professionals' perceptions

  • 文章类型: Journal Article
    背景:关于参与癌症护理的医疗保健专业人员对他们在患者护理途径中各自角色的看法的定性研究是有限的。因此,这项定性研究的目的是记录这些看法。
    方法:一个包括患者研究人员在内的多学科团队构建了一个半结构化访谈指南,以了解专业人士对结直肠癌护理途径的看法。采访了来自两家管理结直肠癌患者的法国医院的医疗保健专业人员。然后,整个多学科小组对访谈进行了全面转录和分析。
    结果:采访了13名医疗保健专业人员(6名护士,四位医生,一个心理学家,一名社会工作者和一名秘书)。他们使用很大的词汇多样性描述了结直肠护理途径,并列出了大量参与该途径的专业人员。提到的人中有在医院内外工作的医疗保健专业人员,家庭成员和非常规医生。然而,他们没有自发地提到病人。他们对转诊医生的作用的看法,进一步研究了全科医生和患者.访谈突出了各专业人员之间的协调困难,特别是在全科医生和医院团队之间。这些数据为开发有助于专业人员之间协调的工具提供了有趣的要素。
    结论:这项初步研究,凭借其参与性设计,为大肠癌患者的护理途径带来了有趣的反思元素。它将通过创建一个更大的参与项目来继续。
    患者伴侣被纳入本研究的所有步骤。这个跨学科项目由三个病人伙伴组成的小组协调,两名医疗保健专业人员和两名人文社会科学研究人员。他们对患者对护理路径的看法的了解丰富了从研究设计到结果分析的讨论。
    BACKGROUND: Qualitative research on the perceptions of healthcare professionals involved in cancer care about their respective roles in the patient care pathway is limited. Therefore, the aim of this qualitative study was to document these perceptions.
    METHODS: A multidisciplinary team that included patient researchers constructed a semi-structured interview guide on the perceptions of the colorectal cancer care pathway by professionals. Interviews were conducted with healthcare professionals from two French hospitals that manage patients with colorectal cancer. Then, the interviews were fully transcribed and analysed by the whole multidisciplinary team.
    RESULTS: Thirteen healthcare professionals were interviewed (six nurses, four physicians, one psychologist, one social worker and one secretary). They described the colorectal care pathway using a great lexical diversity and listed a significant number of professionals as taking part in this pathway. Among the people mentioned were healthcare professionals working inside and outside the hospital, family members and non-conventional medicine practitioners. However, they did not spontaneously mention the patient. Their views on the role of the referring physician, the general practitioner and the patient were further explored. The interviews highlighted the coordination difficulties among the various professionals, particularly between general practitioners and hospital teams. These data provided interesting elements for developing a tool to help coordination among professionals.
    CONCLUSIONS: This preliminary study, with its participatory design, brings interesting elements of reflection on the care pathway for patients with colorectal cancer. It will continue through the creation of a larger participatory project.
    UNASSIGNED: Patient partners were included in all steps of this study. This transdisciplinary project was coordinated by a group composed of three patient partners, two healthcare professionals and two humanities and social sciences researchers. Their knowledge of the patient\'s perspective on the care pathway enriched discussions from the study design to results analysis.
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  • 文章类型: Journal Article
    目的:许多儿童和青少年支持患有癌症的亲属。然而,关于年轻照顾者(YC)的文献表明,专业人士缺乏意识,尤其是肿瘤学.这项定量研究旨在探索与癌症患者一起工作的医疗保健专业人员对YC的情况和特征的知识水平和看法。
    方法:395名专业人员参与了一项在线调查。专业人士报告了社会人口统计学和专业信息,并回答了几个问题,评估了他们对YC的看法,例如提供的支持类型以及成为YC的后果。描述性分析和分组比较(卡方,Mann-WhitneyU,和Kruskal-Wallis测试)按性别,职业,和接受治疗的患者(成人和/或儿科)根据收集的数据进行。
    结果:总体而言,根据关于YC的文献,专业人员提供了YC可以是什么的充分描述,尽管二分之一的专业人士从未听过这个词。观察到几个差异:男性提到YC可以提供的支持类型较少,虽然女性报告成为YC的负面后果更多;心理学家和社会工作者报告对这些年轻人的积极影响比其他专业人员少;与儿科患者一起工作的专业人员提到的负面后果比与成年人一起工作的专业人员少。
    结论:肿瘤学医疗保健专业人员对YC有足够的认识;然而,几位专业人士努力充分了解YC的情况。这些发现强调了肿瘤学意识计划的必要性,以提高卫生专业人员对YC的理解并增强他们的识别和支持。
    OBJECTIVE: Many children and adolescents support relatives with cancer. However, literature about young carers (YCs) shows a lack of awareness among professionals, especially in oncology. This quantitative study aims to explore the level of knowledge and perceptions of healthcare professionals working with cancer patients about the situations and characteristics of YCs.
    METHODS: 395 professionals participated in an online survey. Professionals reported sociodemographic and professional information and answered several questions evaluating their perceptions about YCs, such as the types of support provided and the consequences of being a YC. Descriptive analysis and group comparisons (Chi-square, Mann-Whitney U, and Kruskal-Wallis tests) by sex, occupation, and patients treated (adult and/or pediatric) are performed on the data collected.
    RESULTS: Overall, per the literature on YCs, professionals provide an adequate description of what a YC can be, even though one in two professionals have never heard the term. Several differences are observed: Men mention fewer types of support that YCs can provide, while women report more negative consequences of being a YC; psychologists and social workers report fewer positive impacts for these young people than the other professionals; professionals who work with pediatric patients mention fewer negative consequences than those who work with adults.
    CONCLUSIONS: Oncology healthcare professionals have sufficient awareness of YCs; however, several professionals struggle to fully understand the situation of YCs. These findings underline the need for awareness programs in oncology to improve health professionals\' understanding of YCs and enhance their identification and support.
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  • 文章类型: Journal Article
    Although research on child sexual abuse (CSA) has greatly evolved, studies revealing survivors\' conflicting feelings towards their perpetrators and family members are scarce. Professionals\' perceptions of love in intrafamilial CSA are often overlooked.
    The current study examined the perceptions of professionals working on CSA multidisciplinary teams (MDT). The research questions were: (1) How do professionals define love in families with CSA? (2) What are professionals\' perceptions of parental love in families with CSA? (3) What are professionals\' perceptions of love from the abused child towards their parents and siblings? (4) What are the differences between professionals\' perceptions of love and those of the families they serve, and how do professionals deal with these different perceptions during interventions?
    Five focus groups with a total of 34 child advocacy center (CAC) and MDT professionals from two CACs in the US mid-Atlantic region were conducted virtually and analyzed using a thematic approach.
    The findings indicated that professionals recognized parental love at the center of familial child sexual abuse (FCSA) cases and its range from benevolent and healthy to maladaptive, offensive love. Professionals also recognized the mechanisms enabling children\'s love for both offending and non-offending parents and complex expressions of love between siblings, even when one sibling sexually abused another.
    This study highlights the importance of promoting discourse on love in cases of intrafamilial CSA. Recognizing and embracing the complexity of love bonds may empower the abused child and support their need to believe in their parents\' love.
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