Abstract：
UNASSIGNED: Family caregivers of people with high-grade glioma often report high rates of psychological distress, which has been attributed to the unique aspects of the disease and onerous care demands. Clinical practice guidelines advocate for caregiver support from diagnosis through to end-of-life and bereavement. Yet, research has identified that caregivers\' support needs are often overlooked.
UNASSIGNED: To explore caregivers\' experiences of psychological support and perceptions of what constitutes optimal psychological support for caregivers in the context of high-grade glioma.
UNASSIGNED: Qualitative study involving semi-structured interviews with data analysed using reflexive thematic analysis.
UNASSIGNED: Eighteen current (n = 11) and bereaved (n = 7) family caregivers (73% female, aged 33-69 years) of adults with high-grade glioma participated. Interviews explored caregivers\' perceptions of psychological support.
UNASSIGNED: Two major themes were generated. The first theme, \'It was never about me\', reflected caregivers prioritise for people with high-grade glioma to be well supported despite experiencing their own unmet psychological support needs. The second theme, \'Continuous, coordinated and personalised support\', highlighted the importance of timely and tailored interventions addressing caregivers\' practical, educational and emotional support needs throughout the illness journey.
UNASSIGNED: Caregivers commonly prioritise the support needs of people with high-grade gliomas; yet, have their own distinct needs that vary throughout the illness. Primary care providers have a potential role in facilitating timely access to palliative care, practical support and brain tumour-specific psychological support to meet caregivers\' diverse needs across the care continuum in the context of high-grade glioma.
UNASSIGNED: To explore caregivers\' experiences of psychological support and perceptions of what constitutes optimal psychological support for caregivers in the context of high-grade glioma.
UNASSIGNED: Qualitative study involving semi-structured interviews with data analysed using reflexive thematic analysis.
UNASSIGNED: Eighteen current (n = 11) and bereaved (n = 7) family caregivers (73% female, aged 33-69 years) of adults with high-grade glioma participated. Interviews explored caregivers\' perceptions of psychological support.
UNASSIGNED: Two major themes were generated. The first theme, \'It was never about me\', reflected caregivers prioritise for people with high-grade glioma to be well supported despite experiencing their own unmet psychological support needs. The second theme, \'Continuous, coordinated and personalised support\', highlighted the importance of timely and tailored interventions addressing caregivers\' practical, educational and emotional support needs throughout the illness journey.
UNASSIGNED: Caregivers commonly prioritise the support needs of people with high-grade gliomas; yet, have their own distinct needs that vary throughout the illness. Primary care providers have a potential role in facilitating timely access to palliative care, practical support and brain tumour-specific psychological support to meet caregivers\' diverse needs across the care continuum in the context of high-grade glioma.
摘要：
■高级别神经胶质瘤患者的家庭照顾者经常报告较高的心理困扰率，这归因于疾病的独特方面和繁重的护理需求。临床实践指南提倡从诊断到临终和丧亲的护理人员支持。然而，研究表明，护理人员的支持需求往往被忽视。
■在高级别神经胶质瘤的背景下，探索照顾者的心理支持经验和对照顾者最佳心理支持的看法。
■定性研究涉及半结构化访谈，使用反身主题分析进行数据分析。
■18位当前（n=11）和失去亲人（n=7）的家庭照顾者（73％为女性，年龄在33-69岁之间）的高级别神经胶质瘤成年人参加了。访谈探讨了护理人员对心理支持的看法。
■产生了两个主要主题。第一个主题,\'这从来都不是关于我\',反映的照顾者优先考虑高级别神经胶质瘤患者得到良好的支持，尽管他们自己经历了未满足的心理支持需求。第二个主题,\'连续,协调和个性化的支持，强调了及时和有针对性的干预措施对护理人员的重要性，在整个疾病过程中需要教育和情感支持。
■护理人员通常优先考虑患有高级别神经胶质瘤的人的支持需求；然而，在整个疾病中都有自己独特的需求。初级保健提供者在促进及时获得姑息治疗方面具有潜在作用，实践支持和脑肿瘤特异性心理支持，以满足护理者在高级别神经胶质瘤背景下的不同需求。
■在高级别神经胶质瘤的背景下，探索照顾者的心理支持经验和对照顾者最佳心理支持的看法。
■定性研究涉及半结构化访谈，使用反身主题分析进行数据分析。
■18位当前（n=11）和失去亲人（n=7）的家庭照顾者（73％为女性，年龄在33-69岁之间）的高级别神经胶质瘤成年人参加了。访谈探讨了护理人员对心理支持的看法。
■产生了两个主要主题。第一个主题,\'这从来都不是关于我\',反映的照顾者优先考虑高级别神经胶质瘤患者得到良好的支持，尽管他们自己经历了未满足的心理支持需求。第二个主题,\'连续,协调和个性化的支持，强调了及时和有针对性的干预措施对护理人员的重要性，在整个疾病过程中需要教育和情感支持。
■护理人员通常优先考虑患有高级别神经胶质瘤的人的支持需求；然而，在整个疾病中都有自己独特的需求。初级保健提供者在促进及时获得姑息治疗方面具有潜在作用，实践支持和脑肿瘤特异性心理支持，以满足护理者在高级别神经胶质瘤背景下的不同需求。
