关键词: dermatology inclusive language language person-centered language psoriasis stigma

Mesh : Psoriasis / therapy psychology Humans Cross-Sectional Studies Periodicals as Topic Language Biomedical Research Social Stigma

来  源:   DOI:10.2196/28415   PDF(Pubmed)

Abstract:
Person-centered language places a person\'s identity before any disability or medical condition they may have. Using person-centered language reduces stigma and improves the patient-physician relationship, potentially optimizing health outcomes. Patients with psoriasis often feel stigmatized due to their chronic skin condition.
We seek to evaluate the use of person-centered language in psoriasis literature and to explore whether certain article characteristics were associated with non-person-centered language.
We performed a systematic search on PubMed for recently published articles in journals that regularly publish psoriasis studies. After article reduction procedures, randomization, and screening, we reached our target sample of 400 articles. The following non-person-centered language terms were extracted from each article: \"Psoriasis Patient,\" \"Psoriasis subject,\" \"Affected with,\" \"Sufferer,\" \"Suffering from,\" \"Burdened with,\" \"Afflicted with,\" and \"Problems with.\" Screening and data extraction occurred in a masked duplicate fashion.
Of the 400 included articles, 272 (68%) were not adherent to person-centered language guidelines according to the American Medical Association Manual of Style. The most frequent non-person-centered language term was \"Psoriasis Patient,\" found in 174 (43.5%) articles. The stigmatizing language was associated with the type of article and funding status, with original investigations and funded studies having higher rates of stigmatizing language.
Articles about psoriasis commonly use non-person-centered language terms. It is important to shift away from using stigmatizing language about patients with psoriasis to avoid potential untoward influences. We recommend using \"patients with psoriasis\" or \"patient living with psoriasis\" to emphasize the importance of person-centered care.
摘要:
背景:以人为中心的语言将一个人的身份置于他们可能患有的任何残疾或医疗状况之前。使用以人为本的语言减少了污名,改善了医患关系,可能优化健康结果。牛皮癣患者通常由于其慢性皮肤状况而感到污名化。
目的:我们试图评估银屑病文献中以人为本语言的使用,并探讨某些文章特征是否与非以人为本语言相关。
方法:我们在PubMed上进行了系统搜索,以查找最近发表在定期发表银屑病研究的期刊上的文章。在文章减少程序之后,随机化,和筛选,我们达到了400篇文章的目标样本。从每篇文章中提取以下非以人为本的语言术语:“牛皮癣患者,\“\”牛皮癣受试者,\"\"受影响,\"\"患者,\"\"患,\"\"背负着,\"\"患有,\"和\"的问题。“筛选和数据提取是以掩盖重复的方式进行的。
结果:在包含的400篇文章中,根据美国医学协会风格手册,272(68%)不遵守以人为本的语言指南。最常见的非以人为本的语言术语是“牛皮癣患者,“在174篇(43.5%)文章中发现。污名化的语言与文章的类型和资金状况有关,原始调查和资助的研究具有较高的污名化语言的比率。
结论:关于银屑病的文章通常使用非以人为本的语言术语。重要的是要摆脱对牛皮癣患者使用污名化语言,以避免潜在的不利影响。我们建议使用“牛皮癣患者”或“牛皮癣患者”来强调以人为本护理的重要性。
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