person-centered language

  • 文章类型: Journal Article
    背景:污名化语言或非以人为本的语言(非PCL)已被证明对患者产生负面影响,尤其是在肥胖的情况下。这导致了许多协会,如美国医学协会(AMA)和国际医学杂志编辑委员会(ICMJE),制定指南,禁止在医学研究中使用污名化语言。2018年,AMA采用了以人为中心的语言(PCL)指南,包括所有研究人员都应该遵守的特定肥胖修正案。然而,很少进行研究以确定是否遵循这些准则。
    目的:我们的主要目的是确定与之互动最频繁的运动医学期刊是否正确遵循了针对肥胖的PCL指南。
    方法:我们在PubMed中搜索了2019年至2022年间与肥胖相关的文章,这些文章发表在基于GoogleMetrics数据的十大互动运动医学期刊上。在每篇文章中搜索预定的污名化和非PCL术语/语言列表。
    结果:共抽取了198篇文章,其中58.6%被发现不符合PCL指南。最常见的非PCL术语是49.5%的文章中使用的“肥胖”,其次是“超重”,是下一个最常见的污名化术语,占40.4%。污名化标签,如“重”,更重,沉重,\"\"fat\"作为形容词,“病态”出现在文章中,但发生率较低。
    结论:我们的研究表明,互动最多的运动医学期刊严重缺乏对PCL指南的遵守。只有在不做出更大努力来改变这种情况的情况下,污名化语言与肥胖个体之间的负面关联才会持续存在。所有期刊,包括最负盛名的,应采用并执行PCL指南,以防止贬低语言在医学界的传播。
    BACKGROUND: Stigmatizing language or non-person-centered language (non-PCL) has been shown to impact patients negatively, especially in the case of obesity. This has led many associations, such as the American Medical Association (AMA) and the International Committee of Medical Journal Editors (ICMJE), to enact guidelines prohibiting the use of stigmatizing language in medical research. In 2018, the AMA adopted person-centered language (PCL) guidelines, including a specific obesity amendment to which all researchers should adhere. However, little research has been conducted to determine if these guidelines are being followed.
    OBJECTIVE: Our primary objective was to determine if PCL guidelines specific to obesity have been properly followed in the sports medicine journals that are interacted with most frequently.
    METHODS: We searched within PubMed for obesity-related articles between 2019 and 2022 published in the top 10 most-interacted sports medicine journals based on Google Metrics data. A predetermined list of stigmatizing and non-PCL terms/language was searched within each article.
    RESULTS: A total of 198 articles were sampled, of which 58.6 % were found to be not compliant with PCL guidelines. The most common non-PCL terms were \"obese\" utilized in 49.5 % of articles, followed by \"overweight\" as the next most common stigmatizing term at 40.4 %. Stigmatizing labels such as \"heavy, heavier, heaviness,\" \"fat\" as an adjective, and \"morbid\" appeared in articles but at a lower rate.
    CONCLUSIONS: Our study shows that there is a severe lack of adherence to PCL guidelines in the most-interacted sports medicine journals. Negative associations between stigmatizing language and individuals with obesity will only persist if a greater effort is not made to change this. All journals, including the most prestigious ones, should adopt and execute PCL guidelines to prevent the spread of demeaning language in the medical community.
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  • 文章类型: Journal Article
    背景:20多年前,药物和药物问题认知问卷(DDPPQ)旨在研究医疗服务提供者对使用药物的个人的态度和认知。与尊重该患者群体的推荐术语一致,使用以人为本的语言修订了20项措施。因此,这项研究旨在检查本科护生中以人为本的DDPPQ(PC-DDPPQ)版本的心理测量特性。
    方法:采用横截面设计,采用探索性和验证性因素分析来检验PC-DDPPQ因子结构。来自美国东北和中大西洋地区两所护理学校的400名学生的便利样本参与了这项研究。样本(N=400)在探索性因子分析(EFA)和验证性因子分析(CFA)之间平均分配。
    结果:在使用倾斜(Promax)旋转的主轴因子分解(PAF)后,全民教育产生了五个因素,20项结构,解释了70.0%的差异。CFA透露,最终的模型,源自全民教育,产生了19个项目,五因素结构充分拟合数据(比较拟合指数(CFI)=0.959,塔克-刘易斯指数(TLI)=0.951和近似均方根误差(RMSEA)=0.058)。
    结论:除一项(第14项)外,五因素结构与原始的20项版本保持一致。这项研究有助于促进在与使用药物的患者一起工作的医疗保健提供者中使用更合适且更少的污名化语言。
    More than 20 years ago, the Drug and Drug Problems Perception Questionnaire (DDPPQ) was developed to examine healthcare providers\' attitudes and perceptions towards individuals who use drugs. In alignment with recommended terminology respectful of this patient population, the 20-item measure was revised using person-centered language. Therefore, this study aimed to examine the psychometric properties of the person-centered DDPPQ (PC-DDPPQ) version among undergraduate nursing students.
    Exploratory and confirmatory factor analyses were used to examine the PC-DDPPQ factor structure using a cross-sectional design. A convenience sample of 400 students from two nursing schools located in the Northeast and Mid-Atlantic regions of the US participated in the study. The sample (N = 400) was divided equally between the exploratory factor analysis (EFA) and the confirmatory factor analysis (CFA).
    After applying principal axis factoring (PAF) with oblique (Promax) rotation, the EFA yielded a five-factor, 20-item structure that explained 70.0% of the variance. The CFA revealed that the final model, derived from the EFA, which yielded a 19-item, five-factor structure adequately fit the data (Comparative Fit Index (CFI) = 0.959, the Tucker-Lewis Index (TLI) = 0.951 and Root Mean Square Error of Approximation (RMSEA) = 0.058).
    Except for one item (item #14), the five-factor structure aligned with the original 20-item version. This study contributes to promoting the use of a more appropriate and less stigmatizing language among healthcare providers working with patients who use drugs.
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  • 文章类型: Journal Article
    背景:以人为中心的语言将一个人的身份置于他们可能患有的任何残疾或医疗状况之前。使用以人为本的语言减少了污名,改善了医患关系,可能优化健康结果。牛皮癣患者通常由于其慢性皮肤状况而感到污名化。
    目的:我们试图评估银屑病文献中以人为本语言的使用,并探讨某些文章特征是否与非以人为本语言相关。
    方法:我们在PubMed上进行了系统搜索,以查找最近发表在定期发表银屑病研究的期刊上的文章。在文章减少程序之后,随机化,和筛选,我们达到了400篇文章的目标样本。从每篇文章中提取以下非以人为本的语言术语:“牛皮癣患者,\“\”牛皮癣受试者,\"\"受影响,\"\"患者,\"\"患,\"\"背负着,\"\"患有,\"和\"的问题。“筛选和数据提取是以掩盖重复的方式进行的。
    结果:在包含的400篇文章中,根据美国医学协会风格手册,272(68%)不遵守以人为本的语言指南。最常见的非以人为本的语言术语是“牛皮癣患者,“在174篇(43.5%)文章中发现。污名化的语言与文章的类型和资金状况有关,原始调查和资助的研究具有较高的污名化语言的比率。
    结论:关于银屑病的文章通常使用非以人为本的语言术语。重要的是要摆脱对牛皮癣患者使用污名化语言,以避免潜在的不利影响。我们建议使用“牛皮癣患者”或“牛皮癣患者”来强调以人为本护理的重要性。
    Person-centered language places a person\'s identity before any disability or medical condition they may have. Using person-centered language reduces stigma and improves the patient-physician relationship, potentially optimizing health outcomes. Patients with psoriasis often feel stigmatized due to their chronic skin condition.
    We seek to evaluate the use of person-centered language in psoriasis literature and to explore whether certain article characteristics were associated with non-person-centered language.
    We performed a systematic search on PubMed for recently published articles in journals that regularly publish psoriasis studies. After article reduction procedures, randomization, and screening, we reached our target sample of 400 articles. The following non-person-centered language terms were extracted from each article: \"Psoriasis Patient,\" \"Psoriasis subject,\" \"Affected with,\" \"Sufferer,\" \"Suffering from,\" \"Burdened with,\" \"Afflicted with,\" and \"Problems with.\" Screening and data extraction occurred in a masked duplicate fashion.
    Of the 400 included articles, 272 (68%) were not adherent to person-centered language guidelines according to the American Medical Association Manual of Style. The most frequent non-person-centered language term was \"Psoriasis Patient,\" found in 174 (43.5%) articles. The stigmatizing language was associated with the type of article and funding status, with original investigations and funded studies having higher rates of stigmatizing language.
    Articles about psoriasis commonly use non-person-centered language terms. It is important to shift away from using stigmatizing language about patients with psoriasis to avoid potential untoward influences. We recommend using \"patients with psoriasis\" or \"patient living with psoriasis\" to emphasize the importance of person-centered care.
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  • 文章类型: Editorial
    患有物质使用障碍的父母受到多个系统的高度污名化(例如,healthcare,教育,legal,social).因此,他们更有可能经历歧视和健康不平等[1,2]。患有物质使用障碍的父母的孩子通常情况不佳,因为他们经常经历耻辱和不良结果的联想[3,4]。呼吁以人为中心的语言来解决酒精和其他毒品问题,这导致了术语的改进[5-8]。尽管污名化的历史由来已久,令人反感的标签,如“酗酒者的孩子”和“裂缝婴儿”,“儿童被排除在以人为本的语言倡议之外。患有物质使用障碍的父母的孩子可以感觉到看不见,可耻的,孤立的,和遗忘-特别是在治疗设置中,当编程集中在父母[9,10]。以人为中心的语言被证明可以改善治疗结果并减少污名[11,12]。因此,我们需要保持一致,当提到患有物质使用障碍的父母的孩子时,非污名化术语。最重要的是,我们必须集中那些有生活经验的人的声音和偏好,以制定有意义的变革和有效的资源分配。
    Parents with substance use disorders are highly stigmatized by multiple systems (e.g., healthcare, education, legal, social). As a result, they are more likely to experience discrimination and health inequities [1, 2]. Children of parents with substance use disorders often do not fare any better, as they frequently experience stigma and poorer outcomes by association [3, 4]. Calls to action for person-centered language for alcohol and other drug problems have led to improved terminology [5-8]. Despite a long history of stigmatizing, offensive labels such as \"children of alcoholics\" and \"crack babies,\" children have been left out of person-centered language initiatives. Children of parents with substance use disorders can feel invisible, shameful, isolated, and forgotten-particularly in treatment settings when programming is centered on the parent [9, 10]. Person-centered language is shown to improve treatment outcomes and reduce stigma [11, 12]. Therefore, we need to adhere to consistent, non-stigmatizing terminology when referencing children of parents with substance use disorders. Most importantly, we must center the voices and preferences of those with lived experience to enact meaningful change and effective resource allocation.
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  • 文章类型: Journal Article
    背景:注意缺陷/多动障碍(ADHD)是儿童最常见的神经发育障碍之一,通常未经治疗。治疗的主要障碍是围绕疾病的污名,包括教育界和科学界。以人为本的语言(PCL)与积极的健康结果相关,它的实施是由多个专业团体推荐的,但其使用尚未量化的ADHD。
    目的:本研究的目的是利用横断面研究设计量化ADHD相关期刊出版物对PCL的依从性。
    方法:我们进行了横断面检查,包括对PubMed,其中包括MEDLINE,对于2014年1月至2021年3月与ADHD相关的文章。具有至少20个与ADHD相关的搜索返回的所有期刊,人类研究,并且在英语中被包括在内,来自88种期刊的5308篇文章。文章是随机的,前500个被筛选为包含预先指定的,非PCL术语。排除后,保留了311篇文章。
    结果:在保留的311篇文章中,131(42.1%)遵守PCL指南。在非PCL的文章中,污名化的语言,如“与[/a]儿童或问题儿童的问题”和“患有”最常见-发生在47.6%(148/311)和5.8%(18/311)的文章中,分别。我们发现PCL依从性与研究特征之间没有显着关联。
    结论:我们的发现表明,目前超过一半的ADHD文献不符合PCL指南。科学和医学界对PCL的坚持将增加减轻污名的总体努力,并增加对ADHD患者的支持。
    Attention-deficit/hyperactivity disorder (ADHD) is one of the most common neurodevelopmental disorders in children and often goes untreated. A major barrier to treatment is the stigma surrounding the disorder, including from the educational and scientific community. Person-centered language (PCL) is associated with positive health outcomes, and its implementation is recommended by multiple professional groups, but its use has not been quantified for ADHD.
    The goal of this study is to quantify the adherence to PCL among ADHD-related journal publications utilizing a cross-sectional study design.
    We conducted a cross-sectional examination including a systematic search of PubMed, which encompasses MEDLINE, for ADHD-related articles from January 2014 to March 2021. All journals with at least 20 ADHD-related search returns, human research, and in the English language were included, totaling 5,308 articles from 88 journals. Articles were randomized, and the first 500 were screened for inclusion of prespecified, non-PCL terminology. After exclusion, 311 articles were retained.
    Of the 311 retained articles, 131 (42.1%) adhered to PCL guidelines. Among articles with non-PCL, stigmatizing language such as \"problem(s) with [the/a] child or problem child\" and \"suffers from\" was found most frequently- occurring in 47.6% (148/311) and 5.8% (18/311) of the articles, respectively. We found no significant association between PCL adherence and study characteristics.
    Our findings revealed that over half of the current ADHD literature did not adhere to PCL guidelines. Adherence to PCL by the scientific and medical community will increase the overall efforts to mitigate stigma and increase support for individuals with ADHD.
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  • 文章类型: Journal Article
    背景:截肢是骨科的常规手术,特别是在创伤期间和患者反复手术部位感染时。当接受截肢时,患者必须对抗与肢体丧失相关的社会心理因素,包括污名化。
    目的:本研究分析了顶级骨科期刊截肢相关骨科出版物中存在的以人为中心的语言(PCL)。
    方法:我们于2021年2月14日利用PubMed进行了横断面分析,并进行了数据库搜索。利用以前发布的搜索字符串,我们根据Googleh5指数分离了发表在前20名骨科期刊上的研究。除了前20名骨科轴颈,我们在搜索中纳入了前两名的手和脚和脚踝期刊,以纳入更多的截肢文献。我们的搜索产生了687个回报。然后将样本随机化,对符合我们纳入标准的前300项研究进行了预设的非PCL术语检查.
    结果:我们的结果表明,根据美国医学会风格手册第10版(AMAMS),有157项(52.2%)研究坚持PCL。在143项(47.7%)不遵守PCL的研究中,51项研究(35.7%)有一种以上的非PCL语言。术语“截肢者”,“被标记为身份第一语言(IFL),在101篇文章中发现(33.7%)。进一步调查发现,73.3%(74/101)的含有IFL的研究被发现具有其他非PCL术语。在样本中的其他研究中,发现非PCL的时间为34.7%(88/199)。进行此分析是由于“截肢者”一词的污名化存在差异。“PCL依从性和研究特征之间没有发现统计学关联。
    结论:我们的研究结果表明,顶级骨科期刊中的截肢文献对PCL的依从性有限。此外,术语“截肢者”的使用,“这被截肢界广泛接受,在骨科截肢文献中,非PCL术语的发生率更高。骨科应努力避免使用污名化的语言,关于接受截肢的人,尽量减少心理社会压力。
    Amputations are routine in orthopedics, specifically during trauma and when patients have recurrent surgical site infections. When undergoing amputations, patients must combat the psychosocial factors associated with the loss of an extremity, including stigmatization.
    This study analyzes the presence of person-centered language (PCL) within amputation-related orthopedic publications in the top orthopedic journals.
    We conducted a cross-sectional analysis with a database search on February 14, 2021 utilizing PubMed. Utilizing a previously published search string, we isolated studies that were published in the top 20 orthopedic journals based on the Google h5-index. In addition to the top 20 orthopedic journals, we included the top two hand and foot & ankle journals in our search to incorporate more amputation literature. Our search yielded 687 returns. The sample was then randomized, and the first 300 studies that fit our inclusion criteria were examined for prespecified non-PCL terminology.
    Our results show that 157 (52.2%) studies were adherent to PCL according to the American Medical Association\'s Manual of Style 10th Edition (AMAMS). Of the 143 (47.7%) studies that were not adherent to PCL, 51 studies (35.7%) had more than one type of non-PCL language. The term \"amputee,\" which is being labeled as identity-first language (IFL), was found in 101 articles (33.7%). Further investigation found that 73.3% (74/101) of the studies containing IFL were found to have other non-PCL terms. Of the other studies in the sample, non-PCL was found 34.7% (88/199) of the time. This analysis was done due to the discrepancies in stigmatization of the term \"amputee.\" No statistical association was found between adherence to PCL and study characteristics.
    Our findings show that amputation literature within the top orthopedic journals has limited adherence to PCL. Additionally, the use of the term \"amputee,\" which is widely accepted by the amputation community, resulted in a greater rate of non-PCL terminology within orthopedic amputation literature. Efforts should be implemented within orthopedics to avoid the use of stigmatizing language, regarding individuals that underwent amputations, to minimize psychosocial stressors.
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  • 文章类型: Journal Article
    镰状细胞病(SCD)是影响美国许多个体的终生疾病。正确管理SCD势在必行,然而,疼痛危机的不可预测性可能导致急诊(ED)就诊频繁.这种SCD特征通过临床环境中的标签和其他术语导致了与健康相关的污名化。可以通过医学研究翻译。因此,对于医学文献而言,坚持以人为本的语言(PCL)以减少此类污名进入临床环境非常重要。
    我们的目的是确定现有文献中与SCD个体相关的PCL的当前依从性。
    这是一项横断面设计研究。在2015年1月1日至2021年4月14日之间选择了使用人类参与者的SCD研究。两名调查人员在蒙面中进行了筛查和数据程序,重复的时尚,通过仲裁者解决冲突和差异。采用χ2检验、线性回归和逻辑回归进行数据分析。
    在排除社论和评论之后,保留了200篇文章。我们发现186种出版物(94%)坚持PCL。在非PCL的文章中,标签发生在2篇文章中(1%),情感语言暗示痛苦在10篇文章中(5%)。
    我们的研究表明,在最近的SCD文献中,PCL得到了广泛的坚持。然而,研究结果表明,教育和实践之间存在重大脱节,正如最近的出版物记录了ED中非PCL术语的使用。卫生保健提供者应意识到偏见,并应分配机构资源以提高认识。
    Sickle cell disease (SCD) is a lifelong illness affecting many individuals in the United States. Proper management of SCD is imperative, however, the unpredictability of pain crises may lead to frequent emergency department (ED) visits. This SCD feature has led to health-related stigmatization via labels and other terminology within clinical settings, which may be translated through medical research. Thus, it is important for medical literature to adhere to person-centered language (PCL) to diminish such stigmas from transcending into the clinical setting.
    Our aim was to determine current adherence to PCL related to individuals with SCD in existing literature.
    This was a cross-sectional design study. Published studies on SCD that used human participants were selected between January 1, 2015 and April 14, 2021. Two investigators performed screening and data procedures in a masked, duplicate fashion, with conflicts and discrepancies resolved via an arbiter. χ2 Tests and linear and logistic regressions were used for data analysis.
    After excluding editorials and commentaries, 200 articles were retained. We found that 186 publications (94%) adhered to PCL. Among articles with non-PCL, labeling occurred in 2 articles (1%) and emotional language implying suffering was identified in 10 articles (5%).
    Our study suggests a widespread adherence to PCL in recent SCD literature. However, findings suggest a major disconnect between education and practice, as recent publications document the use of non-PCL terminology within EDs. Health care providers should be aware of biases and institutional resources should be allocated toward raising awareness.
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  • 文章类型: Journal Article
    Opioid Use Disorder (OUD) affects approximately 1% of the population. Despite the prevalence of OUD, it remains a highly stigmatized disorder. Using person-centered language (PCL) - and thereby emphasizing the significance of the person rather than their diagnosis - is a potential strategy to reduce stigma in medical research related to addiction. Thus, we aimed to determine adherence to PCL in OUD-related publications according to the American Medical Association\'s guidelines.
    We performed a systematic search for articles published between January 1, 2016 through December 31, 2020 using the PubMed database. Articles were randomized and screened until we reached 300 articles that met inclusion criteria. Three-hundred articles were screened to meet this goal. Articles were then screened for non-PCL terms, determined a priori.
    The majority (240/300; 80 %) of OUD-related publications were not adherent to the AMA guidelines on PCL. Additionally, the use of emotional language (i.e. suffer, afflicted, etc.) was employed in 48 % (145/300) of articles. Stigmatizing terminology was found in 73 % (218/300) of the OUD related articles in this study. Our study demonstrated a statistically significant correlation between senior author affiliation and adherence to reporting guidelines (i.e., PRISMA, STROBE, etc.).
    A majority of OUD-related publications are not adherent to AMA guidelines on PCL. Language used in these publications is often repeated and replicated in medical education and clinical practice, which directly impacts patient-provider relationships. PCL-adherent language is a tool that both medical researchers and clinicians can use to combat stigma that individuals with OUD may experience.
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  • 文章类型: Journal Article
    BACKGROUND: Person-centered language (PCL) is the recommended method of addressing patients by the American Medical Association Manual of Style in medical research, thus requiring published manuscripts to be free of non-PCL. Although individuals, communities, and organizations have the autonomy to use non-PCL, it is imperative for medical researchers to use PCL in an effort to reduce the transfer of stigmatization into clinical practice.
    OBJECTIVE: To determine current adherence to PCL related to individuals with limb or digit amputations in scientific journals.
    METHODS: A cross-sectional analysis was performed by systematically searching PubMed from May 1, 2018 to April 30, 2020 for publications focused on amputations. Journals with less than 20 articles were excluded, and remaining publications were randomized, with the first 500 articles selected. Articles were screened for inclusion criteria, and data were extracted in masked, duplicate fashion, for predetermined non-PCL terms. A chi-squared test and logistic regression were used to quantify PCL adherence study characteristics.
    RESULTS: Of 500 articles, 81 were excluded, and 419 articles from 13 journals were examined-64.6% containing non-PCL. The most common non-PCL terms used were \"amputee\" in 148 articles and \"limb loss\" in 138 articles. PCL was significantly associated with article type, research funding, and journal requirements for PCL.
    CONCLUSIONS: Results indicate that one-third of research articles were PCL-adherent, which we speculate may contribute to the stigma that individuals with amputations experience. Our findings suggest that PCL adherence is higher among surgery research and lower among engineering and prosthetic research.
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