关键词: care pathway colorectal cancer co‐construction participatory research patient partners professionals' perceptions

Mesh : Humans Colorectal Neoplasms / psychology therapy Qualitative Research Female Attitude of Health Personnel Male Interviews as Topic Critical Pathways France Health Personnel / psychology Patient Care Team Middle Aged Adult

来  源:   DOI:10.1111/hex.14146   PDF(Pubmed)

Abstract:
BACKGROUND: Qualitative research on the perceptions of healthcare professionals involved in cancer care about their respective roles in the patient care pathway is limited. Therefore, the aim of this qualitative study was to document these perceptions.
METHODS: A multidisciplinary team that included patient researchers constructed a semi-structured interview guide on the perceptions of the colorectal cancer care pathway by professionals. Interviews were conducted with healthcare professionals from two French hospitals that manage patients with colorectal cancer. Then, the interviews were fully transcribed and analysed by the whole multidisciplinary team.
RESULTS: Thirteen healthcare professionals were interviewed (six nurses, four physicians, one psychologist, one social worker and one secretary). They described the colorectal care pathway using a great lexical diversity and listed a significant number of professionals as taking part in this pathway. Among the people mentioned were healthcare professionals working inside and outside the hospital, family members and non-conventional medicine practitioners. However, they did not spontaneously mention the patient. Their views on the role of the referring physician, the general practitioner and the patient were further explored. The interviews highlighted the coordination difficulties among the various professionals, particularly between general practitioners and hospital teams. These data provided interesting elements for developing a tool to help coordination among professionals.
CONCLUSIONS: This preliminary study, with its participatory design, brings interesting elements of reflection on the care pathway for patients with colorectal cancer. It will continue through the creation of a larger participatory project.
UNASSIGNED: Patient partners were included in all steps of this study. This transdisciplinary project was coordinated by a group composed of three patient partners, two healthcare professionals and two humanities and social sciences researchers. Their knowledge of the patient\'s perspective on the care pathway enriched discussions from the study design to results analysis.
摘要:
背景:关于参与癌症护理的医疗保健专业人员对他们在患者护理途径中各自角色的看法的定性研究是有限的。因此,这项定性研究的目的是记录这些看法。
方法:一个包括患者研究人员在内的多学科团队构建了一个半结构化访谈指南,以了解专业人士对结直肠癌护理途径的看法。采访了来自两家管理结直肠癌患者的法国医院的医疗保健专业人员。然后,整个多学科小组对访谈进行了全面转录和分析。
结果:采访了13名医疗保健专业人员(6名护士,四位医生,一个心理学家,一名社会工作者和一名秘书)。他们使用很大的词汇多样性描述了结直肠护理途径,并列出了大量参与该途径的专业人员。提到的人中有在医院内外工作的医疗保健专业人员,家庭成员和非常规医生。然而,他们没有自发地提到病人。他们对转诊医生的作用的看法,进一步研究了全科医生和患者.访谈突出了各专业人员之间的协调困难,特别是在全科医生和医院团队之间。这些数据为开发有助于专业人员之间协调的工具提供了有趣的要素。
结论:这项初步研究,凭借其参与性设计,为大肠癌患者的护理途径带来了有趣的反思元素。它将通过创建一个更大的参与项目来继续。
患者伴侣被纳入本研究的所有步骤。这个跨学科项目由三个病人伙伴组成的小组协调,两名医疗保健专业人员和两名人文社会科学研究人员。他们对患者对护理路径的看法的了解丰富了从研究设计到结果分析的讨论。
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