OBJECTIVE: The aim of this study is to develop a website that effectively presents the results of a living systematic review and NMA on AD treatments to patient and clinician users.
METHODS: We conducted a multimethod study using iterative feedback from adults with AD, adult caregivers of children with AD, dermatologists, and allergists within a user-centered design framework. We used questionnaires followed by workshops among patients and clinicians to develop and improve the website interface. Usability testing was done with a caregiver of a patient with eczema.
RESULTS: Questionnaires were completed by 31 adults with AD or caregivers and 94 clinicians. Patients and caregivers felt it was very important to know about new treatments (20/31, 65%). Clinicians felt the lack of evidence-based comparisons between treatments was a barrier to care (55/93, 59%). \"Avoiding dangerous side effects\" was ranked as the most important priority for patients (weighted ranking 5.2/7, with higher ranking being more important), and \"improving patients\' overall symptoms\" was the most important priority for clinicians (weighted ranking 5.0/6). A total of 4 patients and 7 clinicians participated in workshops; they appreciated visualizations of the NMA results and found the website valuable for comparing different treatments. The patients suggested changes to simplify the interface and clarify terminology related to comparative efficacy. The user in the usability testing found the website intuitive to navigate.
CONCLUSIONS: We developed a website, \"eczematherapies.com,\" with a user-centered design approach. Visualizations of NMA results enable users to compare treatments as part of their shared decision-making process.
目的:本研究的目的是开发一个网站,有效地向患者和临床医生用户介绍有关AD治疗的实时系统评价和NMA的结果。
方法:我们使用来自成人AD的迭代反馈进行了多方法研究,患有AD的儿童的成人看护者,皮肤科医生,和以用户为中心的设计框架内的过敏原。我们使用问卷调查,然后在患者和临床医生中进行研讨会,以开发和改进网站界面。可用性测试是与湿疹患者的护理人员一起进行的。
结果:问卷由31名患有AD的成年人或护理人员和94名临床医生完成。患者和护理人员认为了解新疗法非常重要(20/31,65%)。临床医生认为缺乏基于证据的比较治疗是护理的障碍(55/93,59%)。“避免危险的副作用”被列为患者最重要的优先事项(加权排名5.2/7,排名越高越重要),“改善患者的整体症状”是临床医生最重要的优先事项(加权排序5.0/6)。共有4名患者和7名临床医生参加了研讨会;他们赞赏NMA结果的可视化,并发现该网站对于比较不同的治疗方法很有价值。患者建议进行更改以简化界面并澄清与比较疗效相关的术语。用户在可用性测试中发现网站导航直观。
结论:我们开发了一个网站,\"eczematherapies.com,以用户为中心的设计方法。NMA结果的可视化使用户能够将治疗方法作为其共享决策过程的一部分进行比较。