目的:检查母亲的互联网使用情况,结合社会,卫生保健,和虚拟对等支持导航,在子宫内诊断出先天性异常。
方法:定性描述性,由半结构化面试组成。
方法:采访数据是通过Zoom收集的;母亲从他们选择的地点参加。
方法:新生儿母亲因诊断为子宫的先天性异常而从NICU术后出院。该样本是有目的地从Facebook私人小组中招募的,适用于患有先天性异常的儿童的父母。
方法:分析是使用患者安全理论系统工程计划中的概念进行演绎编码。先验代码是医疗保健,社会,旅程福利,旅程风险,任务,和技术。
结果:22位母亲报名参加了面试;12位母亲完成了面试,10没有。大多数(n=8,66%)是白人,拥有学士学位或研究生学位(n=7,58%),年龄在24至33岁之间(n=8,66%)。出现了九个主题:(a)提供商警告搜索诊断信息,但鼓励私人Facebook团体提供同伴支持,(b)缺乏母亲对自己照顾的询问,(c)在识别父母与伴侣的应对差异的同时搜索信息,(d)耐心和赞赏地从朋友和家人那里获得信息,(e)通过小组共享管理来自朋友和家人的查询,(f)私人Facebook团体提供了一种接收和给予同伴支持的手段,(g)在Facebook上接触困难的故事会带来压力,(h)选择NICU,了解他们孩子的诊断,参与虚拟对等支持,和(i)设备特征帧搜索策略。
结论:母亲在互联网上反映为他们在医疗保健过程中的负担和支持来源。互联网接入的普遍性要求母亲在他们的医疗保健旅程中加入管理互联网时间的复杂性。
To examine mothers\' internet usage, in conjunction with social, health care, and virtual peer support navigations, when congenital anomalies were diagnosed in utero.
Qualitative descriptive, consisting of semistructured interviews.
Interview data were collected over Zoom; mothers participated from locations of their choosing.
Mothers of neonates discharged postoperatively from NICUs for uterine-diagnosed congenital anomalies. The sample was purposefully recruited from private Facebook groups for parents of children with congenital anomalies.
Analysis was done with deductive coding using concepts from the third iteration of the systems engineering initiative for patient safety theory. The a priori codes were health care, social, journey-benefit, journey-risk, task, and technology.
Twenty-two mothers signed up for an interview; 12 completed an interview, and 10 did not. The majority (n = 8, 66%) were White, had a bachelor\'s or graduate degree (n = 7, 58%) and were between 24 and 33 years of age (n = 8, 66%). Nine themes emerged: (a) Providers cautioned searching for diagnosis information but encouraged private Facebook groups for peer support, (b) Mothers\' inquiries for their own care are lacking, (c) Search for information while recognizing parent-partner\'s coping differences, (d) Pace information from friends and family with patience and appreciation, (e) Manage inquiries from friends and family with group sharing, (f) Private Facebook groups provide a means of receiving and giving peer support, (g) Exposure to difficult stories on Facebook is a risk of stress, (h) Select a NICU, learn about their children\'s diagnoses, participate in virtual peer support, and (i) Device features frame search strategies.
Mothers reflected on the internet as a burden and a source of support in their health care journeys. The ubiquity of internet access calls for mothers to include in their health care journeys the complexities of managing time spent on the internet.