PDF(Pubmed)
Abstract：
The objective of this systematic review was to identify and describe information needs for individuals with heart failure (HF) throughout their patient journey. Six databases were searched (APA PsycINFO, CINAHL Ultimate, Embase, Emcare Nursing, Medline ALL, and Web of Science Core Collection) from inception to February 2023. Search strategies were developed utilizing the PICO framework. Potential studies of any methodological design were considered for inclusion through a snowball hand search. Data from the included articles were extracted by a reviewer, and the extraction accuracy was independently cross-checked by another author. Quality appraisal was assessed using the Mixed-Methods Appraisal Tool. A narrative synthesis was used to analyze all the outcomes according to the Synthesis Without Meta-analysis reporting guidelines. Twenty-five studies (15 quantitative and 10 qualitative) were included. Socioeconomic, cultural, and demographic factors influencing information needs were considered. The top three information needs for outpatients included general HF information, signs and symptoms and disease management strategies. For inpatients, medications, risk factors, and general HF were reported as the top needs. These divergent needs emphasize the importance of tailored education at different stages. Additionally, the review identified gaps in global representation, with limited studies from Africa and South America, underscoring the need for inclusive research. The findings caution against overgeneralization due to varied reporting methods. Practical implications call for culturally sensitive interventions to address nuanced HF patients\' needs, while future research must prioritize standardized reporting, consider diverse patient journey timepoints, and minimize biases for enhanced reliability and applicability.
摘要：
本系统评价的目的是确定和描述心力衰竭（HF）患者在整个过程中的信息需求。搜索了六个数据库(APAPsycINFO，CINAHLUltimate,Embase,护理护理,Medline所有,和WebofScience核心合集）从成立到2023年2月。搜索策略是利用PICO框架开发的。任何方法学设计的潜在研究都被认为是通过雪球手搜索纳入的。来自收录文章的数据由审阅者提取，提取的准确性由另一位作者独立交叉检查。质量评价使用混合方法评价工具进行评价。根据无荟萃分析报告指南的综合，使用叙述性综合来分析所有结果。包括25项研究（15项定量和10项定性）。社会经济,文化,并考虑了影响信息需求的人口因素。门诊患者的三大信息需求包括一般HF信息，体征和症状以及疾病管理策略。对于住院病人来说，药物,危险因素，和一般HF被报告为最高需求。这些不同的需求强调了在不同阶段进行量身定制教育的重要性。此外,审查确定了全球代表性方面的差距，来自非洲和南美的有限研究，强调包容性研究的必要性。调查结果警告不要由于不同的报告方法而过度概括。实际影响要求对文化敏感的干预措施，以解决细微差别的HF患者的需求，虽然未来的研究必须优先考虑标准化报告，考虑不同的患者旅程时间点，并尽量减少偏差，以增强可靠性和适用性。
