{Reference Type}: Journal Article
{Title}: Patient-reported outcomes in vasculitis.
{Author}: Crawshaw H;Janagan S;Austin K;Baker C;Day J;Robson JC;
{Journal}: Best Pract Res Clin Rheumatol
{Volume}: 37
{Issue}: 1
{Year}: 2023 03 3
{Factor}: 4.991
{DOI}: 10.1016/j.berh.2023.101829
{Abstract}: Systemic vasculitis encompasses a group of multisystem disorders; both the diseases and the treatment strategies can have a significant impact on a patient's health-related quality of life (HRQoL). Using patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) to evaluate the patient's view of their condition, treatments, and healthcare journey is essential to the patient-centered care approach. In this paper, we discuss the use of generic, disease-specific, and treatment-specific PROMs and PREMs in systemic vasculitis and future research goals.