背景:MyDiaMate是一种基于网络的干预措施,专门为患有1型糖尿病(T1D)的成年人设计,旨在帮助他们改善和维持心理健康。MyDiaMate的先前试点测试验证了其可接受性,可行性,和可用性。
目的:本研究旨在调查MyDiaMate在荷兰的实际吸收和使用情况。
方法:在2021年3月至2022年12月之间,MyDiaMate免费提供给患有T1D的荷兰成年人。使用日志数据跟踪使用情况(模块的参与率和完成率)。用户可以自愿参与用户档案研究,这需要填写一组基线问卷。分别检查研究参与者的使用情况,以确定参与者得分高于和低于“糖尿病问题领域”(PAID-11)问卷(糖尿病困扰)的截止值,“世界卫生组织福祉指数”(WHO-5)问卷(情感福祉),和“个人力量检查表”(CIS)问卷(疲劳)的疲劳严重程度量表。创建账户两个月后,研究参与者收到了一份评估问卷,向我们提供反馈.
结果:总计,1008名成年人创建了一个MyDiaMate帐户,其中343人(34%)参与了用户概况研究。平均年龄为43(SD14.9;18-76)岁。大多数参与者是女性(n=217,63.3%)和受过高等教育(n=198,57.6%)。大多数人与T1D一起生活超过5年(n=241,73.5%)。在研究参与者中,59.1%(n=199)的人报告情绪幸福感低(WHO-5评分≤50),70.9%(n=239)的患者报告糖尿病困扰升高(PAID-11评分≥18),52.4%(n=178)的患者报告严重疲劳(CIS评分≥35)。参与率在社会环境的9.5%(n=19)到糖尿病的100%(n=726)之间变化。默认情况下打开。能源完成率从4.3%(n=1)不等,广泛的认知行为治疗模块,假设上的较短模块为68.6%(n=24)。在参与和完成率方面没有差异的模块之间的研究参与者与一个更严重的概况,也就是说,较低的情感幸福感,更大的糖尿病困扰,或更多的疲劳症状,以及那些不那么严肃的人。Further,没有报告技术问题,研究参与者提出了各种建议来改善应用,表明需要更多的个性化。
结论:这项自然研究的数据证明了MyDiaMate作为T1D成人自助工具的潜力,补充正在进行的糖尿病护理,改善健康应对糖尿病和心理健康。未来的研究需要探索参与策略并在随机对照试验中测试MyDiaMate的功效。
BACKGROUND: MyDiaMate is a web-based intervention specifically designed for adults with type 1 diabetes (T1D) that aims to help them improve and maintain their mental health. Prior pilot-testing of MyDiaMate verified its acceptability, feasibility, and usability.
OBJECTIVE: This study aimed to investigate the real-world uptake and usage of MyDiaMate in the Netherlands.
METHODS: Between March 2021 and December 2022, MyDiaMate was made freely available to
Dutch adults with T1D. Usage (participation and completion rates of the modules) was tracked using log data. Users could volunteer to participate in the user profile study, which required filling out a set of baseline questionnaires. The usage of study participants was examined separately for participants scoring above and below the cutoffs of the \"Problem Areas in Diabetes\" (PAID-11) questionnaire (diabetes distress), the \"World Health Organization Well-being Index\" (WHO-5) questionnaire (emotional well-being), and the fatigue severity subscale of the \"Checklist Individual Strength\" (CIS) questionnaire (fatigue). Two months after creating an account, study participants received an evaluation questionnaire to provide us with feedback.
RESULTS: In total, 1008 adults created a MyDiaMate account, of whom 343 (34%) participated in the user profile study. The mean age was 43 (SD 14.9; 18-76) years. Most participants were female (n=217, 63.3%) and higher educated (n=198, 57.6%). The majority had been living with T1D for over 5 years (n=241, 73.5%). Of the study participants, 59.1% (n=199) of them reported low emotional well-being (WHO-5 score≤50), 70.9% (n=239) of them reported elevated diabetes distress (PAID-11 score≥18), and 52.4% (n=178) of them reported severe fatigue (CIS score≥35). Participation rates varied between 9.5% (n=19) for social environment to 100% (n=726) for diabetes in balance, which opened by default. Completion rates ranged from 4.3% (n=1) for energy, an extensive cognitive behavioral therapy module, to 68.6% (n=24) for the shorter module on hypos. There were no differences in terms of participation and completion rates of the modules between study participants with a more severe profile, that is, lower emotional well-being, greater diabetes distress, or more fatigue symptoms, and those with a less severe profile. Further, no technical problems were reported, and various suggestions were made by study participants to improve the application, suggesting a need for more personalization.
CONCLUSIONS: Data from this naturalistic study demonstrated the potential of MyDiaMate as a self-help tool for adults with T1D, supplementary to ongoing diabetes care, to improve healthy coping with diabetes and mental health. Future research is needed to explore engagement strategies and test the efficacy of MyDiaMate in a randomized controlled trial.