multidisciplinary collaboration

多学科协作
  • 文章类型: Journal Article
    该病例报告讨论了由于中风并发植入心脏右侧的下腔静脉(IVC)过滤器迁移而导致偏瘫的患者的功能结局和多学科协调。该患者患有急性右侧中风并伴有出血性转化,需要进行半切除术并伴有左偏瘫。由于存在进一步颅内出血的风险,患者随后出现肺栓塞,需要放置IVC过滤器,因为禁用抗凝治疗。后来发现IVC过滤器桥接三尖瓣,手术干预是禁忌的,需要一个协调的计划来延迟手术移除过滤器,以便优化患者的功能和医疗状态。患者在重症监护病房接受了广泛的遥测监测,以验证身体活动未发生明显的心律失常,并最终获准入院接受急性住院康复治疗。心脏之间有很好的协调努力,外科,重症监护,和康复小组过渡到住院康复设施,以最大程度地减少风险并加强康复。患者在整个康复过程中表现出功能改善,并与家人一起出院,最终手术切除了IVC过滤器。这个案例强调了跨多个学科合作以最大限度地提高患者康复和功能的重要性。特别是在非典型并发症的情况下。
    This case report discusses the functional outcomes and multidisciplinary coordination of care for a patient with hemiplegia due to stroke complicated by a migrated inferior vena cava (IVC) filter embedded in the right side of the heart. The patient suffered an acute right-sided stroke with hemorrhagic transformation requiring hemicraniectomy with left hemiplegia. The patient developed a subsequent pulmonary embolism requiring IVC filter placement as anticoagulation was contraindicated due to risk of further intracranial hemorrhage. The IVC filter was later identified bridging the tricuspid valve, and surgical intervention was contraindicated requiring a coordinated plan to delay surgical removal of the filter in order to allow for optimization of the patient\'s functional and medical status. The patient underwent extensive telemetry monitoring in the intensive care unit to verify no significant cardiac arrhythmia developed with physical activity and was ultimately cleared for admission to acute inpatient rehabilitation. There was a well-coordinated effort between the cardiac, surgical, intensive care, and rehabilitation teams to transition to the inpatient rehabilitation facility to minimize risk and enhance recovery. The patient demonstrated functional improvement throughout rehabilitation and was discharged home with family with eventual surgical removal of the IVC filter. This case highlights the importance of collaboration across multiple disciplines to maximize patient rehabilitation and function, particularly in the context of atypical complications.
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  • 文章类型: Journal Article
    探讨全科医生和物理治疗师对挪威初级保健中肌肉骨骼疾病患者的当前护理模式的看法,如果英国第一接触从业者模型,患者可以接触多个具有肌肉骨骼健康专业知识的专业团体,可以为服务发展提供信息。
    我们分析了对5位全科医生和11位物理治疗师的访谈,并利用利普斯基关于街头官僚主义的理论和福柯关于权力和制度结构机制的理论来探索任务转移和不同职业之间的合作。
    经验材料反映了关于初级保健中技能组合的多方面论述,其中财务因素,对能力的看法,任务偏好调节了对任务转移的态度。行业间的竞争与合作并存,历史霸权和新的护理模式之间似乎逐渐模糊,这既造成了联盟,也造成了竞争。与明智选择原则和循证实践的偏差的例子表明,全科医生和物理治疗师都平衡了患者倡导者的角色,看门人,和同质经济,在任务转移受到既定实践挑战的情况下。肌肉骨骼疾病患者的管理似乎是分散的,在某种程度上反映了供应驱动的系统。
    对初级保健的需求给全科医生带来了越来越大的压力。多学科团队合作有可能改善初级保健,对于医疗保健专业人员和患者。在这项研究中,看来,在初级保健中,全科医生和物理治疗师之间存在竞争和合作。挪威初级保健中肌肉骨骼疾病患者的服务提供有改变的情况。
    UNASSIGNED: To explore the views of general practitioners and physiotherapists on the current model of care for patients with musculoskeletal disorders in Norwegian primary care, and if the English First Contact Practitioner model, where patients have access to multiple professional groups with musculoskeletal health expertise, could inform service development.
    UNASSIGNED: We analysed interviews with five GPs and 11 physiotherapists and used Lipsky\'s theories about street-level bureaucracy and Foucault\'s theories of mechanisms of power and institutional structures to explore task shifting and cooperation between different professions.
    UNASSIGNED: The empirical material reflected a multi-faceted discourse about skill-mix in primary care, where financial factors, perceptions about competence, and task preferences moderated attitudes to task shifting. Competition and cooperation coexist between the professions, and the seemingly gradual blurring between historical hegemony and new models of care creates both alliances and rivalries. Examples of deviations from the Choosing Wisely principles and evidence-based practice indicate that both general practitioners and physiotherapists balance the roles of patient advocate, gatekeeper, and homo economicus, in a context where task shifting is challenged by established practice. It appears that the management of patients with musculoskeletal disorders is fragmented and to some extent reflects a supply-driven system.
    The demand on primary care is placing increasing pressure on general practitioners.Multidisciplinary teamwork has potential to improve primary care, for both healthcare professionals and for patients.In this study, it appeared that both competition and cooperation exist between general practitioners and physiotherapists around the management of patients with musculoskeletal disorders in primary care.There is a case for change in service delivery for patients with musculoskeletal disorders in Norwegian primary care.
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  • 文章类型: Case Reports
    功能性神经症状障碍(FNSD)是一种具有多因素病因的复杂疾病,心理因素在某些患者中可能起重要作用。它们并不是普遍存在的,也不是诊断所必需的。FNSD可以在没有心理困扰的情况下发生,每个患者的表现应该单独评估,考虑到广泛的潜在影响因素。这是有关卢旺达患病率数据的第一份报告。本报告提供了一名15岁女性患者的案例研究,该患者在直接暴露于父母冲突的背景下表现出半身无力而没有结构性神经系统解释。她最终被诊断为FNSD,并对5次认知行为治疗做出了有效反应.此外,在1年的过程中,每4个月进行一次随访预约。在此期间,患者成功恢复了研究,并在日常生活的所有重要领域表现出正常功能。这是卢旺达在类似病例中报告的首例病例。解决这些特定的压力源在患者的整体结果中起着至关重要的作用,提高护理质量,预防不必要的医疗费用和干预措施。
    Functional neurological symptom disorder (FNSD) is a complex condition with multifactorial etiology in which psychological factors may play a significant role in some patients, and they are not universally present or necessary for the diagnosis. FNSD can occur in the absence of psychological distress and each patient\'s presentation should be evaluated individually, considering a wide range of potential contributing factors. This is the first report related to prevalence data from Rwanda. This report presents a case study of a 15-year-old female patient who presented hemibody weakness without a structural neurological explanation on the background of the direct exposure to parental conflict. she was ultimately diagnosed with an FNSD and responded effectively to five sessions of cognitive behavioral therapy. Additionally, follow-up appointments were conducted every 4 months over the course of 1 year. During this period, the patient successfully resumed her studies and demonstrated normal functioning in all essential areas of daily life. This is the first reported case in Rwanda among similar cases. Addressing these specific stressors played a crucial role in the patient\'s overall outcome, leading to improved quality of care and prevention of unnecessary medical costs and interventions.
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  • 文章类型: Journal Article
    不断增长的人口老龄化在维持他们的生活质量(QoL)方面提出了独特的挑战,其中包括物理,心理,和社会福祉。这项研究旨在评估多学科合作对接受初级保健的老年患者QoL的影响。进行了一项横断面研究,其中包括来自Al-Ahsa初级保健中心的200名60岁及以上的参与者,沙特阿拉伯,2024年3月至5月。使用标准化工具收集数据:SF-36用于与健康相关的QoL,多学科协作评估工具(MCET)和Lubben社交网络量表(LSNS)。进行了多元回归分析,以检查多学科合作之间的关联,社会支持,和QoL结果。多学科合作与身体功能改善呈显著正相关(β=2.35,p<0.001),心理健康(β=3.01,p<0.001),和一般健康感知(β=2.12,p<0.001)。有效合作的关键驱动因素包括有效沟通(β=0.48,p<0.001),配位(β=0.42,p<0.001),和患者受累(β=0.40,p<0.001)。社会支持,特别是来自朋友(β=0.33,p<0.001)和家庭(β=0.28,p<0.001),也是更好的QoL的稳健预测因子。年龄更小,女性性别,婚姻状况,没有慢性疾病与多学科护理带来的QoL改善有关.多学科合作和社会支持网络显着提高老年初级保健患者的QoL。医疗保健系统应优先考虑开发协作护理模式,培养跨学科团队合作,和整合战略,以促进人口老龄化的社会联系。
    The growing aging population presents unique challenges in maintaining their quality of life (QoL), which encompasses physical, psychological, and social wellbeing. This study aimed to assess the impact of multidisciplinary collaboration on QoL among older patients receiving primary care. A cross-sectional study was conducted involving a purposive sampling of 200 participants aged 60 years and above from Primary Healthcare Centers in Al-Ahsa, Saudi Arabia, between March and May 2024. Data were collected using standardized tools: SF-36 for health-related QoL, Multidisciplinary Collaboration Evaluation Tool (MCET), and Lubben Social Network Scale (LSNS). Multivariate regression analyses were performed to examine the associations between multidisciplinary collaboration, social support, and QoL outcomes. Multidisciplinary collaboration exhibited a significant positive association with improvements in physical functioning (β = 2.35, p < 0.001), mental health (β = 3.01, p < 0.001), and general health perceptions (β = 2.12, p < 0.001). Key drivers of effective collaboration included effective communication (β = 0.48, p < 0.001), coordination (β = 0.42, p < 0.001), and patient involvement (β = 0.40, p < 0.001). Social support, particularly from friends (β = 0.33, p < 0.001) and family (β = 0.28, p < 0.001), was also a robust predictor of better QoL. Younger age, female gender, married status, and absence of chronic conditions were associated with greater QoL improvements from multidisciplinary care. Multidisciplinary collaboration and social support networks significantly enhance QoL among older primary care patients. Healthcare systems should prioritize developing collaborative care models, fostering interdisciplinary teamwork, and integrating strategies to promote social connectedness for the aging population.
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  • 文章类型: Journal Article
    血管化复合同种异体移植(VCA)提供了一种独特的选择,可以在肢体丧失或面部创伤后恢复形式和功能,而传统的假肢或重建无法令人满意地实现。建立成功的上肢移植(UET)计划需要强有力的领导和结构化的手术团队,广泛的跨学科合作。我们对12名医疗保健专业人员和患者进行了一项定性研究。根据方案获得知情同意,和半结构化访谈在网上进行并记录。参与者报告了他们对有利于或阻碍成功结果的因素的看法,包括手术前后的功能状态,准备移植,共同决策,康复,和社会心理支持。主题分析表明,在执行VCA程序之前,必须建立一个由各种学科组成的团队。定义共同目标和选择明确的领导者是程序成功的关键因素,需要超越典型的开放合作。主要描述类别是VCA团队的跨学科合作和技能,建立和领导VCA团队,移植前的程序,移植后的课程,以及建立计划时要考虑的因素。团队科学的基本作用在建立VCA计划中起着巨大的作用。移植医学涉及各种重叠的科学和医学类别,要求卫生专业人员有意识地共同努力,在团队之间建立复杂的垂直和水平通信网络,以获得积极的结果。除了医疗方面的考虑,患者特定因素,如透明沟通,治疗计划的建立,坚持计划,持续的跟进是整体成功的重要因素。
    Vascularized Composite Allotransplantation (VCA) offers a unique option to restore form and function after limb loss or facial trauma that cannot be satisfactorily accomplished through traditional prosthetics or reconstructions. Establishing a successful Upper Extremity Transplantation (UET) program requires strong leadership and a structured surgical team, and extensive interdisciplinary collaboration. We conducted a qualitative study among 12 health care professionals and patients. Informed consent was obtained per protocol, and semi-structured interviews were conducted online and recorded. Participants reported their perceptions of factors that either favored or hindered a successful outcome, including functional status before and after surgery, preparation for transplant, shared decision-making, rehabilitation, and psychosocial support. Thematic analysis revealed that it is essential to establish a team comprising various disciplines well before performing VCA procedures. Defining a common goal and choosing a defined leader is a key factor in procedural success and requires open collaboration beyond what is typical. Primary described categories are interdisciplinary collaboration and skills of the VCA team, building and leading a VCA team, pre-transplant procedures, post-transplant course, and factors to consider when establishing a program. The basic roles of team science play an outsized role in establishing a VCA program. Transplantation medicine involves various overlapping scientific and medical categories requiring health professionals to consciously work together to establish complex vertical and horizontal communication webs between teams to obtain positive outcomes. In addition to medical considerations, patient-specific factors such as transparent communication, therapy plan establishment, plan adherence, and continual follow-up are significant factors to overall success.
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  • 文章类型: Journal Article
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  • 文章类型: English Abstract
    Objective:To explore the methods of resection, dura and skull base repair and reconstruction of cranionasal communication tumor. Methods:Data of 31 patients with cranionasal communication tumor who underwent dura and skull base reconstruction after tumor resection from 2018 to 2022 were collected. Follow-up lasted for 3 to 41 months. Results:A total of 31 patients were enrolled, including 20 males and 11 females. The ages ranged from 19 to 74 years, with a median age of 57 years old. There were 17 benign lesions(one case of hemangioma, one case of Rathke cyst, one case of squamous papilloma, one case of craniopharyngioma, two cases of meningocele, two cases of varus papilloma, two cases of meningioma of grade Ⅰ, three cases of schwannoma, four cases of pituitary tumor) and 14 malignant lesions(one case of osteosarcoma, one case of poorly differentiated carcinoma, two cases of varus papilloma malignancy, two cases of olfactory neuroblastoma, two cases of adenocarcinoma, two cases of adenoid cystic carcinoma, four cases of squamous cell carcinoma) . Sixteen cases underwent nasal endoscopy combined with craniofacial incision and 15 cases underwent nasal endoscopy surgery alone. Complete resection of the mass and dura and skull base reconstruction were performed in all 31 patients, and free graft repair was performed in 8 cases(fascia lata in 5 cases and nasal mucosa in 3 cases). Twenty-three cases were repaired with pedicled flaps(septal mucosal flap alone in 11 cases, septal mucosal flap combined with free graft in 6 cases, and cap aponeurosis combined with free graft in 6 cases). Eight out of 31 patients underwent skull base bone repair. Postoperative cerebral hemorrhage occurred in 1 case, cerebrospinal fluid leakage in 1 case, intracranial infection in 2 cases. All patients were successfully treated without severe sequelae. Cerebrospinal fluid leakage and intracranial infection occurred in one patient after radiotherapy, who recovered after conservative treatment. All 17 patients with benign lesions survived. Thirteen out of 14 patients with malignant lesions received radiotherapy after surgery, nine survived without recurrence, five cases recurred, of which 2 survived with tumor, one underwent reoperation and 2 died. Conclusion:Cranionasal communication tumors are high-risk diseases of anterior and middle skull base, and various surgical repair methods could be selected after complete resection of the tumor. Successful reconstruction and multidisciplinary cooperation are crucial for treatment outcome.
    目的:探讨颅鼻沟通瘤切除与硬脑膜颅底修复重建方法。 方法:收集2018-2022年接受颅鼻沟通瘤切除术后行硬脑膜颅底重建的31例患者的临床资料,并随访3~41个月。 结果:总计31例患者,其中男20例,女11例;年龄19~74岁,中位年龄57岁。良性病变17例(血管瘤、Rathke囊肿、鳞状上皮乳头状瘤、颅咽管瘤各1例,脑膜脑膨出、内翻性乳头状瘤、脑膜瘤Ⅰ级各2例,神经鞘瘤3例,垂体瘤4例),恶性病变14例(骨肉瘤、低分化癌各1例,内翻性乳头状瘤恶变、嗅神经母细胞瘤、腺癌、腺样囊性癌各2例,鳞癌4例)。鼻内镜联合颅面切口16例,单纯鼻内镜手术15例。31例患者均行肿物手术全切及硬脑膜颅底重建,游离组织修复8例(阔筋膜5例,鼻腔黏膜3例);带蒂皮瓣修复23例(单纯鼻中隔黏膜瓣11例,鼻中隔黏膜瓣联合游离移植物6例,帽状腱膜联合游离移植物6例);31例患者中有8例行颅底骨性修复。术后脑出血1例,脑脊液漏1例,颅内感染2例,治疗后均顺利出院。放疗后脑脊液漏伴颅内感染1例,保守治疗康复。17例良性病变患者均生存;14例恶性患者术后13例行放疗,9例无复发生存;5例复发,其中2例带瘤生存,1例再次手术,2例死亡。 结论:颅鼻沟通瘤是前中颅底的高危疾病,肿物完整切除后修复方式多种多样,良好的修复重建及多学科协作对患者的预后至关重要。.
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  • 文章类型: English Abstract
    目的:本研究旨在阐明护理和福利专业中的高级护理计划(ACP)促进者在实践中实施ACP时所感受到的障碍。
    方法:在2021年12月至2022年1月之间使用GoogleForms进行了在线调查。这项调查针对220个人,包括在2020年完成广岛县ACP推广培训的82人和福山市的138名ACP推广合作者,广岛县。除了受访者的属性之外,调查询问了与非加太实施障碍相关的37个项目的重要性,使用7点量表。我们比较了两组:护士和医师(“护士/医师”)和其他医疗和护理专业人员(“护理专业人员,等。\")。
    结果:从67名参与者获得了响应(响应率:34.4%)。护理专业人员认为ACP的障碍如下:1)缺乏关于ACP的知识,2)相信其他职业比自己更适合实施ACP,3)制度和环境因素难以实现意图。护士和医生认为缺乏时间是一个重要的障碍。措施,如1)澄清不同的职业应该如何参与非加太,2)扩大适合每个专业的教育机会,3)利用工具支持ACP的决策过程,4)建立信息共享系统基础设施被认为可以有效地促进护理和福利专业的促进者实施ACP。
    结论:通过实施解决本研究中发现的障碍的措施,预计将促进护理和福利专业中的促进者进行ACP的做法,ACP将在社区中变得更加普遍。
    OBJECTIVE: This study aimed to elucidate the barriers perceived by Advance Care Planning (ACP) facilitators in nursing and welfare professions when implementing ACP in practice.
    METHODS: An online survey using Google Forms was conducted between December 2021 and January 2022. The survey targeted 220 individuals, including 82 who completed the Hiroshima Prefecture ACP Promotion Training in 2020 and 138 ACP Promotion Collaborators in Fukuyama City, Hiroshima Prefecture. In addition to the respondents\' attributes, the survey asked about the importance of 37 items related to barriers to ACP implementation, using a 7-point scale. We compared two groups: nurses and physicians (\"nurses/physicians\") and other medical and nursing care professionals (\"nursing care professionals, etc.\").
    RESULTS: Responses were obtained from 67 participants (response rate: 34.4%). The barriers to ACP perceived by nursing care professionals were as follows: 1) lack of knowledge about ACP, 2) belief that other professions are more suitable for implementing ACP than themselves, and 3) difficulty in realizing intentions due to institutional and environmental factors. Nurses and physicians perceived lack of time as an important barrier. Measures such as 1) clarifying how different professions should be involved in ACP, 2) expanding educational opportunities tailored to each profession, 3) utilizing tools to support the decision-making process in ACP, and 4) establishing an information-sharing system infrastructure are considered to be effective in promoting the implementation of ACP by facilitators in the nursing and welfare professions.
    CONCLUSIONS: By implementing measures to address the barriers identified in this study, it is expected that the practice of ACP by facilitators in nursing and welfare professions will be promoted, and ACP will become more widespread in the community.
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  • 文章类型: Journal Article
    医疗保健系统在满足老年人的独特需求方面面临重大挑战,特别是在急性环境中。年龄友好型医疗保健是一种使用4Ms框架的综合方法-重要的是,药物,mentation,和移动性-确保医疗机构能够满足老年患者的需求。年龄友好型急诊科(AFED)是整体年龄友好型卫生系统的重要组成部分。我们的目标是提供AFED模型的概述,其核心原则,以及对老年人和医疗保健临床医生的好处。AFED通过将特定年龄的考虑因素纳入(1)ED物理基础设施的各个方面,优化了急诊护理的提供。(2)临床护理政策,和(3)护理过渡。物理基础设施包括环境改造,以提高患者安全,包括充足的照明,防滑地板,以及感觉和行走障碍的装置。临床护理政策解决了生理、认知,以及老年人的心理社会需求,同时保持对紧急问题的关注。护理过渡包括沟通,并涉及社区合作伙伴和病例管理服务。AFED优先考虑跨学科团队成员之间的合作(ED临床医生,老年专家,护士,物理/职业治疗师,和社会工作者)。通过采用年龄友好的方法,ED有可能改善以患者为中心的结果,减少不良事件和住院,增强功能恢复。此外,医疗保健临床医生通过提高满意度从AFED模式中受益,多学科支持,加强老年护理培训。政策制定者,医疗保健管理员,临床医生必须合作规范指南,解决AFED的障碍,并促进在教育署采用对年龄友好的做法。
    Healthcare systems face significant challenges in meeting the unique needs of older adults, particularly in the acute setting. Age-friendly healthcare is a comprehensive approach using the 4Ms framework-what matters, medications, mentation, and mobility-to ensure that healthcare settings are responsive to the needs of older patients. The Age-Friendly Emergency Department (AFED) is a crucial component of a holistic age-friendly health system. Our objective is to provide an overview of the AFED model, its core principles, and the benefits to older adults and healthcare clinicians. The AFED optimizes the delivery of emergency care by integrating age-specific considerations into various aspects of (1) ED physical infrastructure, (2) clinical care policies, and (3) care transitions. Physical infrastructure incorporates environmental modifications to enhance patient safety, including adequate lighting, nonslip flooring, and devices for sensory and ambulatory impairment. Clinical care policies address the physiological, cognitive, and psychosocial needs of older adults while preserving focus on emergency issues. Care transitions include communication and involving community partners and case management services. The AFED prioritizes collaboration between interdisciplinary team members (ED clinicians, geriatric specialists, nurses, physical/occupational therapists, and social workers). By adopting an age-friendly approach, EDs have the potential to improve patient-centered outcomes, reduce adverse events and hospitalizations, and enhance functional recovery. Moreover, healthcare clinicians benefit from the AFED model through increased satisfaction, multidisciplinary support, and enhanced training in geriatric care. Policymakers, healthcare administrators, and clinicians must collaborate to standardize guidelines, address barriers to AFEDs, and promote the adoption of age-friendly practices in the ED.
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  • 文章类型: Journal Article
    功能损失,无法执行必要或期望的任务,是限制生命的疾病和相关症状(疼痛,疲劳,呼吸困难,等。)并给患者和家庭带来痛苦。康复,一系列旨在解决功能丧失的干预措施,在姑息治疗中被认为是必不可少的,因为它可以提高生活质量并降低护理成本。然而,不是每个人都有平等的康复机会。尽管预期寿命有限或受益于干预措施的能力不确定,通常没有姑息康复服务。部分原因是缺乏围绕最佳康复模型的高质量研究。该领域的研究在方法上具有挑战性,需要多学科和跨专业的合作。
    我们的目标是在不同领域建立和发展英国的研究伙伴关系。从爱丁堡的合作伙伴开始,东安格利亚,兰开夏郡,利兹,伦敦和诺丁汉,围绕姑息治疗和临终关怀中的功能丧失和康复这一主题。目标是(1)发展多学科,跨专业研究伙伴关系,(2)与利益相关者产生高优先级的未回答的研究问题,(3)共同设计并提交高质量的竞争性研究提案;包括(4)分享主题和方法专业知识,和(5)建设能力和能力,以提供全国可推广的研究。
    与来自英格兰和苏格兰的专业人士建立了合作伙伴关系,他们拥有互补的专业领域,包括复杂的姑息治疗和老年病研究。物理治疗,护理,姑息医学和心理学。研究问题是通过儿童健康和营养研究倡议的修改版本产生的,它允许整理和完善与寿命末期功能丧失和康复有关的研究问题。伙伴关系成员通过一系列讲习班得到支持,将研究想法转化为提交给国家卫生和护理研究所第一阶段呼吁的建议。这种伙伴关系不仅支持学生,有培训机会的临床医生和公众成员,但也支持临床医生从临床职责中获得保护时间,使他们能够专注于制定当地研究计划。
    通过我们的合作伙伴关系,我们建立了一个网络,为研究人员提供,临床医生,学生和公众成员有机会发展新技能,并探索围绕姑息和临终关怀中的功能丧失和康复主题领域的个人和职业发展机会。这种伙伴关系对于促进合作和促进思想交流至关重要,知识和经验,以建立联合研究研究建议。
    本文介绍了由美国国立卫生与护理研究所(NIHR)计划资助的独立研究,奖励编号为NIHR135171。本文的简单语言摘要可在NIHR期刊库网站https://doi.org/10.3310/PTHC7598上找到。
    “功能丧失”描述了一个人变得无法完成他们想要或需要做的日常活动。限制生命的疾病及其症状通常会导致功能丧失:这是患者及其家人遭受痛苦的常见原因。康复旨在支持一个人进行受疾病影响的日常活动。这应该是提供良好姑息治疗的重要组成部分。然而,在实践中,不是每个人都有平等的康复机会,这方面缺乏高质量的研究。建立姑息治疗康复伙伴关系是为了开始应对这些挑战。该伙伴关系完成了五个关键领域的活动:建立伙伴关系-汇集了来自不同领域的专家,比如姑息治疗,照顾老年人和研究,改善患有限制生命的疾病的人的康复。生成研究问题-收集和排名研究问题有关功能损失和康复的各种利益相关者,包括患者,确定重点研究领域。制定研究建议-帮助,通过工作坊,将这些研究问题转化为详细的资助建议。这涉及提炼想法,讨论如何最好地进行研究并获得反馈。能力建设-为其成员提供培训机会,包括临床医生,研究人员和患者,提高他们的研究和康复技能。它还为具有临床医生和研究人员双重角色的人提供指导。服务映射-提高了我们对不同医疗保健环境中功能丧失和康复服务的理解。姑息治疗康复伙伴关系在解决患有生命限制疾病的人的功能丧失和康复的复杂问题方面取得了进展。该伙伴关系支持制定至少三项新的研究提案,这些提案将用于申请未来的资金。
    UNASSIGNED: Functional loss, the inability to perform necessary or desired tasks, is a common consequence of life-limiting illnesses and associated symptoms (pain, fatigue, breathlessness, etc.) and causes suffering for patients and families. Rehabilitation, a set of interventions designed to address functional loss, is recognised as essential within palliative care, as it can improve quality of life and reduce care costs. However, not everyone has equal access to rehabilitation. Despite limited life expectancy or uncertain ability to benefit from interventions, palliative rehabilitation services are often absent. This is partly due to a lack of high-quality research around optimal models of rehabilitation. Research in this area is methodologically challenging and requires multidisciplinary and cross-speciality collaboration.
    UNASSIGNED: We aimed to establish and grow a United Kingdom research partnership across diverse areas, commencing with partners from Edinburgh, East Anglia, Lancashire, Leeds, London and Nottingham, around the topic area of functional loss and rehabilitation in palliative and end-of-life care. The objectives were to (1) develop a multidisciplinary, cross-speciality research partnership, (2) generate high-priority unanswered research questions with stakeholders, (3) co-design and submit high-quality competitive research proposals, including (4) sharing topic and methodological expertise, and (5) to build capacity and capability to deliver nationally generalisable studies.
    UNASSIGNED: The partnership was established with professionals from across England and Scotland with complementary areas of expertise including complex palliative and geriatric research, physiotherapy, nursing, palliative medicine and psychology. Research questions were generated through a modified version of the Child Health and Nutrition Research Initiative, which allowed for the collation and refinement of research questions relating to functional loss and rehabilitation towards the end of life. Partnership members were supported through a series of workshops to transform research ideas into proposals for submission to stage one calls by the National Institute for Health and Care Research. The partnership not only supported students, clinicians and public members with training opportunities but also supported clinicians in securing protected time from clinical duties to allow them to focus on developing local research initiatives.
    UNASSIGNED: Through our partnership we established a network that offered researchers, clinicians, students and public members the chance to develop novel skills and explore opportunities for personal and professional development around the topic area of functional loss and rehabilitation in palliative and end-of-life care. The partnership was crucial to foster collaboration and facilitate exchange of ideas, knowledge and experiences to build joint research study proposals.
    UNASSIGNED: This article presents independent research funded by the National Institute for Health and Care Research (NIHR) programme as award number NIHR135171. A plain language summary of this article is available on the NIHR Journals Library website https://doi.org/10.3310/PTHC7598.
    ‘Functional loss’ describes a person becoming unable to do the everyday activities they would like or need to do. Life-limiting illnesses and their symptoms can often lead to functional loss: a common source of suffering for patients and their families. Rehabilitation aims to support a person to carry out everyday activities that have been affected by illness. This should be an important part of providing good palliative care. However, in practice, not everyone has equal access to rehabilitation and there is a lack of high-quality research in this area. The Palliative Care Rehabilitation Partnership was created to begin to address these challenges. This partnership completed activities in five key areas: Establishing the partnership – Brought together experts from different fields, like palliative care, care for older people and research, to improve rehabilitation for people with life-limiting illnesses. Generating research questions – Collected and ranked research questions about functional loss and rehabilitation from various stakeholders, including patients, to identify key research areas. Developing research proposals – Helped, through workshops, turn these research questions into detailed proposals for funding. This involved refining ideas, discussing how best to conduct the studies and getting feedback. Building capacity and capability – Provided training opportunities for its members, including clinicians, researchers and patients, to improve their research and rehabilitation skills. It also offered mentorship to people with dual roles as clinicians and researchers. Service mapping – Improved our understanding of services for functional loss and rehabilitation across different healthcare settings. The Palliative Care Rehabilitation Partnership has made gains in addressing the complex issues of functional loss and rehabilitation in people with life-limiting illnesses. The partnership has supported the development of at least three new research proposals that will be used to apply for future funding.
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