美国的种族和少数族裔群体不成比例地受到慢性肾脏疾病和进行性肾衰竭的影响,并面临更多的社会经济和社会心理挑战。然而,这些患者的社会环境和污名如何在2019年冠状病毒病(COVID-19)大流行之前和期间塑造他们的疾病经历和应对能力,目前还没有得到很好的记录,即使社会科学研究预测了这些群体的指数脆弱性。
■定性研究使用半结构化访谈来引出个体患者关于他们在COVID-19大流行之前和期间的个人疾病经历的叙述,他们面临的任何挑战,以及他们的支持来源。
■使用目的性采样,我们从波士顿一家安全网医院的附属中心招募了20名接受维持性血液透析的成年患者,马萨诸塞州。
■采访被录音,转录,并使用主题内容分析进行分析,以确定患者在大流行之前和期间的挑战和支持。
■在研究中的20名患者中,9是女人,和18个自称为黑人或非洲裔美国人。出现了三个主要主题,其中大多数患者描述:(1)污名化和污名化是他们生活经历的核心要素;(2)大流行是一种困难的经历,但不是从他们的大流行生活中完全破裂;(3)社交网络,尤其是家庭,朋友,和宗教团体,作为应对衰弱疾病至关重要的支持来源。
■发现是否适用于其他设置未知,因为参与者是从单一安全网城市医院的中心招募的.
■社会心理和环境因素,包括体制性种族主义和污名化,在扩大患有肾脏疾病的种族和少数族裔个人所肩负的负担方面发挥着重要作用,这些人现在也面临着自那以后流行的COVID-19大流行。这项研究的结果可以为制定政策干预措施提供信息,旨在缓解影响肾脏疾病患者福祉和健康结果的紧张和结构状况。
■在美国,种族和少数族裔群体的成员进行性肾衰竭的发生率最高,面临的社会经济和社会心理挑战明显更多。我们采访了20名从安全网医院附属中心接受维持性血液透析治疗的患者。患者将污名化描述为他们生活经历的核心要素,而大流行是一项艰巨的挑战(但不是完全破裂),这增加了他们与疾病相关的斗争,与种族有关,和班级相关的污名。社交网络,尤其是家庭,朋友,和宗教团体,是应对疾病至关重要的关键支持来源。这项研究的结果可以为医疗保健提供者和社区工作者提供信息,并指导政策干预措施的制定,为这些患者提供更好的支持。
UNASSIGNED: Racial and ethnic minority groups in the United States are disproportionately affected by chronic kidney disease and progressive kidney failure and face significantly more socioeconomic and psychosocial challenges. However, how such patients\' social environment and stigmatization shape their illness experiences and abilities to cope before and during the coronavirus disease 2019 (COVID-19) pandemic has not been well documented, even as social scientific research predicts these groups\' exponential vulnerability.
UNASSIGNED: Qualitative study using semistructured interviews to elicit individual patient narratives about their personal illness experiences before and during the COVID-19 pandemic, any challenges they faced, and their sources of support.
UNASSIGNED: Using purposive sampling, we recruited 20 adult patients receiving maintenance hemodialysis from centers affiliated with a safety-net hospital in Boston, Massachusetts.
UNASSIGNED: Interviews were audiotaped, transcribed, and analyzed using thematic content analysis to identify patients\' challenges and supports before and during the pandemic.
UNASSIGNED: Of the 20 patients in the study, 9 were women, and 18 self-identified as Black or African American. Three main themes emerged, whereby most patients described: (1) stigma and stigmatization as a central element of their life experience; (2) the pandemic as a difficult experience but not a complete rupture from their prepandemic life; and (3) social networks, particularly family, friends, and religious communities, as sources of support crucial to coping with their debilitating illness.
UNASSIGNED: Whether the findings apply to other settings is unknown, as participants were recruited from centers in a single safety-net urban hospital setting.
UNASSIGNED: Psychosocial and environmental factors, including institutional racism and stigmatization, play significant roles in amplifying the burdens shouldered by racial and ethnic minority individuals with kidney disease who now also face the COVID-19 pandemic that has since turned endemic. The results of this study can inform the development of policy interventions aimed at alleviating tensions and structural conditions that impinge on kidney disease patients\' wellbeing and health outcomes.
UNASSIGNED: Members of racial and ethnic minority groups in the United States experience the highest rates of progressive kidney failure and face significantly more socioeconomic and psychosocial challenges. We interviewed 20 patients who receive maintenance hemodialysis treatment from centers affiliated with a safety-net hospital. Patients described stigmatization as a central element of their life experience and the pandemic as a difficult challenge (but not a complete rupture) that added to their struggles with illness-related, race-related, and class-related stigmas. Social networks, particularly family, friends, and religious communities, are key sources of support crucial to coping with illness. Findings from this study can inform health care providers and community workers and guide the development of policy interventions to provide better support for these patients.