PDF(Pubmed)
Abstract：
BACKGROUND: While tailored information might have the potential to motivate stroke survivors to make essential lifestyle changes and improve long-term outcomes, how this varies among different stroke populations is not yet fully understood.
METHODS: From November 2022 to May 2023, stroke survivors in the UK, who were clinically stable, participated in a community-based, descriptive cross-sectional study. Participants rated several information themes on a Likert scale from one to five, indicating the relevance of each information group to them. Data were analysed using Wilcoxon and chi-squared tests on SPSS. Descriptive statistics were employed for examining the preferred information delivery method, timing, personnel, and frequency.
RESULTS: Seventy survivors, with an average age of 67 ± 19 (61% males), were recruited. Survivors emphasised the importance of symptoms, risk factors, and recovery information during hospital stay, while medication and lifestyle change information were more significant in the community. Subgroup analysis revealed distinct patterns: First-time stroke survivors highlighted the importance of social and financial support (acute phase median Likert score 3, chronic phase median Likert score 4; p < 0.01), while those with prior strokes emphasised information on driving and working after stroke (acute phase median Likert score 4, chronic phase median Likert score 3; p < 0.05). Survivors recruited after six months of stroke prioritised knowledge of carer support in the community (acute phase median Likert score 3.5, chronic phase median Likert score 4; p < 0.01).
CONCLUSIONS: Survivors\' information needs differ depending on factors such as the recovery phase, type of stroke, time since diagnosis, and the presence of a previous stroke. Considering these factors is essential when developing or providing information to stroke survivors.
METHODS: From November 2022 to May 2023, stroke survivors in the UK, who were clinically stable, participated in a community-based, descriptive cross-sectional study. Participants rated several information themes on a Likert scale from one to five, indicating the relevance of each information group to them. Data were analysed using Wilcoxon and chi-squared tests on SPSS. Descriptive statistics were employed for examining the preferred information delivery method, timing, personnel, and frequency.
RESULTS: Seventy survivors, with an average age of 67 ± 19 (61% males), were recruited. Survivors emphasised the importance of symptoms, risk factors, and recovery information during hospital stay, while medication and lifestyle change information were more significant in the community. Subgroup analysis revealed distinct patterns: First-time stroke survivors highlighted the importance of social and financial support (acute phase median Likert score 3, chronic phase median Likert score 4; p < 0.01), while those with prior strokes emphasised information on driving and working after stroke (acute phase median Likert score 4, chronic phase median Likert score 3; p < 0.05). Survivors recruited after six months of stroke prioritised knowledge of carer support in the community (acute phase median Likert score 3.5, chronic phase median Likert score 4; p < 0.01).
CONCLUSIONS: Survivors\' information needs differ depending on factors such as the recovery phase, type of stroke, time since diagnosis, and the presence of a previous stroke. Considering these factors is essential when developing or providing information to stroke survivors.
摘要：
背景：虽然量身定制的信息可能有可能激励卒中幸存者做出必要的生活方式改变并改善长期结果，这在不同卒中人群之间的差异尚不完全清楚.
方法：从2022年11月到2023年5月，英国的中风幸存者，临床稳定的人，参加了一个以社区为基础的，描述性横断面研究。参与者以Likert量表从1到5对几个信息主题进行了评分，指示每个信息组与它们的相关性。数据采用Wilcoxon和SPSS卡方检验进行分析。描述性统计数据被用来检查首选的信息传递方法，定时,人员,和频率。
结果：70名幸存者，平均年龄为67±19岁(61%为男性)，被招募。幸存者强调症状的重要性，危险因素，以及住院期间的康复信息，而药物和生活方式改变信息在社区中更重要。亚组分析显示出不同的模式：首次卒中幸存者强调了社会和经济支持的重要性（急性期中位Likert评分3，慢性期中位Likert评分4；p<0.01），而既往有卒中的患者则强调卒中后驾驶和工作的信息（急性期中位Likert评分为4分，慢性期中位Likert评分为3分；p<0.05）。卒中6个月后招募的幸存者优先考虑社区照顾者支持知识（急性期中位Likert评分3.5，慢性期中位Likert评分4；p<0.01）。
结论：幸存者的信息需求因恢复阶段等因素而异，中风类型,自诊断以来的时间，以及先前中风的存在。在开发或向中风幸存者提供信息时，考虑这些因素至关重要。
方法：从2022年11月到2023年5月，英国的中风幸存者，临床稳定的人，参加了一个以社区为基础的，描述性横断面研究。参与者以Likert量表从1到5对几个信息主题进行了评分，指示每个信息组与它们的相关性。数据采用Wilcoxon和SPSS卡方检验进行分析。描述性统计数据被用来检查首选的信息传递方法，定时,人员,和频率。
结果：70名幸存者，平均年龄为67±19岁(61%为男性)，被招募。幸存者强调症状的重要性，危险因素，以及住院期间的康复信息，而药物和生活方式改变信息在社区中更重要。亚组分析显示出不同的模式：首次卒中幸存者强调了社会和经济支持的重要性（急性期中位Likert评分3，慢性期中位Likert评分4；p<0.01），而既往有卒中的患者则强调卒中后驾驶和工作的信息（急性期中位Likert评分为4分，慢性期中位Likert评分为3分；p<0.05）。卒中6个月后招募的幸存者优先考虑社区照顾者支持知识（急性期中位Likert评分3.5，慢性期中位Likert评分4；p<0.01）。
结论：幸存者的信息需求因恢复阶段等因素而异，中风类型,自诊断以来的时间，以及先前中风的存在。在开发或向中风幸存者提供信息时，考虑这些因素至关重要。
