背景：COVID-19的传播影响了中风的康复。鉴于大多数机构的住院就诊受到限制，向家庭成员提供信息的替代方法势在必行。通过网络向家属通报患者的康复进展可能有助于让家属参与康复过程，增强患者继续康复的动力，并总体上有助于患者日常生活活动（ADL）的改善。
目的：我们旨在探讨在康复医院对脑卒中患者家属进行基于互联网的康复信息共享（IRIS）干预的可行性，并研究IRIS对患者ADL改善的影响。
方法：在本病例对照研究中，参与者为2020年3月至2021年4月在康复医院住院的患者.干预组（信息和通信技术组）包括要求IRIS的患者和家属，其中包括使用文本的患者康复进度报告，照片,和视频。那些没有收到基于互联网的信息的人被纳入非ICT组。对照组,与基于1：1倾向得分的ICT组相匹配，是从非ICT组中选择的。计算倾向评分的协变量是患者年龄，性别,入院时功能独立性测量的运动和认知评分。主要转归为住院期间ADL改善程度。进行多元回归分析（强制输入法）以确认ICT使用对ADL改善的影响。独立变量是干预的存在，住院时间,以及从发病到住院的天数。
结果：总计，16组患者及家属参加IRIS。ICT组和对照组患者的平均年龄分别为78.6（SD7.2）和78.6（SD8.2）岁，分别。ICT组和对照组的功能独立性测量差异中位数为28.5（IQR20.3-53.0）和11.0（IQR2.8-30.0），分别,ICT组的ADL功能显着改善（P=0.02）。在ICT和对照组的多元回归分析中，ICT应用的非标准化回归系数为11.97(95%CI0.09~23.84).这些结果表明，ICT的使用与ADL的改善是独立且显着相关的。
结论：本研究检查了IRIS对家庭成员改善住院卒中患者ADL的影响。结果表明，无论年龄大小，IRIS都能促进患者ADL的改善，性别,入院时的运动和认知功能，以及住院时间的长短。
BACKGROUND: The spread of COVID-19 has affected stroke rehabilitation. Given that inpatient visits are restricted in most institutions, alternative ways of providing information to family members are imperative. Informing families about patients\' rehabilitation progress via the web may help involve families in the rehabilitation process, enhance patients\' motivation to continue rehabilitation, and contribute overall to patients\' improvement in activities of daily living (ADL).
OBJECTIVE: We aimed to investigate the feasibility of the Internet-Based Rehabilitation Information Sharing (IRIS) intervention for families of patients with stroke at a rehabilitation hospital and examine the effect of IRIS on patients\' ADL improvement.
METHODS: In this
case-control study, participants were inpatients at a rehabilitation hospital between March 2020 and April 2021. The intervention group (information and communication technology [ICT] group) included patients and families who requested IRIS, which consisted of a progress report on patients\' rehabilitation using text, photos, and videos. Those who did not receive internet-based information were included in the non-ICT group. The control group, matched with the ICT group based on a 1:1 propensity score, was selected from the non-ICT group. The covariates for calculating the propensity score were patients\' age, sex, and motor and cognitive scores on the Functional Independence Measure at admission. The main outcome was the degree of ADL improvement during hospitalization. Multiple regression analysis (forced entry method) was performed to confirm the impact of ICT use on ADL improvement. The independent variables were the presence of intervention, length of hospital stay, and number of days from onset to hospitalization.
RESULTS: In total, 16 groups of patients and families participated in the IRIS. The mean age of patients was 78.6 (SD 7.2) and 78.6 (SD 8.2) years in the ICT and control groups, respectively. The median total Functional Independence Measure difference was 28.5 (IQR 20.3-53.0) and 11.0 (IQR 2.8-30.0) in the ICT and control groups, respectively, and the ICT group showed significant improvement in ADL function (P=.02). In the multiple regression analysis of the ICT and control groups, the unstandardized regression coefficient was 11.97 (95% CI 0.09-23.84) for ICT use. These results indicate that ICT use was independently and significantly associated with improvement in ADL.
CONCLUSIONS: This study examined the effect of IRIS on family members to improve ADL in patients with stroke who are hospitalized. The results showed that IRIS promotes the improvement of patients\' ADL regardless of age, sex, motor and cognitive functions at admission, and the length of hospital stay.
