psychosocial support

社会心理支持
  • 文章类型: Journal Article
    背景:遭受基于性别的暴力(GBV)在难民中很常见。压迫系统的交叉会增加GBV的风险和遭受有害后果的风险,同时为有意义的支持制造障碍。尽管如此,有GBV生活经验的难民很少参与发展,服务和政策的规划和调整。
    方法:本文报告了一个形成性研究过程,旨在让公共贡献者(难民受害者-性别暴力幸存者)和相关利益相关者共同设计一个旨在改善瑞典社会心理支持的服务模型。在公共贡献者和学术研究人员的伙伴关系的领导下,研究过程包括共同设计研讨会的迭代循环,辅以现有文献的范围界定。
    结果:共同设计过程导致了对社会心理服务系统需求的表征,正如幸存者合作研究人员和利益相关者所认为的那样,以及两级授权和支持服务模式。该模型包括(i)基于社区的干预措施,以促进寻求帮助,以及(ii)在专科诊所提供的社会心理团体支持。该项目的成果包括对相关人员的感知收益,以服务为主导的直接变更和获取资金,以继续研究共同设计的模型。
    结论:改善对受性别暴力影响的瑞典难民的社会心理支持需要安全的空间与同龄人联系并熟悉可用的服务,社会中的法律和权利。Further,为了满足各种需求,必须加强跨部门的合作。共同设计讲习班是一种有效的方式,可以改变为受性别暴力影响的瑞典难民提供社会心理支持的服务提供模式。
    这是对参与性过程的参与性反映。幸存者的共同研究人员为设计和实施PPI过程做出了贡献,并共同撰写了这份手稿。
    BACKGROUND: Experiencing gender-based violence (GBV) is common among refugees. Intersecting systems of oppression can increase the risk of GBV and of suffering detrimental consequences, while concurrently creating barriers to meaningful support. Despite this, refugees with lived experience of GBV are rarely involved in the development, planning and adaptation of services and policies.
    METHODS: This article reports on a formative research process that aimed to involve public contributors (refugee victim-survivors of GBV) and relevant stakeholders in co-designing a service model aimed at improving psychosocial support in Sweden. Led by a partnership of public contributors and academic researchers, the research process consisted of iterative cycles of co-design workshops, complemented by scoping of existing literature.
    RESULTS: The co-design process resulted in a characterisation of the psychosocial service system needs, as perceived by the survivor co-researchers and stakeholders, and a two-level empowerment and support service model. The model included (i) a community-based intervention to promote help-seeking and (ii) psychosocial group support delivered in specialist clinics. Outcomes of the project included perceived benefits for those involved, service-led direct changes and acquisition of funding for continued research on the co-designed model.
    CONCLUSIONS: Improving psychosocial support for refugees in Sweden affected by GBV requires safe spaces to connect with peers and familiarise with available services, laws and rights in the society. Further, strengthened collaborations across sectors are necessary to meet the variety of needs. Co-design workshops were an effective way to initiate changes in the service delivery model for psychosocial support for refugees in Sweden affected by GBV.
    UNASSIGNED: This is a participatory reflection on a participatory process. The survivor co-researchers contributed to designing and carrying out the PPI process and have co-authored this manuscript.
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  • 文章类型: Journal Article
    评估在工作内外为医护人员(HCWs)提供的社会心理援助水平至关重要。这项研究旨在评估沙特阿拉伯最大的医院之一在COVID-19期间向医护人员提供的心理社会支持,并分析其有效性,阿卜杜勒阿齐兹国王医疗城,利雅得.在这项研究中,我们假设对医护人员的心理社会支持会提高他们的表现和总福利。
    这项研究遵循了横截面分析设计,其样本包括来自许多专业的380名HCWs。两个众所周知的社会心理量表,DASS-21和MSPSS,用于评估机构心理社会支持的可用性和抑郁水平,焦虑,和HCW之间的压力。
    大多数HCWs报告说,在COVID-19期间,工作时间和焦虑水平大幅增加,他们否认在工作中获得机构支持。此外,大多数人报告说得到了家人和朋友的支持。首先,这项研究中最有统计学意义的发现是,女性医护人员在COVID-19期间的压力和焦虑水平远高于同等男性。此外,关于HCWs的直接主管的存在及其在减轻负担方面的有效性,发现了显着差异。
    结果显示,在COVID-19期间,心理社会支持与医护人员的心理健康之间存在轻微显著的关联。然而,我们发现,对于接受定期检查或有针对性的干预措施或有直接主管的少数HCWs,效果略有改善.
    UNASSIGNED: Assessing the level of psychosocial assistance provided for healthcare workers (HCWs) at and outside of work is crucial. This study aimed to evaluate the psychosocial support provided to HCWs and analyze its effectiveness during COVID-19 at one of the biggest hospitals in Saudi Arabia, King Abdulaziz Medical City, Riyadh. In this study, we hypothesized that psychosocial support for HCWs will enhance their performance and total welfare.
    UNASSIGNED: This study followed a cross-sectional analytic design, and its sample comprised 380 HCWs from many specialties. Two well-known psychosocial scales, DASS-21 and MSPSS, were used to assess the availability of institutional psychosocial support and the levels of depression, anxiety, and stress among HCWs.
    UNASSIGNED: The majority of HCWs reported a tremendous increase in working hours and level of anxiety during COVID-19, and they denied receiving institutional support at work. Moreover, the majority reported receiving support from family and friends. Primarily, the most statistically significant finding in this study was that female HCWs had much higher levels of stress and anxiety during COVID-19 than their equivalent male colleagues. In addition, a significant difference was found regarding the presence of immediate supervisors for HCWs and its effectiveness in burden relief.
    UNASSIGNED: The results show a marginally significant association between psychosocial support and the mental health of HCWs during COVID-19. However, we found a slightly favorable effect on the minority of HCWs who received regular check-ins or targeted interventions or had immediate supervisors.
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  • 文章类型: Journal Article
    目的:本研究探讨了转移性乳腺癌(MBC)支持组的价值,以及影响出勤的因素,从MBC患者的角度来看。
    方法:在2022年1月至2023年7月期间,对28名患有MBC的女性(支持小组参与者n=16;非参与者n=12)进行了半结构化访谈。使用归纳方法对数据进行专题分析。
    结果:产生了三个主题:分享经验知识的价值,开放和诚实对话的空间,以及寻找联系和社区的机会。这些因素是一些参与者重视的主要原因,并选择参加,MBC支持小组。阶段特异性和专业促进被确定为小组结构的重要方面。不出席的主要原因是对错误信息的担忧,面对团体成员的死亡,以及对现有支持网络的满意度。
    结论:MBC支持小组对某些MBC患者有益,提供与具有相同诊断的其他人联系的机会。对于其他人,不同形式的对等支持,如在线论坛或一对一支持可能是首选。我们认为,确保拥有MBC的人能够平等地获得所需的同伴支持,对于支持人们尽可能地与MBC一起生活至关重要。
    结论:MBC支持团体,如果领导得当,可以为MBC患者提供情感和信息方面的好处。这项研究也可能与其他转移性癌症相关,在这些癌症中,新疗法正在延长生存期。导致新出现的癌症人群具有不同的支持和生存需求。
    OBJECTIVE: This study explored the value of metastatic breast cancer (MBC) support groups, and factors that affect attendance, from the perspective of people with MBC.
    METHODS: Semi-structured interviews were conducted with 28 women with MBC (support group attendees n = 16; non-attendees n = 12) between January 2022 and July 2023. Data were analysed using an inductive approach to thematic analysis.
    RESULTS: Three themes were generated: the value of sharing experiential knowledge, spaces for open and honest conversations, and opportunities to find connection and community. These factors were the main reasons that some participants valued, and chose to attend, an MBC support group. Stage-specificity and professional facilitation were identified as important aspects of group structure. Key reasons for non-attendance were concerns about misinformation, confronting the death of group members, and satisfaction with existing support networks.
    CONCLUSIONS: MBC support groups are beneficial for some people with MBC, providing opportunities to connect with others with the same diagnosis. For others, different forms of peer support such as online forums or one-on-one support may be preferred. We argue that ensuring those with MBC have equal access to the peer support they need will be essential in supporting people to live as well as possible with MBC.
    CONCLUSIONS: MBC support groups, if appropriately led, can provide emotional and informational benefits for people with MBC. This research may also have relevance to other metastatic cancers where novel therapies are extending survival, resulting in an emerging cancer population with distinct supportive and survivorship needs.
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  • 文章类型: Journal Article
    乳腺癌是全世界女性中最常见的癌症。生活质量(QoL)受到手术和肿瘤治疗的显着影响。这项研究的目的是评估和比较QoL,接受乳腺癌治疗的女性的韧性和抑郁评分.我们评估了170例诊断为乳腺癌的非实验性患者,2024年1月至3月,通过匿名问卷进行描述性研究。患者被邀请填写欧洲癌症研究和治疗组织的生活质量问卷,乳腺癌模块(EORTCQLQ-BR23)问卷,抑郁焦虑压力量表,CD-RISC10问卷,和MOS社会支持调查。获得临床信息和人口统计学数据,并进行统计分析以评估影响QoL的因素。韧性和抑郁评分。QoL受化疗和手术的影响显著。弹性评分较高的女性焦虑和抑郁评分较低,QoL较好。具有强大的社会支持和高弹性的女性在乳腺癌治疗期间和之后报告了更好的QoL。我们的研究结果表明,乳腺癌手术和化疗对患者的生活质量有重要影响。此外,结果反映了医疗和社会支持作为韧性构建策略在管理和改善患者生活质量方面的重要性.
    Breast cancer is the most frequent cancer in women worldwide. Quality of life (QoL) is significantly affected by both surgical and oncological treatment. The aim of this study was to assess and compare QoL, resilience and depression scores among women who had breast cancer treatment. We assessed 170 patients diagnosed with breast cancer in a non-experimental, descriptive study through anonymized questionnaires from January to March 2024. Patients were invited to fill in the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire, Breast Cancer Module (EORTC QLQ-BR23) questionnaire, the Depression Anxiety Stress Scale, the CD-RISC 10 questionnaire, and the MOS Social Support Survey. Clinical information and demographical data were obtained and statistical analysis was conducted to evaluate factors that affect QoL, resilience and depression scores. QoL was significantly influenced by chemotherapy and surgery. Women with higher resilience scores had lower anxiety and depression scores and reported a better QoL. Women with strong social support and high resilience reported a better QoL during and after breast cancer treatment. The results of our study show that breast cancer surgery and chemotherapy have an important impact on patients\' QoL. Moreover, the results reflect the importance of both medical treatment and social support as resilience-building strategies in managing and improving the QoL of patients.
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  • 文章类型: Journal Article
    背景:2023年2月6日,一场灾难性的地震袭击了土耳其的Kahramanmaras地区。在这些灾难之后,最脆弱的人口群体是儿童。为这些年轻人提供有效的社会心理支持,全面了解他们在地震经历中的具体需求至关重要。
    目的:本研究旨在通过图纸确定受土耳其Kahramanmaraš地震影响的7至12岁儿童的灾难经历和社会心理支持需求。
    方法:本研究采用描述性定性设计,采用目的性和雪球抽样方法选择32名7-12岁的儿童进行研究。采用主题分析方法对数据进行分析,揭示了通过学龄儿童的绘画表达的六个不同的主题。本研究中的报告遵循了定性研究报告综合标准(COREQ)。
    结果:这六个主题将降水与地震联系起来,安全和搬迁,情绪混乱,象征性地表达地震,死亡和身体伤害和对正常的渴望。
    结论:这项研究强调了通过针对儿童年龄的心理社会干预来承认和关注儿童需求的重要性。
    它强调了受地震影响的儿童的心理社会需求的复杂性,并促进了医疗保健专业人员和护士之间的合作努力,以便在充满挑战的环境中为这些儿童提供更有效的支持。
    BACKGROUND: On February 6, 2023, a catastrophic earthquake struck the Kahramanmaras region in Turkey. Among the most vulnerable demographic groups in the wake of such disasters are children. To provide effective psychosocial support to these young individuals, it is crucial to gain a comprehensive understanding of their specific needs resulting from the earthquake experience.
    OBJECTIVE: This study aimed to determine the disaster experiences and psychosocial support needs of children between the ages of 7 and 12 who were affected by the Kahramanmaraş earthquake in Turkey with drawings.
    METHODS: This research used a descriptive qualitative design, employing purposive and snowball sampling approaches to select 32 children aged 7-12 for the study. Thematic analysis approach was used to analyze the data, revealing six distinct themes as expressed through the drawings of school-aged children. The reporting in this study followed the Consolidated Criteria for Reporting Qualitative Research (COREQ).
    RESULTS: These six themes are associating precipitation with earthquakes, security and relocation, emotional chaos, expressing the earthquake symbolically, death and physical damage and longing for normalcy.
    CONCLUSIONS: This study highlights the importance of acknowledging and attending to children\'s requirements through psychosocial interventions tailored to their age.
    UNASSIGNED: It underscores the complex nature of the psychosocial needs of children impacted by earthquakes and promotes collaborative efforts among healthcare professionals and nurses to provide more effective support to these children during challenging circumstances.
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  • 文章类型: Journal Article
    背景:在童年时期失去家庭成员是一种潜在的创伤事件,会增加心理健康困难的风险。青少年有权在与他们相关的研究中表达他们的观点,但是很少有研究将失去亲人的青少年作为合作者(即患者和公众参与(PPI))。此外,为了确保有意义和非象征性的参与,失去亲人的青少年的参与水平和参与研究的经验需要评估。目标:目的是描述和评估与失去亲人的青少年合作的PPI过程,以开发针对悲伤青少年的自我管理移动应用程序。方法:PPI过程由四个研讨会组成,在此期间,应用程序的徽标,颜色,name,内容,与六名13-18岁的失去父母的青少年讨论了布局。青少年是通过一个非营利组织招募的,该组织为悲伤的青少年提供支持。使用参与者的观察和青少年完成的在线调查记录和评估PPI过程,涵盖社会背景的主题,参与,和影响力。结果:青少年认为社会环境舒适、包容,他们的知识是有价值的。他们的参与以所有权为特征,并出于帮助有类似经历的其他人的愿望。青少年参与PPI活动的能力得到了研究人员的支持,尽管具有挑战性的任务可能使参与变得更加困难。在整个PPI活动中,青少年贡献了相关的投入,并报告了感觉有影响力。这项研究达到了预期的参与水平,似乎充分实现了青少年的参与权。结论:参与经历过潜在创伤事件的青少年,比如失去一个家庭成员,在研究中可以增强研究的整体相关性。此外,它可以为参与的青少年带来有意义和积极的体验,同时也实现了他们的基本参与权。
    描述并评估了与失去父母的青少年合作,为悲伤中的青少年开发心理社会自我管理移动应用程序的过程。青少年做出了重大贡献,取得了所有权,并且对所做的决定有影响力,这增加了干预的相关性。合作过程达到了预期的参与水平,并为青少年创造了积极而有意义的经验。
    Background: Losing a family member during childhood is a potentially traumatic event and increases the risk of mental health difficulties. Adolescents have the right to express their views in research of relevance to them, but few studies have involved bereaved adolescents as collaborators (i.e. Patient and Public Involvement (PPI)). Furthermore, to ensure meaningful and non-tokenistic involvement, bereaved adolescents\' levels of participation and experiences of taking part in research need to be evaluated.Objectives: The aim was to describe and evaluate a PPI process working with bereaved adolescents to develop a self-management mobile app for adolescents in grief.Methods: The PPI process consisted of four workshops during which the app\'s logo, colours, name, content, and layout were discussed with six parentally bereaved adolescents aged 13-18 years. The adolescents were recruited through a non-profit organisation providing support for adolescents in grief. The PPI process was documented and evaluated using participant observations and an online survey completed by the adolescents, covering the themes of social context, participation, and influence.Results: The adolescents perceived the social context as comfortable and inclusive, where their knowledge was valued. Their participation was characterised by ownership and motivated by a desire to help others with similar experiences. The adolescents\' ability to participate in PPI activities was assisted by the researchers\' flexibility, although challenging assignments may have made participation harder. Throughout PPI activities, adolescents contributed with relevant input and reported feeling influential. The study reached the intended levels of participation and appeared to adequately fulfil the adolescents\' right to participation.Conclusions: Engaging adolescents who have undergone a potentially traumatic event, such as the loss of a family member, in research can enhance the overall relevance of the study. Moreover, it can entail a meaningful and positive experience for the participating adolescents, while also fulfilling their fundamental right to participation.
    A collaborative process with parentally bereaved adolescents to develop a psychosocial self-management mobile app for adolescents in grief was described and evaluated.Adolescents made significant contributions, took ownership, and experienced having influence over the decisions made, which increased the relevance of the intervention.The collaborative process reached the intended level of participation and created a positive and meaningful experience for the adolescents.
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  • 文章类型: Journal Article
    患有人类免疫缺陷病毒(HIV)的人处于精神健康问题的高风险中。然而,对感染HIV的血友病(HPH)患者通过血液制品感染病毒的这种风险知之甚少。这个横截面,观察性研究评估了日本HPH患者的情绪状态及其相关因素,以评估对社会心理支持的需求。HPH完成了自我管理问卷(情绪状态简介[POMS]和一般健康问卷-28),神经心理学测试,和脑磁共振成像(MRI)和氟脱氧葡萄糖正电子发射断层扫描/计算机断层扫描。没有血友病(HPnH)的HIV感染患者完成了POMS和神经心理学测试。从参与者的医疗记录和访谈中获得社会人口统计学特征以及HIV和血友病相关数据。进行了Mann-WhitneyU检验和卡方分析。56名HPH和388名HPnH完成了问卷和神经心理学测试。HPH的紧张焦虑患病率明显降低(HPH,7%;HPnH,18%;p=0.049)和明显较高的低活力患病率(HPH,63%;HPnH,32%;p<0.001)。HPH的低活力与执行功能受损显著相关(低活力,66%;活力高,33%;p=0.019)和社会功能障碍评分≥3(中度;低活力,26%;活力高,5%;p=0.047)。我们的结果强调了HPH中活力低下的高患病率,导致行政和社会功能受损。因此,医护人员需要注意活力,执行功能,和HPH的社会功能。
    People living with human immunodeficiency virus (HIV) are at high risk of mental health problems. However, little is known about this risk in HIV-infected patients with hemophilia (HPH) who contracted the virus through blood products. This cross-sectional, observational study assessed patients\' mood states and the factors associated with them among Japanese HPH to evaluate the need for psychosocial support. HPH completed self-administered questionnaires (Profile of Mood States [POMS] and General Health Questionnaire-28), neuropsychological tests, and brain magnetic resonance imaging (MRI) and fluorodeoxyglucose positron emission tomography/computerized tomography scans. HIV-infected patients with no hemophilia (HPnH) completed POMS and neuropsychological tests. Socio-demographic characteristics and HIV- and hemophilia-related data were obtained from participants\' medical records and interviews. A Mann-Whitney U test and chi-squared analyses were conducted. Fifty-six HPH and 388 HPnH completed the questionnaires and neuropsychological tests. HPH had a significantly lower prevalence of tension-anxiety (HPH, 7%; HPnH, 18%; p = 0.049) and a significantly higher prevalence of low vigor (HPH, 63%; HPnH, 32%; p < 0.001). Low vigor in HPH was significantly associated with impaired executive function (low vigor, 66%; high vigor, 33%; p = 0.019) and a social dysfunction score ≥ 3 (moderate; low vigor, 26%; high vigor, 5%; p = 0.047). Our results highlight the high prevalence of low vigor among HPH, leading to impairments in executive and social functions. Therefore, healthcare workers need to pay attention to the vigor, executive function, and social function of HPH.
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  • 文章类型: Journal Article
    医疗工作者(HCW;例如,护士,社会工作者)在压力条件下工作,这种情况因COVID-19大流行而进一步加剧。对心理急救(PFA)的支持作用的回顾表明,它可以保护HCW免受心理困扰。尽管公共卫生组织对PFA的兴趣越来越大,关于其对HCW的心理健康及其在组织中的实施的潜在影响的文献很少。
    这项研究旨在评估PFA是否满足蒙特利尔HCW的心理需求,魁北克。
    招募了15名被组织内同行接受PFA的HCW样本参加半结构化面试。使用主题分析进行了定性研究。
    确定了五个主题:1)PFA满足参与者的心理社会需求;2)同龄人提供的PFA使参与者感到理解和支持;3)高可用性和多种方式促进了PFA的获取;4)职业和组织文化阻碍了PFA的获取;5)促进PFA服务使用的建议。
    结果描述了PFA干预措施满足的四种心理社会需求:拥有资源/策略,要验证,为了更好地了解他们所经历的心理反应,并在工作困难中得到指导和支持。总的来说,这些发现说明了PFA在潜在创伤事件发生后如何超越减轻痛苦症状.还强调了进一步评估PFA对心理适应和/或恢复的积极影响的相关性。
    UNASSIGNED: Healthcare workers (HCW; e.g., nurses, social workers) work in stressful conditions, a situation that has been further exacerbated by the COVID-19 pandemic. A review of the supportive role of Psychological first aid (PFA) suggested that it can protect HCW from psychological distress. Despite the growing interest of PFA among public health organizations, there is a dearth of literature on its potential impact for the psychological well-being of HCW and its implementation within organizations.
    UNASSIGNED: This study aimed to evaluate whether PFA met the psychological needs of HCW in Montreal, Quebec.
    UNASSIGNED: A sample of 15 HCW who received PFA by a peer within their organization were recruited to participate in semi-structured interviews. Qualitative research using thematic analysis was conducted.
    UNASSIGNED: Five themes were identified: 1) PFA satisfied participants\' psychosocial needs; 2) PFA provided by peers allowed participants to feel understood and supported; 3) High availability and multiple modalities facilitated PFA access; 4) Occupational and organizational cultures hindered PFA access; and 5) Recommendations to promote the use of the PFA service.
    UNASSIGNED: Results describe four psychosocial needs met by the PFA intervention: to have resources/strategies, to be validated, to obtain a better understanding of the psychological reactions they were experiencing, and to be guided and supported in their difficulties at work. Overall, these findings illustrate how PFA goes beyond the reduction of distress symptoms in the aftermath of a potentially traumatic event. The relevance to further the assessment of PFA\'s positive effects on psychological adaptation and/or recovery is also highlighted.
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  • 文章类型: Journal Article
    高等教育受到大流行的严重影响,大流行导致学术职业中断并影响学生。成功从事职业的挑战会影响个人的健康和福祉。因此,对于职业治疗师(OT)教育工作者来说,了解如何管理学术职业中断以最大程度地减少其发生至关重要,减轻其影响,并支持学生的学术职业。
    本研究旨在确定策略,主持人,以及管理菲律宾OT教育工作者遇到的学术职业中断的障碍。
    受访者是来自菲律宾提供BSOT的不同HEI的九十(90)菲律宾OT教育者,他们完成了在线横断面调查。使用4点李克特量表来确定策略,主持人,以及管理学术职业中断的障碍。描述性统计用于数据分析。
    受访者通常(M=2.95,SD=0.94)使用管理学术职业中断的策略,突出同步和异步会话的调度,以平衡在线工作负载作为最常用的策略。受访者经常(M=3.00,SD=0.70)遇到管理学术职业中断的促进者,引用学校在适应现有课程的灵活性,根据交付的背景作为最常见的推动者。受访者有时(M=2.19,SD=0.95)遇到管理学术职业中断的障碍,表明需要将收入作为最高障碍。
    尽管在管理学术职业中断时利用了策略和主持人的存在,菲律宾OT教育工作者仍然遇到障碍。社会心理支持和需求也在战略中得到强调,主持人,以及管理学术职业中断的障碍。这促使OT能力的进一步可持续发展,以告知职业治疗教育者如何最大程度地减少学术职业干扰,为了减轻其影响,并支持学生的学术职业。
    UNASSIGNED: Higher education was gravely affected by the pandemic which caused academic occupational disruptions and affected students. Challenges in successful engagement in occupations influence the health and well-being of the individual. Consequently, it is vital for occupational therapist (OT) educators to be informed on how to manage academic occupational disruptions to minimize its occurrence, mitigate its impact, and support students\' academic occupations.
    UNASSIGNED: This study aimed to determine the strategies, facilitators, and barriers in managing academic occupational disruptions encountered by Filipino OT educators.
    UNASSIGNED: Respondents were ninety (90) Filipino OT educators coming from the different HEIs in the Philippines offering BSOT who completed an online cross-sectional survey. A 4-point Likert-scale was used to determine the strategies, facilitators, and barriers in managing academic occupational disruptions. Descriptive statistics was used for data analysis.
    UNASSIGNED: Respondents often (M = 2.95, SD = 0.94) utilize strategies for managing academic occupational disruptions, highlighting scheduling of synchronous and asynchronous sessions to balance online workload as the most utilized strategy. Respondents often (M = 3.00, SD = 0.70) encounter facilitators of managing academic occupational disruptions, citing flexibility of the school in adapting existing courses based on the context of delivery as the most common facilitator. Respondents sometimes (M = 2.19, SD = 0.95) encounter barriers to managing academic occupational disruptions, indicating need to work for income as the top barrier.
    UNASSIGNED: Despite the utilization of strategies and presence of facilitators in managing academic occupational disruptions, Filipino OT educators still encountered barriers. Psychosocial support and needs were also highlighted across strategies, facilitators, and barriers in managing academic occupational disruptions. This prompts for further sustainable development of OT competence to inform occupational therapy educators on how to minimize academic occupational disruptions, to mitigate its impact, and to support students\' academic occupations.
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  • 文章类型: Journal Article
    高级别神经胶质瘤患者的家庭照顾者经常报告较高的心理困扰率,这归因于疾病的独特方面和繁重的护理需求。临床实践指南提倡从诊断到临终和丧亲的护理人员支持。然而,研究表明,护理人员的支持需求往往被忽视。
    在高级别神经胶质瘤的背景下,探索照顾者的心理支持经验和对照顾者最佳心理支持的看法。
    定性研究涉及半结构化访谈,使用反身主题分析进行数据分析。
    18位当前(n=11)和失去亲人(n=7)的家庭照顾者(73%为女性,年龄在33-69岁之间)的高级别神经胶质瘤成年人参加了。访谈探讨了护理人员对心理支持的看法。
    产生了两个主要主题。第一个主题,\'这从来都不是关于我\',反映的照顾者优先考虑高级别神经胶质瘤患者得到良好的支持,尽管他们自己经历了未满足的心理支持需求。第二个主题,\'连续,协调和个性化的支持,强调了及时和有针对性的干预措施对护理人员的重要性,在整个疾病过程中需要教育和情感支持。
    护理人员通常优先考虑患有高级别神经胶质瘤的人的支持需求;然而,在整个疾病中都有自己独特的需求。初级保健提供者在促进及时获得姑息治疗方面具有潜在作用,实践支持和脑肿瘤特异性心理支持,以满足护理者在高级别神经胶质瘤背景下的不同需求。
    UNASSIGNED: Family caregivers of people with high-grade glioma often report high rates of psychological distress, which has been attributed to the unique aspects of the disease and onerous care demands. Clinical practice guidelines advocate for caregiver support from diagnosis through to end-of-life and bereavement. Yet, research has identified that caregivers\' support needs are often overlooked.
    UNASSIGNED: To explore caregivers\' experiences of psychological support and perceptions of what constitutes optimal psychological support for caregivers in the context of high-grade glioma.
    UNASSIGNED: Qualitative study involving semi-structured interviews with data analysed using reflexive thematic analysis.
    UNASSIGNED: Eighteen current (n = 11) and bereaved (n = 7) family caregivers (73% female, aged 33-69 years) of adults with high-grade glioma participated. Interviews explored caregivers\' perceptions of psychological support.
    UNASSIGNED: Two major themes were generated. The first theme, \'It was never about me\', reflected caregivers prioritise for people with high-grade glioma to be well supported despite experiencing their own unmet psychological support needs. The second theme, \'Continuous, coordinated and personalised support\', highlighted the importance of timely and tailored interventions addressing caregivers\' practical, educational and emotional support needs throughout the illness journey.
    UNASSIGNED: Caregivers commonly prioritise the support needs of people with high-grade gliomas; yet, have their own distinct needs that vary throughout the illness. Primary care providers have a potential role in facilitating timely access to palliative care, practical support and brain tumour-specific psychological support to meet caregivers\' diverse needs across the care continuum in the context of high-grade glioma.
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