PDF(Pubmed)
Abstract：
Asian Americans with metastatic cancer are an understudied population. The Describing Asian American Well-Being and Needs in Cancer (DAWN) Study was designed to understand the supportive care needs of Chinese-, Vietnamese-, and Korean-descent (CVK) patients with metastatic cancer.
This study aims to present the DAWN Study protocol involving a primarily qualitative, convergent, mixed methods study from multiple perspectives (patients or survivors, caregivers, and health care professionals).
CVK Americans diagnosed with solid-tumor metastatic cancer and their caregivers were recruited nationwide through various means (registries, community outreach newsletters, newspapers, radio advertisements, etc). Potentially eligible individuals were screened and consented on the web or through a phone interview. The study survey and interview for patients or survivors and caregivers were provided in English, traditional/simplified Chinese and Cantonese/Mandarin, Vietnamese, and Korean, and examined factors related to facing metastatic cancer, including quality of life, cultural values, coping, and cancer-related symptoms. Community-based organizations assisted in recruiting participants, developing and translating study materials, and connecting the team to individuals for conducting interviews in Asian languages. Health care professionals who have experience working with CVK patients or survivors with metastatic solid cancer were recruited through referrals from the DAWN Study community advisory board and were interviewed to understand unmet supportive care needs.
Recruitment began in November 2020; data collection was completed in October 2022. A total of 66 patients or survivors, 13 caregivers, and 15 health care professionals completed all portions of the study. We completed data management in December 2023 and will submit results for patients or survivors and caregivers to publication outlets in 2024.
Future findings related to this protocol will describe and understand the supportive care needs of CVK patients or survivors with metastatic cancer and will help develop culturally appropriate psychosocial interventions that target known predictors of unmet supportive care needs in Chinese, Vietnamese, and Korean Americans with metastatic cancer.
DERR1-10.2196/50032.
This study aims to present the DAWN Study protocol involving a primarily qualitative, convergent, mixed methods study from multiple perspectives (patients or survivors, caregivers, and health care professionals).
CVK Americans diagnosed with solid-tumor metastatic cancer and their caregivers were recruited nationwide through various means (registries, community outreach newsletters, newspapers, radio advertisements, etc). Potentially eligible individuals were screened and consented on the web or through a phone interview. The study survey and interview for patients or survivors and caregivers were provided in English, traditional/simplified Chinese and Cantonese/Mandarin, Vietnamese, and Korean, and examined factors related to facing metastatic cancer, including quality of life, cultural values, coping, and cancer-related symptoms. Community-based organizations assisted in recruiting participants, developing and translating study materials, and connecting the team to individuals for conducting interviews in Asian languages. Health care professionals who have experience working with CVK patients or survivors with metastatic solid cancer were recruited through referrals from the DAWN Study community advisory board and were interviewed to understand unmet supportive care needs.
Recruitment began in November 2020; data collection was completed in October 2022. A total of 66 patients or survivors, 13 caregivers, and 15 health care professionals completed all portions of the study. We completed data management in December 2023 and will submit results for patients or survivors and caregivers to publication outlets in 2024.
Future findings related to this protocol will describe and understand the supportive care needs of CVK patients or survivors with metastatic cancer and will help develop culturally appropriate psychosocial interventions that target known predictors of unmet supportive care needs in Chinese, Vietnamese, and Korean Americans with metastatic cancer.
DERR1-10.2196/50032.
摘要：
背景：患有转移性癌症的亚裔美国人是研究不足的人群。描述亚裔美国人的福祉和癌症需求（DAWN）研究旨在了解中国人的支持性护理需求-越南-，和韩国裔（CVK）转移性癌症患者。
目的：本研究旨在提出DAWN研究方案，convergent,从多个角度进行混合方法研究(患者或幸存者，看护者,和医疗保健专业人员)。
方法：CVK美国人诊断为实体瘤转移癌，他们的照顾者通过各种方式在全国范围内招募（注册，社区外展通讯，报纸,广播广告,etc).可能符合条件的个人在网络上或通过电话采访进行了筛选和同意。对患者或幸存者和护理人员的研究调查和访谈以英语提供，繁体/简体中文和粤语/普通话,越南人,韩国人,并检查了与面临转移性癌症相关的因素，包括生活质量，文化价值观,应对,和癌症相关的症状。社区组织协助招募参与者，开发和翻译学习材料，并将团队与个人联系起来，以亚洲语言进行面试。通过DAWN研究社区顾问委员会的转介招募了具有与CVK患者或转移性实体癌幸存者合作经验的医疗保健专业人员，并接受了采访以了解未满足的支持性护理需求。
结果：招聘于2020年11月开始；数据收集于2022年10月完成。共有66名患者或幸存者，13名护理人员，15名卫生保健专业人员完成了研究的所有部分。我们于2023年12月完成数据管理，并将于2024年将患者或幸存者和护理人员的结果提交给出版物。
结论：与该方案相关的未来研究结果将描述和理解CVK患者或转移性癌症幸存者的支持性护理需求，并将有助于开发文化上适当的心理社会干预措施，这些干预措施针对中国未满足的支持性护理需求的已知预测因素。越南人,和患有转移性癌症的韩裔美国人。
■DERR1-10.2196/50032。
目的：本研究旨在提出DAWN研究方案，convergent,从多个角度进行混合方法研究(患者或幸存者，看护者,和医疗保健专业人员)。
方法：CVK美国人诊断为实体瘤转移癌，他们的照顾者通过各种方式在全国范围内招募（注册，社区外展通讯，报纸,广播广告,etc).可能符合条件的个人在网络上或通过电话采访进行了筛选和同意。对患者或幸存者和护理人员的研究调查和访谈以英语提供，繁体/简体中文和粤语/普通话,越南人,韩国人,并检查了与面临转移性癌症相关的因素，包括生活质量，文化价值观,应对,和癌症相关的症状。社区组织协助招募参与者，开发和翻译学习材料，并将团队与个人联系起来，以亚洲语言进行面试。通过DAWN研究社区顾问委员会的转介招募了具有与CVK患者或转移性实体癌幸存者合作经验的医疗保健专业人员，并接受了采访以了解未满足的支持性护理需求。
结果：招聘于2020年11月开始；数据收集于2022年10月完成。共有66名患者或幸存者，13名护理人员，15名卫生保健专业人员完成了研究的所有部分。我们于2023年12月完成数据管理，并将于2024年将患者或幸存者和护理人员的结果提交给出版物。
结论：与该方案相关的未来研究结果将描述和理解CVK患者或转移性癌症幸存者的支持性护理需求，并将有助于开发文化上适当的心理社会干预措施，这些干预措施针对中国未满足的支持性护理需求的已知预测因素。越南人,和患有转移性癌症的韩裔美国人。
■DERR1-10.2196/50032。
