日间尿失禁(UI)会对儿童的生活产生巨大影响,降低自尊和生活质量。虽然大多数孩子在第一次去我们的门诊后开始治疗,在这种情况下,没有研究报告父母或患者对日间UI护理的期望。
我们的目的是探讨转诊到门诊接受日间UI的儿童父母的期望。
这是一项定性研究,涉及对接受日间UI(有或没有夜间遗尿症)转诊的儿童的父母进行半结构化访谈。采访在2018年7月至2018年10月之间进行,并一直持续到达到饱和。根据Giorgi的现象学数据分析策略对结果进行逐字转录和分析。
九位孩子的父母,5-12岁,接受了采访,揭示“(有经验的)健康,“自我管理,“和“社会影响”是影响父母期望的主要主题。所有的父母都想知道UI是否有医学解释,当诊断没有发现潜在的疾病时,有些人感到满意,其他人想要治疗。父母对诊断或治疗的内容和持续时间没有偏好,但是他们希望以前尝试的无效步骤不会重复。一些父母将治疗成功定义为他们的孩子变得完全干燥,但大多数人表示,学习应对策略更为重要。
这是第一项探索父母对日间UI患儿进行门诊护理时的期望的研究。我们采用了强大的理论框架和清晰的面试指南。主要限制是我们只采访了父母,这是一项定性研究,排除得出坚定的结论。然而,我们的结果表明需要进行定量评估。
期望似乎受到(有经验的)健康的影响,努力自我管理,以及UI的社会影响,使这些主题得到解决变得至关重要。有趣的是,父母并不总是为了彻底解决白天的UI而去门诊部。相反,有些人只想知道是否存在潜在的医疗状况,或者想通过学习应对机制来减少社会影响。因此,排除潜在的医疗状况可能会刺激人们接受观察等待,而无需开始治疗。
Daytime urinary incontinence (UI) can have an enormous impact on a child\'s life, lowering both self-esteem and quality of life. Although most children start therapy after their first visit to our outpatient clinic, no studies have reported on parents\' or patients\' expectations of care for daytime UI in this setting.
We aimed to explore the expectations of the parents of children referred to an outpatient clinic for daytime UI.
This was a qualitative study that involved performing semi-structured interviews with the parents of children who had been referred for daytime UI (with or without nocturnal enuresis). Interviews took place between July 2018 and October 2018 and continued until saturation was reached. The results were transcribed verbatim and analyzed according to Giorgi\'s strategy of phenomenological data analysis.
Nine parents of children, aged 5-12 years old, were interviewed, revealing \"(Experienced) Health,\" Self-management,\" and \"Social Impact\" as the main themes that influenced parental expectations. All parents wanted to know if there was a medical explanation for UI, some were satisfied when diagnostics revealed no underlying condition, and others wanted treatment. Parents expressed no preferences about diagnostics or the content and duration of treatment, but they hoped that any previously attempted ineffective steps would not be repeated. Some parents defined treatment success as their child becoming completely dry, but most stated that learning coping strategies was more important.
This is the first study to explore the expectations of parents when attending outpatient care for children with daytime UI. We employed a strong theoretical framework with a clear interview guide. The main limitations are that we only interviewed parents and that this was a qualitative study, precluding the drawing of firm conclusions. Nevertheless, our results point to the need for quantitative evaluation.
Expectations seem to be influenced by (experienced) health, efforts at self-management, and the social impact of UI, making it critical that these themes are addressed. It was interesting to note that parents do not always attend outpatient departments with the goal of completely resolving daytime UI. Instead, some only want to know if there is an underlying medical condition or want to reduce the social impact by learning coping mechanisms. Excluding underlying medical conditions may therefore stimulate acceptance of watchful waiting without the need to start treatment.