Self-Management

自我管理
  • 文章类型: Journal Article
    The purpose of this study was to develop and test the reliability and validity of a brief and comprehensive instrument to assess self-management, decision-making, and coping by chronic obstructive pulmonary disease (COPD) patients. A web-based questionnaire was administered to 300 COPD patients and a retest was administered to 100 COPD patients. Cronbach\'s alpha was used to assess internal consistency, and an intraclass correlation coefficient was calculated to test the reliability of the retest. The convergent and discriminant validities were also examined. Valid responses were obtained from 279 participants in the first survey and 70 participants in the retest. From our analysis, a COPD self-care assessment scale (CSCS) was developed, consisting of seven subscales and 14 items. Cronbach\'s alpha for the total CSCS score, intraclass correlation coefficient, and scale success rate were 0.80, 0.79, and 100%, respectively. A multivariate analysis showed that CSCS was associated with current smoking (standardized partial regression coefficient [std β] = -0.30; p < 0.001), long-term oxygen therapy (std β = 0.23; p < 0.001), and social support (std β = 0.24; p < 0.001), but not psychological symptoms or quality of life. The CSCS is also useful in assessing self-management, decision-making, and coping in Japanese COPD patients, and the scale has high reliability and validity.
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  • 文章类型: Journal Article
    UNASSIGNED: The global estimate of the aging population is progressively increasing in low and middle-income countries and this is accompanied by the limitations associated with the need for equitable and efficient healthcare delivery among this dire population. Unfortunately, despite the increasing numbers, the adoption of mobile phones is not balanced in the different populations with research showing young persons\' adoption rate is higher than that of elderly persons.
    UNASSIGNED: This current study was conducted to identify elderly people\'s perceptions of the use of mobile phones to support the self-management of long-term illnesses at Kiruddu National Referral Hospital.
    UNASSIGNED: This descriptive-cross-sectional design study was conducted on a sample population of 30 elderly individuals older than 60 years admitted at the outpatient department of Kiruddu National Referral Hospital, Kampala, Uganda. We conducted face-to-face interviews following an interview guide and one focus group discussion. We later used a feature mobile phone and a tablet mobile phone to assess the individual ease of use of each device. The audio recordings were professionally transcribed and transcripts were coded into NVIVO version 12 analysis software for thematic analysis.
    UNASSIGNED: Almost all of the respondents who visited the facility had an ailment that hindered their full utilization of the mobile phone to support their self-care. This together with other factors like financial constraints, lack of support from the health workers on how to use mobile phones to support health, inadequate support from the facility, and cost of mobile data among others.
    UNASSIGNED: This study provides empirical evidence that there is hardly a known mobile phone adoption model to enable policymakers, systems developers, and health workers to promote the elderly population\'s use of mobile phones to manage their long-term illnesses in Uganda.
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  • 文章类型: Journal Article
    目的:健康的癌症生存涉及患者积极参与预防性健康行为和后续护理。虽然临床医生和患者通常对激活这些行为负有双重责任,将一些临床医生的努力转变为技术和健康教练可能会增强指南的实施。本文报告了幸存者共享医疗行动和反思电子系统(SHARE-S)计划的可接受性,完全虚拟的多成分干预,包括电子推荐,远程提供的健康指导,和自动短信,以增强患者的自我管理并促进健康的生存。
    方法:SHARE-S在单组混合实施-有效性试验研究中进行了评估。将患者从临床团队电子转介给健康教练,进行三个健康自我管理教练电话,并收到短信以加强教练。对21名患者参与者进行了半结构化定性访谈,2名临床医生,和2名健康教练,以确定干预的可接受性(态度,适当性,适用性,便利性,和感知的有效性),并确定计划的重要要素和潜在的行动机制,以指导未来的实施。
    结果:SHARE-S被描述为具有影响力和便利性。非指令,以患者为中心的健康指导和正念练习被认为是最可接受的;短信不太可接受.利益相关者建议增加格式的灵活性,频率,定时,和参与的时间长短,和其他量身定制的教育材料。患者报告了有形的健康行为变化,改善情绪,并提高责任感和自我效能感。
    结论:SHARE-S总体上是一种可接受且潜在有效的干预措施,可以增强幸存者的自我管理和幸福感。对定制内容的更改,定时,和剂量应进行测试,以确定对可接受性和结果的影响。
    OBJECTIVE: Healthy cancer survivorship involves patients\' active engagement with preventative health behaviors and follow-up care. While clinicians and patients have typically held dual responsibility for activating these behaviors, transitioning some clinician effort to technology and health coaches may enhance guideline implementation. This paper reports on the acceptability of the Shared Healthcare Actions & Reflections Electronic systems in survivorship (SHARE-S) program, an entirely virtual multicomponent intervention incorporating e-referrals, remotely-delivered health coaching, and automated text messages to enhance patient self-management and promote healthy survivorship.
    METHODS: SHARE-S was evaluated in single group hybrid implementation-effectiveness pilot study. Patients were e-referred from the clinical team to health coaches for three health self-management coaching calls and received text messages to enhance coaching. Semi-structured qualitative interviews were conducted with 21 patient participants, 2 referring clinicians, and 2 health coaches to determine intervention acceptability (attitudes, appropriateness, suitability, convenience, and perceived effectiveness) and to identify important elements of the program and potential mechanisms of action to guide future implementation.
    RESULTS: SHARE-S was described as impactful and convenient. The nondirective, patient-centered health coaching and mindfulness exercises were deemed most acceptable; text messages were less acceptable. Stakeholders suggested increased flexibility in format, frequency, timing, and length of participation, and additional tailored educational materials. Patients reported tangible health behavior changes, improved mood, and increased accountability and self-efficacy.
    CONCLUSIONS: SHARE-S is overall an acceptable and potentially effective intervention that may enhance survivors\' self-management and well-being. Alterations to tailored content, timing, and dose should be tested to determine impact on acceptability and outcomes.
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  • 文章类型: Journal Article
    背景:糖尿病自我管理教育对于改善患者预后和减少糖尿病相关并发症是必要的。根据行为推理理论,行为的可能性是由信念之间的联系来预测的,动机,意图,和行为。本研究旨在探讨基于行为推理理论(BRT)的教育干预对2型糖尿病患者自我管理行为的影响。
    方法:对113例2型糖尿病患者进行了一项基于BRT的随机对照试验,对照组和干预组随访3个月和6个月。根据BRT的结构和与2型糖尿病患者自我管理相关的行为,使用研究人员制作的人口统计学问卷收集数据。在干预组中,提供了,8次基于BRT的糖尿病自我管理教育对照组只接受中心的常规训练。数据采用SPSS26软件进行分析。
    结果:干预组进行教育干预后,所有构建体的平均得分都有统计学上的显著变化,空腹血糖,和糖化血红蛋白.另一方面,对照组的平均评分无统计学显著变化.所有观察到的变化在0.05水平上是显著的。
    结论:这项研究的结果有利于促进糖尿病自我管理行为的教育干预的有效性,使用行为推理理论的原理。可用于糖尿病患者健康促进计划的设计。
    背景:伊朗临床试验注册(IRCT),IRCT20131014015015N21。
    BACKGROUND: Diabetes self-management education is necessary to improve patient outcomes and reduce diabetes-related complications. According to the theory of behavioral reasoning, the likelihood of performing a behavior is predicted by the link between beliefs, motivation, intention, and behavior. This study aimed to investigate the effect of an educational intervention based on the Behavioral Reasoning Theory (BRT) on self-management behaviors in patients with Type 2 Diabetes.
    METHODS: A randomized controlled trial based on BRT was conducted on 113 patients with type 2 diabetes, with a control group and an intervention group followed for 3and 6 months. Data were collected using a researcher-made demographic questionnaire based on the constructs of BRT and behaviors related to self-management in patients with type 2 diabetes. In the intervention group were provided, 8 sessions of diabetes self-management education based on BRT. The control group only received the usual training of the center. Data was analyzed using SPSS26 software.
    RESULTS: After the educational interventions in the intervention group, there were statistically significant changes observed in the mean scores of all constructs, fasting blood sugar, and glycosylated hemoglobin. On the other hand, no statistically significant change was observed in the mean grades of the control group. All the observed changes were significant at the 0.05 level.
    CONCLUSIONS: The results of this study were in favor of the effectiveness of an educational intervention that promotes diabetes self-management behaviors, using the principles of the behavioral reasoning theory. Which can be used in the design of health promotion programs for patients with diabetes.
    BACKGROUND: Iranian Registry of Clinical Trials (IRCT), IRCT20131014015015N21.
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  • 文章类型: Journal Article
    目的:子宫托自我管理为女性带来益处,而不会增加并发症的风险。然而,许多人不愿意自我管理,更喜欢临床医生主导的护理。这项研究旨在探索与自我管理子宫托意愿相关的因素。
    方法:在英国一家医院参加子宫托诊所的妇女被要求填写一份问卷,提供有关子宫托使用的答复。合并症,女性生殖器自我形象,自我管理经验和愿意(或不愿意)学习自我管理。根据统计建议,我们的目标是招募90名女性。使用非参数Kruskal-Wallis检验和卡方检验分析数据。对自由文本数据进行了主题分析。
    结果:共有89名妇女完成了问卷。33名女性(38%)以前曾接受过子宫托自我管理的教育。剩下的女人中,12人(21%)愿意学习,28人(50%)不愿意,16人(29%)不确定。女性生殖器自我形象与自我管理子宫托的意愿之间没有相关性。年轻女性更愿意学习自我管理(p=<0.001)。愿意的妇女受到后续访问减少的激励。自我管理的妇女报告的好处包括增加自主权,清洁和给他们的身体“休息”。阻止女性进行自我管理的原因是缺乏自信;感觉身体无法;想要临床医生主导的护理;害怕子宫托的问题或以前的问题。
    结论:大多数女性要么不确定子宫托自我管理,要么不愿自我管理。年龄是我们发现与自我管理子宫托的意愿有重要关系的唯一因素。通过强大的自我管理教学,支持和后续行动,妇女报告的许多障碍很可能可以克服。
    OBJECTIVE: Pessary self-management offers benefits to women with no increased risk of complications. However, many are unwilling to self-manage, preferring clinician-led care. This study is aimed at exploring factors associated with willingness to self-manage a pessary.
    METHODS: Women attending pessary clinic at a UK hospital were asked to complete a questionnaire providing responses on pessary use, comorbidities, female genital self-image, self-management experience and willingness (or not) to learn self-management. Based upon statistical advice we aimed to recruit 90 women. Data were analysed using the non-parametric Kruskal-Wallis test and Chi-squared test. Free text data were analysed thematically.
    RESULTS: A total of 89 women completed the questionnaire. Thirty-three women (38%) had previously been taught pessary self-management. Of the remaining women, 12 (21%) were willing to learn, 28 (50%) were not willing and 16 (29%) were unsure. There was no correlation between female genital self-image and willingness to self-manage a pessary. Younger women were more willing to learn self-management (p =  < 0.001). Willing women were motivated by reduced follow-up visits. Self-managing women reported benefits including increased autonomy, cleanliness and giving their body \"a break\". Reasons discouraging women from self-managing were a lack of confidence; feeling physically unable; wanting clinician-led care; fear of problems or previous problems with their pessary.
    CONCLUSIONS: Most women were either unsure about pessary self-management or unwilling to self-manage. Age was the only factor we found that had a significant relationship with willingness to self-manage a pessary. With robust self-management teaching, support and follow-up, it is likely that many of the barriers women report can be overcome.
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  • 文章类型: Journal Article
    随着老年人的糖尿病自我管理继续变得更加复杂,自我管理计划已被证明可以支持该人群满足其多方面的医疗需求。在我们之前的系统回顾和荟萃分析的基础上,我们旨在更新有关糖尿病自我管理计划有效性的文献,并调查特定自我管理干预措施对临床和患者报告结局的影响.
    我们在以下数据库中更新了我们的文献检索:Medline,EMBASE,心理信息,2013年11月至2023年7月,CINAHL和Cochrane随机对照试验数据库,用于可能符合我们纳入标准的研究。两名独立的审稿人从纳入的研究组中筛选并提取数据。
    共有17项研究和21个比较组符合纳入标准,总计5976名老年人(3510名随机接受自我管理计划治疗,2466名接受常规治疗).老年人糖尿病自我管理计划对血糖控制(血红蛋白A1C)的综合有效性降低了-0.32(95%CI-0.44,-0.19)。具体来说,血糖控制(A1C)最有效的方法是使用反馈(-0.52%;95%CI-0.68,-0.36).总的来说,自我管理计划改善了行为改变的结果,反馈干预最有效(标准化平均差[SMD]0.91;95%CI0.39,1.43)。自我管理计划对体重指数的影响,体重和血脂具有统计学和临床意义.
    针对老年人的糖尿病自我管理计划的证据表明,A1C的下降幅度很小,但具有临床意义。患者报告结果的改善(行为,自我效能感,知识),和其他临床结果(BMI,体重和脂质)。应考虑在老年人糖尿病自我管理计划中使用的特定策略,以实现最佳结果。
    UNASSIGNED: With diabetes self-management continuing to become more complex for older adults, self-management programs have been shown to support this population in meeting their multifaceted medical needs. Building on our previous systematic review and meta-analysis, we aimed to update the literature on the effectiveness of diabetes self-management programs and investigate the impact of specific self-management interventions on clinical and patient-reported outcomes.
    UNASSIGNED: We updated our literature search in the following databases: Medline, EMBASE, PsychINFO, CINAHL and Cochrane Database of Randomized Controlled Trials from November 2013 to July 2023 for studies that may fit our inclusion criteria. Two independent reviewers screened and extracted data from the included group of studies.
    UNASSIGNED: A total of 17 studies with 21 comparison arms met the inclusion criteria, totalling 5976 older adults (3510 individuals randomized to self-management programming and 2466 to usual care). The pooled effectiveness of diabetes self-management programs in older adults on glycemic control (hemoglobin A1C) was a reduction of -0.32 (95% CI -0.44, -0.19). Specifically, the most effective approach on glycemic control (A1C) was the use of feedback (-0.52%; 95% CI -0.68, -0.36). Overall, self-management programs improved behaviour change outcomes, with feedback interventions being most effective (standardized mean difference [SMD] 0.91; 95% CI 0.39, 1.43). The effect of self-management programs on body mass index, weight and lipids were statistically and clinically significant.
    UNASSIGNED: The evidence for diabetes self-management programs for older adults demonstrates a small but clinically meaningful reduction in A1C, improvement in patient-reported outcomes (behaviour, self-efficacy, knowledge), and other clinical outcomes (BMI, weight and lipids). The specific strategy used in diabetes self-management programs for older adults should be considered to achieve optimal results on outcomes.
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  • 文章类型: Journal Article
    狼疮性肾炎患者会出现疾病症状和治疗副作用。尽管自我管理行为在这种疾病的患者中很重要,对影响这些行为的因素的研究有限。
    本研究旨在探讨狼疮性肾炎患者自我管理行为的影响因素。
    这项横断面研究是在2019年8月至2020年12月期间在泰国一家大学医院的240名狼疮性肾炎患者中进行的,采用随机抽样方法。使用人口统计学和临床特征问卷收集数据,自我管理行为问卷,管理慢性病的自我效能感:6项量表,狼疮性肾炎知识问卷,家庭支持量表,成人生活问卷中的社会网络,狼疮性肾炎纪念症状评定量表。采用描述性统计和多元线性回归分析。
    参与者报告了中等水平的自我管理行为。多元回归分析显示,疾病持续时间,收入,症状,自我效能感,知识,家庭支持,社交网络,狼疮性肾炎和类别显着解释了自我管理行为变化的21%(R2=0.21;F(8,231)=7.73;p<0.001)。家庭支持(β=0.32,p<0.001)和症状(β=-0.23,p<0.001)是狼疮性肾炎患者自我管理行为的重要决定因素。
    这些发现为护士更好地了解影响狼疮性肾炎患者自我管理行为的因素提供了有价值的见解。家庭支持低,症状严重程度高的患者可能难以执行自我管理行为。护士应更多关注这些患者,并提供基于家庭的干预措施,以优化该人群的自我管理行为。
    UNASSIGNED: Patients with lupus nephritis experience disease symptoms and side effects from treatment. Although self-management behaviors are important in patients with this disease, there is limited research on the factors influencing these behaviors.
    UNASSIGNED: This study aimed to examine the factors influencing self-management behaviors in patients with lupus nephritis.
    UNASSIGNED: This cross-sectional study was conducted in 240 patients with lupus nephritis at a university hospital in Thailand between August 2019 and December 2020 using a random sampling method. Data were collected using a demographic and clinical characteristic questionnaire, Self-Management Behavior Questionnaire, Self-efficacy for Managing Chronic Disease: A 6-item Scale, Knowledge about Lupus Nephritis Questionnaire, Family Support Scale, Social Networks in Adult Life Questionnaire, and Memorial Symptom Assessment Scale for Lupus Nephritis. Descriptive statistics and multiple linear regression analyses were employed.
    UNASSIGNED: The participants reported a moderate level of self-management behaviors. Multiple regression analyses revealed that disease duration, income, symptoms, self-efficacy, knowledge, family support, social networks, and classes of lupus nephritis significantly explained 21% of the variance in self-management behaviors (R2 = 0.21; F(8,231) = 7.73; p <0.001). Family support (β = 0.32, p <0.001) and symptoms (β = -0.23, p <0.001) were significant determinants of self-management behaviors in patients with lupus nephritis.
    UNASSIGNED: The findings provide valuable insight for nurses to better understand the factors influencing self-management behaviors in patients with lupus nephritis. Patients with low family support and high symptom severity may face difficulty in performing self-management behaviors. Nurses should pay more attention to these patients and provide family-based interventions to optimize self-management behaviors in this population.
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  • 文章类型: Journal Article
    在中国,患有缺血性中风的成年人越来越年轻。此外,中风后,他们经常忽视自我管理(SM),这显著影响了康复过程和治疗结果。
    这项研究旨在描述SM行为,并检查中风预防知识之间的关系,生活压力,家庭关系,成人缺血性卒中患者的SM行为。
    根据确定的纳入标准,在2022年10月至2023年3月期间共招募了125名参与者。研究工具包括人口统计问卷,青年脑卒中自我管理行为量表,卒中预防知识问卷,感知压力量表,和简短的家庭关系量表。使用描述性统计和Pearson乘积矩相关对数据进行分析。
    SM行为的平均得分为130分中的88.1分(SD=16.5)。脑卒中预防知识和家庭关系与SM行为呈中度正相关(r=0.39,r=0.34,p<0.001)。生活压力与SM行为呈显著负相关(r=-0.33,p<0.001)。
    这些发现为护士制定护理干预措施以促进成人中风患者的SM行为提供了见解。此外,他们可以通过强调教育中风预防知识的整体护理实践,协助医院将护理过渡到社区,鼓励家庭支持,并提供压力管理策略,以提高成人中风患者的SM能力。
    UNASSIGNED: In China, adults with ischemic stroke are getting younger. Additionally, following a stroke, they often neglect self-management (SM), which significantly impacts the rehabilitation process and treatment outcomes.
    UNASSIGNED: This study aimed to describe SM behavior and examine the relationship between stroke prevention knowledge, life stress, family relationships, and SM behavior among adults with ischemic stroke.
    UNASSIGNED: A total of 125 participants were recruited between October 2022 and March 2023 based on defined inclusion criteria. Research instruments included a demographic questionnaire, the Stroke Self-management Behavior Scale for Young Adults, the Stroke Prevention Knowledge Questionnaire, the Perceived Stress Scale, and the Brief Family Relationship Scale. Data were analyzed using descriptive statistics and Pearson\'s product-moment correlation.
    UNASSIGNED: The mean score of SM behavior was 88.1 out of 130 (SD = 16.5). Stroke prevention knowledge and family relationships showed a moderate positive significant relationship with SM behavior (r = 0.39, r = 0.34, p <0.001, respectively). Life stress had a significant negative relationship with SM behavior (r = -0.33, p <0.001).
    UNASSIGNED: The findings offer insights for nurses to develop nursing interventions to promote SM behavior among adults with stroke. Furthermore, they can assist hospitals in transitioning care to the community by emphasizing holistic nursing practices that educate about stroke prevention knowledge, encourage family support, and provide stress management strategies to enhance the SM abilities of adults with stroke.
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  • 文章类型: Journal Article
    对于心力衰竭患者,自我照顾是至关重要的,但自我照顾的建议往往不遵守。数字健康干预有可能帮助患者改善自我护理,最终,他们的健康结果,但是没有仔细检查,数字干预可能会产生进一步的不平等。在这项研究中,我们使用数字卫生公平框架来研究可能影响卫生公平的许多影响领域中与数字卫生干预相关的挑战和机遇.我们从自己的经验中汲取了使用多个传感器和应用程序进行分散临床试验的经验,以帮助心力衰竭患者提高对关键自我护理行为的依从性。最后,我们为在研究和实践中利用数字健康干预措施解决健康公平问题提供建议.
    For patients with heart failure, self-care is crucial, but recommendations for self-care are often not adhered to. Digital health interventions have the potential to help patients improve their self-care and, ultimately, their health outcomes, but without careful examination, digital interventions may generate further inequality. In this study, we use a digital health equity framework to examine challenges and opportunities related to digital health interventions across many domains of influence that may affect health equity. We draw from our own experience in conducting a decentralized clinical trial with multiple sensors and apps to help patients with heart failure improve adherence to key self-care behaviors. Finally, we provide recommendations for leveraging digital health interventions in research and practice to address health equity.
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  • 文章类型: Journal Article
    目的:自我管理是食管癌患者治愈性治疗轨迹的重要组成部分。本研究的目的是探讨食管癌患者在治疗过程中对自我管理的期望和需求。自我管理的相关方面,他们需要额外的支持,并探索他们使用电子健康的意愿。
    方法:对食管癌患者进行半结构化访谈,曾接受新辅助化疗(放疗)治疗,然后进行手术,手术后最多1年。基于自我管理的一般模式,讨论了以下主题:基于经验的知识,对护理的贡献,生活在条件下,以及组织护理和支持。逐步系统的文本浓缩指导了数据分析。
    结果:确定了自我管理一般模型的所有四个领域。所有参与者都描述了术前途径之间的显着差异,当感觉他们被牵着的时候,和术后路径,当感觉他们被扔进了深渊。他们通过学习新的经验来适应新的生活情况,同时处理他们对身体的信心下降。患者表示需要来自不同来源的支持,并且愿意在日常护理之外使用电子健康。(数字)自我管理支持应易于访问,以人为本,机密,包括个人联系。
    结论:食管癌患者在自我管理方面存在差异,自我管理支持和用于自我管理目的的电子健康,表明没有一种方法可以满足所有患者的需求。
    OBJECTIVE: Self-management is an essential component of the curative treatment trajectory of esophageal cancer patients. The aims of this study were to explore expectations and needs of esophageal cancer patients during curative treatment regarding self-management, relevant aspects of self-management in which they need additional support, and to explore their willingness to use eHealth.
    METHODS: Semi-structured interviews were conducted with esophageal cancer patients, who had been treated with neoadjuvant chemo(radio)therapy followed by surgery, maximally 1 year after surgery. Based on the general model of self-management, the following themes were discussed: experience-based knowledge, contribution to care, living with the condition, and organization of care and support. A stepwise systematic text condensation guided the data analysis.
    RESULTS: All four domains of the general model of self-management were identified. All participants described a remarkable difference between the pre-operative pathway, when it felt like they were taken by the hand, and the postoperative pathway, when it felt like they were thrown into the deep end. They adjusted to their new life situation by learning new experiences, while dealing with their diminished confidence in their bodies. Patients expressed the need for support from different sources, and were open to the idea of using eHealth in addition to usual care. (digital) Self-management support should be easily accessible, person-centered, confidential, and include personal contact.
    CONCLUSIONS: Differences were found among esophageal cancer patients regarding self-management, self-management support and eHealth for self-management purposes, indicating there is no one approach that will meet the needs of all patients at all times.
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