背景技术尽管可穿戴设备在全球范围内的使用越来越多,这些仪器在全身性自身免疫性风湿性疾病患者中的简明数据,包括特发性炎症性肌病(IIM)和原发性系统性血管炎(PSV),缺乏。目的本研究的目的是调查可穿戴设备的知识和使用情况,并评估其对IIM和PSV患者总体生活质量的影响。此外,我们比较了IIM和PSV用户与非可穿戴设备用户患者的这些特征.方法这种单中心,横断面研究于2023年1月至2023年6月进行.我们纳入了IIM和PSV的成年患者和对照组(CTR),并评估了他们对手机和可穿戴设备的使用情况,体力活动水平,和生活质量。结果共132例IIM患者,82与PSV,和178的CTR进行了评估。总的来说,169名患者和144名CTR患者知道可穿戴设备,其中50人(29.6%)和47人(32.6%),分别,已经使用了这项技术。此外,IIM和PSV组的IPAQ-Mets和EQ-5D评分低于CTR,IIM和PSV组的疲劳严重程度量表(FSS)评分高于CTR。使用这些设备的患者的FSS评分为29分(18-40分),设备用户中IPAQ-Mets的级别更高,表明身体活动比非使用者更大。结论根据结果,可穿戴设备的使用与更好的疲劳和IPAQ评分相关。可能,这些设备的使用会对这些患者更好的生活习惯产生影响。
Background Despite the increasing use of wearable devices worldwide, concise data on these instruments in patients with systemic autoimmune rheumatic diseases, including idiopathic inflammatory myopathies (IIM) and primary systemic vasculitis (PSV), are lacking. Objectives The aim of this study is to investigate the knowledge and use of wearable devices and to assess their impact on the general quality of life of patients with IIM and PSV. Moreover, we compared these characteristics between patients with IIM and PSV users and non-users of wearable devices. Methods This single-center, cross-sectional study was conducted between January 2023 and June 2023. We included adult patients with IIM and PSV and a control group (CTR) and evaluated their use of cell phones and wearables, level of physical activity, and quality of life. Results A total of 132 patients with IIM, 82 with PSV, and 178 in the CTR were evaluated. Overall, 169 patients and 144 in the CTR were aware of wearable devices, of whom 50 (29.6%) and 47 (32.6%), respectively, had already used this technology. In addition, the IPAQ-Mets and EQ-5D scores were lower in the IIM and PSV groups than in the CTR, and the fatigue severity scale (FSS) scores were higher in the IIM and PSV groups than in the CTR. Patients who used the devices showed FSS scores of 29 (18-40) points, with higher levels of IPAQ-Mets among device users, indicating greater physical activity than among nonusers. Conclusion Based on the results, the use of wearable devices is associated with better fatigue and IPAQ scores. Possibly, the use of such devices can have an impact on better lifestyle habits among these patients.