spouse

配偶
  • 文章类型: Journal Article
    先前的研究已经确定了许多因素,这些因素会增加个人发展问题赌博的可能性,临床诊断为赌博障碍(GD),在一般应变理论(GST)的框架下,其中大多数将被犯罪学家确定为“应变”。这项研究利用来自GST的命题来确定来自另一个人的赌博的压力是否可能与人们发展GD的原因以及性别是否是这种关系的调节因素有关。分析次要数据以评估个体从另一个人的赌博行为中经历的应变水平,它与个人赌博障碍风险的关系,性别在这种关系中扮演的角色。研究结果表明,亲密关系的人的赌博问题与赌博障碍之间的关系。从被视为问题赌徒的配偶/伴侣经历压力与同样患有赌博障碍的个人具有最强的相关性。考虑到性别是一个调节因素,这种影响对男性比女性更强,质疑人们坚信,主要是女性赌博来逃避问题。
    Prior research has identified a host of factors that increase the likelihood that an individual will develop problem gambling, clinically diagnosed as Gambling Disorder (GD), most of which would be identified by criminologists as \"strains\" under the framework of General Strain Theory (GST). This study utilizes propositions from GST to determine whether strain from another person\'s gambling may be related to why people develop GD and whether gender is a moderating factor in this relationship. Secondary data is analyzed to assess levels of strain individuals experience from another person\'s gambling behavior, its relationship to the individual\'s risk of Gambling Disorder, and the role gender plays in this relationship. Findings demonstrate a relationship between the strain from the perceived problem gambling of someone with a close relationship and having a gambling disorder. Experiencing strain from a spouse/partner who is perceived as a problem gambler has the strongest correlation with an individual also having Gambling Disorder. Considering gender as a moderating factor, this effect was stronger on men than women, calling into question the strong belief that it is primarily women who gamble to escape problems.
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  • 文章类型: Journal Article
    背景:研究已经确定了恋爱关系对个体发病率和死亡率的影响。然而,关系运作之间的相互作用,情感过程,健康行为研究相对不足。在COVID-19大流行期间,关系过程可能会影响新的健康行为,如社交距离和掩蔽。
    目的:我们描述了设计,招募,以及关系的方法,风险认知,以及COVID-19大流行研究期间与癌症相关的行为。这项研究旨在了解关系和情感过程如何影响浪漫伴侣参与癌症预防行为以及COVID-19大流行引入或加剧的健康行为。
    方法:关系,风险认知,在COVID-19大流行研究期间,癌症相关行为使用在线调查方法招募和招募2组参与同居浪漫关系的个体,包括1组成组(n=223)和1组癌症幸存者(n=443)。调查评估在平均间隔5.57(SD3.14)周的2个时间点完成。评估的健康行为包括COVID-19疫苗接种和社交距离,身体活动,饮食,睡眠,酒精使用,和吸烟行为。我们还检查了关系因素,心理困扰,家庭混乱。
    结果:数据收集发生在2021年10月至2022年8月之间。在此期间,共有926名参与者参加,其中约三分之二来自英国(n=622,67.8%),三分之一来自美国(n=296,32.2%);约三分之二已婚(n=608,66.2%),三分之一是未婚夫妇(n=294,32%).在队列1和2中,平均年龄分别约为34岁和50岁。在队列1的478名参与者中,有19名(4%)被确定为西班牙裔或拉丁裔/a,79(17%)为非西班牙裔亚洲人,40(9%)是非西班牙裔黑人或非裔美国人,和306(64%)为非西班牙裔白人;62(13%)参与者确定他们的性取向为双性恋或泛性,359(75.1%)为异性恋或异性恋,和53(11%)为同性恋。在队列2中,在440名参与者中,13(3%)被确定为西班牙裔或拉丁裔/a,8(2%)为非西班牙裔亚洲人,5(1%)是非西班牙裔黑人或非裔美国人,和398(90.5%)为非西班牙裔白人;41(9%)参与者确定他们的性取向为双性恋或泛性,384(87.3%)为异性恋或异性恋,13(3%)是同性恋。个人的总体入学率为66.14%,总体完成率为80.08%。
    结论:我们讨论了收集在线调查数据的最佳实践,用于研究人际关系和健康,与COVID-19大流行有关的挑战,招募代表性不足的人口,和二元组的注册。建议包括进行试点研究,为边缘化或服务不足的人群提供额外的数据收集时间,盈余筛选,以说明二元组合内的预期减员,以及计划dyad特定的数据质量检查。
    DERR1-10.2196/48516。
    BACKGROUND: Research has established the effects of romantic relationships on individuals\' morbidity and mortality. However, the interplay between relationship functioning, affective processes, and health behaviors has been relatively understudied. During the COVID-19 pandemic, relational processes may influence novel health behaviors such as social distancing and masking.
    OBJECTIVE: We describe the design, recruitment, and methods of the relationships, risk perceptions, and cancer-related behaviors during the COVID-19 pandemic study. This study was developed to understand how relational and affective processes influence romantic partners\' engagement in cancer prevention behaviors as well as health behaviors introduced or exacerbated by the COVID-19 pandemic.
    METHODS: The relationships, risk perceptions, and cancer-related behaviors during the COVID-19 pandemic study used online survey methods to recruit and enroll 2 cohorts of individuals involved in cohabiting romantic relationships, including 1 cohort of dyads (n=223) and 1 cohort of cancer survivors (n=443). Survey assessments were completed over 2 time points that were 5.57 (SD 3.14) weeks apart on average. Health behaviors assessed included COVID-19 vaccination and social distancing, physical activity, diet, sleep, alcohol use, and smoking behavior. We also examined relationship factors, psychological distress, and household chaos.
    RESULTS: Data collection occurred between October 2021 and August 2022. During that time, a total of 926 participants were enrolled, of which about two-thirds were from the United Kingdom (n=622, 67.8%) and one-third were from the United States (n=296, 32.2%); about two-thirds were married (n=608, 66.2%) and one-third were members of unmarried couples (n=294, 32%). In cohorts 1 and 2, the mean age was about 34 and 50, respectively. Out of 478 participants in cohort 1, 19 (4%) identified as Hispanic or Latino/a, 79 (17%) as non-Hispanic Asian, 40 (9%) as non-Hispanic Black or African American, and 306 (64%) as non-Hispanic White; 62 (13%) participants identified their sexual orientation as bisexual or pansexual, 359 (75.1%) as heterosexual or straight, and 53 (11%) as gay or lesbian. In cohort 2, out of 440 participants, 13 (3%) identified as Hispanic or Latino/a, 8 (2%) as non-Hispanic Asian, 5 (1%) as non-Hispanic Black or African American, and 398 (90.5%) as non-Hispanic White; 41 (9%) participants identified their sexual orientation as bisexual or pansexual, 384 (87.3%) as heterosexual or straight, and 13 (3%) as gay or lesbian. The overall enrollment rate for individuals was 66.14% and the overall completion rate was 80.08%.
    CONCLUSIONS: We discuss best practices for collecting online survey data for studies examining relationships and health, challenges related to the COVID-19 pandemic, recruitment of underrepresented populations, and enrollment of dyads. Recommendations include conducting pilot studies, allowing for extra time in the data collection timeline for marginalized or underserved populations, surplus screening to account for expected attrition within dyads, as well as planning dyad-specific data quality checks.
    UNASSIGNED: DERR1-10.2196/48516.
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  • 文章类型: Journal Article
    背景:接受癌症诊断是一种深刻且通常非常紧张的经历。很少有研究在接受新的癌症诊断之前前瞻性地招募患者,并包括配偶或伴侣。
    目的:夫妻应对研究的目的是了解接受诊断性活检和接受新的癌症诊断对患者及其配偶或伴侣的生活质量(QoL)的影响。以及他们关系的质量。本协议文件描述了研究设计并评估了招募和保留的可行性。
    方法:研究人员回顾了合作医生的时间表,使用特定的相遇代码来识别计划进行乳腺或前列腺活检的患者。通过电子健康记录对潜在参与者进行预筛选,并在活检程序前至少2至3周发送招募信。患者随后接受电话筛查以确定资格。登记的患者为研究人员提供了其配偶或伴侣的联系信息。所有同意书均在网上完成。在收到活检结果(基线)之前在线完成调查,以及活检后1、3、6和9个月。研究人员从事持续的,与参与者的个性化联系,并通过电话和电子邮件发送评估完成提醒。
    结果:共有2294名接受乳腺或前列腺活检的患者被确认,69%(n=1582)的患者在电子健康记录预筛查后有资格接受电话筛查。在接受电话筛查的431名患者中,75%(n=321)有资格参加。在符合条件的病人中,72%(n=231)的参与者和82%(n=190)的参与者有伴侣或配偶。共有77%(34/44)的接受癌症诊断的患者和72%(26/36)的配偶或伴侣被保留了9个月,而80%(53/66)接受良性诊断的患者和68%(42/62)的伴侣被保留。
    结论:对接受诊断性活检的患者及其合作伙伴进行前瞻性招募是可行的,需要与提供者进行战略合作,并需要研究人员进行协同的预筛查和招募工作。重要的是,这项研究能够在线进行所有研究活动,而不会中断临床工作流程,也不需要患者及其配偶或伴侣进入实验室.应考虑活检与癌症诊断的比例,这可能因癌症类型而异。需要进行前瞻性研究,并可以告知我们有能力为面临可能的癌症诊断的夫妇提供更早的有效支持。未来的研究应该检查在QoL研究中受到较少关注的其他肿瘤类型,包括自我报告措施以外的行为和神经生物学评估,并跟踪超过9个月的夫妇,以检查对QoL的长期影响。
    DERR1-10.2196/52361。
    BACKGROUND: Receiving a diagnosis of cancer is a profound and often very stressful experience. Few studies have prospectively recruited patients prior to receiving a new diagnosis of cancer and included spouses or partners.
    OBJECTIVE: The aim of the Couples Cope Study is to understand the impact of undergoing a diagnostic biopsy and receiving a new cancer diagnosis on quality of life (QoL) in both patients and their spouses or partners, as well as on the quality of their relationship. This protocol paper describes the study design and assesses the feasibility of recruitment and retention.
    METHODS: Study staff reviewed the schedules of collaborating physicians using specific encounter codes to identify patients scheduled for breast or prostate biopsies. Potential participants were prescreened via the electronic health record and sent a recruitment letter at least 2 to 3 weeks prior to their biopsy procedure. Patients subsequently underwent a phone screening to determine eligibility. Patients who enrolled provided study staff with contact information for their spouses or partners. All consent forms were completed online. Surveys were completed online prior to receiving the biopsy results (baseline), and at 1, 3, 6, and 9 months after the biopsy. Study staff engaged in ongoing, personalized contact with participants and sent assessment completion reminders via phone and email.
    RESULTS: A total of 2294 patients undergoing a breast or prostate biopsy were identified and 69% (n=1582) were eligible for phone screening following electronic health record prescreening. Of the 431 patients who underwent phone screening, 75% (n=321) were eligible to participate. Of the eligible patients, 72% (n=231) enrolled and 82% (n=190) of enrolled patients had an accompanying partner or spouse who also enrolled. A total of 77% (34/44) of patients who received a cancer diagnosis and 72% (26/36) of their spouses or partners were retained through 9 months, while 80% (53/66) of patients who received a benign diagnosis and 68% (42/62) of their partners were retained.
    CONCLUSIONS: Prospective recruitment of patients undergoing diagnostic biopsy and their partners is feasible and requires both strategic collaboration with providers and concerted prescreening and recruitment efforts by study staff. Importantly, this study was able to conduct all study activities online without disrupting clinical workflow and without requiring patients and their spouses or partners to come into the laboratory. Consideration should be given to the ratio of biopsies to cancer diagnoses, which can vary significantly by cancer type. Prospective studies are needed and can inform our ability to provide effective support earlier to couples facing a possible cancer diagnosis. Future studies should examine other tumor types that have received less attention in QoL studies, include behavioral and neurobiological assessments beyond self-report measures, and follow couples beyond 9 months in order to examine long-term effects on QoL.
    UNASSIGNED: DERR1-10.2196/52361.
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  • 文章类型: Journal Article
    目的:随着乳腺癌患者患病率的增加和生存率的提高,人们对了解这些患者的心理社会适应水平越来越感兴趣。该研究旨在描述乳腺癌患者及其配偶的疾病感知和心理社会适应水平,使用演员-伴侣相互依存模型(APIM)来澄清配偶之间的演员-伴侣关系,并探讨在夫妻双方的联合行动中,疾病感知对疾病心理社会适应的影响。
    方法:共有216名女性乳腺癌患者及其配偶参与了这项研究。他们是从广东省的两家三级医院中挑选出来的,中国从2022年10月到2023年5月使用便利抽样方法。使用简短的疾病感知问卷和疾病心理社会适应量表对参与者进行评估,以检查疾病感知与心理社会适应之间的关系。使用AMOS24.0对演员-伴侣相互依存模型进行了检验和分析。
    结果:患者的疾病感知得分(57.75±10.91)略高于配偶(57.10±11.00),心理社会适应得分(64.67±6.33)略低于配偶(64.76±7.49)。参与者-伴侣相互依存模型的结果表明,乳腺癌患者与配偶之间存在夫妻伴侣:配偶的疾病感知显着影响患者的心理社会适应(β=0.095,p=0.015);患者的疾病感知也显着影响配偶的心理社会适应(β=0.106,p=0.033)。其中,发现患者的心理社会适应与患者的疾病可理解性或疾病的连贯性有关(β=0.433,p=0.009),配偶的情绪疾病代表(β=0.218,p=0.037),和配偶的疾病可理解性或疾病的连贯性(β=0.416,p=0.007),而配偶的心理社会适应仅与配偶的疾病可理解性或疾病的连贯性有关(β=0.528,p=0.007)。
    结论:乳腺癌患者的心理社会适应受自己和配偶的疾病感知的影响。因此,在未来,医护人员可以对诊断为乳腺癌的患者及其配偶实施早期心理干预,以促进他们的心理社会适应。
    OBJECTIVE: With the increase in the prevalence rate and improvements in the survival of breast cancer patients, there is a growing interest in understanding the level of psychosocial adjustment in these patients. The study aimed to describe the illness perception and psychosocial adjustment levels of both breast cancer patients and their spouses, to use the Actor-Partner Interdependence Model (APIM) to clarify the actor-partner relationships between spouses, and to explore the impact of illness perception on psychosocial adjustment to the disease within the joint actions of both spouses.
    METHODS: A total of 216 female patients with breast cancer and their spouses participated in the study. They were selected from two tertiary hospitals in Guangdong Province, China from October 2022 to May 2023 using a convenience sampling method. The participants were assessed using the Brief Illness Perception Questionnaire and the Psychosocial Adjustment to Illness Scale to examine the relationship between illness perception and psychosocial adjustment. AMOS24.0 was used to test and analyze the actor-partner interdependence model.
    RESULTS: The illness perception score (57.75 ± 10.91) was slightly higher than that of the spouse (57.10 ± 11.00), and the psychosocial adjustment score (64.67 ± 6.33) was slightly lower than that of the spouse (64.76 ± 7.49). The results of the actor-partner interdependence model indicated that there was a couple partner between breast cancer patients and their spouses: the spouse\'s illness perception significantly affected the patient\'s psychosocial adjustment (β = 0.095, p = 0.015); the patient\'s illness perception also significantly affected the spouse\'s psychosocial adjustment (β = 0.106, p = 0.033). Among them, the patient\'s psychosocial adjustment was found to be related to the patient\'s illness comprehensibility or coherence of illness (β = 0.433, p = 0.009), the spouse\'s emotional illness representation (β = 0.218, p = 0.037), and the spouse\'s illness comprehensibility or coherence of illness (β = 0.416, p = 0.007), while the spouse\'s psychosocial adjustment was only related to the spouse\'s illness comprehensibility or coherence of illness (β = 0.528, p = 0.007).
    CONCLUSIONS: The psychosocial adjustment of breast cancer patients is affected by both their own and spouse\'s illness perception. Therefore, in the future, the healthcare staff can implement early psychological interventions for patients diagnosed with breast cancer and their spouses as a unit to promote the psychosocial adjustment of them.
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  • 文章类型: Journal Article
    目的:研究二元应对对生活质量(QoL)的影响以及韧性在妇科癌症(GC)后的中青年夫妇中的中介作用。
    方法:2022年7月至2023年6月在武汉市一家三级医院进行了一项横断面研究,中国。招募了240对中青年GC夫妇。人口统计学和临床特征问卷,二元应对清单,10个项目的康纳-戴维森弹性量表,和12项简短的健康调查被用来收集数据。二进分析的过程基于参与者-合作伙伴相互依存调解模型。
    结果:GC患者的二重应对对他们自己的身体和心理QoL都有影响,而配偶的二元应对只会对他们自己的心理QoL产生演员效应。在二元群体中确定了韧性对二元应对与QoL之间关系的中介作用。此外,配偶“二重应对”可以通过他们自己和患者的韧性间接影响患者的QoL。
    结论:研究结果证实了二元应对之间的二元关系,弹性,以及面临GC的中青年夫妇的QoL。这些结果表明,有必要制定基于夫妇的干预措施,以提高二元应对和复原力,从而提高两个成员的QoL。
    OBJECTIVE: To examine the effects of dyadic coping on quality of life (QoL) and the mediating role of resilience in these effects among young and middle-aged couples after gynecologic cancer (GC).
    METHODS: A cross-sectional study was conducted between July 2022 and June 2023 from one tertiary hospital in Wuhan, China. 240 pairs of young and middle-aged GC couples were recruited. The demographic and clinical characteristics questionnaire, the Dyadic Coping Inventory, the 10-item Connor-Davidson Resilience Scale, and the 12-item Short-Form Health Survey were used to collect data. The process of dyadic analysis was based on the actor-partner interdependence mediation model.
    RESULTS: GC patients\' dyadic coping had an actor effect on both their own physical and mental QoL, while spouses\' dyadic coping only exerted an actor effect on their own mental QoL. The mediating effects of resilience on the relationship between dyadic coping and QoL were identified in dyads. Moreover, spouses\' dyadic coping could indirectly influence patients\' QoL through their own and patients\' resilience.
    CONCLUSIONS: The findings confirm the dyadic relationships between dyadic coping, resilience, and QoL among young and middle-aged couples facing GC. These results suggest that it is necessary to develop couple-based interventions to improve dyadic coping and resilience, thus enhancing the QoL of both members.
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  • 文章类型: Journal Article
    背景和目的:没有足够的证据证明社会人口统计学的一致性,行为,配偶之间的营养特征与配偶之间的代谢综合征(MetS)的一致性相关,或者如果配偶的特征与他们自己的生活方式直接相关。这项研究旨在评估夫妻特征的一致性与MetS的一致性之间的关联,并调查配偶的属性是否与伴侣的MetS相关联。方法:分析2019-2021年韩国国家健康和营养检查调查数据,1824对具有完整数据的夫妇,包括MetS参数,社会人口统计细节,健康行为,和饮食信息,包括在内。采用一般线性模型和逻辑回归。结果:在夫妻中,10.7%表现出一致的MetS,非最佳特征的配偶一致性范围为1.3%至81.5%。多变量分析显示,随着夫妇的平均年龄较高和受教育程度较低的一致性较高,双方都有MetS的几率增加了1.04-1.61倍,主观健康状况差,力量锻炼不足,和过量的碳水化合物消耗。在考虑个人和配偶因素时,随着这对夫妇平均年龄的增加,有一个与MetS的配偶,他们自己的特点(较低的教育,主观健康状况差,力量锻炼不足,丈夫和妻子的久坐行为;丈夫的饮酒和行走不足;妻子的碳水化合物摄入过多),和配偶因素,如吸烟(在丈夫)和较低的教育,经济地位较低,和过量的碳水化合物摄入(在妻子)。在妻子中,配偶久坐行为和不良的主观健康状况与降低的几率有关。结论:研究结果表明,夫妻的MetS一致性与共同特征之间存在联系,以及配偶的MetS状况和特征与他们自己的MetS之间的关联。
    Background and Objective: There is insufficient evidence on whether the concordance of sociodemographic, behavioral, and nutritional characteristics between spouses correlates with the concordance of metabolic syndrome (MetS) between spouses, or if a spouse\'s characteristics are directly linked to their own MetS. This study seeks to evaluate the association between the concordance of characteristics and the concordance of MetS in couples and investigate whether a spouse\'s attributes are linked to their partner\'s MetS. Methods: Analyzing data from the Korea National Health and Nutrition Examination Survey 2019-2021, 1824 couples with complete data, including MetS parameters, sociodemographic details, health behaviors, and dietary information, were included. General linear model and logistic regression were employed. Results: Among couples, 10.7% exhibited concordant MetS, with spousal concordance ranging from 1.3% to 81.5% for nonoptimal characteristics. Multivariate analysis revealed that the odds of both partners having MetS increased by 1.04-1.61 times with a higher mean age of the couple and higher concordance in lower education, poor subjective health, insufficient strength exercise, and excessive carbohydrate consumption. When accounting for both individual and spousal factors, the odds of MetS rose with the higher mean age of the couple, having a spouse with MetS, their own characteristics (lower education, poor subjective health, insufficient strength exercise, and sedentary behavior for husbands and wives; alcohol consumption and insufficient walking for husbands; and excessive carbohydrate intake for wives), and spousal factors such as smoking (in husbands) and lower education, lower economic status, and excessive carbohydrate intake (in wives). In wives, spousal sedentary behavior and poor subjective health were linked to decreased odds. Conclusions: The findings suggest a connection between MetS concordance and shared characteristics in couples, as well as an association between both spousal MetS status and characteristics and their own MetS.
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  • 文章类型: Journal Article
    目的:探讨结直肠癌患者及其配偶二重应对与家庭抵抗的关系。
    方法:选取2021年7月至2022年3月在长沙市某三甲医院住院的178对大肠癌患者及其配偶。采用家庭弹性评估量表和二元应对量表进行调查,APIM分析了这一关系。
    结果:患者二联应对总分为121.51±16.8,配偶总分为123.72±16.6。家庭韧性总分为176.42±16.0,配偶总分为182.72±17.03。结直肠癌患者及其配偶二重应对与家庭抵抗呈显著正相关(r>0.7,P<0.001)。结直肠癌患者及其配偶的积极二体应对对自身及其配偶的家庭韧性有积极影响,且效果相同。结直肠癌患者及其配偶的消极二元应对对其自身的家庭韧性有负面影响,整个模型显示了主体模式。
    结论:结直肠癌患者及其配偶的家庭韧性水平受二元应对水平的影响。医务工作者应将患者及其配偶视为一个整体,以家庭为中心制定相互支持的应对策略,从而增加积极的应对行为,增强家庭应对癌症的能力。
    OBJECTIVE: To explore the relationship between dyadic coping and family resistance in colorectal cancer patients and their spouses.
    METHODS: 178 pairs of colorectal cancer patients and their spouses hospitalized in a three tertiary hospital in Changsha were selected from July 2021 to March 2022. The Family Resilience Assessment Scale and the Dyadic Coping Inventory were used to investigate, which relationship was analyzed by APIM.
    RESULTS: The total score of patients\' dyadic coping was 121.51 ± 16.8, and spouses\' score was 123.72 ± 16.6. The total score of family resilience was 176.42 ± 16.0, and spouses\' score was 182.72 ± 17.03. There was a significant positive relationship between dyadic coping and family resistance of colorectal cancer patients and their spouses (r > 0.7, P < 0.001). The positive dyadic coping of colorectal cancer patients and their spouses had a positive effect on their own and their spouses\' family resilience and the effect was the same. The negative dyadic coping of colorectal cancer patients and their spouses had a negative impact on their own family resilience, and the overall model showed a subject pattern.
    CONCLUSIONS: The level of family resilience of colorectal cancer patients and their spouses was affected by the level of dyadic coping. Medical workers should regard patients and their spouses as a whole and formulate mutually supportive coping strategies with family as the center, so as to increase positive coping behavior and enhance their family\'s ability to cope with cancer.
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  • 文章类型: Journal Article
    慢性阻塞性肺疾病(COPD)患者感知的配偶支持与日常生活活动之间的关系尚不清楚。
    本研究的目的是探讨COPD患者的配偶支持与日常生活活动之间的关系。
    这项研究是一项横断面和描述性研究。数据收集是在2022年9月至2023年4月之间进行的。数据收集表单,配偶抚养量表,伦敦胸部日常生活活动量表被用来收集数据。共有132名成年人参加了这项研究。
    COPD患者的配偶支持感和日常生活活动的平均(SD)得分分别为62.40(14.66)和32.91(15.72),分别。感知的配偶支持和日常生活活动的水平因性别而异,就业状况,接受急诊服务或住院,使用抗抑郁药,和疾病的严重程度(P<0.05)。配偶支持较好的患者在日常生活活动时呼吸困难较少(r=-0.205,P<.05)。
    了解影响感知的配偶支持和日常生活活动的潜在因素,可以为确定适当的策略以提高COPD患者的独立性水平提供机会。帮助配偶了解COPD的教育干预措施可能有助于增加配偶支持。
    The relationship between perceived spousal support and activities of daily living in patients with chronic obstructive pulmonary disease (COPD) is unclear.
    The aim of this study was to explore the relationship between spousal support perceived by those with COPD and their activities of daily living.
    This study was a cross-sectional and descriptive study. Data collection was conducted between September 2022 and April 2023. A Data Gathering Form, the Spousal Support Scale, and the London Chest Activity of Daily Living Scale were used to collect data. A total of 132 adults were included in this study.
    The mean (SD) scores of individuals with COPD for perceived spousal support and activities of daily living were 62.40 (14.66) and 32.91 (15.72), respectively. Levels of perceived spousal support and activities of daily living varied according to sex, employment status, admission to the emergency service or hospitalization, use of antidepressants, and the severity of the illness (P < .05). Those with better spousal support felt less dyspnea when performing the activities of daily living (r = -0.205, P < .05).
    Knowing the potential factors affecting perceived spousal support and activities of daily living can provide an opportunity to determine appropriate strategies to increase the level of independence of individuals with COPD. Educational interventions to help spouses understand COPD may help increase spousal support.
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  • 文章类型: Journal Article
    银屑病是一种以红斑为特征的慢性自身免疫性炎症性皮肤病,丘疹,和尺度。它给患者及其家人带来了沉重的心理和社会压力。令人惊讶的是,目前对银屑病配偶的疾病负担和应对策略的研究有限。
    目的是探讨银屑病患者配偶所面临的疾病负担和应对策略。这项探索旨在提供对制定心理健康支持和干预策略至关重要的见解。
    本研究采用的研究方法是现象学的,定性的方法。采用客观抽样的方法,选取银屑病患者配偶共15名,半结构化面试。然后将主题分析应用于记录的访谈数据,以得出有意义的主题。
    这项研究确定并分析了与牛皮癣患者配偶的疾病负担和应对策略有关的三个核心主题:压倒性的疾病负担;缺乏支持系统;应对策略(以问题为中心的应对策略:主动获取疾病知识;积极对抗与疾病相关的问题;行为习惯改变;以情绪为中心的策略:主动接受和正常化;被动回避和内在化的疾病应对问题;
    这项研究为理解牛皮癣患者配偶所面临的疾病负担增加了宝贵的见解,并阐明了他们采用的应对策略。医疗保健提供者应主动认识并解决配偶早期经历的负担。建立一个强大的支持网络至关重要,和促进适应性应对策略可以显着帮助配偶有效地导航和管理与牛皮癣相关的复杂性。
    UNASSIGNED: Psoriasis is a chronic autoimmune inflammatory skin condition characterized by erythema, papules, and scales. It imposes a heavy psychological and social strain on both patients and their families. Surprisingly, there\'s limited research delving into the disease burden and coping strategies of spouses contending with psoriasis.
    UNASSIGNED: The objective is to explore the disease burden faced and coping strategies utilized by spouses of individuals living with psoriasis. This exploration aims to offer insights crucial for devising mental health support and intervention strategies.
    UNASSIGNED: The research methodology employed in this study was phenomenological, a qualitative approach. A total of fifteen spouses of patients with psoriasis were selected using an objective sampling method for in-depth, semi-structured interviews. Thematic analysis was then applied to the recorded interview data to derive meaningful themes.
    UNASSIGNED: This study has identified and analyzed three core themes concerning the disease burden and coping strategies of spouses of patients with psoriasis: Overwhelming disease burden; Lack of support system; Coping strategies (Problem - centered coping strategies: Proactive acquisition of disease knowledge; Active confrontation of illness - related issues; Behavioral habit alteration; and Emotional - centered coping strategies: Active acceptance and normalization; Passive acceptance and internalized stigma; Avoidance of disease - related problems).
    UNASSIGNED: This study adds valuable insights into comprehending the disease burden encountered by spouses of patients with psoriasis and sheds light on the coping strategies they employ. Healthcare providers should proactively recognize and address the burden experienced by spouses early on. Establishing a robust support network is crucial, and promoting adaptive coping strategies can significantly aid spouses in effectively navigating and managing the complexities associated with psoriasis.
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  • 文章类型: Journal Article
    背景:溃疡性结肠炎(UC),其特征是结肠的慢性复发性炎症,涉及宿主的因素的复杂相互作用的结果,环境,和微生物组。本研究旨在调查UC患者及其配偶的肠道微生物组成和代谢变化。材料和方法:从13名健康配偶和患有UC的夫妇收集粪便样本。16SrRNA基因扩增子测序和宏基因组学测序用于分析肠道菌群组成,通路,基因表达,和酶活性,其次是京都基因和基因组百科全书。结果:我们发现UC夫妇的微生物组多样性下降,尤其是UC患者。细菌成分,比如Firmicutes,UC患者和健康对照之间发生了改变,但UC患者及其配偶之间无显著差异.这也在通路中观察到,比如新陈代谢,遗传信息处理,有机系统,和人类疾病。然而,UC患者配偶的基因和酶与健康个体无显著差异.此外,粪杆菌的存在与氧化磷酸化相关,淀粉和蔗糖代谢,氨基糖和核苷酸糖代谢,和细菌分泌系统,与他们的配偶相比,UC组明显下降,但健康夫妇之间没有差异。结论:我们的研究表明,与UC患者同居减少了健康个体和患者之间肠道微生物组的差异。不仅微生物群的组成和多样性减少,但活性途径也显示出一些下降。此外,Firmicutes,粪杆菌,四种相关途径可能与宿主的病理状态有关,而不是与人类行为有关。
    Background: Ulcerative colitis (UC), which is characterized by chronic relapsing inflammation of the colon, results from a complex interaction of factors involving the host, environment, and microbiome. The present study aimed to investigate the gut microbial composition and metabolic variations in patients with UC and their spouses. Materials and Methods: Fecal samples were collected from 13 healthy spouses and couples with UC. 16S rRNA gene amplicon sequencing and metagenomics sequencing were used to analyze gut microbiota composition, pathways, gene expression, and enzyme activity, followed by the Kyoto Encyclopedia of Genes and Genomes. Results: We found that the microbiome diversity of couples with UC decreased, especially that of UC patients. Bacterial composition, such as Firmicutes, was altered between UC patients and healthy controls, but was not significantly different between UC patients and their spouses. This has also been observed in pathways, such as metabolism, genetic information processing, organismal systems, and human diseases. However, the genes and enzymes of spouses with UC were not significantly different from those of healthy individuals. Furthermore, the presence of Faecalibacterium correlated with oxidative phosphorylation, starch and sucrose metabolism, amino sugar and nucleotide sugar metabolism, and the bacterial secretion system, showed a marked decline in the UC group compared with their spouses, but did not vary between healthy couples. Conclusion: Our study revealed that cohabitation with UC patients decreased differences in the gut microbiome between healthy individuals and patients. Not only was the composition and diversity of the microbiota diminished, but active pathways also showed some decline. Furthermore, Firmicutes, Faecalibacterium, and the four related pathways may be associated with the pathological state of the host rather than with human behavior.
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