support network

支持网络
  • 文章类型: Journal Article
    在COVID-19大流行期间,育儿受到了巨大挑战,因为家庭出于卫生和社会原因遵守了随之而来的遏制措施。这项研究的目的是探索自我报告措施(共同父母,情感体验和父母支持网络)和就业条件(远程工作的父母和有政府休假援助的家庭父母)可能与日常生活变化有关,以及他们在第一次COVID-19封锁期间对家庭日常生活的贡献。878名父母(90.2%的母亲)的样本,21至61岁(39.58±6.08),主要是葡萄牙国籍(97.2%),是通过在线调查收集的。参与者完成了社会人口统计数据,并回答了与四个积极育儿维度相关的问题(日常,共同育儿,情感体验,和支持网络)在5点的李克特量表上对他们的行为在封锁期间发生了多少变化进行评级。测试了描述性统计和多元线性回归模型以及中介模型。结果表明,情感体验,共同育儿,和支持网络在家庭日常生活中发挥了重要作用,强化了第一次COVID-19封锁是由父母根据他们的就业条件而生活的。此外,与父母适应性相关的因素通路模型提示,情绪体验对日常生活的直接影响部分是由共同育儿和支持网络介导的。与以往关于育儿的复杂性和动态生态学的研究一致,报告的指标展示了育儿的相互关联的方面及其相应的支持需求。Further,讨论了设计家庭支持干预措施和增强家庭对压力源事件的弹性的明确指标。
    Parenting was drastically challenged during the COVID-19 pandemic as families complied with the consequent containment for sanitary and social reasons. The purpose of this study is to explore the relationships among self-report measures (co-parenting, emotional experience and parental support network) and the employment condition (teleworking parents and at-home parents with governmental leave aid) that might be associated with the everyday life change, and their contribution towards family\'s daily routines during the first COVID-19 lockdown. A sample of 878 parents (90.2% mothers), aged from 21 to 61 years (39.58 ± 6.08), and mainly of Portuguese nationality (97.2%), was gathered through an online survey. Participants completed sociodemographic data and answered questions related to four positive parenting dimensions (Daily routines, Co-parenting, Emotional experience, and Support network) rating on a five-point Likert scale how much their behavior changed during the lockdown. Descriptive statistics and multilinear regression models were tested as well as a mediation model. The results showed that Emotional experience, Co-parenting, and Support network played an important role in family Daily routines, reinforcing that the first COVID-19 lockdown was lived differently by parents according to their employment conditions. Furthermore, the pathways model of factors associated with parental adaptability is suggestive that the direct effect of Emotional experience on Daily routines is partially mediated by Co-parenting and Support network. In line with previous studies on the complexity and dynamic ecology of parenting, the reported indicators showcase the interrelated facets of parenting and its corresponding support needs. Further, clear indicators for the design of family support interventions and family resilience enhancement to stressor events are discussed.
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  • 文章类型: Journal Article
    本文介绍了DataDomotopia一项2300多名受访者自我管理的基于网络的调查。它包括100多个关于在一个移动的世界中的家居制造和静止的多用途项目。我们认为家庭制作可以揭示应对策略和韧性实践,使日常生活工作-因为家庭是人们活动旅行模式的中心位置。为了描述这种现象,引入了Domotopia的概念,定义人们如何安排,使用,并体验他们的家园,以应对加速和液体现代性的病症(鲍曼2005)。虽然DataDomotopia基于定性和定量材料相结合的混合方法,本文主要关注问卷的描述-问卷分为三个相互关联的层:住宅,居民,和邻居。这些层中的每一层都在功能上展开,社会,情感和感官成分。该调查涵盖了与家居相关的大多数当代问题。这包括国内空间和性别问题;社会空间资源(流动性,动作空间,核心,和更广泛的社交网络);生活方式,理想,和居住愿望;时间压力,时间使用,组织和压力;设备,规则和安排;人际关系,同居和谈判,支配和权力。关于习惯性动作空间的时空覆盖的两个具体案例给出了数据的摄入,以及个人任务分配。这些示例显示了数据在研究以中心为中心的静止和对城市病理的复原力方面的潜力。汇总到社区以下水平的数据可用于研究目的。
    This paper describes the Data Domotopia a 2300 + respondent self-administered web-based survey. It includes 100 + multi-purpose items about home-making and stillness in a moving world. We suppose that home-making can reveal coping strategies and resilience practices to make everyday life work - as home is a central location in people\'s activity-travel patterns. To describe this phenomenon, the concept of Domotopia is introduced, defining how people arrange, use, and experience their homes to cope with the pathologies of accelerated and liquid modernity (Bauman 2005). While the Data Domotopia is based on a mixed-method combining qualitative and quantitative material, this paper focuses mainly on the description of the questionnaire - which is organized into three interrelated layers: the dwelling, the dwellers, and the neighborhood. Each of these layers unfolds in functional, social, emotional and sensory components. The survey covers most of the contemporary issues related to home-making. This includes the domestic space and gender issues; the socio-spatial resources (mobility, action space, core, and wider social network); lifestyles, ideals, and residential aspiration; time pressures, time use, organization and stress; equipment, rules and arrangements; interpersonal relations, cohabitation and negotiation, dominance and power. Intakes on the Data Domotopia is given by two concrete cases about the time-space coverage of the habitual action space, and about inter-personal task allocation. These examples show the potential of the data to study domocentric stillness and resilience to urban pathologies. The data - aggregated to the infra-communal level - is available for research purposes.
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  • 文章类型: Journal Article
    在国外实习期间,医疗保健学生面临着不同的个人和职业挑战,与参与实践有关。这项研究调查了学生何时以及如何应对这些挑战,以及学生使用哪些应对和支持机制来克服这些问题。
    25名国际学生分享了他们在荷兰进行物理治疗的经验。使用关键事件技术,我们要求参与者回顾参与受到不可预见情况影响的事件,在诊所内外。Further,我们探索了学生在社交网络中寻求支持以克服个人挑战的策略。两名研究人员将主题分析应用于访谈数据,遵循迭代方法。小组讨论支持数据收集和分析的重点方向,在概念化结果之前。
    与会者描述了广泛的挑战。挑战的范围和影响程度差异很大,包括文化差异,语言障碍和工作场所的不当行为,学生的个人背景和福祉。学生用来克服这些挑战的机制取决于事件的类型(个人或专业),有目的地使用他们可用的网络。
    学生涉及临床工作人员,同行,在国外安置期间的家人和朋友,故意利用他们的支持网络来克服参与方面的挑战,而学术网络仍然遥不可及。研究结果可能有助于反思学术人员和其他参与海外实习的专业人士的角色和责任。医疗保健计划应确保之前的支持,在安置期间和之后,学生可以接触到。
    During placements abroad, healthcare students are confronted with different personal and professional challenges, related to participation in practice. This study investigates when and how students respond to such challenges, and which coping and support mechanisms students use to overcome these.
    Twenty-five international students shared their experiences about physiotherapy placement in The Netherlands. Using a critical incident technique, we asked participants to recall events where participation was affected by an unforeseen situation, in or outside the clinic. Further, we explored students\' strategies of seeking support within their social network to overcome individual challenges. Two researchers applied thematic analysis to the interview data, following an iterative approach. Team discussions supported focused direction of data collection and analysis, before conceptualizing results.
    Participants described a wide range of challenges. The scope and impact level of challenges varied widely, including intercultural differences, language barriers and inappropriate behaviour in the workplace, students\' personal context and wellbeing. Mechanisms employed by students to overcome these challenges depended on the type of event (personal or professional), making purposeful use of their available network.
    Students involve clinical staff, peers, family and friends during placement abroad, to make deliberate use of their support network to overcome challenges in participation, whereas the academic network remains distant. Findings may help reflect on the roles and responsibilities of academic staff and other professionals involved with placements abroad. Healthcare programmes should ensure support before, during and after placement is within students\' reach.
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  • 文章类型: Journal Article
    背景:护理带来的巨大身心负担使被诊断患有晚期癌症的患者的亲密伴侣面临精神障碍的风险。然而,大多数伴侣似乎都受到韧性的保护。这样的复原过程是由某些个体特征(例如,灵活性,积极的态度,内部强度,平衡传入和传出信息的能力,以及请求和接受支持和建议的能力),以及支持网络的可用性,由家庭组成,朋友,和医疗保健专业人员。这样一个努力实现相同目标的异构群体可以被认为是一个复杂的自适应系统(CAS),源于复杂性科学的概念。
    目的:通过复杂性科学的视角研究支持网络的行为,并为可用网络可能促进弹性的手段提供见解。
    方法:使用CAS原则作为编码框架,对来自八个亲密伴侣的支持网络的成员进行了19次访谈,进行了演绎分析。随后,每个原则下的报价都是归纳编码的,以具体化支持网络的行为模式。最终,代码被绘制成一个矩阵,以识别CAS内和CAS间的相似性,差异,和模式。
    结果:随着患者预后恶化,网络的行为会动态适应不断变化的环境。此外,该行为基于内化的基本规则(例如确保可用性和保持通信而不具有侵入性),吸引子(例如,感觉有意义,赞赏,或已连接),以及支持网络的历史。然而,交互是非线性的,并且由于上下文成员自己的关注而往往是不可预测的,需要,或情绪。
    结论:将复杂性科学的视角应用于亲密伴侣的支持网络的行为,可以让我们深入了解网络的行为模式。的确,支持网络是一个动态系统,根据CAS的原则行事,并随着患者预后恶化而适应不断变化的环境。此外,支持网络的行为似乎促进了亲密伴侣在整个患者护理期间的复原过程。
    BACKGROUND: The tremendous physical and mental burden that comes with caregiving puts the intimate partners of patients diagnosed with advanced cancer at risk for mental disorders. However, most partners seem to be protected by resilience. Such a resilience process is promoted by certain individual characteristics (e.g., flexibility, positive attitude, internal strength, capacity to balance incoming and outgoing information, and ability to ask for and accept support and advice) and by the availability of a support network, consisting of family, friends, and healthcare professionals. Such a heterogeneous group striving towards the same goals can be considered a complex adaptive system (CAS), a concept stemming from complexity science.
    OBJECTIVE: To study the behavior of the support network through the lens of complexity science and to provide insights to the means by which an available network may promote resilience.
    METHODS: Nineteen interviews with members from the support networks of eight intimate partners were analyzed deductively using the CAS principles as a coding framework. Subsequently, the quotes under each principle were coded inductively to concretize patterns in the behavior of the support networks. Eventually, the codes were charted into a matrix to identify intra- and inter-CAS similarities, differences, and patterns.
    RESULTS: The network\'s behavior adapts dynamically to the changing circumstances as the patient\'s prognosis worsens. Furthermore, the behavior is based on internalized basic rules (such as reassuring availability and maintaining communication without being intrusive), attractors (e.g., feeling meaningful, appreciated, or connected), and the history of the support network. However, the interactions are non-linear and often unpredictable due to the context member\'s own concerns, needs, or emotions.
    CONCLUSIONS: Applying the lens of complexity science to the behavior of an intimate partner\'s support network gives us insight into the network\'s behavioral patterns. Indeed, a support network is a dynamic system that behaves according to the principles of a CAS and adapts resiliently to the changing circumstances as the patient\'s prognosis worsens. Moreover, the behavior of the support network appears to promote the intimate partner\'s resilience process throughout the patient\'s care period.
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  • 文章类型: Journal Article
    这篇文章描述了作者如何,亨廷顿病(HD)基因扩增载体和长期倡导者,通过他的博客帮助高清社区发声,有亨廷顿病的风险。自2005年以来,这318篇文章帮助记录了生活在基因检测结果和疾病发作之间的灰色地带的新的痛苦经历。有风险的HD已经探索了HD社区的主要挑战,已经成为高清家庭的关键参考,并记录了战胜这种疾病的探索。本文分析了博客的主题影响。
    This article describes how the author, a Huntington\'s disease (HD) gene expansion carrier and long-time advocate, has helped give voice to the HD community through his blog, At Risk for Huntington\'s Disease. Since 2005, the 321 articles have helped document the new and harrowing experience of living in the gray zone between a genetic test result and disease onset. At Risk for HD has explored major challenges for the HD community, has become a key reference for HD families, and has chronicled the quest to defeat the disease. This article analyzes the blog\'s thematic impact.
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  • 文章类型: Journal Article
    背景:对痴呆症患者的非正式护理不仅会影响主要照顾者的福祉,还会改变他们的角色以及与社会环境的互动。新的在线干预措施可能有助于获得社会支持。最近,一个在线社交支持平台,Inlife,是在荷兰开发的,旨在加强非正式支持网络中的社会支持和积极互动。
    目的:本研究旨在评估Inlife对痴呆症患者照顾者的有效性。
    方法:对96名痴呆患者照顾者进行了一项随机对照试验。参与者被随机分配到Inlife干预或等待列表对照组。Inlife使用16周后,等待列表控制组可以开始使用Inlife。在基线(T0)评估效果,8周(T1),和16周(T2)。16周随访评估(T2)作为主要终点,用于评估通过在线自我报告问卷评估的主要和次要结果变量的结果。主要结果包括对护理人员能力的感受和感知的社会支持。次要结果包括获得支持,孤独的感觉,心理抱怨(例如,焦虑,stress),和生活质量。
    结果:在主要结局方面,干预组(n=48)相对于对照组(n=48)没有显着改善(护理能力感:b=-0.057,95%CI-0.715至0.602,P=.87;感知社会支持:b=-15.877,95%CI-78.284至46.530,P=.62)或任何次要结局。这与我们的定性发现形成鲜明对比,这些发现表明Inlife具有促进日常生活中护理过程的潜力。对于所有Inlife用户来说,坚持并不是最佳的。额外的符合方案和敏感性分析也显示,对于高活跃的Inlife用户或特定亚组,没有有益的结果。当成为更大网络的一部分时,Inlife用户更加活跃。
    结论:研究人员在幸福感和生活质量的定量指标方面,对在线护理人员干预的有效性应保持适度。然而,在线工具有可能促进日常生活中的照顾者过程。吸取的经验教训包括在电子健康中利用人类互动力量的重要性,利用用户的社会资本,以及需要开发研究方法,以确定对护理人员在生态上有效的日常生活中的益处。
    背景:荷兰试验注册NTR6131;https://trialsearch。谁。int/Trial2。aspx?试验ID=NTR6131。
    未经批准:RR2-10.1186/s13063-017-2097-y。
    BACKGROUND: Informal care for people with dementia not only affects the well-being of the primary caregiver but also changes their roles and interactions with the social environment. New online interventions might facilitate access to social support. Recently, an online social support platform, Inlife, was developed in the Netherlands and aims to enhance social support and positive interactions in informal support networks.
    OBJECTIVE: This study aimed to evaluate the effectiveness of Inlife for caregivers of people with dementia.
    METHODS: A randomized controlled trial with 96 caregivers of people with dementia was performed. Participants were randomly assigned to the Inlife intervention or the waiting list control group. After 16 weeks of Inlife use, the waiting list control group could start using Inlife. Effects were evaluated at baseline (T0), 8 weeks (T1), and 16 weeks (T2). The 16-week follow-up assessment (T2) served as the primary endpoint to evaluate the results for the primary and secondary outcome variables evaluated with online self-report questionnaires. The primary outcomes included feelings of caregiver competence and perceived social support. The secondary outcomes included received support, feelings of loneliness, psychological complaints (eg, anxiety, stress), and quality of life.
    RESULTS: No significant improvements were demonstrated for the intervention group (n=48) relative to the control group (n=48) for the primary outcomes (feeling of carer competence: b=-0.057, 95% CI -0.715 to 0.602, P=.87; perceived social support: b=-15.877, 95% CI -78.284 to 46.530, P=.62) or any secondary outcome. This contrasts with our qualitative findings showing the potential of Inlife to facilitate the care process in daily life. Adherence was not optimal for all Inlife users. Additional per-protocol and sensitivity analyses also revealed no beneficial results for high active Inlife users or specific subgroups. Inlife users were more active when part of a larger network.
    CONCLUSIONS: Researchers should be modest regarding the effectiveness of online caregiver interventions in terms of quantitative measures of well-being and quality of life. Nevertheless, online tools have the potential to facilitate the caregiver process in daily life. Lessons learned include the importance of harnessing the power of human interaction in eHealth, making use of the user\'s social capital, and the need to develop research methods that can identify benefits in daily life that are ecologically valid for caregivers.
    BACKGROUND: Netherlands Trial Register NTR6131; https://trialsearch.who.int/Trial2.aspx?TrialID=NTR6131.
    UNASSIGNED: RR2-10.1186/s13063-017-2097-y.
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  • 文章类型: Journal Article
    Advocates for re-localizing food systems often encourage consumers to support local farmers and strengthen local food economies. Yet, local food systems hinge not only on consumers\' willingness to buy local food but also on whether farmers have the social support networks to address diverse challenges during food production and distribution. This study characterizes the challenges and support systems of farmers selling to local markets in Québec, Canada, across multiple growing seasons using a mixed-methods research design. We sent an online questionnaire to 1046 farmers and conducted follow-up interviews with 15 of the 133 respondents. Our findings show that farmers relied on an average of four support actor groups, particularly employees, customers, and other farmers. Actors played distinct roles in terms of the importance, frequency, and formality of interactions, providing immediate and long-term support through formal and informal relationships across multiple spatial scales (farm, local community, and regional/international). Our thematic analysis showed that support actors helped farmers in four key domains: (1) Knowledge sharing and emotional support; (2) Labour and workforce; (3) Material and financial aid; and (4) Consumer education and business promotion. Farmer associations provided resources to tackle various challenges, acting as bridges across multiple support actor groups. Yet, our results suggest that political desires to encourage local food systems are in some cases poorly matched with resources to address specific types of challenges farmers face. Specifically, overlooking the role of diverse social support actors in helping farmers build food production and distribution capacity could undermine efforts to foster localization.
    UNASSIGNED: The online version contains supplementary material available at 10.1007/s10460-022-10343-0.
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  • 文章类型: Journal Article
    背景:青少年移植患者在遭受与疾病相关的社会隔离期间,移植物丢失的风险增加,COVID-19大流行加剧了这种情况。同行指导计划(PMP),2018年开发,由于COVID-19,2020年被改编为虚拟格式。我们的目标是评估可接受性,实用程序,以及PMP的面对面和虚拟版本对参与者的潜在影响。
    方法:我们对参与PMP的患者的经验进行了会聚混合方法分析,以提高质量。
    结果:向18名当前计划参与者发送了调查和焦点小组邀请,17名患者接受调查,13名患者参与焦点小组。在这项研究中,82%的人感到满意,88%的人会推荐PMP;76%的人将其他PMP成员视为他们希望保持联系的人。定性分析揭示了三个主题:(1)同伴的支持性社区,(2)减少隔离,和(3)从提供者处接收准确的信息。
    结论:在过渡到成年的青少年移植患者中,迫切需要更大的同伴支持,特别是与COVID-19相关的隔离增加。虚拟适应可能是一个重要的,对面对面活动的永久补充。
    BACKGROUND: Adolescent transplant patients are at increased risk for graft loss at a period when they also suffer from illness-related social isolation, which has been exacerbated by the COVID-19 pandemic. The Peer Mentoring Program (PMP), developed in 2018, was adapted to a virtual format in 2020 due to COVID-19. Our objective is to evaluate the acceptability, utility, and potential impact of the in-person and virtual versions of the PMP on participants.
    METHODS: We performed convergent mixed-methods analysis of the experiences of patients participating in the PMP for quality improvement purposes.
    RESULTS: Surveys and focus group invitations were sent to 18 current program participants, with 17 patients responding to the survey and 13 patients participating in focus groups. In this study, 82% were satisfied and 88% would recommend PMP; 76% identified other PMP members as people they would like to keep in touch with. Qualitative analysis revealed three themes: (1) a supportive community of peers, (2) reduced isolation, and (3) receiving accurate information from providers.
    CONCLUSIONS: There is a prominent need for greater peer support among adolescent transplant patients transitioning to adulthood, especially with the increased isolation associated with COVID-19. The virtual adaptation could be an important, permanent supplement to in-person events.
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  • 文章类型: Systematic Review
    在当前的职业格局和劳动力市场中,职业转型已成为职业发展的一个重要方面,对人力资源开发(HRD)的研究和实践具有重要意义。我们的研究检查了在不同职业过渡期间使用的支持类型,以及谁可以为职业过渡中的女性提供支持。我们调查了四种类型的社会支持-情感,评估,信息性,和工具性-以及它们在五种类型的职业过渡中的作用:从学校到工作的过渡,向上流动过渡,过渡到一个新的职业,向创业过渡,职业生涯重新进入过渡,过渡到退休。我们使用定向内容分析分析了80篇期刊文章,交叉制表,和非参数统计检验。工具支持似乎是这种职业过渡文献中最常见的社会支持类型。对于每种类型的职业过渡,评估支持的记录始终最少。我们的结果可能凸显了人际关系和内部资源在女性成功的职业转型中的重要性。根据我们的发现,我们为女性职业转型提供了一个社会支持网络模型,并倡导为预期和职业转型期间的女性扩大社会支持网络。我们的研究结果包含了如何支持女性过渡到下一个职业经历的见解。最后,我们对未来的研究提出了建议。
    In the current career landscape and labor market, career transitions have become a critical aspect of career development and are significant for Human Resource Development (HRD) research and practice. Our research examines the type of support used during different career transitions and who can provide that support to women in career transition. We investigated four types of social support-emotional, appraisal, informational, and instrumental-and their roles in five types of career transitions: school-to-work transition, upward mobility transition, transition to a new profession, transition to entrepreneurship, career re-entry transition, and transition to retirement. We analyzed 80 journal articles using directed content analysis, cross-tabulation, and nonparametric statistical tests. Instrumental support appears to be the most commonly documented type of social support in this career transition literature. Appraisal support was consistently documented least for each type of career transition. Our results may highlight the importance of personal connections and internal resources in successful career transitions for women. Based on our findings, we offer a model of women\'s social support network for career transitions and advocate for expanded networks of social support for women anticipating and during career transitions. The results of our study contain insights for how women can be supported in transitioning to the next career experience. We conclude with suggestions for future research.
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  • 文章类型: Journal Article
    丙型肝炎(HCV)感染在美国郊区和农村地区一直在上升,主要通过基于注入的传输。注射和性网络被认为是促进和预防危险行为的重要因素;然而,社会支持网络的作用受到的关注有所减少。
    使用来自正在进行的纵向研究的基线数据,我们检查了注射药物使用(IDU)的组成和结构,性别,以及注射毒品的年轻人(18-30岁)及其注射网络成员的社会支持网络。Lassologistic回归用于选择网络特征的子集,这些特征是注射风险行为和HCV暴露的潜在重要预测因素。
    IDU的几个措施,性,并发现支持网络结构和组成与HCV暴露有关,接受式注射器共享(RSS),和辅助设备共享。性别和性关系是所有危险行为的重要因素。支持网络特征也很重要,特别包括大多数西班牙裔支持网络对RSS和HCV暴露的保护作用。IDU网络居住异质性和支持网络地理都与注入设备共享有关。
    IDU和支持网络地理与设备共享的关联强调了将减少伤害的努力扩展到城市地区以外的必要性。更好地了解支持网络对风险行为的影响可能会提供重要的见解,以加强减少伤害的好处。在考虑HCV传播的可能性时,重要的是要考虑促进风险传播的设置和网络结构。
    Hepatitis C (HCV) infection has been rising in the suburban and rural USA, mainly via injection-based transmission. Injection and sexual networks are recognized as an important element in fostering and preventing risky behavior; however, the role of social support networks has received somewhat less attention.
    Using baseline data from an ongoing longitudinal study, we examined the composition and structure of injection drug use (IDU), sex, and social support networks of young people who inject drugs (aged 18-30) and their injection network members. Lasso logistic regression was used to select a subset of network characteristics that were potentially important predictors of injection risk behaviors and HCV exposure.
    Several measures of IDU, sexual, and support network structure and composition were found to be associated with HCV exposure, receptive syringe sharing (RSS), and ancillary equipment sharing. Gender and sexual relationships were important factors for all risk behaviors. Support network characteristics were also important, notably including a protective effect of majority Hispanic support networks for RSS and HCV exposure. Both IDU network residence heterogeneity and support network geography were associated with injection equipment sharing.
    The associations of IDU and support network geography with equipment sharing highlight the need to extend harm reduction efforts beyond urban areas. Greater understanding of support network influences on risk behavior may provide important insights to strengthen the benefits of harm reduction. In considering the probability of HCV transmission, it is important to consider setting and network structures that promote propagation of risk.
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