目的:鼻窦疾病是结直肠外科医生治疗的常见病。该领域缺乏文献来指导这种状况的优化管理。作为PITSTOP研究的一部分,我们旨在确定政策和研究重点,为该领域提供指导。
方法:邀请患者和外科医生参加。A\'那又怎样,现在进行了什么运动,根据PITSTOP的数据。这产生了研究和实践优先事项的陈述。进行了三轮在线Delphi研究,根据政策和研究分别对陈述进行排名。陈述被评为1(不重要)到9(重要)。超过70%的参与者对7-9的陈述进行了共识会议。各轮之间显示了个性化的投票反馈。举行了面对面会议讨论发言,参与者被要求使用加权选择投票对陈述进行排名。
结果:22人参加了焦点小组,生成14项研究和19项政策声明。第1轮56名与会者、第2轮53名与会者和第3轮51名与会者对发言进行了表决。在共识回合中,共讨论了15份政策声明和19份研究声明。关键政策声明涉及治疗策略和强度,外科医生培训机会,需要分类和治疗对重返工作岗位的影响。研究建议包括未来试验的设计,方法论考虑和研究问题。
结论:本研究确定了与患者和临床医生相关的藏毛窦疾病的研究和政策重点。这些应该为实践和未来的研究提供信息。
OBJECTIVE: Pilonidal sinus disease is a common condition treated by colorectal surgeons. There is a lack of literature in the field to guide optimal management of this condition. As part of the PITSTOP study, we aimed to identify policy and research priorities to provide direction to the field.
METHODS: Patients and surgeons were invited to participate. A \'So what, now what\' exercise was conducted, informed by data from PITSTOP. This generated statements for research and practice priorities. A three-round online Delphi study was conducted, ranking statements based on policy and research separately. Statements were rated 1 (not important) to 9 (important). Statements that were rated 7-9 by more than 70% of participants were entered into the
consensus meeting. Personalized voting feedback was shown between rounds. A face-to-face meeting was held to discuss statements, and participants were asked to rank statements using a weighted choice vote.
RESULTS: Twenty-two people participated in the focus group, generating 14 research and 19 policy statements. Statements were voted on by 56 participants in round 1, 53 in round 2 and 51 in round 3. A total of 15 policy statements and 19 research statements were discussed in the
consensus round. Key policy statements addressed treatment strategies and intensity, surgeon training opportunities, need for classification and the impact of treatment on return to work. Research recommendations included design of future trials, methodology considerations and research questions.
CONCLUSIONS: This study has identified research and policy priorities in pilonidal sinus disease which are relevant to patients and clinicians. These should inform practice and future research.