Activities of daily living

日常生活活动
  • 文章类型: Journal Article
    目的:癌症幸存者经常经历行动不便,对他们参与日常活动的能力产生负面影响。在癌症护理的连续性中与患者一起工作的医疗保健提供者在识别和解决行动不便方面发挥着至关重要的作用。本文的目的是介绍在管理癌症和癌症治疗相关的行动不便方面有价值的常见辅助设备。
    方法:同行评审的科学出版物和专家意见。
    结果:本文重点介绍了在各种癌症护理环境中常用的辅助设备,并描述了它们如何解决癌症幸存者面临的不同损伤。在培训临床工作人员时,所提供的信息可能会作为一种资源(例如,肿瘤学护理人员)在所有设置中提供设备。这些信息也有助于患者和护理人员了解与癌症和治疗相关的潜在功能障碍,以及有助于提高患者功能能力和减轻护理人员负担的辅助设备。
    结论:必须让不同的团队成员参与进来,以确定和选择最适合患者功能需求和身体能力的辅助设备,并对他们进行设备使用培训,以便他们能够安全地执行日常工作。
    结论:肿瘤科护士是最早发现癌症患者活动障碍的提供者之一。这篇文章将有助于增加他们对常见辅助设备的知识,这些辅助设备对于解决与癌症和治疗相关的各种行动不便有价值。通过额外的器械配置培训,肿瘤科护士将更有能力与康复合作,以识别潜在的行动不便,启动设备配置,并鼓励他们的病人使用治疗服务。最终,这可以减少与活动障碍有关的伤害,并改善患者的功能独立性和整体生活质量。
    OBJECTIVE: Cancer survivors often experience mobility impairments that negatively impact their ability to engage in everyday activities. Healthcare providers working with patients in the continuum of cancer care play essential roles in identifying and addressing mobility impairments. The objective of this article is to present common assistive devices valuable in managing cancer and cancer treatment-related mobility impairments.
    METHODS: Peer-reviewed scientific publications and expert opinions.
    RESULTS: This article highlights assistive devices commonly used in various settings of cancer care and describes how they address different impairments faced by cancer survivors. The information presented can potentially serve as a resource when training clinical staff (eg, oncology nursing staff) on device provision across all settings. The information can also be useful for patients and caregivers to learn about potential functional impairments linked to cancer and treatments and assistive devices that can be useful to improve patients\' functional capacity and reduce caregiver burden.
    CONCLUSIONS: It is essential to involve different team members to identify and select the most appropriate assistive devices that match the patient\'s functional needs and physical capacity and to train them in device use so they can safely carry out their daily routine.
    CONCLUSIONS: Oncology nurses are one of the first providers to identify mobility impairments in cancer patients. This article will help increase their knowledge in common assistive devices valuable for addressing various mobility impairments associated with cancer and treatments. With additional training on device provision, oncology nurses will be more empowered to collaborate with rehabilitation to identify potential mobility impairments, initiate device provision, and encourage their patients to work with therapy services. Ultimately this could reduce injuries linked to mobility impairments and improve the patient\'s functional independence and overall quality of life.
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  • 文章类型: Journal Article
    背景:四肢瘫痪是脊髓损伤(SCI)的衰弱后遗症。然而,确定各种因素对四肢瘫痪患者日常生活活动(ADL)影响的综合方法有限。因此,这项研究的目的是确定身体因素对四肢瘫痪患者ADL的影响,SCI相关,和认知因素。
    方法:这项回顾性横断面研究纳入了201名四肢瘫痪患者,他们在2019年至2021年期间在韩国国家康复中心接受了住院康复治疗。患者的平均年龄为50.5岁(标准差,16.3),男性有170人(84.6%)。使用韩国脊髓独立性措施III(K-SCIMIII)作为评估患者ADL能力的主要结果指标。以K-SCIM为因变量进行分层多元回归建模,考察功能水平及相关影响因素。
    结果:上肢运动评分(UEMS),上肢痉挛和坐姿平衡评分是自我护理的显著预测因子;下肢运动评分(LEMS),肩部肌肉骨骼疼痛,和坐姿平衡是呼吸和括约肌管理的重要预测因子;UEMS,LEMS,坐姿平衡分数是行动不便的重要预测因子;UEMS,LEMS,肩部肌肉骨骼疼痛,和坐姿平衡分数是调整人口统计学后K-SCIMIII总分的重要预测因子,SCI相关,和认知因素。
    结论:物理因素对所有子评分和K-SCIMIII总分的影响最大。上肢和下肢肌肉力量和坐姿平衡显着影响所有子得分的功能能力。
    BACKGROUND: Tetraplegia is a debilitating sequela of spinal cord injury (SCI). However, comprehensive approaches for determining the influence of various factors on activities of daily living (ADL) in patients with tetraplegia are limited. Therefore, this study aimed to determine the influence of physical factors on ADL in patients with tetraplegia after adjusting for demographic, SCI-related, and cognitive factors.
    METHODS: This retrospective cross-sectional study enrolled 201 patients with tetraplegia who underwent inpatient rehabilitation at the National Rehabilitation Center in South Korea between 2019 and 2021. Patients\' mean age was 50.5 years (standard deviation, 16.3), and 170 (84.6%) were men. The Korean Spinal Cord Independence Measure III (K-SCIM III) was used as the main outcome measure to assess patients\' ADL ability. Hierarchical multiple regression modeling was conducted with K-SCIM as the dependent variable to examine the level of functioning and relative influencing factors.
    RESULTS: Upper-extremity motor score (UEMS), upper-extremity spasticity and sitting balance scores were significant predictors of self-care; lower-extremity motor score (LEMS), musculoskeletal pain of shoulder, and sitting balance were significant predictors of respiratory and sphincter management; UEMS, LEMS, and sitting balance score were significant predictors of mobility; and UEMS, LEMS, musculoskeletal pain of shoulder, and sitting balance scores were significant predictors of the K-SCIM III total score after adjustment for demographic, SCI-related, and cognitive factors.
    CONCLUSIONS: Physical factors had the greatest impact on all subscores and the K-SCIM III total score. Upper- and lower-extremity muscle strength and sitting balance significantly affected functional ability across all subscores.
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  • 文章类型: Journal Article
    目的:虚弱是一种普遍的老年病,对老年人的健康有显著影响。本研究旨在调查65岁以上中国老年人的身体虚弱患病率,并评估其与老年不良结局的相关性。
    方法:本研究纳入江苏省20,724名年龄≥65岁的老年人,中国,利用随机的,分层,多级整群抽样方法。使用5项FRAIL量表评估虚弱。老年病结果,如日常生活活动的独立性(ADL),认知障碍,和频繁的跌倒事件(前一年发生四次或更多次),进行了评估。采用Logistic回归模型评估虚弱与老年结局之间的关联,结果以比值比(OR)和95%置信区间(CI)表示。
    结果:参与者的平均年龄为73.4±6.4岁。脆弱和脆弱的标准化患病率分别为35.2%和10.3%,分别。被认定为脆弱或脆弱的人往往生活在农村地区,教育水平较低,丧偶,收入较低,从事较少的体力活动。优先和虚弱与BADL(OR:9.62,95%CI:7.43-12.46;OR:29.25,95%CI:22.42-38.17)和IADL(OR:2.54,95%CI2.35-2.74;和OR:5.19,95%CI4.66-5.78)的局限性风险增加有关,认知障碍筛查阳性(OR:1.23,95%CI:1.16-1.31;和OR:1.72,95%CI:1.56-1.91),和频繁跌倒(上一年发生四次或更多次)(OR:3.38,95%CI:2.50-4.56;OR:8.37,95%CI:6.01-11.65)。在年轻年龄组中,虚弱与BADL和跌倒的局限性之间的关联更为明显(相互作用p<0.001)。
    结论:根据5项FRAIL量表,虚弱与BADLs和IADLs的局限性有关,认知障碍筛查阳性,以及最近居住在社区中的老年人的跌倒。筛查年轻年龄组的虚弱有可能防止身体功能下降和跌倒。
    OBJECTIVE: Frailty is a prevalent geriatric condition that significantly impacts the health of older adults. This study aimed to examine the prevalence of frailty among older Chinese adults aged ≥ 65 years and to assess its association with adverse geriatric outcomes.
    METHODS: This study included 20,724 older adults aged ≥ 65 years in Jiangsu Province, China, utilizing a random, stratified, multistage cluster sampling approach. Frailty was assessed using the 5-item FRAIL scale. Geriatric outcomes, such as independence in activities of daily living (ADL), cognitive impairment, and frequent fall events (occurring four or more times in the preceding year), were evaluated. Logistic regression models were employed to evaluate the association between frailty and geriatric outcomes, with results presented as odds ratios (ORs) and 95% confidence intervals (CIs).
    RESULTS: The mean age of the participants was 73.4 ± 6.4 years. The standardized prevalence of prefrailty and frailty was 35.2% and 10.3%, respectively. Individuals identified as prefrail or frail tended to live in rural areas, have lower educational levels, be widowed, have lower incomes, and engage in less physical activity. Prefrailty and frailty were associated with an increased risk of limitations in BADL (OR: 9.62, 95% CI: 7.43-12.46; and OR: 29.25, 95% CI: 22.42-38.17, respectively) and IADL (OR: 2.54, 95% CI 2.35-2.74; and OR: 5.19, 95% CI 4.66-5.78, respectively), positive cognitive impairment screening (OR: 1.23, 95% CI: 1.16-1.31; and OR: 1.72, 95% CI: 1.56-1.91, respectively), and frequent falls (occurring four or more times in the preceding year) (OR: 3.38, 95% CI: 2.50-4.56; and OR: 8.37, 95% CI: 6.01-11.65). The association between frailty and both limitations in BADL and falls was notably more pronounced among the younger age groups (p for interaction < 0.001).
    CONCLUSIONS: According to the 5-item FRAIL scale, frailty was associated with limitations in BADLs and IADLs, positive cognitive impairment screening, and recent falls among older adults living in the community. Screening for frailty in younger age groups has the potential to prevent declines in physical function and falls.
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  • 文章类型: Journal Article
    根据疼痛经历比较老年人的心理社会结果。
    使用来自国家健康和老龄化趋势研究的2021年横截面数据,我们检查了老年人(N=3,376)的社会心理特征,分为三组:无疼痛,没有活动限制的疼痛,和活动限制性疼痛。
    在多元回归模型中,与那些没有疼痛的人相比,有活动限制性疼痛的老年人的抑郁症明显更高,焦虑,害怕跌倒,以及减少积极影响,自我实现,自我效能感,弹性,和社会参与。患有非活动限制性疼痛的老年人的社会参与度明显高于没有疼痛的老年人,但在自我实现上没有差异,自我效能感,或韧性。
    疼痛与所有心理社会结果密切相关,尤其是在活动受限疼痛的老年人中。未来的研究应该检查自我实现的影响,自我效能感,弹性,和社会参与活动的局限性。[老年护理杂志,50(7)、27-34.].
    UNASSIGNED: To compare psychosocial outcomes of older adults according to pain experience.
    UNASSIGNED: Using cross-sectional 2021 data from the National Health and Aging Trends Study, we examined psychosocial characteristics in older adults (N = 3,376) divided into three groups: no pain, pain without activity limitations, and activity-limiting pain.
    UNASSIGNED: In multiple regression models, older adults with activity-limiting pain compared to those without pain had significantly higher depression, anxiety, and fear of falling, as well as reduced positive affect, self-realization, self-efficacy, resilience, and social participation. Older adults with non-activity-limiting pain had significantly higher social participation than those without pain, but no differences in self-realization, self-efficacy, or resilience.
    UNASSIGNED: Pain is strongly associated with all psychosocial outcomes, especially in older adults with activity-limiting pain. Future research should examine the impact of self-realization, self-efficacy, resilience, and social participation on activity limitations. [Journal of Gerontological Nursing, 50(7), 27-34.].
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  • 文章类型: Journal Article
    哮喘的症状是呼吸困难,慢性咳嗽,喘息,胸闷,或胸部不适,这可以直接限制日常生活活动(ADL),成人经常报告哮喘。用可靠的协议以通常的速度评估ADL是必要的。
    为了调查有效性,可靠性,最小可检测变化(MDC),以及LondrinaADL协议(LAP)对成人哮喘的标准误差(SEM)。
    使用LAP测试评估患有哮喘的成年人。Spearman相关系数用于验证6分钟步行测试(6MWT)的有效性,Glittre-ADL测试,和伦敦日常生活胸部活动(LCADL)。为了测试可靠性,在至少30分钟内重新应用测试;Wilcoxon检验和组内相关系数(ICC),SEM,MDC,并进行了学习效果。
    包括53个人(26%的男性,43±15年,BMI28±8kg/m2,FEV1预测70±24%)。对于收敛有效性,LAP测试与6MWT相关,Glittre-ADL,和LCADL量表(r分别为-0.49、0.71和0.30;p<0.03)。测试-重测有差异(p<0.0001),可靠性分析显示ICC3为0.94,SEM为14.88秒(22%),和MDC为41.23秒(15%)。此外,个体以-23±19(7.9%)秒进行第二次测试。
    LAP测试对于评估成人哮喘患者ADL期间的局限性是有效且可靠的。观察到相当大的学习效果,因此,最好的两个措施可以避免低估。
    UNASSIGNED: Asthma symptoms are dyspnea, chronic cough, wheezing, chest tightness, or chest discomfort, which can directly limit the activities of daily living (ADL), which is frequently reported by adults with asthma. Evaluating ADL with a reliable protocol with usual speed is necessary.
    UNASSIGNED: To investigate the validity, reliability, minimal detectable change (MDC), and standard error of measurement (SEM) of the Londrina ADL Protocol (LAP) for adults with asthma.
    UNASSIGNED: Adults with asthma were evaluated with the LAP test. Spearman\'s correlation coefficient was used to verify validity with the 6-minute walk test (6MWT), Glittre-ADL test, and London Chest Activity of Daily Living (LCADL). To test the reliability, the test was reapplied in at least 30 minutes; the Wilcoxon test and Intraclass Correlation Coefficient (ICC), SEM, MDC, and learning effect were performed.
    UNASSIGNED: Fifty-three individuals were included (26% men, 43 ± 15 years, BMI 28 ± 8kg/m2, FEV1 70 ± 24%predicted). For convergent validity, the LAP test was correlated with the 6MWT, Glittre-ADL, and LCADL scale (r=-0.49, 0.71, and 0.30, respectively; p < 0.03). There was a difference in test-retest (p < 0.0001) and reliability analysis shows ICC3 of 0.94, SEM of 14.88 seconds (22%), and MDC of 41.23 seconds (15%). Furthermore, the individuals performed the second test with -23 ± 19 (7.9%) seconds.
    UNASSIGNED: The LAP test is valid and reliable for assessing limitations during ADL in adults with asthma. Considerable learning effect was observed, therefore, the best of two measures may avoid underestimation.
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  • 文章类型: Journal Article
    背景:参与生活活动是健康的组成部分,也是残疾儿童和青少年康复服务的主要结果。然而,对于改善参与的最有效方法仍然没有共识。这项系统评价的目的是确定治疗性干预措施对脑瘫(CP)儿童参与结局的有效性。
    方法:进行了系统评价,搜索数据库PubMed,科克伦图书馆,科学直接,WebofScience和Scopus的随机对照试验(RCTs),2001年至2023年。如果研究评估了接受任何干预并使用任何测量参与的工具作为结果指标的CP儿童,则有资格纳入研究。对治疗效果进行meta分析。进行了敏感性分析,以确定针对不同国际功能分类(ICF)领域的干预对参与的影响。
    结果:共发现1572条记录。包括384名儿童在内的8个RCT(干预组195名,对照组189名)被纳入系统评价和荟萃分析。敏感性分析表明,以参与为重点的干预措施显着提高了参与;标准化平均差异(1.83;95%CI:1.33-2.32;Z=7.21;P<0.00001)。当其他类型的干预时,也就是说,关注身体功能和结构或活动,被使用,那么参与就没有受到有利的影响。
    结论:主要针对几个ICF领域参与障碍的干预措施对提高参与程度有更大的影响。旨在提高特定运动技能的干预措施,包括粗大和精细的运动功能或强度,不一定对参与产生积极影响。
    BACKGROUND: Participation in life activities is an integral part of health and a main outcome of rehabilitation services for children and adolescents with disabilities. However, there is still no consensus on the most effective way to improve participation. The aim of this systematic review is to determine the effectiveness of therapeutic interventions on participation outcomes of children with cerebral palsy (CP).
    METHODS: A systematic review was conducted, searching the databases PubMed, Cochrane Library, Science Direct, Web of Science and Scopus for randomized controlled trials (RCTs), between 2001 and 2023. Studies were eligible for inclusion if they evaluated children with CP undergoing any intervention and using any tool measuring participation as an outcome measure. A meta-analysis of treatment effect was conducted. A sensitivity analysis was conducted to identify the effect on participation when intervention targeted different International Classification of Functioning (ICF) domains.
    RESULTS: A total of 1572 records were identified. Eight RCTs including 384 children (195 in the intervention group and 189 in the control group) were included in the systematic review and in the meta-analysis. A sensitivity analysis showed that interventions focusing on participation significantly improved participation; standardized mean difference (1.83; 95% CI: 1.33-2.32; Z = 7.21; P < 0.00001). When other types of interventions, that is, focusing on body functions and structures or activities, were used, then participation was not favourably affected.
    CONCLUSIONS: Interventions primarily targeting barriers to participation across several ICF domains have a greater influence on enhancing participation. Interventions aimed at enhancing specific motor skills, including gross and fine motor function or strength, do not necessarily have a positive impact on participation.
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  • 文章类型: Journal Article
    背景:中风幸存者认为社区中心等社区资源是有益的;然而,对这些资源对卒中结局的影响知之甚少.我们评估了居住在资源密度较高的社区是否与卒中后结局有利相关。
    结果:我们纳入了来自科珀斯克里斯蒂项目(2009-2019年)脑发作监测的墨西哥裔美国人和非西班牙裔白人卒中幸存者。暴露是邻里资源的密度(例如,社区中心,餐馆,商店)在中风发作时在住宅人口普查区域内。结果包括死亡时间和复发,中风后3个月:残疾(日常生活活动/日常生活工具活动),认知(改良迷你精神状态考试),抑郁症(患者健康问卷-8),和生活质量(缩写为卒中特定生活质量量表)。我们拟合了多变量Cox回归和混合线性模型。我们考虑了与中风严重程度的相互作用,种族,和性爱。在1786名中风幸存者中,中位年龄为64岁(四分位距,56-73),55%男性,62%的墨西哥裔美国人。资源密度与死亡无关,复发,或抑郁症。更大的资源密度(第75百分位数与第25百分位数)与更有利的认知(改良迷你精神状态检查平均差异=0.838,95%CI=0.092,1.584)相关,在中重度中风幸存者中,具有更有利的功能(日常生活活动/日常生活工具活动=-0.156[95%CI,-0.284至0.027])和生活质量(缩写为卒中特定生活质量量表=0.194[95%CI,0.029-0.359])。
    结论:我们在中重度卒中幸存者中观察到更高的资源密度和整体认知以及功能和生活质量之间的关联。需要进一步的研究来确认这些发现,并确定邻域资源是否可能是恢复的工具。
    BACKGROUND: Stroke survivors believe neighborhood resources such as community centers are beneficial; however, little is known about the influence of these resources on stroke outcomes. We evaluated whether residing in neighborhoods with greater resource density is associated with favorable post-stroke outcomes.
    RESULTS: We included Mexican American and non-Hispanic White stroke survivors from the Brain Attack Surveillance in Corpus Christi project (2009-2019). The exposure was density of neighborhood resources (eg, community centers, restaurants, stores) within a residential census tract at stroke onset. Outcomes included time to death and recurrence, and at 3 months following stroke: disability (activities of daily living/instrumental activities of daily living), cognition (Modified Mini-Mental State Exam), depression (Patient Health Questionnaire-8), and quality of life (abbreviated Stroke-Specific Quality of Life scale). We fit multivariable Cox regression and mixed linear models. We considered interactions with stroke severity, ethnicity, and sex. Among 1786 stroke survivors, median age was 64 years (interquartile range, 56-73), 55% men, and 62% Mexican American. Resource density was not associated with death, recurrence, or depression. Greater resource density (75th versus 25th percentile) was associated with more favorable cognition (Modified Mini-Mental State Exam mean difference=0.838, 95% CI=0.092, 1.584) and among moderate-severe stroke survivors, with more favorable functioning (activities of daily living/instrumental activities of daily living=-0.156 [95% CI, -0.284 to 0.027]) and quality of life (abbreviated Stroke-Specific Quality of Life scale=0.194 [95% CI, 0.029-0.359]).
    CONCLUSIONS: We observed associations between greater resource density and cognition overall and with functioning and quality of life among moderate-severe stroke survivors. Further research is needed to confirm these findings and determine if neighborhood resources may be a tool for recovery.
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  • 文章类型: Journal Article
    背景:保持良好的功能能力是健康老龄化的关键组成部分,也是开展日常生活活动的基本要求,保持独立,推迟入住疗养院。尽管女性的预期寿命和与年龄相关的肌肉质量损失比男性高,他们通常表现出更高的身体功能局限性。然而,这些性别差异背后的原因尚不清楚。因此,这项研究的目的是调查老年人在身体功能方面的性别差异,并研究哪些因素解释了这些性别差异。
    方法:来自不来梅室外活动研究参与者的横断面数据,德国,年龄65至75岁,包括在分析中。使用SF-3610项身体功能量表通过自我管理问卷评估身体功能。社会,生活方式,和健康相关因素也使用问卷进行评估。连续七天使用手腕佩戴的加速度计客观地测量身体活动。绝对和相对频率的描述性分析,均值和标准差,进行了T检验和卡方检验。为了测试性别之间的关联,身体机能,和几个单独的因素,进行线性回归。
    结果:2141名参与者(52.1%为女性)的数据被纳入研究。女性和男性在身体机能方面表现出统计学上的显著差异,男性比女性感知更少的局限性。平均而言,女性的身体功能评分为81.4±19.3,男性为86.7±17.0.线性回归显示,身体功能评分与性别之间存在统计学上的显着负相关(β:-0.15,95%CL:-0.19,-0.10)。当将单个因素添加到模型中时,该关联仍然具有统计学意义。所有因素加在一起只能解释51%的身体功能与健康指标的关系,而慢性病的存在是最有影响的因素。
    结论:我们发现身体机能存在性别差异,老年女性比老年男性有更多的局限性。结果表明,健康相关因素和慢性病在男女不同的身体功能评分中发挥了最大的作用。这些发现有助于未来的纵向,更深入的研究。
    背景:德国临床试验注册DRKS00015117(注册日期17-07-2018)。
    BACKGROUND: Maintaining good functional ability is a key component of healthy ageing and a basic requirement for carrying out activities of daily living, staying independent, and delaying admission to a nursing home. Even though women have a higher life expectancy and slower age-related muscle mass loss than men, they often show a higher prevalence of limitations in physical functioning. However, the reasons behind these sex differences are still unclear. Therefore, the aims of this study were to investigate sex differences among older adults regarding physical functioning and to study which factors are explaining these sex differences.
    METHODS: Cross-sectional data from participants of the OUTDOOR ACTIVE study residing in Bremen, Germany, aged 65 to 75 years, were included in the analyses. Physical functioning was assessed via a self-administered questionnaire using the SF-36 10-item Physical Functioning Scale. Social, lifestyle, and health-related factors were also assessed using the questionnaire. Physical activity was measured objectively using wrist-worn accelerometers over seven consecutive days. Descriptive analyses with absolute and relative frequencies, means and standard deviations, as well as T-tests and chi-square tests were carried out. To test for associations between sex, physical functioning, and several individual factors, linear regressions were performed.
    RESULTS: Data of 2 141 participants (52.1% female) were included in the study. Women and men showed statistically significant differences in physical functioning, with men perceiving fewer limitations than women. On average, women had a physical functioning score of 81.4 ± 19.3 and men 86.7 ± 17.0. Linear regression showed a statistically significant negative association between physical functioning score and sex (β: -0.15, 95% CL: -0.19, -0.10). The association remained statistically significant when adding individual factors to the model. All factors together were only able to explain 51% of the physical functioning-sex association with health indicators and the presence of chronic diseases being the most influential factors.
    CONCLUSIONS: We found sex differences in physical functioning, with older women having more limitations than older men. The results showed that health-related factors and chronic diseases played the biggest roles in the different physical functioning scores of women and men. These findings contribute to future longitudinal, more in-depth research.
    BACKGROUND: German Clinical Trials Register DRKS00015117 (Date of registration 17-07-2018).
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  • 文章类型: Journal Article
    背景:呼吸困难被认为是对被诊断患有帕金森病的人的无声威胁,可能是患者的常见问题,然而,人们对它如何影响生活质量知之甚少。这项研究探索了日常生活中受呼吸困难影响的独立流动人群的经历。
    方法:这是一项横断面混合方法研究,包括在线问卷调查和半结构化访谈。如果参与者被诊断患有帕金森氏病,则将其包括在内;自我报告的Hoehn和Yahr评分为I,II或III;独立动员;讲阿拉伯语的人。如果参与者有任何其他肌肉骨骼,心脏,呼吸,或神经系统疾病;或以前吸烟者或现在吸烟者;或以前因呼吸道并发症住院。
    结果:共有117名参与者完成了阿拉伯语版本的呼吸困难-12问卷。所有参与者都报告了呼吸困难,这对他们的生活质量有不利影响,特别是在日常生活活动中。此外,参与者报告缺乏有关肺康复的知识,并且不了解参与计划的可用性和潜在益处.
    结论:在早期阶段的人中报告了呼吸困难(Hoehn和Yahr阶段I,II,和III)帕金森病,并可能受益于肺功能的常规评估,呼吸困难管理和参与肺康复。
    BACKGROUND: Dyspnea is considered a silent threat to people diagnosed with Parkinson\'s disease and may be a common concern in patients, however, little is known about how it affects quality of life. This study explored the experiences of independently mobile people who are affected by dyspnea in daily life.
    METHODS: This was a cross-sectional mixed methods study that included an online questionnaire and semi-structured interviews. The participants were included if they were diagnosed with Parkinson\'s disease; had a self-reported Hoehn and Yahr Score I, II or III; were mobilizing independently; and were Arabic speakers. Participants were excluded if they had any other musculoskeletal, cardiac, respiratory, or neurological diseases; or were previous or current smokers; or had been previously hospitalized due to respiratory complications.
    RESULTS: A total of 117 participants completed the Arabic version of the Dyspnea-12 Questionnaire. Dyspnea was reported in all participants and that it had an adverse effect on their quality of life, especially during activities of daily living. Additionally, participants reported a lack of knowledge about pulmonary rehabilitation and were unaware of the availability and potential benefits of participation in programs.
    CONCLUSIONS: Dyspnea was reported in people in the early stages (Hoehn and Yahr Stages I, II, and III) of Parkinson\'s disease, and may benefit from routine assessment of lung function, dyspnea management and participation in pulmonary rehabilitation.
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  • 文章类型: Journal Article
    低社会经济地位(SES)之间存在着众所周知的关联,生存不佳,和临床医生报告的卒中后结局。我们旨在评估卒中后3个月患者报告结局指标的社会经济差异。
    这项全国性队列研究纳入了2015-2017年瑞典卒中注册的急性卒中患者。患者报告的结果措施包括日常生活活动(流动性,如厕,和敷料),和中风后症状(情绪低落,疲劳,疼痛,和整体健康状况不佳)。有关SES卒中前的信息从瑞典统计局检索,并通过基于教育和收入的综合度量来定义。SES和患者报告的结局指标之间的关联进行了分析,使用逻辑回归校正混杂因素(性别和年龄),另外还校正了潜在的介质(卒中类型,严重程度,心血管疾病危险因素,独自生活)。对卒中类型进行亚组分析,男人和女人,年轻和老年患者。
    该研究包括44511名患者。其中,31.1%需要流动性方面的援助,18%的人如厕,中风后3个月换药的比例为22.2%。对于中风后的症状,12.3%的人表示情绪低落,39.1%疲劳,和22.7%的疼痛经常/不断,21.4%的人认为他们的总体健康状况较差/非常差。针对混杂因素进行了调整,低收入和小学教育的患者需要日常生活活动援助的可能性最高,例如,对于移动性,与高收入和大学学历的患者相比,比值比为2.06(95%CI,1.89-2.24).对于中风后的症状,低收入和大学教育的患者预后不良的几率最高(例如,赔率比,情绪低落为1.79[95%CI,1.49-2.15])。对潜在介质的调整减弱,但没有消除关联。缺血性和出血性中风的相关性相似,在男性和<65岁的患者中更为明显。
    卒中后患者报告的结局指标存在显著的SES相关差异。与低SES相关的更严重的结果在男性和工作年龄的患者中更为明显。
    UNASSIGNED: There is a well-known association between low socioeconomic status (SES), poor survival, and clinician-reported outcomes after stroke. We aimed to assess socioeconomic differences in Patient Reported Outcome Measures 3 months after stroke.
    UNASSIGNED: This nationwide cohort study included patients registered with acute stroke in the Swedish Stroke Register 2015-2017. Patient Reported Outcome Measures included activities of daily living (mobility, toileting, and dressing), and poststroke symptoms (low mood, fatigue, pain, and poor general health). Information on SES prestroke was retrieved from Statistics Sweden and defined by a composite measure based on education and income tertiles. Associations between SES and Patient Reported Outcome Measures were analyzed using logistic regression adjusting for confounders (sex and age) and additionally for potential mediators (stroke type, severity, cardiovascular disease risk factors, and living alone). Subgroup analyses were performed for stroke type, men and women, and younger and older patients.
    UNASSIGNED: The study included 44 511 patients. Of these, 31.1% required assistance with mobility, 18% with toileting, and 22.2% with dressing 3 months after stroke. For poststroke symptoms, 12.3% reported low mood, 39.1% fatigue, and 22.7% pain often/constantly, while 21.4% rated their general health as poor/very poor. Adjusted for confounders, the odds of needing assistance with activities of daily living were highest for patients with low income and primary school education, for example, for mobility, odds ratio was 2.06 (95% CI, 1.89-2.24) compared with patients with high income and university education. For poststroke symptoms, odds of poor outcome were highest for patients with low income and university education (eg, odds ratio, 1.79 [95% CI, 1.49-2.15] for low mood). Adjustments for potential mediators attenuated but did not remove associations. The associations were similar in ischemic and hemorrhagic strokes and more pronounced in men and patients <65 years old.
    UNASSIGNED: There are substantial SES-related differences in Patient Reported Outcome Measures poststroke. The more severe outcome associated with low SES is more pronounced in men and in patients of working age.
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