PDF(Pubmed)
Abstract：
Introduction: Workers who undergo solid organ transplantation report frequent conflicts between the unpredictable demands of their health condition and the rigid requirements of their employer and of health services. The present study aimed to describe the self-management strategies adopted by workers while staying at work before transplantation and during sustainable return-to-work posttransplantation. Methods: Fifteen employed kidney, liver, and lung transplant recipients were recruited from 2 large urban university health centers in Montreal, Canada. Three focus groups were held, and thematic analysis was performed. Findings: Seven strategies were identified: responding promptly and consistently to fatigue-related needs, planning ahead with immediate supervisors while remaining strategic about when to disclose transplantation, requesting work accommodations, requesting flexibility in healthcare provision, consulting physicians about work-related issues, informing co-workers about work limitations and immunosuppression and asking not to be treated differently in the workplace. Conclusion: Access to work accommodations, support from physicians and flexibility in treatment and appointment schedules supported workers\' ability to manage their health while staying at work before and after undergoing solid organ transplantation. In light of findings, it may be useful for healthcare professionals to address workers\' concerns about work limitations and work accommodation implementation, especially when the illness-management burden increases before transplantation and during posttransplantation sick leave. Future studies could describe the strategies used by other important stakeholders when attempting to provide support to workers.
摘要：
简介：接受实体器官移植的工人报告说，他们的健康状况的不可预测的要求与雇主和卫生服务的严格要求之间经常发生冲突。本研究旨在描述工人在移植前工作和移植后可持续重返工作期间采用的自我管理策略。方法：15例采用肾脏，肝脏,肺移植受者从蒙特利尔的两个大型城市大学健康中心招募，加拿大。举行了三个焦点小组，并进行了专题分析。调查结果：确定了七种策略：对与疲劳相关的需求做出迅速和一致的反应，提前与直接主管一起规划，同时保持对何时披露移植的战略，请求工作住宿，要求医疗保健供应的灵活性，咨询医生关于工作相关问题，告知同事有关工作限制和免疫抑制的信息，并要求在工作场所不要区别对待。结论：获得工作场所，医生的支持以及治疗和预约时间表的灵活性支持了工人在进行实体器官移植之前和之后在工作期间管理健康的能力。根据调查结果,对于医疗保健专业人员来说，解决工人对工作限制和工作住宿实施的担忧可能是有用的，特别是当移植前和移植后病假期间疾病管理负担增加时。未来的研究可以描述其他重要利益相关者在试图为工人提供支持时使用的策略。
