Patient-provider communication

患者 - 提供者沟通
  • 文章类型: Journal Article
    淋巴水肿专家的接触以及他们与患者之间的沟通不良,无法进行适当的淋巴水肿管理。因此,远程系统的开发和传播对于改善医务人员有限或获得医疗协调的农村地区的护理是必要的。
    作者评估了为患者提供淋巴水肿保守治疗教育所需的要素,以确定远程管理的可行性。
    这项研究涉及在当地诊所(A点)中联系健康专业人员治疗淋巴水肿患者,他和临床医生在一起,与位于远程大学的专家认证的淋巴水肿治疗师(CLT)(B点)。
    CLT能够打招呼,访谈并指导患者进行保守治疗。与病人直接接触是不可能的,限制了可视化,触诊,腿部周长测量,和淋巴引流管理。
    研究结果表明,包括保守治疗的远程淋巴水肿管理方法对患者和卫生专业人员都有好处,特别是在农村地区。未来的研究需要证实这种方法的有效性,以确认适当的治疗。
    UNASSIGNED: Poor access to lymphoedema specialists and communication between them and patients prevents appropriate lymphoedema management. Therefore, development and dissemination of remote systems is necessary to improve care in rural areas with limited medical personnel or access to medical coordination.
    UNASSIGNED: The authors evaluated the elements required for providing patient education on conservative therapy for lymphoedema, to determine the feasibility of remote management.
    UNASSIGNED: The study involved connecting a health professional in a local clinic (point A) treating a patient with lymphoedema, who was present alongside the clinician, with a specialist certified lymphoedema therapist (CLT) located remotely in a university (point B).
    UNASSIGNED: The CLT was able to greet, interview and provide guidance to the patient on conservative therapy. Direct contact with the patient was not possible, which limited visualisation, palpation, leg circumference measurement, and lymphatic drainage management.
    UNASSIGNED: The findings suggest that remote a lymphoedema management approach involving conservative therapy benefits both patients and health professionals, particularly in rural regions. Future studies are needed to confirm the effectiveness of this approach to confirm adequate treatment.
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  • 文章类型: Journal Article
    有沟通障碍(CD)的老年人在接受护理方面遇到障碍,并面临缺乏残疾的住宿条件。利用支持与医疗保健提供者(通信支持人员)进行通信的人可能是该群体自我支持其残疾的一种方式。我们检查了这种利用是否与老年人的CD独立相关。我们还试图了解社会经济因素是否与利用有关。
    我们使用2015年全国健康和老龄化趋势调查(NHATS)对具有功能性听力的医疗保险受益人(n=5954)进行了横断面分析,表现力,或认知困难。我们计算了一个加权,人口患病率和控制社会人口统计学的调整患病率(APR),健康和其他残疾因素。
    在社区居住的老年人中,有CD与较高的利用通信支持人员在医疗访问(APR:1.41[CI:1.27-1.57]).在有CD的成年人中,与白人和男性相比,黑人成年人和女性的利用率较低,分别。
    沟通支持人员可能是拥有CD的老年人自我支持其残疾的一种方式。然而,并非所有带有CD的老年人都会带来某人,而社会因素的差异可能表明存在未满足的支持需求。
    超过一半的有沟通障碍的老年人在医生就诊时不使用沟通支持人员,和利用率因种族和性别而异。康复专业人员应就这种做法对患有沟通障碍的老年成年患者进行教育,并与语言病理学家(SLP)和听力学家(AuDs)就如何适应该人群的残疾进行合作。SLP和AUD可以直接培训支持人员,其他康复专业人员,和医生在容纳这些病人。对于没有带支持人员的患者,SLP和AuD可以计划替代通信障碍支持,以在医疗保健环境中使用,这样所有有CD的老年人都可以公平地获得医疗保健。
    UNASSIGNED: Older adults with communication disabilities (CDs) experience barriers to receiving care and face a paucity of accommodations for their disability. Utilizing someone that supports communication with healthcare providers (communication support persons) may be a way that this group self-supports their disability. We examined if this utilization was independently associated with CDs among older adults. We also sought to understand if socioeconomic factors were associated with utilization.
    UNASSIGNED: We used the 2015 National Health and Aging Trends Survey (NHATS) to conduct a cross-sectional analysis of Medicare beneficiaries (n = 5954) with functional hearing, expressive, or cognitive difficulties. We calculated a weighted, population prevalence and an adjusted prevalence ratio (APR) controlling for sociodemographic, health and other disability factors.
    UNASSIGNED: Among community dwelling older adults, having CDs was associated with higher utilization of a communication support person at medical visits (APR: 1.41 [CI: 1.27 - 1.57]). Among adults with CDs, Black adults and women had lower levels of utilization as compared to White adults and men, respectively.
    UNASSIGNED: Communication support persons may be a way that older adults with CDs self-support their disability. However, not all older adults with CDs bring someone and variation by social factors could suggest that unmet support needs exist.
    Over half of older adults with communication disabilities do not utilize a communication support person at doctors’ visits, and utilization differs by race and gender.Rehabilitation professionals should educate their older adult patients with communication disabilities on this practice and collaborate with speech-language pathologists (SLPs) and audiologists (AuDs) on how to accommodate this population’s disability.SLPs and AuDs can directly train support persons, other rehabilitation professionals, and physicians on accommodating these patients. For patients who don’t bring a support person, SLPs and AuDs can plan alternative communication disability supports to use in healthcare settings, so that all older adults with CDs can equitably access their healthcare.
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  • 文章类型: Journal Article
    背景:社交媒体上的健康错误信息会对知识产生负面影响,态度,和行为,破坏临床护理和公共卫生工作。因此,这是至关重要的,更好地了解公众的经验与健康错误信息在社交媒体上。
    目的:本分析的目的是检查对社交媒体信息环境的看法,并确定美国成年人对健康错误信息的看法与健康沟通行为之间的关联。
    方法:分析使用了2022年健康信息国家趋势调查的数据(N=6252)。加权未调整的比例描述了受访者对社交媒体上虚假或误导性健康信息数量的看法(“感知的错误信息数量”),以及从社交媒体上的虚假信息中辨别真实的难度(“感知的辨别难度”)。加权多变量逻辑回归检查了(1)社会人口统计学特征和主观素养度量与错误信息感知的关联以及(2)错误信息感知与健康沟通行为之间的关系(即,在社交媒体上分享个人或一般健康信息,并在健康决策或与医疗保健提供者的讨论中使用社交媒体信息)。
    结果:超过三分之一的社交媒体用户(35.61%)认为健康错误信息水平很高,大约三分之二(66.56%)的人报告了较高的感知辨别难度。与白人相比,非西班牙裔黑人/非洲裔美国人(调整比值比[aOR]0.407,95%CI0.282-0.587)和西班牙裔美国人(aOR0.610,95%CI0.449-0.831)感知大量错误信息的几率较低。主观健康素养较低的人不太可能报告高感知错误信息量(aOR0.602,95%CI0.374-0.970),而主观数字素养较低的人更有可能报告较高的感知错误信息量(aOR1.775,95%CI1.400-2.251).与白人相比,西班牙裔个体报告高辨别困难的几率较低(aOR0.620,95%CI0.462-0.831)。那些主观数字素养较低(aOR1.873,95%CI1.478-2.374)或计算能力较低(aOR1.465,95%CI1.047-2.049)的人更有可能报告高识别难度。高感知错误信息量与在社交媒体上分享一般健康信息的几率较低相关(aOR0.742,95%CI0.568-0.968),使用社交媒体信息做出健康决策(AOR0.273,95%CI0.156-0.479),并在与医疗保健提供者的讨论中使用社交媒体信息(aOR0.460,95%CI0.323-0.655)。高感知识别难度与在健康决策(aOR1.724,95%CI1.208-2.460)和医疗保健提供者讨论(aOR1.389,95%CI1.035-1.864)中使用社交媒体信息的较高几率相关。
    结论:在社交媒体用户中普遍存在对健康错误信息的高患病率和识别困难的看法,每个人都有独特的社会人口学特征,识字,和健康沟通行为。这些见解有助于为未来的健康沟通干预提供信息。
    Health misinformation on social media can negatively affect knowledge, attitudes, and behaviors, undermining clinical care and public health efforts. Therefore, it is vital to better understand the public\'s experience with health misinformation on social media.
    The goal of this analysis was to examine perceptions of the social media information environment and identify associations between health misinformation perceptions and health communication behaviors among US adults.
    Analyses used data from the 2022 Health Information National Trends Survey (N=6252). Weighted unadjusted proportions described respondents\' perceptions of the amount of false or misleading health information on social media (\"perceived misinformation amount\") and how difficult it is to discern true from false information on social media (\"perceived discernment difficulty\"). Weighted multivariable logistic regressions examined (1) associations of sociodemographic characteristics and subjective literacy measures with misinformation perceptions and (2) relationships between misinformation perceptions and health communication behaviors (ie, sharing personal or general health information on social media and using social media information in health decisions or in discussions with health care providers).
    Over one-third of social media users (35.61%) perceived high levels of health misinformation, and approximately two-thirds (66.56%) reported high perceived discernment difficulty. Odds of perceiving high amounts of misinformation were lower among non-Hispanic Black/African American (adjusted odds ratio [aOR] 0.407, 95% CI 0.282-0.587) and Hispanic (aOR 0.610, 95% CI 0.449-0.831) individuals compared to White individuals. Those with lower subjective health literacy were less likely to report high perceived misinformation amount (aOR 0.602, 95% CI 0.374-0.970), whereas those with lower subjective digital literacy were more likely to report high perceived misinformation amount (aOR 1.775, 95% CI 1.400-2.251). Compared to White individuals, Hispanic individuals had lower odds of reporting high discernment difficulty (aOR 0.620, 95% CI 0.462-0.831). Those with lower subjective digital literacy (aOR 1.873, 95% CI 1.478-2.374) or numeracy (aOR 1.465, 95% CI 1.047-2.049) were more likely to report high discernment difficulty. High perceived misinformation amount was associated with lower odds of sharing general health information on social media (aOR 0.742, 95% CI 0.568-0.968), using social media information to make health decisions (aOR 0.273, 95% CI 0.156-0.479), and using social media information in discussions with health care providers (aOR 0.460, 95% CI 0.323-0.655). High perceived discernment difficulty was associated with higher odds of using social media information in health decisions (aOR 1.724, 95% CI 1.208-2.460) and health care provider discussions (aOR 1.389, 95% CI 1.035-1.864).
    Perceptions of high health misinformation prevalence and discernment difficulty are widespread among social media users, and each has unique associations with sociodemographic characteristics, literacy, and health communication behaviors. These insights can help inform future health communication interventions.
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  • 文章类型: Journal Article
    背景:COVID-19大流行带来了重大的全球医疗保健挑战,特别影响低收入和中等收入国家基本卫生服务的连续性。这项研究调查了COVID-19大流行对亚美尼亚基本卫生服务的利用和提供的影响。
    方法:我们采用常规的定性研究设计,2021年在亚美尼亚的公共和私人初级医疗保健(PHC)设施内进行半结构化深度访谈(n=17)。我们的研究参与者包括在PHC设施中提供专业服务的医生(例如,内分泌学家,妇科医生/产科医生,和儿科医生),定期访问PHC设施(例如患有慢性病的成年人,孩子的父母),和政策制定者。进行了专题分析,产生五个紧急类别:COVID-19期间PHC服务的动员和组织;COVID-19期间的PHC访视;由于PHC访视次数减少导致慢性病恶化;常规儿童疫苗接种的问题;以及患者与提供者的沟通挑战。
    结果:由于服务交付的调整,对PHC设施的亲自访问数量有所下降,实施封锁措施,以及公众对访问医疗机构的恐惧。妇幼保健服务继续存在,没有出现重大中断。PHC提供者故意将产妇和儿童就诊的次数限制在基本的产前护理上,新生儿筛查,和儿童常规免疫接种。尽管如此,儿童在接种疫苗时出现了一些延误.大流行导致慢性病患者的随访和监测显着减少,从而加剧了他们的慢性病。电话是大流行期间患者与提供者沟通的主要方法。
    结论:COVID-19大流行对PHC机构基本医疗服务的提供和利用产生了深远的影响,特别是对于那些需要持续护理的慢性病患者。需要统一的国家一级指导和技术能力,以指导在PHC一级提供基本服务,促进有效的健康沟通,并实施数字平台,以便在突发公共卫生事件期间不间断地提供基本护理。
    BACKGROUND: The COVID-19 pandemic has presented significant global healthcare challenges, particularly impacting the continuity of essential health services in low- and middle-income countries. This study investigates the impact of the COVID-19 pandemic on the utilization and provision of essential health services in Armenia.
    METHODS: We employed a conventional qualitative study design, conducting semi-structured in-depth interviews (n = 17) within public and private primary healthcare (PHC) facilities in Armenia in 2021. Our study participants encompassed physicians providing specialty services in PHC facilities (e.g. endocrinologists, gynecologists/obstetricians, and pediatricians), regular visitors to PHC facilities (e.g. adults with chronic diseases, parents of children), and policymakers. Thematic analysis was conducted, yielding five emergent categories: mobilization and organization of PHC services during COVID-19; PHC visits during COVID-19; worsening of chronic conditions due to the decline in PHC visits; problems with routine childhood vaccinations; and patient-provider communication challenges.
    RESULTS: The number of in-person visits to PHC facilities declined due to adaptations in service delivery, imposed lockdown measures, and the public\'s fear of visiting healthcare facilities. Maternal and child health services continued with no major disruptions. PHC providers deliberately limited the number of maternal and child visits to essential antenatal care, newborn screenings, and routine childhood immunizations. Still, children experienced some delays in vaccination administration. The pandemic resulted in a notable reduction in follow-up visits and monitoring of patients with chronic conditions, thereby exacerbating their chronic conditions. Phone calls were the primary method of patient-provider communication during the pandemic.
    CONCLUSIONS: The COVID-19 pandemic has had a profound impact on the delivery and utilization of essential healthcare services at PHC facilities, especially for those with chronic conditions who needed continuous care. Unified national-level guidance and technical capacity are needed to direct the provision of essential services at the PHC level, promote effective health communication, and implement digital platforms for the uninterrupted provision of essential care during public health emergencies.
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  • 文章类型: Journal Article
    背景:骨科手术后从医院到家庭的过渡需要患者与其护理团队之间的顺畅沟通和协调,以避免零散的护理途径。数字通信越来越多地用于促进患者和医疗保健专业人员之间跨设置的容易且可访问的异步通信。基于团队的数字通信方法可以在骨科手术和出院后的术后期间提供优化的护理质量。
    目的:本研究分为两个阶段,旨在(1)探讨在丹麦三级医院接受骨科手术的患者对当前沟通途径的看法,以及(2)测试和探索患者出院后基于团队的数字通信(eDialogue)的经验和使用。
    方法:应用了定性数据收集技术的三角剖分:文档分析,参与者观察(n=16小时),在患者进入电子对话之前(n=31)和之后(n=24)对患者进行半结构化访谈,和使用数据的探索。
    结果:研究结果表明,患者在出院后经历了困难的沟通途径,并且由于护理协调不足而缺乏信息。84%(26/31)的患者使用了eDialogue,他们认为它提供了一种安全感,连贯性,并在善后重新安排沟通途径。确定了具体的驱动因素和使用障碍,这些要求进一步探索电子对话。
    结论:结论:患者对eDialogue进行了积极评价,并建议在骨科手术后回家后可以为他们提供支持。
    BACKGROUND: The transition from hospital to home after orthopedic surgery requires smooth communication and coordination between patients and their team of care to avoid fragmented care pathways. Digital communication is increasingly being used to facilitate easy and accessible asynchronous communication between patients and health care professionals across settings. A team-based approach to digital communication may provide optimized quality of care in the postoperative period following orthopedic surgery and hospital discharge.
    OBJECTIVE: This study was divided into two phases that aimed to (1) explore the perspectives of patients undergoing orthopedic surgery on current communication pathways at a tertiary hospital in Denmark and (2) test and explore patients\' experiences and use of team-based digital communication following hospital discharge (eDialogue).
    METHODS: A triangulation of qualitative data collection techniques was applied: document analysis, participant observations (n=16 hours), semistructured interviews with patients before (n=31) and after (n=24) their access to eDialogue, and exploration of use data.
    RESULTS: Findings show that patients experience difficult communication pathways after hospital discharge and a lack of information due to inadequate coordination of care. eDialogue was used by 84% (26/31) of the patients, and they suggested that it provided a sense of security, coherence, and proximity in the aftercare rearranging communication pathways for the better. Specific drivers and barriers to use were identified, and these call for further exploration of eDialogue.
    CONCLUSIONS: In conclusion, patients evaluated eDialogue positively and suggested that it could support them after returning home following orthopedic surgery.
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  • 文章类型: Journal Article
    背景:骨科手术治疗是一项横向任务,需要患者的积极参与,亲戚,以及各种环境中的医疗保健专业人员(HCP)。然而,出院后,通信受到挑战,主要通过电话进行。新的数字通信解决方案有可能为跨学科和部门边界的无缝和以患者为中心的对话创造空间。在评估新的通信解决方案时,必须探索有关HCPs需求和使用观点的知识,因为他们负责在实践中实施变革。
    目的:这项研究旨在(1)调查HCP对当前沟通途径的看法(第1阶段)和(2)探索他们使用简单的类似信使的解决方案(eDialogue)的经验。
    方法:我们使用了定性数据收集技术的三角测量,包括文档分析,观察,焦点小组,以及在使用eDialogue之前(n=28)和之后(n=12)对HCP进行个人访谈。数据收集和分析受到实施研究综合框架(CFIR)的启发,以具体了解HCP认为的促进者和实施障碍。
    结果:HCP认为当前的沟通途径对患者和自身都是不够的。电话是破坏性的,当通信跨越部门边界时,缺乏直接的通信方式。HCP经历了使用eDialogue作为一种快速简便的方式,可以在不同的环境中与患者和其他HCP进行及时的跨学科互动;但是,人们对时间消耗表示担忧。
    结论:电子对话可以为跨学科和跨部门的以患者为中心的沟通提供所需的支持。然而,该解决方案的未来研究应解决其影响和资源的使用。
    BACKGROUND: Orthopedic surgical treatment is a transversal task that requires the active involvement of patients, relatives, and health care professionals (HCPs) across various settings. However, after hospital discharge, communication is challenged and undertaken primarily by phone. New digital communication solutions have the potential to create a space for seamless and patient-centered dialogue across discipline and sector boundaries. When evaluating new communication solutions, knowledge about HCPs\' needs and perspectives of use must be explored, as it is they who are responsible for implementing changes in practice.
    OBJECTIVE: This study aimed to (1) investigate HCPs\' perceptions of current communication pathways (phase 1) and (2) explore their experiences of using a simple messenger-like solution (eDialogue) for team-based digital communication across settings (phase 2).
    METHODS: We used a triangulation of qualitative data collection techniques, including document analysis, observations, focus groups, and individual interviews of HCPs before (n=28) and after (n=12) their use of eDialogue. Data collection and analysis were inspired by the Consolidated Framework for Implementation Research (CFIR) to specifically understand facilitators and barriers to implementation as perceived by HCPs.
    RESULTS: HCPs perceive current communication pathways as insufficient for both patients and themselves. Phone calls are disruptive, and there is a lack of direct communication modalities when communication crosses sector boundaries. HCPs experienced the use of eDialogue as a quick and easy way for timely interdisciplinary interaction with patients and other HCPs across settings; however, concerns were raised about time consumption.
    CONCLUSIONS: eDialogue can provide needed support for interdisciplinary and cross-sectoral patient-centered communication. However, future studies of this solution should address its impact and the use of resources.
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  • 文章类型: Journal Article
    确定有沟通困难的亚急性康复住院患者以及可以促进沟通成功的沟通支持范围。
    对两个住院亚急性康复病房进行了前瞻性队列混合方法研究。护士使用住院功能沟通访谈筛查所有新入院的沟通困难,筛选问卷(IFCI-SQ)。语言病理学家(SLP)使用住院功能沟通访谈(IFCI)对被确定为沟通困难的患者进行了访谈。在面试中,SLP试用了不同的通信支持。计算在IFCI-SQ上有沟通困难的患者人数。计算了在患者SLP访谈中改善沟通的沟通支持的数量和类型。对IFCI期间使用的通信支持进行了演绎主导的定性内容分析。
    筛选了70例患者。护士报告45/70(64%)的患者沟通困难。SLP使用IFCI对总共15/45名患者进行了访谈。通信的提供支持在患者-SLP访谈的背景下改善所有患者的通信。
    许多亚急性康复住院患者在医院环境中存在沟通困难。一系列通信支持便利的通信。这些见解可以为未来的通信合作伙伴培训(CPT)计划提供信息。
    UNASSIGNED: To identify the sub-acute rehabilitation inpatients who have communication difficulty and the range of communication supports that can facilitate communicative success.
    UNASSIGNED: A prospective cohort mixed methods study was conducted on two inpatient sub-acute rehabilitation wards. Nurses screened all new admissions for communication difficulty using the Inpatient Functional Communication Interview, Screening Questionnaire (IFCI-SQ). Patients identified as having communication difficulty were interviewed by a speech-language pathologist (SLP) using the Inpatient Functional Communication Interview (IFCI). During the interview, the SLP trialled different communication supports. The number of patients who had communication difficulty on the IFCI-SQ was calculated. The number and type of communication supports that improved communication within the patient-SLP interview were calculated. Deductive-dominant qualitative content analysis was conducted on the communication supports used during the IFCI.
    UNASSIGNED: Seventy patients were screened. Nurses reported communication difficulty in 45/70 (64%) of patients. A total of 15/45 patients were interviewed by an SLP using the IFCI. The provision of communication supports improved communication for all patients within the context of the patient-SLP interview.
    UNASSIGNED: Many sub-acute rehabilitation inpatients have communication difficulty in the hospital setting. A range of communication supports facilitated communication. These insights could inform future communication partner training (CPT) programs.
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  • 文章类型: Journal Article
    背景:尽管几十年来努力减少种族癌症差异,黑人死于癌症的比率仍然高于美国其他种族。因为预防是经济有效和长期控制癌症的关键,癌症遗传咨询在减少种族癌症差异方面发挥核心作用的潜力很高。然而,遗传咨询的好处在种族之间并不公平。只有2%的遗传咨询师自我认同为黑人/非洲裔美国人,所以与黑人患者的大多数遗传咨询都是种族不和谐的。种族不和谐的医疗互动中的患者往往具有较差的患者-提供者沟通质量,并获得次优的临床建议。造成这些医疗保健差距的一个主要因素是种族偏见。借鉴先前研究的发现,我们假设遗传咨询师提供者的内隐种族偏见将与患者-提供者沟通的质量负相关,而提供者明确的负面种族刻板印象将与癌症风险的临床讨论和黑人基因检测的全面性呈负相关(与白色)患者。
    方法:使用融合的混合方法研究设计,我们将从至少15家遗传咨询机构收集数据,来自两个不同的机构,和他们的220名患者(每个提供者的黑人和白人患者数量大约相等),他们的预约是遗传性癌症疾病。数据来源将包括两个供应商调查,两项病人调查,遗传咨询遭遇的视频和/或录音,和医学图表评论。将对记录的癌症遗传咨询进行定性和定量的分析,以评估患者与提供者的沟通质量和临床讨论的全面性。这些数据将与相遇前和相遇后的调查数据以及来自医学图表评论的数据相关联,以测试我们的假设。
    结论:这项多站点研究的结果将突出与以患者为中心的结果直接相关的癌症遗传咨询的特定方面(例如,满意,信任,基因检测完成)。患者与提供者的沟通和临床建议是可修改的因素,可以整合到当前的遗传咨询培训课程中,因此可以对遗传咨询培训和实践产生直接影响。
    BACKGROUND: Despite decades of effort to reduce racial cancer disparities, Black people continue to die at higher rates from cancer than any other U.S. racial group. Because prevention is a key to the cost-effective and long-term control of cancer, the potential for cancer genetic counseling to play a central role in reducing racial cancer disparities is high. However, the benefits of genetic counseling are not equitable across race. Only 2% of genetic counselors self-identify as Black/African American, so most genetic counseling encounters with Black patients are racially discordant. Patients in racially discordant medical interactions tend to have poorer quality patient-provider communication and receive suboptimal clinical recommendations. One major factor that contributes to these healthcare disparities is racial bias. Drawing on findings from prior research, we hypothesize that genetic counselor providers\' implicit racial prejudice will be associated negatively with the quality of patient-provider communication, while providers\' explicit negative racial stereotypes will be associated negatively with the comprehensiveness of clinical discussions of cancer risk and genetic testing for Black (vs. White) patients.
    METHODS: Using a convergent mixed methods research design, we will collect data from at least 15 genetic counseling providers, from two different institutions, and their 220 patients (approximately equal number of Black and White patients per provider) whose appointments are for a hereditary cancer condition. The data sources will include two provider surveys, two patient surveys, video- and/or audio-recordings of genetic counseling encounters, and medical chart reviews. The recorded cancer genetic counseling in-person and telehealth encounters will be analyzed both qualitatively and quantitatively to assess the quality of patient-provider communication and the comprehensiveness of clinical discussion. Those data will be linked to pre- and post-encounter survey data and data from medical chart reviews to test our hypotheses.
    CONCLUSIONS: Findings from this multi-site study will highlight specific aspects of cancer genetic counseling encounters (patient-provider communication and clinical recommendations) that are directly associated with patient-centered outcomes (e.g., satisfaction, trust, genetic testing completion). Patient-provider communication and clinical recommendations are modifiable factors that can be integrated into current genetic counseling training curricula and thus can have immediate impact on genetic counseling training and practice.
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  • 文章类型: Journal Article
    目的:为了测试患者中心之间的联系,独立使用与健康相关的互联网,并在以后的生活中与医疗保健提供者进行在线交流。
    方法:通过社会情绪选择性理论和渠道互补性理论的棱镜在多变量水平上测试了这些联系。数据来自健康信息国家趋势调查(第5波,第4周期),并使用逻辑回归模型进行分析。样本包括较老的互联网用户(N=1165)。
    结果:患者中心率低对应于与医疗服务提供者在线交流的可能性降低。没有特定的患者中心成分与所研究的现象有关。在线健康信息寻求对应于与医疗保健提供者在线通信的可能性增加。
    结论:患者中心在解释以后生活中与医疗保健提供者的在线交流方面起着相对适度的作用。此外,老年人的在线健康信息寻求行为和在线患者-提供者沟通似乎是相辅相成的。
    结论:这些发现可以为公共卫生官员制定旨在提高老年人与医疗保健提供者在线交流率的计划提供服务。这些发现还可以为医疗保健提供者提供服务,以提高与老年患者的(在线)交流质量。
    To test the links between patient centeredness, independent health-related Internet use, and online communication with healthcare provider in later life.
    These links were tested on a multivariable level through the prism of the socioemotional selectivity theory and the channel complementarity theory. The data were obtained from the Health Information National Trends Survey (Wave 5, Cycle 4) and analyzed using logistic regression models. The sample included older Internet users (N = 1165).
    Low patient centeredness corresponded to a decreased likelihood of communicating with healthcare providers online. No particular patient centeredness component was associated with the studied phenomenon. Online health information seeking corresponded to an increased likelihood of communicating with healthcare providers online.
    Patient centeredness plays a relatively modest role in explanation of the online communication with healthcare providers in later life. In addition, older adults\' online health information seeking behavior and online patient-provider communication seem to complement each other.
    The findings can serve public health officials for developing programs aimed at increasing the rates of the online communication with healthcare providers in older population. The findings can also serve healthcare providers in their efforts to improve the quality of (online) communication with their older patients.
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  • 文章类型: Journal Article
    在美国,黑人母亲的产妇发病率和死亡率明显不成比例,种族主义经常被认为是通过几种途径表现出来的根本原因。这项研究检查了黑人母亲感知的提供者沟通,支持需求,以及新生儿重症监护病房(NICU)的总体经验。
    这项研究使用了嵌入在布莱克女性主义理论(BFT)框架中的扎根理论,以产生以数据为基础的新思想。数据是通过使用视频会议的半结构化访谈收集的,与母亲的整体NICU经历相关的问题,NICU内的沟通,和感知的支持需求。采用专题分析法对数据进行分析。
    12位母亲参加了这项研究;大多数已婚(n=10),剖腹产,先前有妊娠并发症(例如,糖尿病,高血压),已获得研究生学位或以上(n=9),家庭年收入在75,000美元或以上,年龄在35-44岁之间(n=7)。确定了具有几个伴随主题和子主题的三个广泛领域,说明母亲在NICU的经历。具体来说,影响母亲NICU住院的因素包括产妇护理/护理经验,NICU中的互动,以及感知到的支持需求,可能会削弱负面的护理和分娩经历。.
    这项研究增加了越来越多的文献,支持黑人孕产妇健康公平和多层次质量改进战略,以促进公平的孕产妇健康。我们的研究加强了种族一致的干预措施和政策改革的必要性,以保护黑人出生的人,无论社会经济因素和社会阶层如何使用生命历程,整体方法,和交叉性思维。重要的是,使用BFT,这项研究要求对文化敏感的研究,以捕捉与黑人经历多样性相关的细微差别。
    UNASSIGNED: Black mothers experience markedly disproportionate maternal morbidity and mortality in the United States, with racism often cited as the root cause manifesting through several pathways. The study examined Black mothers\' perceived provider communication, support needs, and overall experiences in the neonatal intensive care unit (NICU).
    UNASSIGNED: This study used grounded theory embedded in the Black feminist theoretical (BFT) framework to generate new ideas grounded in the data. Data was collected through semi-structured interviews using videoconferencing, with questions related to the mother\'s overall NICU experiences, communication within the NICU, and perceived support needs. Data were analyzed using thematic analysis.
    UNASSIGNED: Twelve mothers participated in the study; most were married (n = 10), had a cesarean birth, had a previous pregnancy complication (e.g., diabetes, hypertension), had attained a graduate degree or more (n = 9), earned an annual household income of $75,000 or more, and were between 35-44 years of age (n = 7). Three broad domains with several accompanying themes and sub-themes were identified, explicating the mother\'s experiences in the NICU. Specifically, factors influencing NICU hospitalization for mothers included maternal care/nursing experiences, interactions in the NICU, and the perceived support need that might attenuate negative care and birthing experiences. .
    UNASSIGNED: The study adds to the growing literature championing Black maternal health equity and multilevel quality improvement strategies to foster equitable maternal health. Our study reinforces the need for racially congruent interventions and policy reformations to protect Black birthing people regardless of socioeconomic factors and social class using life course, holistic approaches, and intersectionality mindset. Importantly, using the BFT, this study calls for culturally sensitive research to capture the nuances associated with the multiplicity of experiences of Black people.
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