Eugenics

优生学
  • 文章类型: Journal Article
    自闭症自我倡导者关于自闭症基因测试的观点很重要,但是关于他们观点的关键问题出现了。
    我们采访了11位自闭症自我倡导者,通过自闭症自我宣传网站招募,每次1小时。
    受访者通过自己的个体感知挑战来看待基因检测及其潜在的利弊,需要和斗争,特别是关于污名和歧视,社会对自闭症缺乏适应和误解,他们对服务的特殊需求,被别人和自己指责为自闭症特征。他们对基因检测的看法往往不是二元的,而是取决于如何使用基因测试结果。受访者认为基因检测的优点在一般情况下和对他们自己(例如,通过提供自闭症的“科学证据”作为诊断,并可能增加服务的可用性)。但他们也意识到测试的缺点和局限性(例如,可能的优生应用)。参与者区分了他们认为对自己和整个自闭症社区最好的东西。当被问及他们是否会接受测试时,如果提供,受访者增加了几个考虑因素(例如,正在进行测试,因为它们总体上支持科学)。受访者对基因诊断是否会或应该减少自责进行了分歧,一些人对测试保持警惕,除非治疗,预防或社会态度发生了变化。权衡这些竞争的利弊可能很困难。
    这项研究,第一个使用深入的定性访谈来评估自闭症自我倡导者关于基因检测的观点,突出了关键的复杂性。受访者认为,这种测试本身并不完全是好的或坏的,而是可以接受的,取决于它是如何使用的,并且应该以有益的方式使用,不是有害的方式。这些发现对实践具有重要意义,多元利益相关者的教育,研究,和政策。
    UNASSIGNED: Autism self-advocates\' views regarding genetic tests for autism are important, but critical questions about their perspectives arise.
    UNASSIGNED: We interviewed 11 autism self-advocates, recruited through autism self-advocacy websites, for 1 h each.
    UNASSIGNED: Interviewees viewed genetic testing and its potential pros and cons through the lens of their own indiviudal perceived challenges, needs and struggles, especially concerning stigma and discrimination, lack of accommodations and misunderstandings from society about autism, their particular needs for services, and being blamed by others and by themselves for autistic traits. Their views of genetic testing tended not to be binary, but rather depended on how the genetic test results would be used. Interviewees perceived pros of genetic testing both in general and with regard to themselves (e.g., by providing \"scientific proof\" of autism as a diagnosis and possibly increasing availability of services). But they also perceived disadvantages and limitations of testing (e.g., possible eugenic applications). Participants distinguished between what they felt would be best for themselves and for the autistic community as a whole. When asked if they would undergo testing for themselves, if offered, interviewees added several considerations (e.g., undergoing testing because they support science in general). Interviewees were divided whether a genetic diagnosis would or should reduce self-blame, and several were wary of testing unless treatment, prevention or societal attitudes changed. Weighing these competing pros and cons could be difficult.
    UNASSIGNED: This study, the first to use in-depth qualitative interviews to assess views of autism self-advocates regarding genetic testing, highlights key complexities. Respondents felt that such testing is neither wholly good or bad in itself, but rather may be acceptable depending on how it is used, and should be employed in beneficial, not harmful ways. These findings have important implications for practice, education of multiple stakeholders, research, and policy.
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  • 文章类型: Journal Article
    Though only one component product of the larger eugenics movement, the eugenic family study proved to be, by far, its most potent ideological tool. The Kallikak Family, for instance, went through eight editions between 1913 and 1931. This essay argues that the current scholarship has missed important ways that the architects of the eugenic family studies theorized and described the subjects of their investigation. Using one sparsely interrogated work (sociologist Frank Wilson Blackmar\'s \"The Smoky Pilgrims\") and one previously unknown eugenic family study (biologist Frank Gary Brooks\' untitled analysis of the flood-zone Oklahomans) from the Southern Plains, this essay aims to introduce \"environment\" as a schema that allows for how the subjects of the eugenic family study were conceptualized with respect to their surroundings. Geospatially and environmentally relevant constructions of scientific knowledge were central to the project of eugenics during its formative years, but remain largely and conspicuously absent from the critical literature which engages this project to separate the fit from the unfit in American society. The dysgenic constituted a unique human geography, giving us significant insight into how concatenations of jurisprudence as well as cultural and social worth were tied to the land.
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  • 文章类型: Journal Article
    This article presents a part of the results of an empirical study conducted at a Parisian hospital between 2011 and 2014. It aimed at understanding the women and couples\' motivations to terminate or not a pregnancy once a prenatal diagnosis has revealed a genetically related disease in the embryo or fetus. The article first presents the social and legal context of the study, the methodology used and the pathologies that were encountered. Then, it examines the results of the interviews conducted with 5 women alone and 23 couples explaining their reasons for deciding to terminate or not the pregnancy. Finally, it explores the patients\' views about the doctor\'s involvement in the decision-making process. The findings reveal the reasons they formulate when they ponder whether to terminate or not the pregnancy. It highlights the process of their deliberation, their hierarchisation of arguments and concerns. They also show how patients, though often consumed in sorrow, claim to be the legitimate decision-makers, especially women, in a social and legal context in which the rejection of eugenics is viewed as an undisputable principle.
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  • 文章类型: Journal Article
    在20世纪初,精神疾病的治疗选择很少,庇护人数也在增加。这种悲观的前景有利于优生学运动的兴起。遗传被认为是精神疾病的主要原因。政客们,北美和欧洲的科学家和临床医生呼吁对精神病患者进行强制绝育。精神病学遗传研究旨在证明孟德尔遗传方式是这些措施的科学依据。ErnstRüdin在1916年开创性的流行病学研究中对痴呆症的遗传进行了大量研究,系统地确定样本和统计分析。Rüdin的1922-1925年关于“躁狂抑郁精神错乱”遗传的研究以手稿形式完成,但从未发表过。它未能证明孟德尔遗传的模式,与吕丹是优生学的主要支持者的原则背道而驰。看来他拒绝发表这项研究,无法调和这种矛盾,因此,他精心得出的科学发现服从于他的意识形态关注。相反,吕丁继续通过禁止婚姻或绝育来促进对假定的遗传性精神疾病的预防,并在1933年国家社会主义政权的“防止遗传性疾病后代法”(GesetzzurVerhütungerbkrankenNachwuchses)中产生了影响。
    In the early 20th century, there were few therapeutic options for mental illness and asylum numbers were rising. This pessimistic outlook favoured the rise of the eugenics movement. Heredity was assumed to be the principal cause of mental illness. Politicians, scientists and clinicians in North America and Europe called for compulsory sterilisation of the mentally ill. Psychiatric genetic research aimed to prove a Mendelian mode of inheritance as a scientific justification for these measures. Ernst Rüdin\'s seminal 1916 epidemiological study on inheritance of dementia praecox featured large, systematically ascertained samples and statistical analyses. Rüdin\'s 1922-1925 study on the inheritance of \"manic-depressive insanity\" was completed in manuscript form, but never published. It failed to prove a pattern of Mendelian inheritance, counter to the tenets of eugenics of which Rüdin was a prominent proponent. It appears he withheld the study from publication, unable to reconcile this contradiction, thus subordinating his carefully derived scientific findings to his ideological preoccupations. Instead, Rüdin continued to promote prevention of assumed hereditary mental illnesses by prohibition of marriage or sterilisation and was influential in the introduction by the National Socialist regime of the 1933 \"Law for the Prevention of Hereditarily Diseased Offspring\" (Gesetz zur Verhütung erbkranken Nachwuchses).
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  • 文章类型: Historical Article
    The eugenics movement attracted a wide range of supporters. This article explores this theme with relation to literature about the charitable work of the Salvation Army in Britain and Canada c.1890-1921, with a focus upon the emigration scheme outlined in William Booth\'s book In Darkest England and the Way Out. These writings indicate the widespread dispersal of eugenic ideology, and demonstrate the flexibility with which these theories were interpreted in this period. It will be shown that the Salvation Army adopted elements of both hereditarian and environmentalist views regarding racial health. These arguments were unified by the claim that the work of the organization made a worthy contribution to public health, both in the present and in the future. This case study sheds new light upon the history of a prominent evangelical Christian organization and upon the development of the international eugenics movement.
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  • 文章类型: Biography
    OBJECTIVE: After the Nazi occupation, there was a determination to deal with collaborators, coming to the fore with the trial of the traitor Vidkun Quisling. This became as much a contest between psychiatrists as a legal tussle. Norwegian psychiatrists supported the public opinion that collaborationists were mentally ill or intellectually handicapped, and this was evident in the reports they prepared.
    CONCLUSIONS: Norwegian psychiatry, their distinguished stand during the war notwithstanding, was caught up in the emotion and controversy of the Quisling trial and the treatment of collaborators. Later, there was tacit agreement that their stand had been less than objective, sharing the public repulsion towards collaborators and influenced by still-prevailing eugenic views.
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  • 文章类型: Journal Article
    This study, performed in Madrid, Spain, evaluates nursing students\' understanding and attitudes about bioethical dilemmas that they will likely confront as health care providers. We asked 86 juniors in the King Juan Carlos University Nursing baccalaureate program about their knowledge of and personal attitudes on five biomedical advances: eugenics, experimentation with unimplanted embryos, human cloning, abortion, and euthanasia. Students reported being most knowledgeable about abortion and euthanasia and least familiar with eugenics. Examining the data for a correlation between the two phenomenon (knowledge and position) with respect to each of these five biomedical issues, the students reported significantly Conversely, they held significantly neutral positions on eugenics, a virtually unfamiliar topic for them (r = 0.618, p < 0.0001). The data also revealed a significantly direct correlation between knowledge and position for experimentation with non-implanted embryos (correlation coefficient = 0.380, p < 0.0001), that is, little knowledge and neutral attitudes. The trend findings for abortion and cloning were not significant. Based on these data, we concluded that the nursing program would benefit from additional biomedical curriculum.
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  • 文章类型: Comparative Study
    Despite the fact that much has been written in recent years about the science of heredity under the Third Reich, there is as yet no satisfying analysis of two central questions: What, if anything, was peculiarly \"Nazi\" about human genetics under National Socialism? How, under whatever set of causes, did at least some of Germany\'s most well-known and leading biomedical practioners become engaged in entgrenzte Wissenschaft (science without moral boundaries)? This paper attempts to provide some answers to these two questions comparing three institutes that studied eugenics and human heredity in the 1920s and 1930s: the Eugenics Record Office at Cold Spring Harbor, New York, directed by Charles B. Davenport; the Kaiser Wilhelm Institute for Anthropology, Human Heredity and Eugenics, in Berlin, directed by Eugen Fischer; and the Maxim Gorky Medical Genetics Institute in Moscow, directed by Solomon G. Levit. The institutes are compared on the basis of the kind and quality of their research in eugenics and medical genetics, organizational structure, leadership, patronage (private or state), and the economic-social-political context in which they functioned.
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    文章类型: Biography
    Between 1927 and 1944 the psychiatrist Adele Juda (*1888-+1949) studied the biographies of more than 600 German-speaking \"geniuses\" and their families from a period between 1648 and 1920. The concept of this so-called \"Höchstbegabtenstudie\" (study on high-gifted persons) had been developed by the psychiatrist, human geneticist and racial hygienist Ernst Rüdin, director of the Deutsche Forschungsanstalt für Psychiatrie in Munich from 1917 to 1945. Juda\'s study was aimed at a re-examination of the \"Genie-Irrsins-Hypothese\" (genius-madness-theory) having been much discussed in medicine and anthropology since Cesare Lombroso, as it was hardly consistent with some of Rüdin\'s racial-hygienic concepts. While trying to make a selection of probands as objective as possible and to overcome a so far common purely casuistic approach, Juda\'s study also gave cause for criticism, for example as to the subjectivity of psychopathological assessment or the political and ideological conditions under which data were gathered. Nevertheless the \"Höchstbegabtenstudie\" has to be seen as the most extensive and as well as the last scientific piece of research concerning the \"Genialenproblem\" having been done in the 20th century, with the material gathered being an important cultural-historical source independent of its originally intended use. As one of the most important results Juda was able to prove a significant relation between mental illness and gift. For different reasons this result was not published until after Juda\'s death by Bruno Schulz, one of her former colleagues at the genealogical-demographic department, in 1953 and 1955. Last not least due to the fact that they came from Rüdin\'s former institute these publications were not taken much notice of.
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  • 文章类型: Historical Article
    This article reviews newly declassified US intelligence files and other sources, including relevant trial documents, related to the Nazi killing of mentally and physically sick individuals deemed to be of little further use to society. It both supplements and revises existing work on the so-called \'Euthanasia\' programme at the Kaufbeuren psychiatric institution in Bavaria, and highlights a series of gender issues related to the involvement of women nurses including Catholic nuns, in this institute. In addition, this study not only casts new light on the way in which patients were, from admission onwards, redefined as disposable objects but also emphasises contradictions within the defence case of the defendants.
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