Abstract：
Systemic vasculitis encompasses a group of multisystem disorders; both the diseases and the treatment strategies can have a significant impact on a patient\'s health-related quality of life (HRQoL). Using patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) to evaluate the patient\'s view of their condition, treatments, and healthcare journey is essential to the patient-centered care approach. In this paper, we discuss the use of generic, disease-specific, and treatment-specific PROMs and PREMs in systemic vasculitis and future research goals.
摘要：
系统性血管炎包括一组多系统疾病；疾病和治疗策略都会对患者的健康相关生活质量（HRQoL）产生重大影响。使用患者报告的结果测量（PROM）和患者报告的经验测量（PREM）来评估患者对其状况的看法，治疗,医疗旅程对于以患者为中心的护理方法至关重要。在本文中,我们讨论泛型的使用，疾病特异性,以及系统性血管炎中治疗特异性PROMs和PREMs和未来的研究目标。
