未经评估:针对自闭症患者的专业干预措施通常会鼓励神经典型行为的发展。然而,出现或表现为神经典型的压力与负面的心理健康结果有关。因此,自闭症对神经典型性概念的看法是实证研究的关键领域。作为先前关于自闭症感知的研究的后续行动,本研究检查了自我认定为自闭症的YouTubers撰写的39个在线视频日志中所代表的神经典型性概念。该研究旨在了解自闭症对神经典型性的看法,以指导专业服务提供支持整体福祉的实践。
未经评估:与叙述性调查中经常实施的程序一致,我们确定了3个典型视频,这些视频呈现了关于神经典型性的显著且一致的叙述.我们提交了这三个视频的成绩单进行归纳主题分析,以确定它们的独特特征,从而确定它们所体现的叙事特征。之后,我们利用典型视频的独特特征,对数据集中的其余36个视频进行演绎分析.
UNASSIGNED:三个示例性视频展示了与整个数据集支持的关于神经典型性的三个不同叙述有关的特征:神经典型性是(1)成就;(2)伪装;(3)诅咒。在神经典型行为的可取性和可行性方面,这三种叙述截然不同。在所有的叙述中,神经典型行为与显著的努力相关.
UNASSIGNED:对服务自闭症社区的专业人员的影响包括需要准备为客户提供有关神经典型行为的不同叙述,在自闭症患者撰写的著作和媒体中呈现。第二个含义是需要使干预和教育目标与客户的观点和价值观保持一致。最后,独立于专业人士和客户之间建立的目标,前者必须监测与神经典型性制定相关的压力和努力,并做出相应的改变。
UNASSIGNED:为什么要进行这项研究?:专业人士通常希望帮助自闭症患者表现得像非自闭症患者(通常称为神经型患者)。然而,我们不太了解自闭症患者对神经典型性的看法。在这项研究中,我们分析了来自YouTubers的39个视频,这些视频被认定为自闭症患者,以了解他们对神经典型性的看法。这项研究的目的是什么?:我们的目标是直接向自闭症患者学习,并帮助专业人士(例如,心理学家和言语治疗师)为自闭症社区提供更好的服务。研究人员做了什么?:我们选择了三个视频,这些视频是关于神经典型性的不同思考方式的好例子。我们分析了这三个视频,以确定它们的独特功能。然后,我们在数据集中的其他36个视频中确定了这些特征的示例。研究结果如何?:我们确定了三种思考神经典型性的方式:神经典型性是(1)成就;(2)化装舞会或戏剧表演;(3)诅咒。这些关于神经典型性的思考方式在期望和认为可能的神经典型性的程度上大多不同。一个共同的特征是,神经典型的行为需要自闭症患者付出很多努力。这些发现对已知的结果有什么补充?:我们的研究结果强调了与神经典型行为相关的努力以及神经典型行为与心理健康之间的联系。这项研究可以帮助专业人士更好地了解自闭症患者的神经典型行为。它还有可能通过放大在科学研究中仍然代表性不足的自闭症声音来增加关于神经典型性的讨论。这项研究的潜在弱点是什么?:我们在数据中发现的关于神经典型性的思考方式可能并不能代表所有自闭症社区,因为我们数据中的大多数vlogger都是白人男性,他们发现患有阿斯伯格综合症。此外,我们的研究仅包括2005年至2015年间以英语录制并上传到YouTubeTM的视频.未来的研究应该包括来自自闭症谱系所有领域的个体,以及以更多不同格式和语言呈现的最新数据。这些发现将如何帮助现在或未来的自闭症成年人:我们的研究结果表明,为自闭症社区服务的专业人员应该能够与他人分享不同的神经典型性观点,帮助客户朝着对他们重要的目标努力,并监测由神经典型行为引起的压力迹象。这反过来会对自闭症社区的服务质量产生积极影响,并对自闭症患者的整体福祉产生积极影响。
UNASSIGNED: Professional interventions for autistic people often encourage the development of neurotypical behavior. However, the pressure to appear or behave neurotypically has been associated with negative mental health outcomes. Consequently, autistic perspectives on the concept of neurotypicality are a critical area for empirical research. As a follow-up to a prior study on perceptions of autism, the present study examined the concept of neurotypicality as represented in 39 online video logs authored by YouTubers who self-identified as autistic. The study aimed to understand autistic perspectives on neurotypicality to guide professional service provision toward practices that support overall well-being.
UNASSIGNED: Consistent with procedures frequently implemented within narrative inquiry, we identified three exemplary videos that presented salient and consistent narratives about neurotypicality. We submitted transcripts of these three videos to inductive thematic analysis to establish their distinctive features and hence the features of the narratives they embodied. Afterward, we used the distinctive features of the exemplary videos to deductively analyze the remaining 36 videos in the data set.
UNASSIGNED: The three exemplary videos presented features that related to three divergent narratives about neurotypicality that were supported by the data set as a whole: neurotypicality as (1) an achievement; (2) a masquerade; and (3) a curse. These three narratives differed sharply in regard to the desirability and feasibility of neurotypical conduct. Across all narratives, neurotypical behavior was associated with significant effort.
UNASSIGNED: Implications for professionals serving the autism community include the need to be prepared to offer clients different narratives about neurotypical behavior, as presented in writings and media authored by autistic individuals. A second implication concerns the need to align intervention and educational goals with a client\'s views and values. Finally, independent of the goals established between professionals and clients, the former must monitor the stress and effort associated with the enactment of neurotypicality and make changes accordingly.
UNASSIGNED: Why was this study done?: Professionals often want to help autistic clients to behave like people who are not autistic (often called neurotypicals). However, we do not know much about how people on the autism spectrum feel about the idea of neurotypicality. In this study, we analyzed 39 videos from YouTubers who identified as autistic to learn more about what they think of neurotypicality.What was the purpose of this study?: Our goal was to learn directly from autistic individuals and to help professionals (e.g., psychologists and speech-language therapists) to provide better services to the autistic community.What did the researchers do?: We chose three of the videos that were good examples of different ways of thinking about neurotypicality. We analyzed the three videos to identify their unique features. Then we identified examples of those features in the other 36 videos in our data set.What were the results of the study?: We identified three ways of thinking about neurotypicality: neurotypicality as (1) an achievement; (2) a masquerade or theatrical performance; and (3) a curse. These ways of thinking about neurotypicality differed mostly in regard to the extent to which neurotypicality was desired and considered possible. A shared characteristic was that neurotypical behavior required a lot of effort from autistic individuals.What do these findings add to what was already known?: The findings of our study highlight the effort associated with neurotypical behavior and the connection between neurotypical behavior and mental health. The study can help professionals to better understand what behaving neurotypically feels like for autistic individuals. It also has the potential to increase discussions about neurotypicality by amplifying the autistic voices that are still underrepresented in scientific studies.What are potential weaknesses in the study?: The ways of thinking about neurotypicality that we identified in our data may not be representative of all the autistic community because most of the vloggers in our data were white males who identified with Asperger\'s syndrome. Also, our study included only videos recorded in English and uploaded to
YouTubeTM between 2005 and 2015. Future studies should include individuals from all areas of the autism spectrum and more recent data presented in more varied formats and languages.How will these findings help autistic adults now or in the future?: The findings of our study suggest that professionals who serve the autistic community should be able to share with others different views of neurotypicality, help clients work toward goals that are important to them, and monitor signs of stress caused by the effort to behave neurotypically. This should in turn positively impact the quality of services provided to the autistic community and with it the overall well-being of people on the autism spectrum.