https://osf.io/tqmz2/)。
    BACKGROUND: Telehealth has emerged as an alternative model for treatment delivery and has become an important component of health service delivery. However, there is inconsistency in the use of terminologies and a lack of research priorities in telehealth in musculoskeletal pain. The purpose of this international, multidisciplinary expert panel assembled in a modified three-round e-Delphi survey is to achieve a consensus on research priorities and for the standard terminology for musculoskeletal pain telehealth practice.
    METHODS: In this international modified e-Delphi survey, we invited an expert panel consisting of researchers, clinicians, consumer representatives, industry partners, healthcare managers, and policymakers to participate in a three-round e-Delphi. Expert panels were identified through the Expertscape website, PubMed database, social media, and a snowball approach. In Round 1, potential research priorities and terminologies were presented to panel members. Panel members rated the agreement of each research priority on a 5-point Likert scale and an 11-point numerical scale, and each terminology on a 5-point Likert scale for the \"telehealth in musculoskeletal pain \" field over rounds. At least 80% of the panel members were required to agree to be deemed a consensus. We analyzed the data descriptively and assessed the stability of the results using the Wilcoxon matched-pairs signed rank test.
    RESULTS: We performed an international e-Delphi survey from February to August 2022. Of 694 invited people, 160 panel members participated in the first round, 133 in the second round (83% retention), and 134 in the third round (84% retention). Most of the panel members were researchers 76 (47%), clinicians 57 (36%), and consumer representatives 9 (6%) of both genders especially from Brazil 31 (19%), India 22 (14%), and Australia 19 (12%) in the first round. The panel identified fourteen telehealth research priorities spanned topics including the development of strategies using information and communication technology, telehealth implementation services, the effectiveness and cost-effectiveness of telehealth interventions, equity of telehealth interventions, qualitative research and eHealth literacy in musculoskeletal pain conditions from an initial list of 20 research priorities. The consensus was reached for \"digital health\" and \"telehealth\" as standard terminologies from an initial list of 37 terminologies.
    CONCLUSIONS: An international, multidisciplinary expert consensus recommends that future research should consider the 14 research priorities for telehealth musculoskeletal pain reached. Additionally, the terms digital health and telehealth as the most appropriate terminologies to be used in musculoskeletal telehealth research.
    UNASSIGNED: Open Science Framework ( https://osf.io/tqmz2/ ).
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  • 文章类型: Journal Article
    背景和目的:子宫内膜异位症会导致严重的个人和社会负担。尽管如此,研究经费落后于其他慢性病。因此,确定在哪里优先考虑这些有限的资金至关重要。子宫内膜异位症患者和临床医生/研究人员之间的研究重点也可能有所不同。该研究项目的目的是从澳大利亚子宫内膜异位症患者的角度探讨研究重点和影响子宫内膜异位症研究参与的因素。材料与方法:采用定性归纳内容分析法对涉及30名子宫内膜异位症患者的4个焦点组进行分析。结果:从数据中得出两个类别:未满足的研究需求以及参与子宫内膜异位症研究的动机和障碍。参与者表示有兴趣开发非侵入性诊断工具和更多多学科或整体的治疗方法。参与者迫切需要对症状管理的治疗方案进行研究,许多人优先考虑非激素治疗,包括药用大麻和补充药物。其他人则优先研究子宫内膜异位症的原因而不是治疗方法的研究,以帮助预防和最终治愈疾病。参与子宫内膜异位症研究的主要驱动因素是希望症状改善和减少诊断时间。支持参与的研究设计功能包括易于进入测试中心(例如,用于血液测试)并共享测试结果和自动数据收集提醒,用简单的stra-tegies记录数据测量。对患有子宫内膜异位症的年轻人的研究激励和有关研究项目的信息的广泛传播被认为可能会增加参与者的数量。障碍包括时间承诺,数据收集的研究任命缺乏灵活性,旅行或工作承诺,担心某些产品的安全性,并试图怀上一个孩子。结论:子宫内膜异位症患者愿意参与他们认为符合他们需求的研究,重点关注诊断工具和症状缓解。然而,研究人员必须共同设计方法,以确保研究参与的便利性和灵活性。
    Background and Objectives: Endometriosis causes significant personal and societal burden. Despite this, research funding lags behind other chronic conditions. Determining where to prioritise these limited funds is therefore vital. Research priorities may also differ between individuals with endometriosis and clinicians/researchers. The aim of this research project is to explore research priorities and factors shaping participation in endometriosis research from the perspective of people with endometriosis in Australia. Materials and Methods: Four focus groups involving 30 people with endometriosis were conducted and analysed using qualitative inductive content analysis. Results: Two categories were developed from the data: unmet research needs and motivators and barriers to participation in endometriosis research. Participants expressed interest in developing non-invasive diagnostic tools and a more multidisciplinary or holistic approach to treatment. Participants urgently desired research on treatment options for symptom management, with many prioritising non-hormonal treatments, including medicinal cannabis and complementary medicine. Others prioritised research on the causes of endometriosis over research on treatments to assist with prevention and eventual cure of the disease. The main drivers for participating in endometriosis research were hope for symptom improvement and a reduction in time to diagnosis. Research design features that were important in supporting participation included ease of access to testing centres (e.g., for blood tests) and sharing test results and automated data collection reminders, with simple stra-tegies to record data measurements. Research incentives for younger people with endometriosis and a broad dissemination of information about research projects was considered likely to increase participant numbers. Barriers included time commitments, a lack of flexibility around research appointments for data collection, travel or work commitments, concerns about the safety of some products, and trying to conceive a child. Conclusions: People with endometriosis were open to participating in research they felt aligned with their needs, with a significant focus on diagnostic tools and symptom relief. However, researchers must co-design approaches to ensure convenience and flexibility for research participation.
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