Family carers

家庭照顾者
  • 文章类型: Journal Article
    这项研究旨在了解角色多样化的在线社区对非正式护理人员的影响,特别是在提供支持方面。探索了用于支持参与国家残疾人保险计划(NDIS)的澳大利亚Facebook社区。对以NDIS为中心的社区进行了社会网络分析,基于2019年5月至6月和8月至9月发生的909个公开可见的互动。非正式NDIS社区的两名经理接受了采访,使用NVivo分析其转录本。两项分析的结果表明,个人护理者的属性和网络的集体属性都定义了网络支持护理者的能力,通常取决于提供支持的人的经验和专业知识。支持不受角色约束,尽管不同的目标和期望往往会阻碍角色之间的合作。事实证明,提供支持的结果不仅影响个人,而且影响集体网络。然而,虽然有效,社区空间目前缺乏组织支持,非正式社区可用的资源受到限制。从这项研究中得出的结果,我们认为这适用于更广泛的,国际背景,是三倍。首先,建议非正式支助社区明确界定目的,并建立多个渠道,以确保所有参与者都能满足他们的需求。其次,应进一步探讨参与对组织的好处。最后,在这项研究中,使用社会网络分析作为一种方法,为研究中社区的沟通模式和活动提供了重要的见解。未来在类似研究中使用SNA可能会进一步了解基于社区的支持方法的有效性和相互作用。
    This study aims to understand the effects that role-diverse online communities have on informal carers, particularly in providing support. Australian Facebook communities used to support those involved in the National Disability Insurance Scheme (NDIS) were explored. Social network analysis of an NDIS-centred community was conducted, based on 909 publicly visible interactions that occurred in May-June and August-September 2019. Two managers of informal NDIS communities were interviewed, the transcripts of which were analysed using NVivo. Results from the two analyses suggest that both an individual carer\'s attributes and the collective attributes of the network defined the capability of the network to support the carer, often depending on the experiences and expertise of those offering support. Support was unconstrained by role, though differing goals and expectations often impeded collaboration between roles. The outcomes of support provision were shown to affect not only individuals but also the collective network. However, while effective, community spaces currently lack organisational backing and resources available to informal communities are constrained. Findings drawn from this study, which we believe are applicable to a broader, international context, are three-fold. Firstly, it is recommended that informal support communities clearly define purpose and create multiple channels to ensure that all participants can meet their needs. Secondly, the benefits of participation to organisations should be further explored. Finally, the use of social network analysis as a method in this study has provided significant insights into the communication patterns and activities of the community under study. Future use of SNA in similar studies may provide further insight into the effectiveness and interactions of community-based support methods.
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  • 文章类型: Journal Article
    痴呆症患者的照顾者可能会经历健康和幸福感下降,但很少有人知道如何最好地支持他们。有一些证据表明,病例管理可能会改善护理人员的预后,但有关病例管理服务可以有效支持痴呆症患者护理人员的特征的证据较少。海军上将护理采用由专科护士组成的病例管理方法,是英国唯一致力于帮助痴呆症患者及其护理人员的同类服务。本文报告了海军上将护理混合方法研究的定性结果。对于项目的定性链,我们在焦点小组和对痴呆症患者照顾者的深度访谈中收集了数据(n=35),并使用框架方法进行了主题分析.这项分析的目的是了解我们样本中有和没有海军上将护理的护理人员的经验之间的差异,应用弗里曼的护理连续性模型(弗里曼等人。,持续的护理,2000).接受过海军上将护理的参与者是从两个地理位置招募的,没有这项服务经验的护理人员是从两个不同的地区招募的。我们发现,样本中的护理人员在接受海军上将护士或其他具有痴呆症专业知识的专业人士的持续服务的情况下感到“支持”,他们能够随着时间的推移与他们建立有意义的关系。我们的结论是,持续的支持,痴呆症的专业知识和有意义的关系是关系连续性的关键特征,在照顾者的感觉支持报告中很常见。专科护士很适合提供这种连续性。
    Carers of people with dementia can experience reduced health and well-being, but little is known about how best to support them. There is some evidence to suggest that case management may improve outcomes for carers but less evidence about the features of case management services that can effectively support carers of people with dementia. Admiral Nursing operates a case management approach staffed by specialist nurses and is the only service of its kind in the United Kingdom dedicated to helping people with dementia and their carers. This paper reports qualitative findings from a mixed methods study of Admiral Nursing. For the qualitative strand of the project, data were collected in focus groups and in-depth interviews with carers of people with dementia (n = 35) and analysed thematically using the framework approach. The aim of this analysis was to understand differences between the experiences of the carers in our sample with and without Admiral Nursing, applying Freeman\'s model of continuity of care (Freeman et al., Continuity of care, 2000). Participants who had received Admiral Nursing were recruited from two geographical locations and carers without experience of this service were recruited from two different areas. We found that carers in our sample felt \'supported\' in circumstances where they received an ongoing service from an Admiral Nurse or other professional with expertise in dementia who was able to develop a meaningful relationship with them over time. We conclude that ongoing support, expertise in dementia and a meaningful relationship are key features of relationship continuity common in carers\' reports of feeling supported. Specialist nurses are well placed to provide this continuity.
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  • 文章类型: Case Reports
    Many people with dementia are cared for by family members. Family carers often feel bound to support the person with dementia at the expense of their own needs, which can be neglected. They often experience distress when making decisions, especially over ethical dilemmas when their own interests and those of the person being cared for conflict. This paper presents a case study approach to consider best interests decision making for families affected by dementia. In the case study, a carer is supporting his father to remain living at home although he feels this unsafe and the demands of this cause tension with his family and affect his performance at work.
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