parents

父母
  • 文章类型: Journal Article
    目的:进行这项研究是为了确定幼儿(2-5岁)技术成瘾的预测因素。这项研究检查了数字育儿意识的影响,父母的压力,家庭人口统计学特征和父母的技术使用习惯对幼儿技术成瘾的影响。
    方法:这项横断面研究是在2023年10月至2024年2月之间进行的,在土耳其西地中海地区的一个省,有401名2-5岁儿童的志愿父母。数据是使用2-5岁的技术成瘾量表、数字父母意识量表收集的,和父母压力量表。
    结果:数字育儿意识,负面建模和数字忽视,父母压力对幼儿技术成瘾有积极和直接的影响(β1=0.166,β2=0.443,β3=0.087,均p<0.05)。此外,父母性别(β=0.095),父母婚姻状况(β=0.092),家庭收入(β=0.088)是幼儿技术成瘾的显著预测因子(p<0.05)。在没有父母控制的情况下使用设备的儿童中,技术成瘾的水平明显更高(Z=-6.187,p<0.001)。
    结论:数字育儿意识低,父母压力很大,男性看护人,数字工具中的低家庭收入和单亲家庭增加了幼儿(2-5岁)技术成瘾的风险。多学科,面向家庭的干预计划,考虑父母的危险因素,应该发展以预防和减少这一群体的技术成瘾。
    OBJECTIVE: This study was conducted to determine the factors predictive of technology addiction in young children (aged 2-5 years). The study examined the effects of digital parenting awareness, parental stress, family demographic characteristics and parents\' technology use habits on technology addiction in young children.
    METHODS: This cross-sectional study was conducted between October 2023 and February 2024 with 401 volunteer parents of children aged 2-5 years in a province in the Western Mediterranean region of Turkey. Data were collected using the Technology Addiction Scale for Ages 2-5, the Digital Parental Awareness Scale, and the Parental Stress Scale.
    RESULTS: Digital parenting awareness, negative modeling and digital neglect, and parental stress positively and directly affect technology addiction in young children (β1 = 0.166, β2 = 0.443, β3 = 0.087, all p < 0.05). Additionally, parental gender (β = 0.095), parental marital status (β = 0.092), and household income (β = 0.088) were significant predictors of technology addiction in young children (p < 0.05). The level of technology addiction is significantly higher in children who use devices without parental controls (Z = -6.187, p < 0.001).
    CONCLUSIONS: Low digital parenting awareness, high parental stress, male caregivers, low household income and single-parent families in digital tools increase the risk of technology addiction in young children (2-5 years). Multidisciplinary, family-oriented intervention programs, incorporating consideration of parental risk factors, should be developed to prevent and reduce technology addiction in this group.
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  • 文章类型: Journal Article
    背景:基于在线的干预措施提供了一种低门槛的方式来接触和支持家庭。以心理为基础的灯塔育儿计划是一项既定的干预措施,旨在预防儿童的精神病理学发展。这项研究的目的是研究在线适应灯塔育儿计划(LPP-Online)的可行性,评估(A)招聘能力,合规,对干预的可接受性和满意度;(b)辅助心理评估的心理测量特性和可接受性;(c)使用的材料和资源。该研究还将对参与者对干预措施的反应进行初步评估。
    方法:在这个单中心,单臂,非随机可行性试验,n=30名患有0至14岁儿童的心理困扰父母将参加LPP-Online,为期8周。干预包括在线小组会议和个人会议,38种基于智能手机的生态瞬时干预措施(EMI),和心理教育材料(网站,小册子)。在基线(T0)和干预结束(T1),父母通过智能手机完成自我报告问卷以及7天的生态瞬时评估(EMA)。在干预期间,额外的EMA在每日EMI之前和之后完成。关于父母对干预的主观体验的访谈将在T1进行。干预的可行性,心理评估和资源将使用描述性和定性分析进行检查。父母对干预措施的反应的初步评估将通过分析问卷测量和7天EMA的前后变化以及每日EMI之前和之后完成的其他EMA数据来进行。
    背景:已从当地道德委员会(行为与文化研究学院,海德堡大学)。参与的同意将在开始评估之前获得。结果将作为出版物在同行评审的科学期刊和国际会议上传播。
    背景:德国临床试验注册(DRKS00027423),OSF(https://doi.org/10.17605/OSF.IO/942YW)。
    BACKGROUND: Online-based interventions provide a low-threshold way to reach and support families. The mentalisation-based Lighthouse Parenting Programme is an established intervention aimed at preventing psychopathological development in children. The objective of this study is to examine the feasibility of an online adaptation of the Lighthouse Parenting Programme (LPP-Online), evaluating (a) recruitment capability, compliance, acceptability and satisfaction with the intervention; (b) the psychometric properties of and the acceptability regarding the adjunct psychological evaluation; and (c) the employed materials and resources. The study will also obtain a preliminary evaluation of participants\' responses to the intervention.
    METHODS: In this monocentric, one-arm, non-randomised feasibility trial, n=30 psychologically distressed parents with children aged 0 to 14 years will participate in the LPP-Online for a duration of 8 weeks. The intervention consists of online group sessions and individual sessions, 38 smartphone-based ecological momentary interventions (EMI), and psychoeducational materials (website, booklet). At baseline (T0) and the end of the intervention (T1), parents complete self-report questionnaires as well as 7-day ecological momentary assessments (EMA) via smartphone. During the intervention, additional EMA are completed before and after the daily EMI. An interview regarding parents\' subjective experience with the intervention will be conducted at T1. The feasibility of the intervention, the psychological evaluation and the resources will be examined using descriptive and qualitative analyses. The preliminary evaluation of the parents\' response to the intervention will be conducted by analysing pre-post changes in questionnaire measures and the 7-day EMA as well as data of additional EMA completed before and after the daily EMI.
    BACKGROUND: Ethical approval of the study has been obtained from the local ethics board (Faculty of Behavioural and Cultural Studies, University of Heidelberg). Consent to participate will be obtained before starting the assessments. Results will be disseminated as publications in peer-reviewed scientific journals and at international conferences.
    BACKGROUND: German Clinical Trials Register (DRKS00027423), OSF (https://doi.org/10.17605/OSF.IO/942YW).
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  • 文章类型: Journal Article
    背景:唇裂和/或腭裂(CL/P)影响全球1/700的活产。患有CL/P的儿童及其家庭在整个儿童发展过程中面临着各种挑战。现有的研究通常受到数量少和单中心数据的限制。裂开的集体,英国的一项全国性队列研究,旨在建立一种资源,提供给全球的合作者,为了了解原因,对于患有CL/P的人来说,最好的治疗方法和长期结果,最终寻求通过提高理解和护理来提高他们的生活质量。
    方法:一项针对CL/P出生儿童及其家庭的纵向前瞻性队列研究。招聘在英国各地进行,并于2013年11月开始。招募将持续到2027年9月,估计最终样本为4822名CL/P患儿(1157例唇裂,包括/不包括肺泡;仅2112例腭裂;1042例单侧唇腭裂和511例双侧唇腭裂)。从所有招募的家庭成员收集生物样品。父母和儿童问卷是在整个儿童发展的关键时间点收集的。手术数据是在手术修复儿童裂隙时收集的。获得链接到外部数据源的同意。嵌套子单元可以托管在队列中。通过给孩子们的生日贺卡定期与参与者互动,社交媒体帖子和新闻通讯。患者和公众参与是通过唇裂协会和唇裂集体患者咨询小组进行的,他们在整个计划和进行研究期间为唇裂集体提供有见地和必要的指导。
    背景:Cleft集体在道德上得到了国家研究伦理服务委员会西南-中部布里斯托尔(REC13/SW/0064)的批准。参与需要父母知情同意。克里特集体的调查结果通过同行评审的出版物传播,会议介绍,通讯和社交媒体。
    BACKGROUND: Cleft lip and/or palate (CL/P) affects 1 in 700 live births globally. Children born with CL/P and their families face various challenges throughout the child\'s development. Extant research is often limited by small numbers and single-centre data. The Cleft Collective, a national cohort study in the UK, aims to build a resource, available to collaborators across the globe, to understand causes, best treatments and long-term outcomes for those born with CL/P, ultimately seeking to enhance their quality of life through improved understanding and care.
    METHODS: A longitudinal prospective cohort study of children born with CL/P and their families. Recruitment occurs across the UK and started in November 2013. Recruitment will continue until September 2027 with an estimated final sample of 4822 children born with CL/P (1157 cleft lip including/excluding the alveolus; 2112 cleft palate only; 1042 unilateral cleft lip and palate and 511 bilateral cleft lip and palate). Biological samples are collected from all recruited members of the family. Parental and child questionnaires are collected at key time points throughout the child\'s development. Surgical data are collected at the time of surgical repair of the child\'s cleft. Consent is obtained to link to external data sources. Nested substudies can be hosted within the cohort. Regular engagement with participants takes place through birthday cards for the children, social media posts and newsletters. Patient and Public Involvement is conducted through the Cleft Lip And Palate Association and Cleft Collective Patient Consultation Group who provide insightful and essential guidance to the Cleft Collective throughout planning and conducting research.
    BACKGROUND: The Cleft Collective was ethically approved by the National Research Ethics Service committee South West-Central Bristol (REC13/SW/0064). Parental informed consent is required for participation. Findings from the Cleft Collective are disseminated through peer-reviewed publications, conference presentations, newsletters and social media.
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  • 文章类型: Journal Article
    癌症是全球常见的健康问题。青少年和年轻人的早期癌症教育(AYAs)对于预防或早期发现癌症很重要。在这项基于问卷调查的横断面研究中,我们检查了AYAs父母对癌症的认识。这项研究包括有初中或高中儿童的日本成年人。癌症意识测量(CAM)用于评估癌症意识,该调查于2021年12月进行。警告标志,寻求帮助的障碍,并使用在线匿名问卷对危险因素进行调查。此外,个人信息,其他癌症幸存者的存在,参加癌症研讨会,和孩子们谈论癌症,对儿童癌症教育的兴趣,和以前的癌症筛查进行了调查。使用t检验或Spearman相关系数比较各个因素的CAM总分。使用χ2检验分析癌症筛查行为与个体因素之间的关系。此外,使用多元回归分析或logistic回归分析来确定影响癌症认知或癌症筛查行为的因素.从612名参与者获得回答。癌症警告信号的平均CAM评分为3.7,4.3寻求帮助的障碍,风险因素为6.5。癌症警告信号与性别和配偶的存在有关,家庭成员,或者经历过癌症的朋友。寻求帮助的障碍与年龄有关,性别,和教育,虽然危险因素与性别有关,教育,和儿童谈论癌症。此外,这些评分与每种癌症筛查行为相关.患有AYAs的日本成年人的癌症意识受到性别的影响,学术背景,职业,他们周围有癌症幸存者,他们是否和他们的孩子谈论癌症,以及他们的癌症筛查行为。
    Cancer is a common health problem worldwide. Early cancer education for adolescents and young adults (AYAs) is important for the prevention or early detection of cancer. In this questionnaire-based cross-sectional study, we examined the cancer awareness among parents of AYAs. Japanese adults with junior or senior high school children were included in this study. The cancer awareness measure (CAM) was used to assess cancer awareness, and the survey was conducted in December 2021. Warning signs, barriers to seeking help, and risk factors were surveyed using an online anonymous questionnaire. In addition, personal information, the presence of other cancer survivors, attendance at cancer seminars, conversations with children about cancer, interest in cancer education for children, and previous cancer screening were surveyed. A t-test or Spearman correlation coefficient was used to compare the total CAM scores for the individual factors. The relationship between cancer-screening behavior and individual factors was analyzed using the χ2 test. In addition, multiple regression analysis or logistic regression analysis was used to identify the factors influencing cancer awareness or cancer-screening behavior. Responses were obtained from the 612 participants. The mean CAM score was 3.7 for cancer warning signs, 4.3 for barriers to seeking help, and 6.5 for risk factors. Cancer warning signs were associated with gender and the presence of a spouse, family member, or friend who had experienced cancer. Barriers to seeking help were associated with age, gender, and education, while risk factors were associated with gender, education, and conversations about cancer with children. Moreover, these scores were associated with each cancer screening behavior. Cancer awareness among Japanese adults with AYAs was influenced by gender, academic background, occupation, the presence of cancer survivors around them, and whether they had conversations about cancer with their children, as well as their cancer screening behavior.
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  • 文章类型: Journal Article
    背景:传统的悬漏切除术在非洲尤其是在包括埃塞俄比亚在内的撒哈拉以南国家广泛实施。在世界不同时期和地区进行的有限研究表明,悬垂切除术的患病率及其相关因素因国家而异。确定埃塞俄比亚渎职的普遍性和原因的证据有限。因此,这项研究旨在评估传统悬垂切除术的患病率,及其相关因素在有6个月以下儿童的父母中。
    方法:在通过系统抽样技术选择的630名参与者中进行了基于社区的横断面混合研究设计。使用预先测试的面试官管理的问卷收集数据。将收集到的数据输入到Epi数据中,并使用STATA版本14软件进行分析。使用表格计算和呈现描述性统计数据,数字和文本。在X2-分析中,选择与悬雍垂切除术患病率相关的因素进行概率值(p值)小于0.2的多重逻辑回归。在概率值(p值)小于0.05和校正OR(AOR)(95%CI)下鉴定出具有统计学意义的相关因素。使用目的抽样技术共纳入10名个人深度受访者和5名关键线人。对于定性研究,并采用主题内容分析对数据进行分析,被转录的,翻译,编码,筛选,主题化,分析,合成,最后补充了定量发现。
    结果:传统悬垂切除术的患病率为84.60%(CI:81.77%n-87.42%)。作为农村居民(调整后的OR=2.08,CI=1.06-4.12),30至34岁的母亲(调整后的OR=2.9,CI=1.28-6.60),没有产前护理访问(调整后的OR=3.91,CI=1.33-11.47),没有不良产科病史(校正后的OR=2.11,CI=1.12-3.98),未进行产后护理访视(校正后OR=3.88,CI=1.36-11.12)和母亲态度不良(校正后OR=3.32,CI=2.01-5.47)是传统手术的显著相关因素。寻求传统的悬垂切除术,缺乏信息和第三方压力是支持定量研究结果的定性研究的主要主题。
    结论:传统的悬垂切除术的患病率较高。作为农村居民,30至34岁的母亲,没有产前检查,没有产科病史的并发症,没有产后护理访视和母亲态度差是传统手术的显著相关因素。缺乏有关悬垂切除术和第三方压力的信息是寻求传统悬垂切除术的原因。
    BACKGROUND: Traditional uvulectomy is widely practiced in Africa especially in sub-Saharan countries including Ethiopia. Limited Studies conducted in different times and areas of the world have shown that the prevalence of uvulectomy and its associated factors are varied from country to country. There is limited evidence to determine the prevalence and reasons of malpractice in Ethiopia. Therefore, this study aimed to assess the prevalence of traditional uvulectomy, and its associated factors among parents who had children aged less than 6 months.
    METHODS: A community-based cross-sectional mixed study design was conducted among 630 participants selected by a systematic sampling technique. Data were collected using a pretested interviewer-administered questionnaire. The collected data were entered into Epi-data, and analyzed by using STATA version 14software. Descriptive statistics were computed and presented using tables, figures and texts. Factors associated with the prevalence of uvulectomy were selected for multiple logistic regressions at the probability value (p-value) of less than 0.2 in the X2- analysis. Statistically significant associated factors were identified at the probability value (p-value) less than 0.05 and adjusted OR (AOR) with a 95% CI. A total of 10 individual depth interviewees and 5 key informants were included using purposive sampling techniques. For the qualitative study, and thematic content analysis was employed to analyze the data, which were transcribed, translated, coded, screened, thematized, analyzed, synthesized, and finally supplemented the quantitative finding.
    RESULTS: The prevalence of traditional uvulectomy was 84.60% (CI: 81.77%n-87.42%). Being rural residence (adjusted OR = 2.08, CI = 1.06-4.12), mothers aged 30 to 34 years (adjusted OR = 2.9, CI = 1.28-6.60), having no antenatal care visit (adjusted OR = 3.91, CI = 1.33-11.47), having no bad obstetric history (adjusted OR = 2.11, CI = 1.12-3.98), having no postnatal care visit (adjusted OR = 3.88, CI = 1.36-11.12) and mothers\' poor attitude (adjusted OR = 3.32, CI = 2.01-5.47) were statistically significant associated factors of traditional uvulectomy. Seeking traditional uvulectomy, lack of information and third-party pressure were the main themes of the qualitative study that support the findings of the quantitative study.
    CONCLUSIONS: The prevalence of traditional uvulectomy was high. Being rural residents, mothers aged 30 to 34 years, having no antenatal care visit, having no complications of obstetric history, having no postnatal care visit and mothers with poor attitude were statistically significant associated factors of traditional uvulectomy. Lack of information about uvulectomy and third-party pressure was the reason for seeking traditional uvulectomy.
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  • 文章类型: Journal Article
    目睹他人的情感表达会触发人类的生理唤醒。当前的研究集中在社区样本中瞳孔对情绪表达的反应,作为唤醒和注意力的生理指标。我们探索了父母和后代对情绪动态面部表情的反应之间的关联,以及瞳孔反应和焦虑/抑郁之间的联系。儿童(N=90,MAge=10.13,范围=7.21-12.94,47名女孩)与父母之一(47名母亲)一起参加了这项实验室研究。学生反应在计算机任务中进行了动态快乐评估,生气,恐惧,悲伤的表情,同时参与者尽可能快地口头标记屏幕上显示的情绪。父母和儿童在问卷中报告了焦虑和抑郁症状。父母和孩子都对阴性表达和阳性表达表现出更强的瞳孔反应,儿童的反应总体上比父母更强。我们还发现了父母和孩子的学生对负面反应之间的联系,尤其是愤怒的面孔。儿童的瞳孔反应与他们自己和他们的父母的焦虑水平以及他们的父母(但不是他们自己的)抑郁有关。我们得出的结论是,儿童学生对父母学生的个体差异和社区样本中的情感倾向很敏感。
    Witnessing emotional expressions in others triggers physiological arousal in humans. The current study focused on pupil responses to emotional expressions in a community sample as a physiological index of arousal and attention. We explored the associations between parents\' and offspring\'s responses to dynamic facial expressions of emotion, as well as the links between pupil responses and anxiety/depression. Children (N = 90, MAge = 10.13, range = 7.21-12.94, 47 girls) participated in this lab study with one of their parents (47 mothers). Pupil responses were assessed in a computer task with dynamic happy, angry, fearful, and sad expressions, while participants verbally labeled the emotion displayed on the screen as quickly as possible. Parents and children reported anxiety and depression symptoms in questionnaires. Both parents and children showed stronger pupillary responses to negative versus positive expressions, and children\'s responses were overall stronger than those of parents. We also found links between the pupil responses of parents and children to negative, especially to angry faces. Child pupil responses were related to their own and their parents\' anxiety levels and to their parents\' (but not their own) depression. We conclude that child pupils are sensitive to individual differences in parents\' pupils and emotional dispositions in community samples.
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  • 文章类型: Journal Article
    背景:关于儿童参与积极交通的报道概述了许多国家的低参与率,尽管有许多相关的心理,物理,和社会健康利益。造成这种现象的主要原因之一是儿童缺乏关于积极旅行(AT)的教育和知识,特别是道路安全。为了解决这个问题,这项研究的目的是评估在线道路安全教育干预措施在儿童及其父母中推广AT的可行性和有效性。
    方法:将多阶段优化策略(MOST)应用于干预开发,实施,和评估,我们设计并评估了4个模块的在线道路安全教育干预措施,样本包括57个亲子二元组,采用23个因子设计,同时进行了定性和定量分析.
    结果:主要干预可行性发现包括对计划内容和设计的积极和关键反馈,以及适度的参与者参与度,这反映在计划保留率和完成率上。关于对儿童的初步干预效果,对于采用"车轮安全和技能"模块的组,观察到道路安全知识得分显著提高.观察到所有干预组的AT知识得分略有改善,但意义不大。在某些群体中,对某些父母AT做法和观念的初步干预有效性得到了显着改善。具有“车轮安全和技能”模块的小组在完成该计划后表现出比未收到该组件的小组高得多的指导选择分数。
    结论:MOST框架使我们能够设计和评估在线道路安全教育干预措施的可行性和初步有效性。已开发的干预措施表明,它有可能提高儿童的道路安全知识以及父母AT做法和观念的某些领域,其中的改进可能归因于“车轮安全和技能”模块的加入,这表明有针对性地关注自行车技能是一个优先领域。讨论了AT编程和实践含义。鼓励未来的研究改进模块,以更好地反映儿童和父母的优先事项,并在更大的样本中测试这些改进的组件。
    9,391(不包括摘要,tables,数字,缩写,和参考资料)。
    BACKGROUND: Reports of children\'s engagement in active transportation outline low participation rates in many countries despite many associated mental, physical, and social health benefits. One of the main contributors to this phenomenon is a cited lack of education and knowledge among children regarding active travel (AT), specifically road safety. To address this issue, the aim of this study was to evaluate the feasibility and effectiveness of an online road safety education intervention to promote AT among children and their parents.
    METHODS: Applying the Multiphase Optimization Strategy (MOST) for intervention development, implementation, and evaluation, we designed and assessed a four-module online road safety education intervention with a sample of 57 parent-child dyads using a 23 factorial design featuring both qualitative and quantitative analyses.
    RESULTS: Main intervention feasibility findings include positive and critical feedback on the program\'s content and design, and moderate participant engagement as reflected by program retention and completion rates. With respect to the preliminary intervention effectiveness on children, a significant improvement in road safety knowledge scores was observed for groups that feature the \"wheeling safety and skills\" module. Slight improvements in AT knowledge scores across all the intervention groups were observed, but were not of significance. Preliminary intervention effectiveness on select parental AT practices and perceptions saw significant improvements in some groups. Groups that featured the \'wheeling safety and skills\' module exhibited significantly higher guided choice scores upon completion of the program than those who did not receive this component.
    CONCLUSIONS: The MOST framework allowed us to design and evaluate the feasibility and preliminary effectiveness of an online road safety education intervention. The developed intervention has demonstrated that it has the potential to improve children\'s road safety knowledge and some areas of parental AT practices and perceptions, to which improvements may be attributed to the inclusion of the \"wheeling safety and skills\" module, suggesting that the targeted focus on cycling skills is a prioritized area. AT programming and practice implications are discussed. Future research is encouraged to refine modules to better reflect the priorities of children and parents and to test these refined components among larger samples.
    UNASSIGNED: 9,391 (excludes abstract, tables, figures, abbreviations, and references).
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  • 文章类型: Journal Article
    这项研究旨在比较两种小儿牙科麻醉技术的父母满意度,计算机骨内麻醉(CIA)和下牙槽神经阻滞(IANB)。本研究被设计为一项分口随机对照临床试验。共有52名接受牙科治疗的儿童的父母参加了这项研究。每位参与者都接受了CIA和IANB麻醉,随机给药顺序。使用牙科局部麻醉技术量表(PSLAS)的父母满意度评估父母满意度。统计分析表明,父母对CIA的满意度高于对IANB的满意度,差异有统计学意义(P<0.05)。然而,年龄没有区别,性别或父母的教育水平。(P>0.05)。这项研究提供了有关父母对小儿牙科麻醉技术满意度的见解,并强调了社会经济因素对麻醉决策的影响。在这次审判的限制范围内,结论是CIA在总体家长满意度方面显著优于IANB.然而,CIA组的父母满意度值在费用和并发症方面较低.此外,结论是,关于性别的满意度没有差异,父母的年龄和教育水平。
    This study aimed to compare parental satisfaction between two pediatric dental anesthesia techniques, computerized intraosseous anesthesia (CIA) and inferior alveolar nerve block (IANB). This study was designed as a split-mouth randomized controlled clinical trial. A total of 52 parents of children undergoing dental treatment were enrolled in the study. Each participant received both CIA and IANB anesthesia, with the order of administration randomized. Parental satisfaction was evaluated using the parental satisfaction of dental local anesthetic techniques scale (PSLAS). Statistical analysis revealed that parental satisfaction regarding CIA was higher than that for IANB with a significant difference (P ˂ 0.05). However, there was no difference regarding the age, gender or the education level of the parents. (P > 0.05). This study provides insights into parental satisfaction with pediatric dental anesthesia techniques and highlights the influence of socioeconomic factors on anesthesia decision-making. Within the limitations of this trial, it was concluded that CIA was significantly superior to IANB in overall parental satisfaction. However, parental satisfaction values were lower in CIA group regarding costs and concern from complications. In addition, it was concluded that there was no difference in satisfaction levels regarding the gender, age and education level of the parents.
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  • 文章类型: Journal Article
    父母在新生儿重症监护病房(NICU)及以后的孩子的神经发育结局中起着关键作用。父母在临床护理和研究中的整合是协同的。参与的父母产生更全面的临床护理和更强大和有意义的研究产品。随后,成功的临床和研究工作改善了儿童的预后.我们回顾了父母融入NICU临床护理和研究的策略,包括父母参与治疗干预和神经发育护理,以及临床医生和研究人员的有效沟通策略。我们讨论了新生儿试验中的挑战,并强调了建立研究文化的必要性,与患者倡导组织的合作伙伴关系,以及NICU以外的持续支持。总的来说,我们呼吁认识到并培养父母作为临床医生和研究人员的队友在优化NICU内外的神经发育结局方面的重要作用.
    Parents play a pivotal role in neurodevelopmental outcomes of their children in the neonatal intensive care unit (NICU) and beyond. Integration of parents in clinical care and research is synergistic. Engaged parents yield more comprehensive clinical care and more robust and meaningful research products. Subsequently, successful clinical and research efforts improve outcomes for children. We review strategies for parental integration into NICU clinical care and research, including parental involvement in therapeutic interventions and neurodevelopmental care, and effective communication strategies for clinicians and researchers. We discuss challenges in neonatal trials and emphasize the need for building a culture of research, collaborative partnerships with patient advocacy organizations, and ongoing support beyond the NICU. Overall, we call for recognizing and fostering the impactful role of parents as teammates with clinicians and researchers in optimizing neurodevelopmental outcomes in the NICU and beyond.
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  • 文章类型: Journal Article
    性少数群体的年轻男性经历高艾滋病毒发病率。基于父母的干预措施对预防工作很有希望,但是需要进一步的研究来确定具体的,可复制的父母行为与性少数年轻男性性健康结果的改善相关。我们评估了父母在促进获得避孕套方面的行为,提供避孕套使用指导,并支持艾滋病毒检测,并测试父母的行为是否与儿子使用避孕套的自我效能和接受HIV检测的意图有关。数据来自一项基于父母的艾滋病毒预防计划的试点试验的基线评估,参与者是性少数年轻男性(M.年龄:16.87;46%的种族/少数民族)及其父母(M.年龄:44.31;26%的种族/少数民族)。父母和儿子报告了每个领域的父母行为。结果表明,父母获得安全套的便利与儿子使用安全套的自我效能有关,父母促进艾滋病毒检测与儿子的艾滋病毒检测意图有关。在父母和儿子的父母行为报告中,调查结果都很可靠。父母使用避孕套的指导与儿子使用避孕套的自我效能无关。研究结果表明,以父母为基础的针对性少数青年男子的艾滋病毒预防计划应鼓励父母为其儿子提供工具性援助,以获得避孕套和艾滋病毒检测。需要进一步研究以确定潜在的机制。
    Sexual minority young men experience a high HIV incidence. Parent-based interventions are promising for prevention efforts, but further research is needed to identify specific, replicable parental behaviors associated with improved sexual health outcomes for sexual minority young men. We assessed parental behaviors in the domains of facilitating access to condoms, providing instruction in condom use, and supporting HIV testing, and tested whether parental behaviors were associated with sons\' condom use self-efficacy and intentions to get tested for HIV. Data came from the baseline assessment of a pilot trial of a parent-based HIV prevention program, and participants were dyads (n = 61) of sexual minority young men (M. age: 16.87; 46% racial/ethnic minority) and their parents (M. age: 44.31; 26% racial/ethnic minority). Parents and sons reported on parental behaviors in each domain. Results indicated that parents\' facilitation of access to condoms was associated with sons\' condom use self-efficacy, and parents\' facilitation of HIV testing was associated with sons\' HIV testing intentions. Findings were robust across both parent and son reports of parental behaviors. Parental condom use instruction was unrelated to sons\' condom use self-efficacy. Findings suggest that parent-based HIV prevention programs for sexual minority young men should encourage parents to provide instrumental assistance to their sons in accessing condoms and HIV testing. There is a need for further research to identify underlying mechanisms.
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