health care surveys

卫生保健调查
  • DOI:
    文章类型: Journal Article
    目的:风湿病学家和骨科医生经常合作做出艰难的决定,对风湿性疾病患者进行围手术期免疫抑制治疗,平衡术后感染的风险与疾病发作的风险。当前的循证指南特别涉及关节成形术,因此,我们试图了解关节镜下使用免疫抑制的趋势和常见做法.
    方法:风湿病学家和运动医学外科医生,来自纽约的各种医院,服务于广泛的人口统计数据,对接受关节镜手术的风湿性疾病患者的免疫抑制药物管理进行了调查。对于使用风险较低的半月板切除术和风险较高的前交叉韧带(ACL)重建和同种异体移植物的常见抗风湿药物,引起了医生的偏爱。医生被特别询问了关节镜下常规合成抗风湿药物(csDMARDs)的使用情况。生物制剂,和Janus激酶(JAK)抑制剂。
    结果:在调查期间,25位风湿病学家和19位接受过运动医学研究金培训的骨科医生完成了问卷。对于低风险的关节镜检查,风湿病学家赞成继续进行各种csDMARDs(72%至100%),生物制剂(50%至64%)和JAK抑制剂(57%),而大多数外科医生同意所有三种药物(csDMARDs63%;生物制剂53%;JAK抑制剂58%)。对于高风险的关节镜,大多数风湿病学家倾向于患者继续使用csDMARDs(63%~100%),但较少患者支持使用生物制剂(28%~39%)或JAK抑制剂(22%).在这些高风险手术中,外科医生更不愿认可任何类型的免疫抑制抗风湿药物(22%至27%)。风湿病学家最关心的是在最后一剂利妥昔单抗后过早进行手术,建议在最后一次输注后7.7±8.8周内不进行这些高风险手术.
    结论:对于低风险关节镜检查,大多数风湿病学家,但只有大约一半的整形外科医生更喜欢继续csDMARDs的患者。两组中大约有一半的患者首选持有生物制剂和JAK抑制剂。在涉及更多的关节镜检查中,大多数风湿病学家,但很少有骨科医生支持继续使用csDMARDs,共识是在可能的情况下保留所有其他免疫抑制。虽然围手术期的药物治疗在某种程度上反映了目前的关节成形术指南,有必要制定循证指南,特别是关于风湿性疾病患者关节镜下免疫抑制的指南.
    OBJECTIVE: Rheumatologists and orthopedic surgeons frequently collaborate on difficult decisions regarding perioperative management of immunosuppression in rheumatic disease patients, balancing risk of postoperative infection with risk of disease flares. Current evidence-based guidelines pertain specifically to arthroplasty, thus we sought to understand the trends and common practices regarding peri-arthroscopic use of immunosuppression.
    METHODS: Rheumatologists and sports medicine surgeons, from a variety of New York hospitals and serving a broad range of demographics, were surveyed on immunosuppressive medication management in rheumatic disease patients undergoing arthroscopic surgeries. Physicians\' preferences were elicited regarding the use of common anti-rheumatic medications with the lower risk meniscectomies and the higher risk anterior cruciate ligament (ACL) reconstructions and allografts. Physicians were asked specifically about peri-arthroscopic use of conventional synthetic diseasemodifying antirheumatic drugs (csDMARDs), biologics, and Janus kinase (JAK) inhibitors.
    RESULTS: During the survey period, 25 rheumatologists and 19 sports medicine fellowship-trained orthopedic surgeons completed the questionnaire. For lower-risk arthroscopies, rheumatologists favored continuing various csDMARDs (72% to 100%), biologics (50% to 64%) and JAK inhibitors (57%), while a majority of surgeons concurred for all three drug classes (csDMARDs 63%; biologics 53%; and JAK inhibitors 58%). For higher-risk arthroscopies, most rheumatologists preferred that patients continue csDMARDs (63% to 100%) but fewer supported the use of biologics (28% to 39%) or JAK inhibitors (22%). Surgeons were more hesitant to endorse any class of immunosuppressive antirheumatic medications (22% to 27%) around these higher risk surgeries. The rheumatologists were most concerned about surgeries taking place too soon after the last dose of rituximab, recommending these higher risk surgeries not take place for 7.7 ± 8.8 weeks following the last infusion.
    CONCLUSIONS: For lower-risk arthroscopies, most rheumatologists but only about half of orthopedic surgeons preferred patients continuing csDMARDs. Approximately half of both groups preferred patients hold biologics and JAK inhibitors. In more involved arthroscopies, most rheumatologists but few orthopedists supported the continued use of csDMARDs, and the consensus was to hold all other immunosuppression when possible. While the duration medications were held perioperatively were somewhat reflective of the current guidelines for arthroplasty, there is a need for evidencebased guidelines specifically regarding peri-arthroscopy immunosuppression in rheumatic disease patients.
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  • DOI:
    文章类型: Journal Article
    目的:该项目的目的是调查北美小儿骨科学会(POSNA)成员关于胫骨前肌腱转移(TATT)在复发性马蹄内翻足的治疗中的应用。我们旨在评估儿科骨科医生最常用的TATT技术。由于文献中没有关于最佳方法的普遍共识,我们假设POSNA成员的治疗方法差异很大.
    方法:在线调查,使用研究电子数据采集(REDCap)调查软件设计,由15个初始问题组成,其中一些有条件的后续问题,如果受访者选择了特定的答案选择,就会出现,总共有22个问题。该调查已获得POSNA循证实践委员会的批准,并分发给其1,370名成员。
    结果:分析中只包括治疗马蹄内翻足并执行TATT的POSNA成员的反应。228名调查受访者就少数主题达成共识(75%同意):马蹄内翻足使用Ponseti治疗方法(94%),胫骨前肌腱转移到外侧楔形文字(77%),仅转移整个胫骨前肌腱(79%),以及在报告使用术后矫正器的人中使用踝足矫形器(94%)。然而,其余的调查问题表明,TATT的性能存在明显的差异。
    结论:许多问题得到了不同的回答,这表明POSNA成员对如何以及何时对患有动态旋涡且无畸形的复发性马蹄内翻足进行TATT的不同意见。这是有关TATT治疗变化的第一批信息汇编之一,可能会导致进一步的研究,以检查标准化和优化其使用的方法。
    OBJECTIVE: The aim of this project was to survey members of the Pediatric Orthopaedic Society of North America (POSNA) regarding the use of tibialis anterior tendon transfer (TATT) in the management of recurrent clubfoot with dynamic supination and no deformity. We aimed to assess which techniques for TATT are most utilized by pediatric orthopedists. As there has been no general consensus in the literature regarding best methods, we hypothesized that treatment methods would vary widely among POSNA members.
    METHODS: The online survey, designed using Research Electronic Data Capture (REDCap) survey software, consisted of 15 initial questions, some of which had conditional follow-up questions that appeared if the respondent selected a specific answer choice, with a potential total of 22 questions. The survey was approved by the Evidence Based Practice Committee of POSNA and distributed to their 1,370 members.
    RESULTS: Only the responses of POSNA members who treated clubfoot and performed TATT were included in the analysis. The 228 survey respondents reached a consensus (75% agreement) on a small number of topics: use of the Ponseti treatment method for clubfoot (94%), transfer of the tibialis anterior tendon to the lateral cuneiform (77%), transfer of only the whole tibialis anterior tendon (79%), and the use of an ankle foot orthoses (94%) among those who reported using postoperative braces. However, the remaining survey questions revealed a marked amount of variability in the performance of TATT.
    CONCLUSIONS: Many of the questions garnered varied responses, which suggests differing opinions of POSNA members regarding how and when TATT should be performed for recurrent clubfoot with dynamic supination and no deformity. This is one of the first compilations of information about the treatment variations for TATT and may lead to further studies examining ways to standardize and optimize its use.
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  • 文章类型: Journal Article
    目的:转甲状腺素蛋白心脏淀粉样变性(ATTR-CA)是一种罕见的进行性心肌病,由心肌组织中的淀粉样纤维沉积引起。诊断挑战历来阻碍了及时检测。非侵入性诊断技术的最新进展促进了ATTR-CA的诊断。我们旨在研究ATTR-CA诊断和管理的区域网络的发展,并描述ATTR-CA患者的队列,调查诊断途径并根据诊断周期评估临床结果.
    方法:我们进行了一项调查研究,分析了来自11个心脏病中心的答案,我们进行了一项回顾性研究,包括2012年1月1日至2022年12月31日期间在转诊中心就诊的ATTR-CA患者,并按诊断期(2012-2016年和2017-2022年)进行分类。
    结果:多年来,越来越多的患者在该地区接受调查的非转诊中心确诊并接受治疗.回顾性研究显示,早期诊断延迟比后期诊断延迟更显著[13.4(5-30.2)vs.10.6(5.0-17.9)个月,P=0.04]。2017年后诊断的患者生存率高于早期诊断的患者(P=0.02)。在多变量分析中,自2017年起的诊断年份仍然与死亡率独立相关[风险比(HR)0.46,95%置信区间(CI)0.28~0.79;P=0.005].
    结论:本研究强调了向无创诊断标准的转变。它揭示了近年来使用疾病修饰疗法和诊断发展对患者生存和疾病管理的积极影响。研究结果强调了疾病意识和网络对于减少诊断延迟和增强ATTR-CA患者旅程的重要性。
    OBJECTIVE: Transthyretin cardiac amyloidosis (ATTR-CA) is a rare and progressive cardiomyopathy caused by amyloid fibril deposition in myocardial tissue. Diagnostic challenges have historically hampered timely detection. Recent advances in noninvasive diagnostic techniques have facilitated ATTR-CA diagnosis. We aimed to examine the development of a regional network for the diagnosis and management of ATTR-CA and describe a cohort of patients with ATTR-CA, investigate diagnostic pathways and assess clinical outcomes according to diagnosis periods.
    METHODS: We performed a survey study analyzing answers from 11 cardiology centers and we conducted a retrospective study including patients with ATTR-CA attending a referral center between 1 January 2012 and 31 December 2022, and categorized by the period of diagnosis (2012-2016 and 2017-2022).
    RESULTS: Over the years, a growing number of patients reached a diagnosis and were treated in the surveyed nonreferral centers of the region. The retrospective study showed a more significant diagnostic delay in the earlier period rather than the later one [13.4 (5-30.2) vs. 10.6 (5.0-17.9) months, P = 0.04]. Patients diagnosed after 2017 showed a greater survival rate than those diagnosed earlier ( P = 0.02). In the multivariate analysis, the year of diagnosis from 2017 remained independently associated with mortality [hazard ratio (HR) 0.46, 95% confidence interval (CI) 0.28-0.79; P = 0.005].
    CONCLUSIONS: This study emphasized the shift toward noninvasive diagnostic criteria. It revealed a positive impact on patient survival and disease management with the use of disease-modifying therapies and diagnostic developments in more recent years. The findings underscore the importance of disease awareness and networking to reduce diagnostic delays and enhance patient journeys for ATTR-CA.
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  • 文章类型: Journal Article
    在新冠肺炎疫情爆发期间和之后,远程医疗服务都增加了人们的关注。然而,发展中国家缺乏研究,包括巴基斯坦。因此,这项研究的目的是检查远程医疗服务质量维度,以促进巴基斯坦远程医疗的远程医疗行为意图和可持续增长。
    这项研究采用了横截面描述性设计。数据是通过精心设计的问卷从提供远程医疗服务的医生那里收集的。为了检验研究的假设,我们采用了智能PLS结构方程建模程序,即0.4版本。
    研究结果表明,医疗服务质量,负担能力,信息质量,等待时间,和安全性对从事远程医疗行为的意图有积极影响。此外,采取远程医疗行为对远程医疗服务的实际利用具有显著的有利作用,这反过来又对可持续发展产生了很好的影响。
    该研究确定,远程医疗服务有效地减少了花费在旅行上的时间和金钱,同时仍然提供方便的医疗保健。此外,远程医疗有可能彻底改变支付方式,基础设施,以及医疗保健行业的人员配备。在现代技术时代,实施结构良好的远程医疗服务模式可以为一个国家及其监管工作带来有益的结果。
    UNASSIGNED: The telehealth service increased attention both during and after the Covid-19 outbreak. Nevertheless, there is a dearth of research in developing countries, including Pakistan. Hence, the objective of this study was to examine telehealth service quality dimensions to promote the telehealth behavior intention and sustainable growth of telehealth in Pakistan.
    UNASSIGNED: This study employed a cross-sectional descriptive design. Data were collected from doctors who were delivering telehealth services through a well-designed questionnaire. To examine the hypothesis of the study, we employed the Smart PLS structural equation modeling program, namely version 0.4.
    UNASSIGNED: The study findings indicate that medical service quality, affordability, information quality, waiting time, and safety have a positive impact on the intention to engage in telehealth behavior. Furthermore, the adoption of telehealth behavior has a significant favorable effect on the actual utilization of telehealth services, which in turn has a highly good impact on sustainable development.
    UNASSIGNED: The study determined that telehealth services effectively decrease the amount of time and money spent on travel, while still offering convenient access to healthcare. Furthermore, telehealth has the potential to revolutionize payment methods, infrastructure, and staffing in the healthcare industry. Implementing a well-structured telehealth service model can yield beneficial results for a nation and its regulatory efforts in the modern age of technology.
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  • 文章类型: Journal Article
    目的:我们评估了尼泊尔提供宫颈癌筛查服务的医疗机构的可用性和准备情况。
    方法:横断面研究。
    方法:我们使用了具有全国代表性的2021年尼泊尔医疗机构调查的次要数据,特别关注提供宫颈癌筛查服务的设施。
    方法:我们使用标准的世卫组织服务可用性和准备评估手册定义了医疗机构提供宫颈癌筛查服务的准备情况。
    结果:总体准备评分为59.1%(95%CI为55.4%至62.8%),有更多的设备和诊断测试比工作人员和指导方针。公立医院(67.4%,95%CI63.0%至71.7%)的准备水平最高。与城市地区相比,农村地区的卫生设施准备程度较低。Sudurpashchim,巴格马蒂省和甘达基省的战备水平较高(69.1%,95%CI57.7%至80.5%;60.1%,95%CI53.4%至66.8%;62.5%,95%CI56.5%至68.5%,分别)。大约17%的设施在提供宫颈癌筛查服务时,有受过培训的提供者和特定指南。基本医疗中心(BHCC)的准备率低于私立医院。设施类型,省和员工管理会议具有三个条件分位数分数的异质关联。
    结论:尼泊尔的宫颈癌筛查服务有限,需要采取紧急行动扩大覆盖面。我们的研究结果表明,努力应该通过向医护人员提供培训和增加获得指南的机会来提高现有设施的准备程度。应优先考虑农村地区和卡纳利省的BHCC和医疗保健设施,以加强其准备工作。
    OBJECTIVE: We assessed the availability and readiness of health facilities to provide cervical cancer screening services in Nepal.
    METHODS: Cross-sectional study.
    METHODS: We used secondary data from a nationally representative 2021 Nepal Health Facility Survey, specifically focusing on the facilities offering cervical cancer screening services.
    METHODS: We defined the readiness of health facilities to provide cervical cancer screening services using the standard WHO service availability and readiness assessment manual.
    RESULTS: The overall readiness score was 59.1% (95% CI 55.4% to 62.8%), with more equipment and diagnostic tests available than staff and guidelines. Public hospitals (67.4%, 95% CI 63.0% to 71.7%) had the highest readiness levels. Compared with urban areas, health facilities in rural areas had lower readiness. The Sudurpashchim, Bagmati and Gandaki provinces had higher readiness levels (69.1%, 95% CI 57.7% to 80.5%; 60.1%, 95% CI 53.4% to 66.8%; and 62.5%, 95% CI 56.5% to 68.5%, respectively). Around 17% of facilities had trained providers and specific guidelines to follow while providing cervical cancer screening services. The basic healthcare centres (BHCCs) had lower readiness than private hospitals. Facility types, province and staff management meetings had heterogeneous associations with three conditional quantile scores.
    CONCLUSIONS: The availability of cervical cancer screening services is limited in Nepal, necessitating urgent action to expand coverage. Our findings suggest that efforts should focus on improving the readiness of existing facilities by providing training to healthcare workers and increasing access to guidelines. BHCCs and healthcare facilities in rural areas and Karnali province should be given priority to enhance their readiness.
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  • 文章类型: English Abstract
    OBJECTIVE: La comunicación entre pacientes y profesionales de la salud mental mediante plataformas de mensa- jería en el intervalo entre encuentros presenciales o virtuales se convirtió en una modalidad de teleconsulta asincrónica (TA) cuya utilidad y efecto en la carga de trabajo de los profesionales de salud mental no se han explorado. Método: Profesionales del campo de la salud mental que trabajan en Argentina fueron invitados a responder a una encuesta que exploraba la intensidad y utilidad de la TA, y la sobrecarga resultante.
    RESULTS: Se recibieron un total de 527 respuestas de profesionales que trabajan en todo el país. El 69 % de los encuestados mensajes con un promedio de 1-10 pacientes/día y el 31 % con más de 10 pacientes/día; el 75 % respondió mensajes por teléfono móvil los fines de semana. Mientras que el 68 % calificó estas interacciones como positivas para  el seguimiento clínico, el 47 % las consideró una fuente de sobrecarga laboral.
    CONCLUSIONS: La adopción generalizada de la TA puede requerir una autorregulación adicional por parte de los profesionales y un seguimiento regular de los niveles de sobrecarga (especialmente, entre los psiquiatras) para que su práctica clínica diaria sea eficiente y sostenible.
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  • 文章类型: Journal Article
    背景:患有虚弱的老年人急诊入院的风险很高,并且通常有复杂的护理需求,而传统的急性护理模式可能无法充分满足这些需求。这推动了对旨在改善该患者组预后的急性护理途径的适应。识别组织方法中的差异可能会凸显质量改进的机会。
    方法:急性医学协会基准审核是一项国家服务评估,使用单日护理方法记录患者和组织层面的数据。英国的所有急性医院都有资格参加。记录了2022年6月23日星期四00:00至23:59之间急性医疗服务的紧急入院。收集了有关急性虚弱服务的结构和操作设计的信息。使用经过验证的脆弱评估工具,入院前24小时内的临床虚弱量表,在70岁及以上的患者中,通过急性衰弱服务进行评估并报告临床结局.使用混合效应广义线性模型来确定虚弱患者当天出院而不过夜的相关因素。
    结果:共有152家医院参加。急性虚弱服务的运营设计和人员配备模型存在显着异质性。在57家(42.2%)医院中报告了急性虚弱单元的存在。据报道,117家(90.0%)医院使用了经过验证的脆弱评估工具,其中107人(91.5%)使用临床虚弱量表。记录了3604名70岁及以上患者的患者水平数据。在患者层面,1626(45.1%)在入院过程中使用经过验证的工具进行评估。急性虚弱服务评估与当天出院的可能性增加相关(校正OR1.55,95CI1.03-2.39)。
    结论:提供急性虚弱服务存在显著差异。与虚弱相关的政策和服务在组织层面很常见,但在患者层面实施不一致。通过急性虚弱服务评估的虚弱或老年综合征的老年人更有可能出院,而无需过夜卧床入院。
    BACKGROUND: Older people living with frailty are at high risk of emergency hospital admission and often have complex care needs which may not be adequately met by conventional models of acute care. This has driven the introduction of adaptations to acute care pathways designed to improve outcomes in this patient group. The identification of differences in the organisational approach to frailty may highlight opportunities for quality improvement.
    METHODS: The Society for Acute Medicine Benchmarking audit is a national service evaluation which uses a single day-of-care methodology to record patient and organisational level data. All acute hospitals in the United Kingdom are eligible to participate. Emergency admissions referred to acute medical services between 00:00 and 23:59 on Thursday 23rd June 2022 were recorded. Information on the structure and operational design of acute frailty services was collected. The use of a validated frailty assessment tool, clinical frailty scale within the first 24 h of admission, assessment by an acute frailty service and clinical outcomes were reported in patients aged 70 year and above. A mixed effect generalised linear model was used to determine factors associated same-day discharge without overnight stay in patients with frailty.
    RESULTS: A total of 152 hospitals participated. There was significant heterogeneity in the operational design and staffing model of acute frailty services. The presence of an acute frailty unit was reported in 57 (42.2%) hospitals. The use of validated frailty assessment tools was reported in 117 (90.0%) hospitals, of which 107 (91.5%) used the clinical frailty scale. Patient-level data were recorded for 3604 patients aged 70 years and above. At the patient level, 1626 (45.1%) were assessed using a validated tool during the admission process. Assessment by acute frailty services was associated with an increased likelihood of same-day discharge (adjusted OR 1.55, 95%CI 1.03- 2.39).
    CONCLUSIONS: There is significant variation in the provision of acute frailty services. Frailty-related policies and services are common at the organisational level but implemented inconsistently at the patient level. Older people with frailty or geriatric syndromes assessed by acute frailty services were more likely to be discharged without the need for overnight bed-based admission.
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  • 文章类型: Journal Article
    器官移植后免疫抑制治疗包括他克莫司(Tac)或环孢素(CsA),连同抗代谢药(Antim)或mTOR抑制剂,有或没有泼尼松。进行了一项调查,以调查有关使用的临床经验,功效,安全概况,以及选择维持免疫抑制疗法的决定因素。问卷已发送给45个专门研究肾脏(K)的移植中心的医护人员,肝脏(L),心脏(H),和肺(P)移植。从意大利15个地区收到了71份答复。所示的首选疗法是Tac+Antim,除了在肝脏领域,Tac单一疗法是有利的。根据44.1%的受访者,在过去的15年中,由于用Tac替代CsA和mTOR抑制剂的使用增加,首选疗法发生了变化.关于指数疗法的决定因素,方案的选择主要取决于国际准则,以前的经验,和设施内的内部协议(80.3%;54.9%;50.7%,分别)。与标准疗法相比,指导不同疗法处方的标准主要涉及合并症的存在(K:81.3%;L:88.2%;H:73.3%;P:85.7%)和受者特定临床参数的评估.此外,大多数受访者赞成使用可用的通用版本。调查揭示了当前医疗保健管理流程无法检测到的维度;这种整合为影响移植后免疫抑制治疗方案选择的因素提供了更广泛的图片。
    The post-organ transplant immunosuppressive therapy includes the administration of tacrolimus (Tac) or cyclosporine (CsA), along with antimetabolites (Antim) or mTOR inhibitors, with or without prednisone. A survey was conducted to investigate clinical experience regarding the use, efficacy, safety profile, and determinants of choice of maintenance immunosuppressive therapies. The questionnaire was sent to healthcare workers of 45 transplant centers specializing in kidney (K), liver (L), heart (H), and lung (P) transplants. Seventy-one responses were received from 15 Italian regions. The indicated first-choice therapy was Tac + Antim, except in the hepatic field where Tac monotherapy was favored. According to 44.1% of respondents, the first-choice therapy has changed over the last 15 years due to the replacement of CsA with Tac and increased use of mTOR inhibitors. Regarding the determinants of the index therapy, the choice of schemes to be applied depends mainly on international guidelines, previous experience, and internal protocols within the facility (80.3%; 54.9%; 50.7%, respectively). Compared to standard therapy, the criteria guiding the prescription of different therapies mainly involve the presence of comorbidities (K: 81.3%; L: 88.2%; H: 73.3%; P: 85.7%) and the evaluation of specific clinical parameters of the recipient. Additionally, the majority of respondents are in favor of using generic versions where available. The survey reveals dimensions not detectable by current healthcare administrative flows; such integrations provide a broader picture of the factors influencing the choice of post-transplant immunosuppressive therapeutic schemes.
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  • 文章类型: Journal Article
    背景:间质性肺病是系统性硬化症患者死亡的主要原因。目前,在筛查方面缺乏共识,重新筛选,诊断,以及哥伦比亚与系统性硬化症(SSc-ILD)相关的间质性肺病的随访实践。
    方法:进行了一项针对SSc-ILD患者临床实践的结构化调查。从2023年3月至2023年5月,哥伦比亚新科和西鲁加·德·托拉克斯协会(Asoneumocito)和哥伦比亚新科协会(Asoreuma)的成员应邀参加。
    结果:我们调查了51名肺科医师和44名风湿病医师。总的来说,51.6%的人报告有机会参加ILD的多学科小组讨论。在95名参与者中,一旦确定了系统性硬化症的诊断,78.9%的人会常规进行胸部高分辨率计算机断层扫描。风湿病学家(84.1%)比肺科医师(74.5%)更频繁。如果基线图像为阴性,大约一半的参与者将每年用计算机断层扫描对患者进行重新筛查(56.8%)。肺活量测定(81.1%),肺对一氧化碳的扩散能力(80.0%),6分钟步行测试(55.8%)是诊断为系统性硬化症时最常见的测试。随访期间,参与者通常会考虑每6个月重复一次肺功能检查.
    结论:肺科医师和风湿病医师对SSc-ILD的筛查率很高。诊断和随访的决策在专业之间是相似的,但是它们的频率和适应症有所不同。需要进一步的研究来评估如何在不同的环境中调整评估SSc-ILD的建议。
    BACKGROUND: Interstitial lung disease is a leading cause of mortality in patients with systemic sclerosis. Currently, there is a lack of consensus regarding screening, rescreening, diagnosis, and follow-up practices in interstitial lung disease associated with systemic sclerosis (SSc-ILD) in Colombia.
    METHODS: A structured survey focused on clinical practices in patients with SSc-ILD was conducted. Members of the Asociación Colombiana de Neumología y Cirugía de Tórax (Asoneumocito) and the Asociación Colombiana de Reumatología (Asoreuma) were invited to participate from March 2023 to May 2023.
    RESULTS: We surveyed 51 pulmonologists and 44 rheumatologists. Overall, 51.6% reported having access to multidisciplinary team discussion in ILD. Among the 95 participants, 78.9% would routinely perform a high-resolution computed tomography scan of the chest once a diagnosis of systemic sclerosis was established. This practice is more frequent among rheumatologists (84.1%) than among pulmonologists (74.5%). Approximately half of the participants would rescreen patients annually with computed tomography scan (56.8%) if baseline images were negative. Spirometry (81.1%), diffusing capacity of the lung for carbon monoxide (80.0%), and 6-min walk test (55.8%) were the most frequently performed tests upon diagnosis of systemic sclerosis. During follow-up, participants would consider repeating pulmonary function tests mostly every 6 months.
    CONCLUSIONS: Screening of SSc-ILD is high among pulmonologists and rheumatologists. Decision-making on diagnosis and follow-up is similar between specialties, but there are variations in their frequency and indications. Further research is needed to evaluate how to adapt recommendations for assessing SSc-ILD in different settings.
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  • 文章类型: Journal Article
    医疗保健研究和质量医疗保健创新交流局(IE)旨在收集和报告改善医疗保健的创新方法。该团队审查了348项IE创新,包括患者报告的满意度或经验测量。创新最常衡量的护理总体评级(占创新的61%),其次是访问(52%)和提供者-患者沟通(12%).超过一半的人使用患者满意度调查(n=187)而不是患者体验调查(n=64)。使用患者体验调查的创新更经常测量患者护理的特定方面,例如,access,而不是一般的整体护理评级。大多数使用患者体验调查的创新未经验证,本土调查,很少有人使用医疗保健研究和质量署认可的机构,经过心理测量测试的CAHPS(医疗保健提供者和系统的消费者评估)调查。最常见的研究设计是仅移植后(65%),强调IE中用于评估以患者为中心的方法学严谨性较低。随着时间的推移,广泛使用患者体验调查和更严格的评估研究设计已经增加了一些,但仍然缺乏。
    The Agency of Healthcare Research and Quality Healthcare Innovations Exchange (IE) was developed to collect and report on innovative approaches to improving health care. The team reviewed 348 IE innovations including patient-reported satisfaction or experience measures. Innovations most often measured overall rating of care (61% of innovations), followed by access (52%) and provider-patient communication (12%). More than half used patient satisfaction surveys (n = 187) rather than patient experience surveys (n = 64). Innovations using patient experience surveys more often measured specific aspects of patient care, for example, access, versus a general overall rating of care. Most innovations using patient experience surveys administered nonvalidated, homegrown surveys, with few using the Agency of Healthcare Research and Quality-endorsed, psychometrically-tested CAHPS (Consumer Assessment of Healthcare Providers and Systems) survey. The most common study design was postimplementation-only (65%), highlighting that methodological rigor used to assess patient-centeredness in the IE is low. Broad use of patient experience surveys and more rigorous evaluation study designs has increased some over time but is still lacking.
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