METHODS: In the first phase of the study, court cases were used to describe the everyday problems of people with epilepsy in Finland. In the second phase, descriptive statistical methods were used to analyse the survey data collected from adults with epilepsy in Finland (n = 237).
RESULTS: Based on only a few existing court cases, the problems faced by people with epilepsy seem to be similar to those faced by other groups of people with disabilities. The most common problems reported by our survey respondents were related to healthcare services (73 %) and work (54 %), followed by family (25 %), mistreatment (25 %), housing (24 %) and goods and services (19 %). Both having refractory epilepsy and perceived prejudice seem to be linked with experiencing everyday problems.
CONCLUSIONS: The results of this pilot study on the everyday problems experienced by people with epilepsy suggest that there are various gaps in their access to justice, even in a developed EU country like Finland.
方法:在研究的第一阶段,在芬兰,法庭案件被用来描述癫痫患者的日常问题。在第二阶段,采用描述性统计方法对芬兰成人癫痫患者(n=237)的调查数据进行分析.
结果:仅基于少数现有法院案件,癫痫患者面临的问题似乎与其他残疾人群体面临的问题相似。我们的调查受访者报告的最常见问题与医疗保健服务(73%)和工作(54%)有关,其次是家庭(25%),虐待(25%),住房(24%)和商品及服务(19%)。患有难治性癫痫和感知到的偏见似乎都与经历日常问题有关。
结论:这项针对癫痫患者所经历的日常问题的初步研究结果表明,他们在诉诸司法方面存在各种差距,甚至在像芬兰这样的发达国家。