PDF(Pubmed)
Abstract：
UNASSIGNED: Psoriasis is a chronic autoimmune inflammatory skin condition characterized by erythema, papules, and scales. It imposes a heavy psychological and social strain on both patients and their families. Surprisingly, there\'s limited research delving into the disease burden and coping strategies of spouses contending with psoriasis.
UNASSIGNED: The objective is to explore the disease burden faced and coping strategies utilized by spouses of individuals living with psoriasis. This exploration aims to offer insights crucial for devising mental health support and intervention strategies.
UNASSIGNED: The research methodology employed in this study was phenomenological, a qualitative approach. A total of fifteen spouses of patients with psoriasis were selected using an objective sampling method for in-depth, semi-structured interviews. Thematic analysis was then applied to the recorded interview data to derive meaningful themes.
UNASSIGNED: This study has identified and analyzed three core themes concerning the disease burden and coping strategies of spouses of patients with psoriasis: Overwhelming disease burden; Lack of support system; Coping strategies (Problem - centered coping strategies: Proactive acquisition of disease knowledge; Active confrontation of illness - related issues; Behavioral habit alteration; and Emotional - centered coping strategies: Active acceptance and normalization; Passive acceptance and internalized stigma; Avoidance of disease - related problems).
UNASSIGNED: This study adds valuable insights into comprehending the disease burden encountered by spouses of patients with psoriasis and sheds light on the coping strategies they employ. Healthcare providers should proactively recognize and address the burden experienced by spouses early on. Establishing a robust support network is crucial, and promoting adaptive coping strategies can significantly aid spouses in effectively navigating and managing the complexities associated with psoriasis.
UNASSIGNED: The objective is to explore the disease burden faced and coping strategies utilized by spouses of individuals living with psoriasis. This exploration aims to offer insights crucial for devising mental health support and intervention strategies.
UNASSIGNED: The research methodology employed in this study was phenomenological, a qualitative approach. A total of fifteen spouses of patients with psoriasis were selected using an objective sampling method for in-depth, semi-structured interviews. Thematic analysis was then applied to the recorded interview data to derive meaningful themes.
UNASSIGNED: This study has identified and analyzed three core themes concerning the disease burden and coping strategies of spouses of patients with psoriasis: Overwhelming disease burden; Lack of support system; Coping strategies (Problem - centered coping strategies: Proactive acquisition of disease knowledge; Active confrontation of illness - related issues; Behavioral habit alteration; and Emotional - centered coping strategies: Active acceptance and normalization; Passive acceptance and internalized stigma; Avoidance of disease - related problems).
UNASSIGNED: This study adds valuable insights into comprehending the disease burden encountered by spouses of patients with psoriasis and sheds light on the coping strategies they employ. Healthcare providers should proactively recognize and address the burden experienced by spouses early on. Establishing a robust support network is crucial, and promoting adaptive coping strategies can significantly aid spouses in effectively navigating and managing the complexities associated with psoriasis.
摘要：
■银屑病是一种以红斑为特征的慢性自身免疫性炎症性皮肤病，丘疹,和尺度。它给患者及其家人带来了沉重的心理和社会压力。令人惊讶的是,目前对银屑病配偶的疾病负担和应对策略的研究有限。
■目的是探讨银屑病患者配偶所面临的疾病负担和应对策略。这项探索旨在提供对制定心理健康支持和干预策略至关重要的见解。
■本研究采用的研究方法是现象学的，定性的方法。采用客观抽样的方法,选取银屑病患者配偶共15名,半结构化面试。然后将主题分析应用于记录的访谈数据，以得出有意义的主题。
这项研究确定并分析了与牛皮癣患者配偶的疾病负担和应对策略有关的三个核心主题：压倒性的疾病负担；缺乏支持系统；应对策略（以问题为中心的应对策略：主动获取疾病知识；积极对抗与疾病相关的问题；行为习惯改变；以情绪为中心的策略：主动接受和正常化；被动回避和内在化的疾病应对问题；
这项研究为理解牛皮癣患者配偶所面临的疾病负担增加了宝贵的见解，并阐明了他们采用的应对策略。医疗保健提供者应主动认识并解决配偶早期经历的负担。建立一个强大的支持网络至关重要，和促进适应性应对策略可以显着帮助配偶有效地导航和管理与牛皮癣相关的复杂性。
■目的是探讨银屑病患者配偶所面临的疾病负担和应对策略。这项探索旨在提供对制定心理健康支持和干预策略至关重要的见解。
■本研究采用的研究方法是现象学的，定性的方法。采用客观抽样的方法,选取银屑病患者配偶共15名,半结构化面试。然后将主题分析应用于记录的访谈数据，以得出有意义的主题。
这项研究确定并分析了与牛皮癣患者配偶的疾病负担和应对策略有关的三个核心主题：压倒性的疾病负担；缺乏支持系统；应对策略（以问题为中心的应对策略：主动获取疾病知识；积极对抗与疾病相关的问题；行为习惯改变；以情绪为中心的策略：主动接受和正常化；被动回避和内在化的疾病应对问题；
这项研究为理解牛皮癣患者配偶所面临的疾病负担增加了宝贵的见解，并阐明了他们采用的应对策略。医疗保健提供者应主动认识并解决配偶早期经历的负担。建立一个强大的支持网络至关重要，和促进适应性应对策略可以显着帮助配偶有效地导航和管理与牛皮癣相关的复杂性。
