Abstract：
South Asian (SA) Canadians with kidney failure have a 50%-77% lower likelihood of kidney transplant and are less likely to identify potential living donors (LDs). This study aimed to identify health system-, patient-, and community-level barriers and facilitators for accessing LD kidney transplantation in the SA community to inform the development of health system- and community-level interventions to address barriers.
Qualitative study.
20 SA recipients of an LD or deceased-donor kidney transplant, 10 SA LDs, and 41 general SA community members.
In-depth multilingual interviews were conducted with recipients and LDs. Gender-, language-, and age-stratified focus groups were conducted with general SA community members. Summative content analysis was used to analyze the data.
Hesitancy in approaching potential donors, fear about the health of potential LDs, information gaps, language barriers, and challenges evaluating out-of-country donors were highlighted as significant barriers by recipients, and financial concerns and information gaps were identified by donors. Cultural barriers in the SA community were highlighted by donors, recipients, and community members as critical factors when considering donation and transplant; women and elderly SA Canadians highlighted nuanced challenges. Participants reported generally a favorable perception of their health care teams, citing SA representation in the teams as important to providing culturally and linguistically sensitive care.
Limited geographic, race, and cultural representation and reliance on virtual data collection.
This study highlights several culturally relevant barriers to donation and transplant that are potentially modifiable through patient-, health system-, and community-focused engagement and education.
Qualitative study.
20 SA recipients of an LD or deceased-donor kidney transplant, 10 SA LDs, and 41 general SA community members.
In-depth multilingual interviews were conducted with recipients and LDs. Gender-, language-, and age-stratified focus groups were conducted with general SA community members. Summative content analysis was used to analyze the data.
Hesitancy in approaching potential donors, fear about the health of potential LDs, information gaps, language barriers, and challenges evaluating out-of-country donors were highlighted as significant barriers by recipients, and financial concerns and information gaps were identified by donors. Cultural barriers in the SA community were highlighted by donors, recipients, and community members as critical factors when considering donation and transplant; women and elderly SA Canadians highlighted nuanced challenges. Participants reported generally a favorable perception of their health care teams, citing SA representation in the teams as important to providing culturally and linguistically sensitive care.
Limited geographic, race, and cultural representation and reliance on virtual data collection.
This study highlights several culturally relevant barriers to donation and transplant that are potentially modifiable through patient-, health system-, and community-focused engagement and education.
摘要：
目的：患有肾衰竭的南亚（SA）加拿大人的肾移植可能性降低50-77％，并且不太可能识别潜在的活体肾脏供体（LDs）。本研究旨在确定，卫生系统,病人,以及社区一级的障碍和促进者在SA社区获得活体供肾移植（LDKT），以告知卫生系统和社区一级干预措施的发展以解决障碍。
方法：定性研究。
方法：&参与者：20名活体或已故供体肾移植受者，10个SALD,和41名一般SA社区成员。
方法：对接受者和LDs进行了深入的多语言访谈。性别,语言,对一般SA社区成员进行年龄分层的焦点组.采用总结性内容分析对数据进行分析。
结果：接近潜在捐赠者的犹豫，担心潜在LD的健康，信息差距，语言障碍,评估国外捐助者的挑战被强调为受援国的重大障碍，而捐助者发现了财政问题和信息差距。捐助者强调了SA社区的文化障碍，收件人,和社区成员是考虑捐赠和移植时的关键因素；妇女和老年SA加拿大人强调了细微差别的挑战。参与者报告说，他们的医疗团队普遍有良好的看法，引用SA在团队中的代表对提供文化和语言敏感的护理很重要。
结论：地域有限，种族,以及文化代表性和对虚拟数据收集的依赖。
结论：这项研究强调了几种文化相关的捐赠和移植障碍，这些障碍可能通过患者改变，卫生系统,以及以社区为中心的参与和教育。
方法：定性研究。
方法：&参与者：20名活体或已故供体肾移植受者，10个SALD,和41名一般SA社区成员。
方法：对接受者和LDs进行了深入的多语言访谈。性别,语言,对一般SA社区成员进行年龄分层的焦点组.采用总结性内容分析对数据进行分析。
结果：接近潜在捐赠者的犹豫，担心潜在LD的健康，信息差距，语言障碍,评估国外捐助者的挑战被强调为受援国的重大障碍，而捐助者发现了财政问题和信息差距。捐助者强调了SA社区的文化障碍，收件人,和社区成员是考虑捐赠和移植时的关键因素；妇女和老年SA加拿大人强调了细微差别的挑战。参与者报告说，他们的医疗团队普遍有良好的看法，引用SA在团队中的代表对提供文化和语言敏感的护理很重要。
结论：地域有限，种族,以及文化代表性和对虚拟数据收集的依赖。
结论：这项研究强调了几种文化相关的捐赠和移植障碍，这些障碍可能通过患者改变，卫生系统,以及以社区为中心的参与和教育。
